Re: Digest Number 1581

[Guest guest]

Dear friends,

wll hello from MO. Happy birthday Mike.

dawn--please go to the ER if you feel your brathing is comprimisd and

yourthroat is closing. This could be very serious, and otentially life

threatining. I have to leep with a C-PAP machine bcause my throat

collapses and obstructs my breathing. RP can caus the cartiledge rings

in the tracheal lining to swell and can thereby cut off your

breathing!!!!!! I do not want to scar you but pleae do not let this go

unattnded. My PCP is a pulmonologist which works out very nicely for

me. I have a lot of brathing ifficulties a a rult of rp, th rugs i've

taken and sclerosis from multipole4 bouts with neumonia. thrfore I have

COPD (hronic obstructive pulmonary disordr), asthma, emphathsmia. I had

a trach for almost a year. thy di not think I would evr b ale to gt rid

of it==but 'never' say 'never' to this hard head person. Oh well ==what

do thye now==thy also did not think i was going to live through the lat

two bouts with pneumonia. but as you see I provd them wrong, YES i do

beliee in miracles.

It wa atually hot and ery humid here toay--put the air conditioning

on yesteray. Ben gets home tonight. Next thursday w4e will be lving to

visit my mother and father an brother's family in GA. I wil probably

lydown in the back sea for5 a good art of th the 11 hour trip.

LTraveling is hard for me physially but it is so good for th spirit it

is worth it.

Last two ties my mother travel she got very ill so sh dos not want to

travel nymore. so I told her I would try to com and visit at least

twice4 a year. I am alo trying to plan a trip for my family an my two

brothrs family to get to gether at my brothrs bah housee in ocean city

new jersey(it will be complt4e in May) I told them I do not want to

have to gt sick again for us all to get togther.

well back is hurting so I must go for now. Love to all

denise