Samstag

[Guest guest]

Howdy Folks !!!!

This is your friendly German .LOL Still mean as ever .

No the TV show did not go to my head. LOL But

I did get 2 calls on it. One lady age 65 called and

ask me all about RP. I send her all the websites

thanks to . She talked to me about 1 hour.

LOL I hope to hear back from her. The other lady

was in her 40 that is all I know .She too has been

having a lot of problems with ears and throat. I

gave her also the websites plus told both to see

a good Rheumy DR. and a good ENT. I really was

very much surprised to hear from anyone. As you all

know being on the evening news the don't give you much

time to talk. But maybe it will help someone after all.

Now I truly think the Sunday paper article will reach

more people .Plus there the will write more about RP

in details. I do not know when the want to do that. Sorry !!

But you bet your bottom $ I will give here all I can.

Now I would like to "Willkommen M. to the best

Group you could ever find " Sorry you have RP but

at least you found us now and now you will learn a lot more

then most of the DRS know. I am proud of you for asking

all kinds of ?. It is my husband that has the RP. Right

now he is doing really great. He is on 3mg of Prednison ,

1800 mg Ibuproven 600mg 3x a day,.100mg 4x a day Cytotec , 2x a day Prilosec. The Cytotec and Prilosec is to protect his

Stomach form the prednison and Ibuprofen. 6 Tums a day

for the calcium. Plus Vitamins. Yup, it does take

some times a lot of medicine but hey it works for him .

I hope you will let us know more about your self. Like how

does your Family handle it. Plus we have a member list

you can join. For that list all I would need from you is your

Full name and Home Phone # and you E mail address.

Plus your Birthday . Now you do not have to give us your year.

Now some more good news . We also have our none profit

foundation membership drive going on right now. For only

a 15 $ a year contribution you can become a member that

will entitle you to a news letter and a membership card.

Hope you will enjoy it here as much as I do. Yes

here we tell yokes and talk about everything in our life .

Not just about RP. So let us know how we can help you.

Well I guess that does it for tonight. The Phone bandit has

to do some work here LOL

Remember RP is only a part of you so take your Medicine

and Vitamins ON TIME everyday so you get rp under control.

Love you all and be good OK .

Mrs. Nosey here.