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ARTO,

WOW!!! I'm impressed. Congratulations. How did you manage that?

Thank you for telling them about our group. Be sure to mention that much

more research money is needed for rare diseases and RP in particular.

Explain how orphan diseases are not researched much because there's no money

to be made by doing so.

Just go get em Arto and once again congrats on being picked.

W

>>>>>>>>>>>>>>>>>>>>>>>

I have a possibility to tell, how it is to be rare in a congress of

Reumaliitto (the Arthritis Foundation of Finland) in May. I´m an opening

speaker in the part of rare diseases.

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