Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 When I flare up I have to go to 30 mgs a day. Then I have to do the taper down thing every 5 days till I get to the point where my flare settles, sort of. With me it never really goes a way. My legs and feet look like I have some dreadful disease. I haven't been able to wear shorts for 2 years. Hate to go around looking like somebody has beat me up. If you are already at 25 mgs you probably should have a talk with your doctor and see what he suggests. I can well understand why you want to get down on the pred. I do too. But when I do, then I get " real " bad. For me, the vasculitis is the worst part of the RP. The bars are in the oven and BOY do they smell good. I was very tempted to just drink the Almaretto and forget the bars and go have a nap. Stuff sure does smell good. You have a good weekend and give my love to Valarie. I have lost a lot of my hair from the autoimmune disease and decided after seeing the message about the hat party that I would get one. Found a cute white one at Walmart and I just wear it everywhere. Love, Marilyn Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.