Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 I have been monitoring this site for about a month. My husband was dx. with OPCA in May of 2000. We went to U. of Michigan to see Dr. Sid Gilman in December of 2000. At that time was strictly cerebellum. He has progressed rapidly. His symptoms now include periods of total disorientation to place and time, visual disturbances,feeling of urgency when voiding, no incontinency of ua,but occasional incontinency of stool. .He continues to work,he has his own business. I suspect he has progressed to MSA but he refuses to be further evaluated.He did got to another neurologist lately but he feels he is just being blown off because he does'nt know what to do for him. The Dr. did refer him to Baser in Pittsburgh, Pa. Is anyone familiar with her? I am rambling on please forgive me. I have so many questions. By the way is 46. We have 2 sons Luke 13, Cris 8. Thanks for allowing me a place to seek information and share experiences. sincerely Lynn Pattison Quote Link to comment Share on other sites More sharing options...
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