Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 I have a possibility to tell, how it is to be rare in a congress of Reumaliitto (the Arthritis Foundation of Finland) in May. I´m an opening speaker in the part of rare diseases. I can tell my own feelings and experiences as I will, and I think there is enough to say for ten minutes, but if any of is willing to give some tips or just tell your own views, I could " speak louder " . In any case I´ll tell about our RP-list, not only to be polite to you. :-) I could have spoken more of our list, because they asked, too, if I could tell about possibilities of internet for a disabled, but I recommended a more active and experienced person for this. Thank´s her I´m with you, because she wrote on all possible message boards and then Janet/Kim, Jim, Sue, , Patty, ......... contacted me. Internet is a possibility for us, but some kind of threat for docs in these questions. ??? Any hints for closing words??? Kiitos! Arto PS. It´s in Finnish. Quote Link to comment Share on other sites More sharing options...
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