jerry - looking for waverley

[Guest guest]

Hi everyone, I am back. I had to quit my job abruptly when out

sick for 3 weeks- they were not compassionate. I was

overwhelmed by symptoms all day and the stress was making it

worse.

I was subscribed through my old jobs email plus I only recently

acquired a computer. But I am happy to be back.

I'm afraid I got much worse fast. I can no longer drive and my

grandmother lived with me for the lsat 6 months to help me out.

i aslo kept having adrenal failure, tachycardia, and fasting

hypoglycemia (when I last left off - I went in for a 3 day fast and

was very sick afterwards.)

I finally got n appt. with a new neurologist and have been

traveling from Phila. to baltimore - but it has been 3 months and

although he says he can help me he says he is too busy right

now and wants even more tests and I am extremely frustrated.

To top it off, my poor grandmother had a minor stroke this sat

morning at my place. She has been moved to rehab. at Penn.

And my Mom is moving to Fla. and is in total denial that any o

this is happening as is my Dad who lives in Fla. (they are

divorced.) It has gotten quite complicated.

I need to get well fast and I thought I might be able to be back at

work now - especially since I am out of funds. The only

possible new meds they are thinking of are anticholinase

9spelling) and beta blockers - but my experience with the latter

10 years ago for MVP was bad (it made my hypotension worse.)

the new dr. has only seen high b.p. and tachycardia on standing

and is now saying I have POTS. But my ongoing dr. knows

better - he sees my battle with hypotenson plus all of my bowel,

bladder, and other neuro symptoms.

hope all have been well, sorry to have left so abruptly

Waverley

[Guest guest]

Waverley,

It's good to see you back on the list. I'm sorry to

hear that you've had such a difficult time. This

disease is miserable, isn't it?

Carol & Rob

Lexington, MA

--- katihaiku wavebeau@...> wrote:

> Hi everyone, I am back. I had to quit my job

> abruptly when out

> sick for 3 weeks- they were not compassionate. I

> was

> overwhelmed by symptoms all day and the stress was

> making it

> worse.

>

> I was subscribed through my old jobs email plus I

> only recently

> acquired a computer. But I am happy to be back.

>

> I'm afraid I got much worse fast. I can no longer

> drive and my

> grandmother lived with me for the lsat 6 months to

> help me out.

> i aslo kept having adrenal failure, tachycardia, and

> fasting

> hypoglycemia (when I last left off - I went in for a

> 3 day fast and

> was very sick afterwards.)

>

> I finally got n appt. with a new neurologist and

> have been

> traveling from Phila. to baltimore - but it has been

> 3 months and

> although he says he can help me he says he is too

> busy right

> now and wants even more tests and I am extremely

> frustrated.

>

> To top it off, my poor grandmother had a minor

> stroke this sat

> morning at my place. She has been moved to rehab.

> at Penn.

> And my Mom is moving to Fla. and is in total denial

> that any o

> this is happening as is my Dad who lives in Fla.

> (they are

> divorced.) It has gotten quite complicated.

>

> I need to get well fast and I thought I might be

> able to be back at

> work now - especially since I am out of funds. The

> only

> possible new meds they are thinking of are

> anticholinase

> 9spelling) and beta blockers - but my experience

> with the latter

> 10 years ago for MVP was bad (it made my hypotension

> worse.)

> the new dr. has only seen high b.p. and tachycardia

> on standing

> and is now saying I have POTS. But my ongoing dr.

> knows

> better - he sees my battle with hypotenson plus all

> of my bowel,

> bladder, and other neuro symptoms.

>

> hope all have been well, sorry to have left so

> abruptly

>

> Waverley

>

>

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> unsubscribe by sending a blank email to

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