Guest guest Posted May 5, 2002 Report Share Posted May 5, 2002 For the past 2 hours I have sat here reading your messages. I feel like I have been looking through a window, seeing and hearing people I have never met but have been looking for over the past two years. My husband was diagnosed four years ago with cerebellar ataxia and three years ago that was changed to MSA. He is now in a wheelchair unable to balance, is catheterized, has severe sleep apnea, was hospitalized with pneumonia in Frebruary (in ICU w/ventilator), is difficult to understand, has double vision even with prisms in his glasses, has edema in his legs.....and the list goes on. The worst part, no one seems to have heard of MSA. The best parts: he has the most wonderful attitude and such an upbeat personality in spite of this awful disease. And, I have now found others who understand and share their knowledge. I feel like I have been silently screaming for help for the last two years and now I have found that help. Thank you. Jan Quote Link to comment Share on other sites More sharing options...
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