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  • 4 years later...

You know , what is up with these people, when I talked to someone

after being transfered threee times, they told me they had nothing on

file? It's all so difficult, seems like it depends on who you talk to,

I asked them when they would get FDA approval for Sarcoid, and they

told me they had not even applied yet, so it would be awhile.

For those that your insurance approves that's awesome and I hope you

can take it and get better. I'm sorry it doesn't work for some of you,

it just sounds like the best thing for Sarcoid. I am just going to

keep on praying for my healing, and for each and everyone of you to be

healed!!

Gods blessings,

Marla

In a message dated 1/22/06 8:59:20 AM

Pacific Standard Time, mebramer@... writes:

Remicade

(Centocor) does have published trials also--so they can help you via

the help line.

http://www.chestjournal.org/cgi/content/abstract/127/3/1064

http://www.clinicaltrials.gov/ct/show/NCT00073437

http://www.ccjm.org/PDFFILES/Culver204.pdf

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=11434729 & dopt=Abstract

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

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  • 5 months later...
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Claude Manzanares wrote: To: Neurosarcoidosis From: "Claude Manzanares" Date: Fri, 07 Jul 2006 17:12:51 -0000Subject: REMICADE Hello everyone,I've had the ns since 1998 and am having increased problems with numbness in my lower left leg, unable to run jump can not walk long distances. I've even had to get a handicap placard for my vehicles. My neurologist has referred me to another with a little more experience with ns and

he suggests that I try remicade. Can anyone tell me whatever they know about this drug, how's it taken, side effects, costs, etc. Would like as much info as possible before I try it.Thank you all very much.NOTICE: This electronic mail transmission is not

intended for transmission to, or receipt by, any unauthorized persons. If you have received this electronic mail transmission in error, please delete it from your system without copying it, and notify the sender by reply e-mail.

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

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Claude Manzanares wrote: To: Neurosarcoidosis From: "Claude Manzanares" Date: Fri, 07 Jul 2006 17:12:51 -0000Subject: REMICADE Hello everyone,I've had the ns since 1998 and am having increased problems with numbness in my lower left leg, unable to run jump can not walk long distances. I've even had to get a handicap placard for my vehicles. My neurologist has referred me to another with a little more experience with ns and

he suggests that I try remicade. Can anyone tell me whatever they know about this drug, how's it taken, side effects, costs, etc. Would like as much info as possible before I try it.Thank you all very much.NOTICE: This electronic mail transmission is not

intended for transmission to, or receipt by, any unauthorized persons. If you have received this electronic mail transmission in error, please delete it from your system without copying it, and notify the sender by reply e-mail.

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

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Claude Manzanares wrote: To: Neurosarcoidosis From: "Claude Manzanares" Date: Fri, 07 Jul 2006 17:12:51 -0000Subject: REMICADE Hello everyone,I've had the ns since 1998 and am having increased problems with numbness in my lower left leg, unable to run jump can not walk long distances. I've even had to get a handicap placard for my vehicles. My neurologist has referred me to another with a little more experience with ns and

he suggests that I try remicade. Can anyone tell me whatever they know about this drug, how's it taken, side effects, costs, etc. Would like as much info as possible before I try it.Thank you all very much.NOTICE: This electronic mail transmission is not

intended for transmission to, or receipt by, any unauthorized persons. If you have received this electronic mail transmission in error, please delete it from your system without copying it, and notify the sender by reply e-mail.

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

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