Guest guest Posted May 5, 2002 Report Share Posted May 5, 2002 Hi Jan, I'm so glad you found us. Where are you from? Is your husband still in hospital or back home now? Hugs, Pam Nova Scotia, Canada New Member > For the past 2 hours I have sat here reading your messages. I feel > like I have been looking through a window, seeing and hearing people > I have never met but have been looking for over the past two years. > My husband was diagnosed four years ago with cerebellar ataxia and > three years ago that was changed to MSA. He is now in a wheelchair > unable to balance, is catheterized, has severe sleep apnea, was > hospitalized with pneumonia in Frebruary (in ICU w/ventilator), is > difficult to understand, has double vision even with prisms in his > glasses, has edema in his legs.....and the list goes on. The worst > part, no one seems to have heard of MSA. The best parts: he has the > most wonderful attitude and such an upbeat personality in spite of > this awful disease. And, I have now found others who understand and > share their knowledge. I feel like I have been silently screaming > for help for the last two years and now I have found that help. > Thank you. Jan Quote Link to comment Share on other sites More sharing options...
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