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Re: Digest Number 1616-KP

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,

So sorry to hear that you have Kidney involvement. Do they think it's the

RP? I pray Plaquinil(sp?) will work for you. Brett's doctor thinks it is

helping him/ I'm not so sure though. Let us know what you decide.

I am also worried about Brett's eyes...I made an appointment for him today.

I'll keep the list posted.

Take care of yourself !

B.

> Date: Sun, 15 Apr 2001 08:31:22 -0000

> From: Idigflower@...

>Subject: (unknown)

>

>I have recently got some rp problems with my Kiddneys from the RP (I

>am also thought to be in remission) I was told to start Plquanal

>(sp), I am picking it up tomorrow. I never had Kidney involvement, is

>this normal? and do you think the Plaqunal will work? I was told

>MANY MANY times by all the Dr's it should be an " ok " durg to take

>that it could help my skin also.......What are your thoughts?

>

>I do know about the Eye problwms that can happen, but my eyes are ok

>now. THe only reason I am now thinking about doing it is because " it

>will also help my skin "

>

>I also had to raise the Pred back again because of the kidney

>problem, I hate to think about all this because I feel just fine and

>I am in remossion (well I thought) I have no other problems right now

>(Ears or joints) so why and how can it effect the kidneys and skin

>only?

>

>kp

>

>

I

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