help

[Guest guest]

Sheila,

Thanks for a great informative post. Do you have a J-Pouch?

So I have been taking lomotil (pills); should I switch to Immodium (pills-?).

I am saving that post...thanks bunches.

karima

[Guest guest]

I don't mind the white (LOL).

Hope you are having a good day.

karima

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have my

pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.8.8/37 - Release Date: 7/1/2005

[Guest guest]

I don't mind the white (LOL).

Hope you are having a good day.

karima

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have my

pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.8.8/37 - Release Date: 7/1/2005

[Guest guest]

Yeah, I guess it could be worse....we sure don't want to see them beige or

brown, do we??LOLOL

You hang in there, kiddo:)

nancy j

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have

my pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.8.8/37 - Release Date: 7/1/2005

[Guest guest]

Yeah, I guess it could be worse....we sure don't want to see them beige or

brown, do we??LOLOL

You hang in there, kiddo:)

nancy j

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have

my pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.8.8/37 - Release Date: 7/1/2005

[Guest guest]

White is fine with me to. Then no decisions to make of what color to buy:) I

just wonder what people did before depends?????? On a personal note I wear the

underpants pull on kind. Never tried them till my daughter bought me a package.

Could never go back to the original ones now.

I have spent the last two days mostly in bed. Great holiday. Since Friday I have

one foot and ankle really swollen and can't figure why. It keeps the swelling

down if I stay off it. Not red, does not hurt and makes no sense. Will call Dr

if don't get better in few days. My son in law just came over to check on me

because I was sleeping and did not answer phone. He wanted to take me to ER but

don't think it warrants that. Besides a holiday they will be packed.

Hil

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have my

pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

[Guest guest]

White is fine with me to. Then no decisions to make of what color to buy:) I

just wonder what people did before depends?????? On a personal note I wear the

underpants pull on kind. Never tried them till my daughter bought me a package.

Could never go back to the original ones now.

I have spent the last two days mostly in bed. Great holiday. Since Friday I have

one foot and ankle really swollen and can't figure why. It keeps the swelling

down if I stay off it. Not red, does not hurt and makes no sense. Will call Dr

if don't get better in few days. My son in law just came over to check on me

because I was sleeping and did not answer phone. He wanted to take me to ER but

don't think it warrants that. Besides a holiday they will be packed.

Hil

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have my

pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

[Guest guest]

Hil, could you have a blood clot in your leg? When I had one, my leg started to

swell, my foot and ankle included, but the whole lower leg. I also had pain for

several days before that. I wouldnt mess around with it though! ~~Dianna

Hil hilsshop@...> wrote:White is fine with me to. Then no

decisions to make of what color to buy:) I just wonder what people did before

depends?????? On a personal note I wear the underpants pull on kind. Never tried

them till my daughter bought me a package. Could never go back to the original

ones now.

I have spent the last two days mostly in bed. Great holiday. Since Friday I have

one foot and ankle really swollen and can't figure why. It keeps the swelling

down if I stay off it. Not red, does not hurt and makes no sense. Will call Dr

if don't get better in few days. My son in law just came over to check on me

because I was sleeping and did not answer phone. He wanted to take me to ER but

don't think it warrants that. Besides a holiday they will be packed.

Hil

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have my

pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

[Guest guest]

Hil, could you have a blood clot in your leg? When I had one, my leg started to

swell, my foot and ankle included, but the whole lower leg. I also had pain for

several days before that. I wouldnt mess around with it though! ~~Dianna

Hil hilsshop@...> wrote:White is fine with me to. Then no

decisions to make of what color to buy:) I just wonder what people did before

depends?????? On a personal note I wear the underpants pull on kind. Never tried

them till my daughter bought me a package. Could never go back to the original

ones now.

I have spent the last two days mostly in bed. Great holiday. Since Friday I have

one foot and ankle really swollen and can't figure why. It keeps the swelling

down if I stay off it. Not red, does not hurt and makes no sense. Will call Dr

if don't get better in few days. My son in law just came over to check on me

because I was sleeping and did not answer phone. He wanted to take me to ER but

don't think it warrants that. Besides a holiday they will be packed.

Hil

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have my

pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

[Guest guest]

But you will go tomorrow??? Yes??? Keep taking care of yourself.

Karima

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have

my pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

[Guest guest]

But you will go tomorrow??? Yes??? Keep taking care of yourself.

Karima

Re: help

>>>I am broken heartedly lonely right now but I am breathing and I do have

my pooch pals and yes, I can wear the depends and they are quite okay.

Have fun this afternoon.

Karima

>>>

Just a note to let you know that you are in my prayers, Karima:)

I think we need to design some prettier Depends, don't you? I'm rather bored

with the white.

nancy j

[Guest guest]

That was my first thought especially because it is known I do have clogged

arteries in my legs. Since the color is fine and no pain though I was just

waiting a bit. I hate going to the ER but might end up there yet. The lower part

of my leg is swollen also. I know when I got arthritis in the other ankle it

swelled way up but only the ankle. My daughter's mother in law was taken to ER

few weeks ago. her feet swelled real bad and turned purple. They ruled out blood

clot and think its the chemo pills she is on. They did say people with cancer

are prone to blood clots. Of course I don't have cancer. At least I keep telling

myself:)

Hil

Re: help

Hil, could you have a blood clot in your leg? When I had one, my leg started

to swell, my foot and ankle included, but the whole lower leg. I also had pain

for several days before that. I wouldnt mess around with it though! ~~Dianna

[Guest guest]

That was my first thought especially because it is known I do have clogged

arteries in my legs. Since the color is fine and no pain though I was just

waiting a bit. I hate going to the ER but might end up there yet. The lower part

of my leg is swollen also. I know when I got arthritis in the other ankle it

swelled way up but only the ankle. My daughter's mother in law was taken to ER

few weeks ago. her feet swelled real bad and turned purple. They ruled out blood

clot and think its the chemo pills she is on. They did say people with cancer

are prone to blood clots. Of course I don't have cancer. At least I keep telling

myself:)

Hil

Re: help

Hil, could you have a blood clot in your leg? When I had one, my leg started

to swell, my foot and ankle included, but the whole lower leg. I also had pain

for several days before that. I wouldnt mess around with it though! ~~Dianna

[Guest guest]

well...lomotil is a script...so if your doc thinks you need it stay on it.

The immodium is over the counter....and I personally like the chewable ones...I

take three when things are " going " too much. It doesn't stop it ....just

seems to slow it down some. Since the immodium is over the counter it shouldn't

hurt to try it...just ask the pharmacist if they think there'll be any problem

with anything you are currently taking.

Glad that the info helped. I hate feeling tied to the toidy - so I can sure

understand what your going through. No, I didn't have a j-pouch...my doc

didn't seem to care for them. Not saying it's wrong or right...I mean - the

theory of j-pouch makes sense to me. But I guess the reality is how it really

ends

up working for the patient.

Just keep trying....find things you can do safely and keep trying different

combinations of things. I went out today and photographed and sketched. And

saw a movie. I didn't have to go once in the approx 7 hours. Amazing!! Some

days - I can't get off the pot for more than an hour in between if that.

But the days when I can go for long periods of time are getting more....slowly.

But it's still in the right direction. I have days when I can't stand

it...as I did recently. But the thing is...if I do what I'm supposed to do...I

know

that the next days is usually a good one. Then I get back on course and stay

on it as long as I can. It makes those not so good days not so bad. Or at

least tolerable. Prayers help too!

Hoping you feel better.

Sheila

[Guest guest]

well...lomotil is a script...so if your doc thinks you need it stay on it.

The immodium is over the counter....and I personally like the chewable ones...I

take three when things are " going " too much. It doesn't stop it ....just

seems to slow it down some. Since the immodium is over the counter it shouldn't

hurt to try it...just ask the pharmacist if they think there'll be any problem

with anything you are currently taking.

Glad that the info helped. I hate feeling tied to the toidy - so I can sure

understand what your going through. No, I didn't have a j-pouch...my doc

didn't seem to care for them. Not saying it's wrong or right...I mean - the

theory of j-pouch makes sense to me. But I guess the reality is how it really

ends

up working for the patient.

Just keep trying....find things you can do safely and keep trying different

combinations of things. I went out today and photographed and sketched. And

saw a movie. I didn't have to go once in the approx 7 hours. Amazing!! Some

days - I can't get off the pot for more than an hour in between if that.

But the days when I can go for long periods of time are getting more....slowly.

But it's still in the right direction. I have days when I can't stand

it...as I did recently. But the thing is...if I do what I'm supposed to do...I

know

that the next days is usually a good one. Then I get back on course and stay

on it as long as I can. It makes those not so good days not so bad. Or at

least tolerable. Prayers help too!

Hoping you feel better.

Sheila

[Guest guest]

Everybody one two three EWWWWWW!!!

Tee-Hee

Narice

In a message dated 7/4/2005 4:03:47 PM Eastern Standard Time,

tsalagi@... writes:

Yeah, I guess it could be worse....we sure don't want to see them beige or

brown, do we??LOLOL

You hang in there, kiddo:)

nancy j

----- Original Message -----

From: Barbara Gari

To: colon_cancer_support

Sent: Monday, July 04, 2005 2:43 PM

Subject: Re: help

I don't mind the white (LOL).

Hope you are having a good day.

karima

[Guest guest]

Everybody one two three EWWWWWW!!!

Tee-Hee

Narice

In a message dated 7/4/2005 4:03:47 PM Eastern Standard Time,

tsalagi@... writes:

Yeah, I guess it could be worse....we sure don't want to see them beige or

brown, do we??LOLOL

You hang in there, kiddo:)

nancy j

----- Original Message -----

From: Barbara Gari

To: colon_cancer_support

Sent: Monday, July 04, 2005 2:43 PM

Subject: Re: help

I don't mind the white (LOL).

Hope you are having a good day.

karima

[Guest guest]

I have DVT (deep vein thrombosis), usually the clot causes pain, but I've read

not always. It would make one leg swell instead of both, like happened to me.

The artery thing you have might be peripheral arterial disease, that is usually

pain in both legs enhanced by walking, I dont know if that makes your leg swell

or not. When you press on your shinbone for several seconds, does it leave a

dent? I had that, as the blood clot prohibits blood from leaving your leg and

causes fluid buildup, other things cause swelling too, just please get it

checked out soon. ~~Dianna

Hil hilsshop@...> wrote:That was my first thought especially

because it is known I do have clogged arteries in my legs. Since the color is

fine and no pain though I was just waiting a bit. I hate going to the ER but

might end up there yet. The lower part of my leg is swollen also. I know when I

got arthritis in the other ankle it swelled way up but only the ankle. My

daughter's mother in law was taken to ER few weeks ago. her feet swelled real

bad and turned purple. They ruled out blood clot and think its the chemo pills

she is on. They did say people with cancer are prone to blood clots. Of course I

don't have cancer. At least I keep telling myself:)

Hil

Re: help

Hil, could you have a blood clot in your leg? When I had one, my leg started

to swell, my foot and ankle included, but the whole lower leg. I also had pain

for several days before that. I wouldnt mess around with it though! ~~Dianna

[Guest guest]

I have DVT (deep vein thrombosis), usually the clot causes pain, but I've read

not always. It would make one leg swell instead of both, like happened to me.

The artery thing you have might be peripheral arterial disease, that is usually

pain in both legs enhanced by walking, I dont know if that makes your leg swell

or not. When you press on your shinbone for several seconds, does it leave a

dent? I had that, as the blood clot prohibits blood from leaving your leg and

causes fluid buildup, other things cause swelling too, just please get it

checked out soon. ~~Dianna

Hil hilsshop@...> wrote:That was my first thought especially

because it is known I do have clogged arteries in my legs. Since the color is

fine and no pain though I was just waiting a bit. I hate going to the ER but

might end up there yet. The lower part of my leg is swollen also. I know when I

got arthritis in the other ankle it swelled way up but only the ankle. My

daughter's mother in law was taken to ER few weeks ago. her feet swelled real

bad and turned purple. They ruled out blood clot and think its the chemo pills

she is on. They did say people with cancer are prone to blood clots. Of course I

don't have cancer. At least I keep telling myself:)

Hil

Re: help

Hil, could you have a blood clot in your leg? When I had one, my leg started

to swell, my foot and ankle included, but the whole lower leg. I also had pain

for several days before that. I wouldnt mess around with it though! ~~Dianna

[Guest guest]

Geez I wish I could zap myself over there and help you out! Here is a big cyber

hug just the same! Jay

Re: Re: JAY/disconnecting technician!!!

Luke is my favorite gospel! Glad you found a little peace but I'll be

praying you find a little HEALING too.

Hang in there.

Narice

[Guest guest]

Geez I wish I could zap myself over there and help you out! Here is a big cyber

hug just the same! Jay

Re: Re: JAY/disconnecting technician!!!

Luke is my favorite gospel! Glad you found a little peace but I'll be

praying you find a little HEALING too.

Hang in there.

Narice

[Guest guest]

The swelling does seem to be down some tonight and I will call my Dr tomorrow

and see what he thinks. Probably will tell me to come in or is good about

sending me to ER as he is 45 minutes from me and knows I have to get a ride. He

always prefers to see me himself. Even with the distance I won't change as been

going to him for 22 yrs. No tried and it don't leave any dent:) I was forced to

quit work because I could not walk but a few feet before the pain in both legs

started. I was being checked by a vascular surgeon and the medication I was on

was really helping. Some where along the line I got taken off that med but still

have not had the pain or terrible cramping in feet like I used to have. My last

appt for a check up with him we cancelled as I had just been diagnosed with the

cancer and been busy with those Dr's since. I don't walk much and if I do the

pain is not there. I also need one knee replaced but have decided I like that

knee and will keep it. Being housebound with the colon problem I do not get

enough exercise except going up and down stairs to bathroom all day. That is

something I have to change and start taking the dog for walks or something even

if it is back and forth in front of the house. I am afraid to go far as my knee

will lock up sometimes and I am stuck:) My neighbors all know me well so would

think nothing of me just walking back and fourth but it has been either to cold

or way to hot to get out there. My life time handicap sticker does come in

handy for these Dr appts though:)

Hil

Re: help

I have DVT (deep vein thrombosis), usually the clot causes pain, but I've read

not always. It would make one leg swell instead of both, like happened to me.

The artery thing you have might be peripheral arterial disease, that is usually

pain in both legs enhanced by walking, I dont know if that makes your leg swell

or not. When you press on your shinbone for several seconds, does it leave a

dent? I had that, as the blood clot prohibits blood from leaving your leg and

causes fluid buildup, other things cause swelling too, just please get it

checked out soon. ~~Dianna

[Guest guest]

The swelling does seem to be down some tonight and I will call my Dr tomorrow

and see what he thinks. Probably will tell me to come in or is good about

sending me to ER as he is 45 minutes from me and knows I have to get a ride. He

always prefers to see me himself. Even with the distance I won't change as been

going to him for 22 yrs. No tried and it don't leave any dent:) I was forced to

quit work because I could not walk but a few feet before the pain in both legs

started. I was being checked by a vascular surgeon and the medication I was on

was really helping. Some where along the line I got taken off that med but still

have not had the pain or terrible cramping in feet like I used to have. My last

appt for a check up with him we cancelled as I had just been diagnosed with the

cancer and been busy with those Dr's since. I don't walk much and if I do the

pain is not there. I also need one knee replaced but have decided I like that

knee and will keep it. Being housebound with the colon problem I do not get

enough exercise except going up and down stairs to bathroom all day. That is

something I have to change and start taking the dog for walks or something even

if it is back and forth in front of the house. I am afraid to go far as my knee

will lock up sometimes and I am stuck:) My neighbors all know me well so would

think nothing of me just walking back and fourth but it has been either to cold

or way to hot to get out there. My life time handicap sticker does come in

handy for these Dr appts though:)

Hil

Re: help

I have DVT (deep vein thrombosis), usually the clot causes pain, but I've read

not always. It would make one leg swell instead of both, like happened to me.

The artery thing you have might be peripheral arterial disease, that is usually

pain in both legs enhanced by walking, I dont know if that makes your leg swell

or not. When you press on your shinbone for several seconds, does it leave a

dent? I had that, as the blood clot prohibits blood from leaving your leg and

causes fluid buildup, other things cause swelling too, just please get it

checked out soon. ~~Dianna

[Guest guest]

The reality of the j-pouch is that it is a necessity for someone like me who had

their rectum removed. Fortunately my doc was able to save the sphincter and

that is what the j-pouch is attached to.

I had a much better day in that I ate and did not obsess. Of course, I didn't

go at all today so I had the cup of tea and we will see what goes on tonight. I

am more encouraged today than I was yesterday.

Plus, the gals from the j-pouch chat told me not to let this keep me in the

house. Today I stayed in because all the New Yorkies are up here doing the

weekend thing and they drive like loonies.

Have a good day.

karima

Re: help

well...lomotil is a script...so if your doc thinks you need it stay on it.

The immodium is over the counter....and I personally like the chewable

ones...I

take three when things are " going " too much. It doesn't stop it ....just

seems to slow it down some. Since the immodium is over the counter it

shouldn't

hurt to try it...just ask the pharmacist if they think there'll be any problem

with anything you are currently taking.

Glad that the info helped. I hate feeling tied to the toidy - so I can sure

understand what your going through. No, I didn't have a j-pouch...my doc

didn't seem to care for them. Not saying it's wrong or right...I mean - the

theory of j-pouch makes sense to me. But I guess the reality is how it really

ends

up working for the patient.

Just keep trying....find things you can do safely and keep trying different

combinations of things. I went out today and photographed and sketched. And

saw a movie. I didn't have to go once in the approx 7 hours. Amazing!!

Some

days - I can't get off the pot for more than an hour in between if that.

But the days when I can go for long periods of time are getting

more....slowly.

But it's still in the right direction. I have days when I can't stand

it...as I did recently. But the thing is...if I do what I'm supposed to do...I

know

that the next days is usually a good one. Then I get back on course and stay

on it as long as I can. It makes those not so good days not so bad. Or at

least tolerable. Prayers help too!

Hoping you feel better.

Sheila

[Guest guest]

The reality of the j-pouch is that it is a necessity for someone like me who had

their rectum removed. Fortunately my doc was able to save the sphincter and

that is what the j-pouch is attached to.

I had a much better day in that I ate and did not obsess. Of course, I didn't

go at all today so I had the cup of tea and we will see what goes on tonight. I

am more encouraged today than I was yesterday.

Plus, the gals from the j-pouch chat told me not to let this keep me in the

house. Today I stayed in because all the New Yorkies are up here doing the

weekend thing and they drive like loonies.

Have a good day.

karima

Re: help

well...lomotil is a script...so if your doc thinks you need it stay on it.

The immodium is over the counter....and I personally like the chewable

ones...I

take three when things are " going " too much. It doesn't stop it ....just

seems to slow it down some. Since the immodium is over the counter it

shouldn't

hurt to try it...just ask the pharmacist if they think there'll be any problem

with anything you are currently taking.

Glad that the info helped. I hate feeling tied to the toidy - so I can sure

understand what your going through. No, I didn't have a j-pouch...my doc

didn't seem to care for them. Not saying it's wrong or right...I mean - the

theory of j-pouch makes sense to me. But I guess the reality is how it really

ends

up working for the patient.

Just keep trying....find things you can do safely and keep trying different

combinations of things. I went out today and photographed and sketched. And

saw a movie. I didn't have to go once in the approx 7 hours. Amazing!!

Some

days - I can't get off the pot for more than an hour in between if that.

But the days when I can go for long periods of time are getting

more....slowly.

But it's still in the right direction. I have days when I can't stand

it...as I did recently. But the thing is...if I do what I'm supposed to do...I

know

that the next days is usually a good one. Then I get back on course and stay

on it as long as I can. It makes those not so good days not so bad. Or at

least tolerable. Prayers help too!

Hoping you feel better.

Sheila