Re: Son just diagnosed with Ulcerative Colitis - looking into SCD

August 5, 2009

The easiest thing is to have the whole family go on the diet. You'll

all be healthier in the long run. There are desserts on this diet. It

is possible to get enough calories by eating meats, fruits, vegetables.

I have a 13 year old with Crohn's who has been in remission for 18

months on this diet alone, no drugs. It's not easy to begin the diet

but once you have it down it's not tough, just more time spent

cooking. He barely tolerated it. It's not easy because teenagers don't

think about their health, they just want to be like their friends.

You could try the intro diet for a week or two and then try almond

flour. My son never had a problem with it but I realize UC is different

than Crohn's.

Good luck.

Adam

caralycalnikmom wrote:

> Hello! My 14 year old son was just diagnosed with Ulcerative Colitis last

week and I've been doing tons of research on how to best help him. We're already

gluten free and I have a good grasp of nutrition and we eat pretty healthy, so I

have an understanding of what the diet is and why it should work. I will go on

the diet with him. The SCD looks very interesting, but I have some questions

and I'm hoping someone on here can help.

>

> My son and I can't tolerate dairy, except for small amounts of goat butter or

sheep milk cheese. Is it possible to get enough calories for a 14 year old

without dairy foods on this program? He's lost 20 pounds in the past few months

and really needs to gain some back. (I, on the other hand, need to lose about

20 pounds.)

>

> I have a husband and 3 other children and work full-time once school starts.

Is it possible to cook just one meal (breakfast and dinner) for everyone, with

maybe added side dishes for the others? I don't have time to cook separate

meals, since I already cook and bake everything from scratch to be gluten free.

>

> Does anyone on here have a teenager on the program? Are there enough food

choices to make it tolerable for a teenager? He's actually pretty good about

following his gluten free diet, but he does like desserts and snacks, which look

like they're the biggest challenge. He probably can't have many nuts to start

with, since his intestines are pretty damaged, so I'm not sure how I could make

breads and muffins and things like that with almond flour that he could eat.

>

> Thanks in advance for helping!

>

> ------------------------------------

>

August 5, 2009

Thanks for the response. I'm not sure I could get my whole family totally on

the diet. I have 3 teenagers and a 12 year old and we are already gluten free.

That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids

stick to a more restrictive diet that they don't need to be on would be pretty

tough. I'm hoping that in " real life " I could make one dinner that everyone

could eat and just have optional sides. Same for breakfast. Everyone packs

their own lunches, so that shouldn't be hard. I already spend a lot of time in

the kitchen making meals.

Another question - has anyone gone into remission from UC for an extended period

of time? Do you stick to the diet fanatically after going into remission or

relax a little?

August 5, 2009

Thanks for the response. I'm not sure I could get my whole family totally on

the diet. I have 3 teenagers and a 12 year old and we are already gluten free.

That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids

stick to a more restrictive diet that they don't need to be on would be pretty

tough. I'm hoping that in " real life " I could make one dinner that everyone

could eat and just have optional sides. Same for breakfast. Everyone packs

their own lunches, so that shouldn't be hard. I already spend a lot of time in

the kitchen making meals.

Another question - has anyone gone into remission from UC for an extended period

of time? Do you stick to the diet fanatically after going into remission or

relax a little?

August 5, 2009

I'm the one on the diet, and I have teenagers and a hubby to feed. I know they

would not be happy on SCD. I do make a legal main course and then some rice, or

potatoes. Right now I have 2 chickens roasting in the oven and one in the crock

pot for soup ( for me!). I have rice in the rice cooker for them, and will cook

some veggies. They're not big on veggies anyway.

Like Alyssa- I'm pretty happy feeling better on a limited diet than eating

everything. Pecanbread.com has kid friendly recipes, and stages for introducing

foods for your son. You can make a whole pot of stewed apples- add cinnamon.

Frozen bananas are good snacks. He can munch on hamburger patties. Hopefully he

will get into nut butters in a while and he can have the nut butter brownies on

pecanbread.com.

Hope he feels better soon!

PJ

>

> Thanks for the response. I'm not sure I could get my whole family totally on

the diet. I have 3 teenagers and a 12 year old and we are already gluten free.

That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids

stick to a more restrictive diet that they don't need to be on would be pretty

tough. I'm hoping that in " real life " I could make one dinner that everyone

could eat and just have optional sides. Same for breakfast. Everyone packs

their own lunches, so that shouldn't be hard. I already spend a lot of time in

the kitchen making meals.

>

> Another question - has anyone gone into remission from UC for an extended

period of time? Do you stick to the diet fanatically after going into remission

or relax a little?

>

August 5, 2009

Don't give the diet a label, just do it! As for your son, he needs to understand if he doesn't comply he will be in a lot of pain at some point.

Val

UC 2007

Subject: Re: Son just diagnosed with Ulcerative Colitis - looking into SCDTo: BTVC-SCD Date: Wednesday, August 5, 2009, 5:55 PM

I'm the one on the diet, and I have teenagers and a hubby to feed. I know they would not be happy on SCD. I do make a legal main course and then some rice, or potatoes. Right now I have 2 chickens roasting in the oven and one in the crock pot for soup ( for me!). I have rice in the rice cooker for them, and will cook some veggies. They're not big on veggies anyway.Like Alyssa- I'm pretty happy feeling better on a limited diet than eating everything. Pecanbread.com has kid friendly recipes, and stages for introducing foods for your son. You can make a whole pot of stewed apples- add cinnamon. Frozen bananas are good snacks. He can munch on hamburger patties. Hopefully he will get into nut butters in a while and he can have the nut butter brownies on pecanbread.com.Hope he feels better soon!PJ>> Thanks for the response. I'm not sure I could get my whole family totally on the diet. I have 3 teenagers and a 12 year old and we are already gluten free. That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids stick to a more restrictive diet that they don't need to be on would be pretty tough. I'm hoping that in "real life" I could make one dinner that everyone could eat and just have optional sides. Same for breakfast. Everyone packs their own lunches, so that shouldn't be hard. I already spend a lot of time in the kitchen making meals.> > Another question - has anyone gone into remission from UC for an extended period of time? Do you stick to the diet fanatically after going into remission or relax a little?>

August 5, 2009

Don't give the diet a label, just do it! As for your son, he needs to understand if he doesn't comply he will be in a lot of pain at some point.

Val

UC 2007

Subject: Re: Son just diagnosed with Ulcerative Colitis - looking into SCDTo: BTVC-SCD Date: Wednesday, August 5, 2009, 5:55 PM

I'm the one on the diet, and I have teenagers and a hubby to feed. I know they would not be happy on SCD. I do make a legal main course and then some rice, or potatoes. Right now I have 2 chickens roasting in the oven and one in the crock pot for soup ( for me!). I have rice in the rice cooker for them, and will cook some veggies. They're not big on veggies anyway.Like Alyssa- I'm pretty happy feeling better on a limited diet than eating everything. Pecanbread.com has kid friendly recipes, and stages for introducing foods for your son. You can make a whole pot of stewed apples- add cinnamon. Frozen bananas are good snacks. He can munch on hamburger patties. Hopefully he will get into nut butters in a while and he can have the nut butter brownies on pecanbread.com.Hope he feels better soon!PJ>> Thanks for the response. I'm not sure I could get my whole family totally on the diet. I have 3 teenagers and a 12 year old and we are already gluten free. That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids stick to a more restrictive diet that they don't need to be on would be pretty tough. I'm hoping that in "real life" I could make one dinner that everyone could eat and just have optional sides. Same for breakfast. Everyone packs their own lunches, so that shouldn't be hard. I already spend a lot of time in the kitchen making meals.> > Another question - has anyone gone into remission from UC for an extended period of time? Do you stick to the diet fanatically after going into remission or relax a little?>

August 5, 2009

Loved your response, Alysa. Said well....

My dd (turning 12 next month) has been SCD for over three years, after being

dx'ed w. Crohn's. She is almost one year w/o meds.

I have four kids, run a home-business and homeschool 2-3 of my kids each year,

so I hear you about the time constraints, although yours definitely seem more

than mine . You can absolutely make a main dish that's SCD and then add in

non-SCD side dishes for the other folks. For example, I will make SCD chili

(advanced food, need to be 6 months symptom-free before trying beans) and the

non-SCD members of my family will eat corn tortillas with it. This was hard for

my daughter at first (so we didn't do it....), but she was only 8 1/2 when we

started, and your son is, hopefully, old enough to have Alysa's attitude about

this all.

My main reason for writing is to suggest you start your son as soon as possible

so that he can, hopefully, be at Stage 2 or 3 by the time school starts and he

needs to eat lunch out and you're back at work and w. less time to cook.

If it's a financial option for you, I would suggest

--1) buying some pre-made things from one of the SCD bakeries around (we've

enjoyed the things we've bought from DigestiveWellness.com and Esther, who runs

it, is very nice as well as knowledgeable about SCD)

--2) consider having a professional cleaner come in so that you can take what

little time you have and concentrate on cooking

--3) consider hiring a professional chef to make some meals for you. I was able

to do a trade when my dd started, and we got a few lovely meals from a chef who

checked every ingredient w. me and made my MIL's birthday party a success when

it could have been a culinary disaster!

Good luck to you and your son. btw, why is your family gluten-free? If it's

for celiac or ASD, going SCD should help both

Ellen in Boston

11 y/o dd scd since 5/06

med-free for 11 months

if you're curious, our home business is www.4SistersSoaps.com

Funky Soaps 4 Funky Folks

August 5, 2009

Thanks for the encouragement!

We aren't in a financial place to hire anything done. I do all the cooking and

everyone pitches in with cleaning. I'm a good cook and baker, so I'm not

worried about being able to make things, just the time involved.

I'm gluten free because I had major health problems about 13 years ago,

including IBS and arthritis. I went a year gluten, dairy, soy and egg free, no

nightshades, no meat(other than fish), no legumes and a few other restrictions.

I was also on anti-fungals and large doses of probiotics. My health turned

around completely until I started adding back gluten grains and I developed a

kidney disease. Today, I'm gluten, dairy and soy free and totally healthy. My

doctor and I figured out that I probably have Celiac Disease, but I wasn't about

to go back on gluten to get tested. My oldest daughter and this son started

showing symptoms of gluten intolerance and went off it about 3 years ago and had

good results with digestive issues as well as my son's behavior and attention

issues. My son was off dairy from age 1 to 11 because of severe digestive

problems and we let him back on dairy when he went gluten free. I think this

has something to do with his problems now, so he's back to strictly dairy free.

It's a good idea to get him started soon, so he's a bit less restricted when

school starts. We're on vacation in Canada next week, so I'll have to wait

until we get back. In the meantime, he's off all sugar, taking probiotics and

L-Glutamine and his Asacol. That will have to do until we get back and I'm

prepared to dive in. I'll take the book with me to study.

August 5, 2009

Ellen,

I have four kids, run a home-business and homeschool 2-3 of my kids each year, so I hear you about the time constraints, although yours definitely seem more than mine ...........

Hats off to you and your lovely family for the wonderful home business that I just checked out online! What a wonderful family you have and what a great mom you are. Managing all that and SCD is huge. I admire you.

Count me in for a order of soap in the near future!

Terry

August 5, 2009

Hi,

Please consider getting some support in the kitchen. There are very

affordable ways to make this happen. Try a neighborhood teen. Think

boy scout or girl scout. You can pay them the going hourly rate for

what a babysitter gets. I pay a 12 year old girl $4.00 an hour. She

LOVES coming here and learning about SCD foods and why I am cooking

them. I am planting seeds of health and healing in the mind and heart

of a young girl. I know she will take thos experience with her when

she has a family. Try your church or synagogue where people are

looking for volunteer opportunities. Can a friend or relative help

grocery shop?

The bottom line is, please get some affordable help. Just be a little

creative and you will find the perfect match.

Keep up the great work!

Cheryl, SCD 3-08

caralycalnikmom wrote:

Thanks for the encouragement!

We aren't in a financial place to hire anything done. I do all the

cooking and everyone pitches in with cleaning. I'm a good cook and

baker, so I'm not worried about being able to make things, just the

time involved.

I'm gluten free because I had major health problems about 13 years ago,

including IBS and arthritis. I went a year gluten, dairy, soy and egg

free, no nightshades, no meat(other than fish), no legumes and a few

other restrictions. I was also on anti-fungals and large doses of

probiotics. My health turned around completely until I started adding

back gluten grains and I developed a kidney disease. Today, I'm gluten,

dairy and soy free and totally healthy. My doctor and I figured out

that I probably have Celiac Disease, but I wasn't about to go back on

gluten to get tested. My oldest daughter and this son started showing

symptoms of gluten intolerance and went off it about 3 years ago and

had good results with digestive issues as well as my son's behavior and

attention issues. My son was off dairy from age 1 to 11 because of

severe digestive problems and we let him back on dairy when he went

gluten free. I think this has something to do with his problems now, so

he's back to strictly dairy free.

It's a good idea to get him started soon, so he's a bit less restricted

when school starts. We're on vacation in Canada next week, so I'll have

to wait until we get back. In the meantime, he's off all sugar, taking

probiotics and L-Glutamine and his Asacol. That will have to do until

we get back and I'm prepared to dive in. I'll take the book with me to

study.

--

cheryl signature -scd 5-18-09

Cheryl

Steinberg, EFT-ADV

SCD Diet Startup Specialist, Wellness Consultant

www.spiritofmotherhood.net

Author of:

Becoming Cinderella

Please order your copy now at:

www.becomingcinderella.com

August 5, 2009