Re: Son just diagnosed with Ulcerative Colitis - looking into SCD

[Guest guest]

The easiest thing is to have the whole family go on the diet. You'll

all be healthier in the long run. There are desserts on this diet. It

is possible to get enough calories by eating meats, fruits, vegetables.

I have a 13 year old with Crohn's who has been in remission for 18

months on this diet alone, no drugs. It's not easy to begin the diet

but once you have it down it's not tough, just more time spent

cooking. He barely tolerated it. It's not easy because teenagers don't

think about their health, they just want to be like their friends.

You could try the intro diet for a week or two and then try almond

flour. My son never had a problem with it but I realize UC is different

than Crohn's.

Good luck.

Adam

caralycalnikmom wrote:

> Hello! My 14 year old son was just diagnosed with Ulcerative Colitis last

week and I've been doing tons of research on how to best help him. We're already

gluten free and I have a good grasp of nutrition and we eat pretty healthy, so I

have an understanding of what the diet is and why it should work. I will go on

the diet with him. The SCD looks very interesting, but I have some questions

and I'm hoping someone on here can help.

>

> My son and I can't tolerate dairy, except for small amounts of goat butter or

sheep milk cheese. Is it possible to get enough calories for a 14 year old

without dairy foods on this program? He's lost 20 pounds in the past few months

and really needs to gain some back. (I, on the other hand, need to lose about

20 pounds.)

>

> I have a husband and 3 other children and work full-time once school starts.

Is it possible to cook just one meal (breakfast and dinner) for everyone, with

maybe added side dishes for the others? I don't have time to cook separate

meals, since I already cook and bake everything from scratch to be gluten free.

>

> Does anyone on here have a teenager on the program? Are there enough food

choices to make it tolerable for a teenager? He's actually pretty good about

following his gluten free diet, but he does like desserts and snacks, which look

like they're the biggest challenge. He probably can't have many nuts to start

with, since his intestines are pretty damaged, so I'm not sure how I could make

breads and muffins and things like that with almond flour that he could eat.

>

> Thanks in advance for helping!

>

>

>

> ------------------------------------

>

>

[Guest guest]

There have been thousands of people that have gone into remission from the diet after being on medication and then slowly weening yourself off. Check out the book Colitis and me by Raman Prashad. Great book. He wrote about his experiences with ulcerative colitis and how he become med free from following SCD. The general rule of thumb is that once you are symptom free for a year straight you can try introducing "normal" foods again. However, most people stay on scd their whole life since it's a healthier way of eating. After a while you get used to it and SCD becomes your normal. It's EXTREMELY hard to follow. More so when someone so young is trying to do it since you can not cheat even a little. Imagine what a colony of bacteria can do with a single potatoe chip....

Hope this helps!

PS. There is a foreward to the book that has an entry from a Pediatrician I believe.. or some doctor who polled people following SCD that had UC. I'll have to look it up but I think 60% were med free and all of them benefited in one way or another from following SCD.-UC - 1 yearSCD - 2 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!Hydrocortisone taper.. 1 every 3rd day for another 2 weeks.

To: BTVC-SCD From: caralycalmom@...Date: Wed, 5 Aug 2009 20:08:32 +0000Subject: Re: Son just diagnosed with Ulcerative Colitis - looking into SCD

Thanks for the response. I'm not sure I could get my whole family totally on the diet. I have 3 teenagers and a 12 year old and we are already gluten free. That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids stick to a more restrictive diet that they don't need to be on would be pretty tough. I'm hoping that in "real life" I could make one dinner that everyone could eat and just have optional sides. Same for breakfast. Everyone packs their own lunches, so that shouldn't be hard. I already spend a lot of time in the kitchen making meals.Another question - has anyone gone into remission from UC for an extended period of time? Do you stick to the diet fanatically after going into remission or relax a little?

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[Guest guest]

There have been thousands of people that have gone into remission from the diet after being on medication and then slowly weening yourself off. Check out the book Colitis and me by Raman Prashad. Great book. He wrote about his experiences with ulcerative colitis and how he become med free from following SCD. The general rule of thumb is that once you are symptom free for a year straight you can try introducing "normal" foods again. However, most people stay on scd their whole life since it's a healthier way of eating. After a while you get used to it and SCD becomes your normal. It's EXTREMELY hard to follow. More so when someone so young is trying to do it since you can not cheat even a little. Imagine what a colony of bacteria can do with a single potatoe chip....

Hope this helps!

PS. There is a foreward to the book that has an entry from a Pediatrician I believe.. or some doctor who polled people following SCD that had UC. I'll have to look it up but I think 60% were med free and all of them benefited in one way or another from following SCD.-UC - 1 yearSCD - 2 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these!Hydrocortisone taper.. 1 every 3rd day for another 2 weeks.

To: BTVC-SCD From: caralycalmom@...Date: Wed, 5 Aug 2009 20:08:32 +0000Subject: Re: Son just diagnosed with Ulcerative Colitis - looking into SCD

Thanks for the response. I'm not sure I could get my whole family totally on the diet. I have 3 teenagers and a 12 year old and we are already gluten free. That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids stick to a more restrictive diet that they don't need to be on would be pretty tough. I'm hoping that in "real life" I could make one dinner that everyone could eat and just have optional sides. Same for breakfast. Everyone packs their own lunches, so that shouldn't be hard. I already spend a lot of time in the kitchen making meals.Another question - has anyone gone into remission from UC for an extended period of time? Do you stick to the diet fanatically after going into remission or relax a little?

Get free photo software from Windows Live Click here.

[Guest guest]

Does anyone on here have a teenager on the program? Are there enough food choices to make it tolerable for a teenager? He's actually pretty good about following his gluten free diet, but he does like desserts and snacks, which look like they're the biggest challenge. He probably can't have many nuts to start with, since his intestines are pretty damaged, so I'm not sure how I could make breads and muffins and things like that with almond flour that he could eat.Well, I don't HAVE a teenager on the program, but I AM one =) My name is Alyssa and I'm 15, and I was sort of the one to choose to go on the diet. Not sure if I'm a normal teenager or not, but I do pretty well dealing with the limited food choices. The way I see it, I don't exactly have a choice, so I just deal with it. I'd much rather eat chicken soup all day and not be sick than eat cookies and spend my days in the bathroom. Plus, the chicken soup is actually pretty good =) He probably won't be able to have too many nuts in the beginning, but there are other foods that taste good that he probably will be able to have that will hopefully tide him over until he CAN have all the SCD baked goodies =) Good luck! Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)20mg Prednisone 1x daily ugh

[Guest guest]

Does anyone on here have a teenager on the program? Are there enough food choices to make it tolerable for a teenager? He's actually pretty good about following his gluten free diet, but he does like desserts and snacks, which look like they're the biggest challenge. He probably can't have many nuts to start with, since his intestines are pretty damaged, so I'm not sure how I could make breads and muffins and things like that with almond flour that he could eat.Well, I don't HAVE a teenager on the program, but I AM one =) My name is Alyssa and I'm 15, and I was sort of the one to choose to go on the diet. Not sure if I'm a normal teenager or not, but I do pretty well dealing with the limited food choices. The way I see it, I don't exactly have a choice, so I just deal with it. I'd much rather eat chicken soup all day and not be sick than eat cookies and spend my days in the bathroom. Plus, the chicken soup is actually pretty good =) He probably won't be able to have too many nuts in the beginning, but there are other foods that taste good that he probably will be able to have that will hopefully tide him over until he CAN have all the SCD baked goodies =) Good luck! Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)20mg Prednisone 1x daily ugh

[Guest guest]

I'm the one on the diet, and I have teenagers and a hubby to feed. I know they

would not be happy on SCD. I do make a legal main course and then some rice, or

potatoes. Right now I have 2 chickens roasting in the oven and one in the crock

pot for soup ( for me!). I have rice in the rice cooker for them, and will cook

some veggies. They're not big on veggies anyway.

Like Alyssa- I'm pretty happy feeling better on a limited diet than eating

everything. Pecanbread.com has kid friendly recipes, and stages for introducing

foods for your son. You can make a whole pot of stewed apples- add cinnamon.

Frozen bananas are good snacks. He can munch on hamburger patties. Hopefully he

will get into nut butters in a while and he can have the nut butter brownies on

pecanbread.com.

Hope he feels better soon!

PJ

>

> Thanks for the response. I'm not sure I could get my whole family totally on

the diet. I have 3 teenagers and a 12 year old and we are already gluten free.

That's hard enough when only 2 of the kids need to be gluten free. Having 3 kids

stick to a more restrictive diet that they don't need to be on would be pretty

tough. I'm hoping that in " real life " I could make one dinner that everyone

could eat and just have optional sides. Same for breakfast. Everyone packs

their own lunches, so that shouldn't be hard. I already spend a lot of time in

the kitchen making meals.

>

> Another question - has anyone gone into remission from UC for an extended

period of time? Do you stick to the diet fanatically after going into remission

or relax a little?

>

[Guest guest]

Loved your response, Alysa. Said well....

My dd (turning 12 next month) has been SCD for over three years, after being

dx'ed w. Crohn's. She is almost one year w/o meds.

I have four kids, run a home-business and homeschool 2-3 of my kids each year,

so I hear you about the time constraints, although yours definitely seem more

than mine . You can absolutely make a main dish that's SCD and then add in

non-SCD side dishes for the other folks. For example, I will make SCD chili

(advanced food, need to be 6 months symptom-free before trying beans) and the

non-SCD members of my family will eat corn tortillas with it. This was hard for

my daughter at first (so we didn't do it....), but she was only 8 1/2 when we

started, and your son is, hopefully, old enough to have Alysa's attitude about

this all.

My main reason for writing is to suggest you start your son as soon as possible

so that he can, hopefully, be at Stage 2 or 3 by the time school starts and he

needs to eat lunch out and you're back at work and w. less time to cook.

If it's a financial option for you, I would suggest

--1) buying some pre-made things from one of the SCD bakeries around (we've

enjoyed the things we've bought from DigestiveWellness.com and Esther, who runs

it, is very nice as well as knowledgeable about SCD)

--2) consider having a professional cleaner come in so that you can take what

little time you have and concentrate on cooking

--3) consider hiring a professional chef to make some meals for you. I was able

to do a trade when my dd started, and we got a few lovely meals from a chef who

checked every ingredient w. me and made my MIL's birthday party a success when

it could have been a culinary disaster!

Good luck to you and your son. btw, why is your family gluten-free? If it's

for celiac or ASD, going SCD should help both

Ellen in Boston

11 y/o dd scd since 5/06

med-free for 11 months

if you're curious, our home business is www.4SistersSoaps.com

Funky Soaps 4 Funky Folks

[Guest guest]

Thanks for the encouragement!

We aren't in a financial place to hire anything done. I do all the cooking and

everyone pitches in with cleaning. I'm a good cook and baker, so I'm not

worried about being able to make things, just the time involved.

I'm gluten free because I had major health problems about 13 years ago,

including IBS and arthritis. I went a year gluten, dairy, soy and egg free, no

nightshades, no meat(other than fish), no legumes and a few other restrictions.

I was also on anti-fungals and large doses of probiotics. My health turned

around completely until I started adding back gluten grains and I developed a

kidney disease. Today, I'm gluten, dairy and soy free and totally healthy. My

doctor and I figured out that I probably have Celiac Disease, but I wasn't about

to go back on gluten to get tested. My oldest daughter and this son started

showing symptoms of gluten intolerance and went off it about 3 years ago and had

good results with digestive issues as well as my son's behavior and attention

issues. My son was off dairy from age 1 to 11 because of severe digestive

problems and we let him back on dairy when he went gluten free. I think this

has something to do with his problems now, so he's back to strictly dairy free.

It's a good idea to get him started soon, so he's a bit less restricted when

school starts. We're on vacation in Canada next week, so I'll have to wait

until we get back. In the meantime, he's off all sugar, taking probiotics and

L-Glutamine and his Asacol. That will have to do until we get back and I'm

prepared to dive in. I'll take the book with me to study.

[Guest guest]

Ellen,

I have four kids, run a home-business and homeschool 2-3 of my kids each year, so I hear you about the time constraints, although yours definitely seem more than mine ...........

Hats off to you and your lovely family for the wonderful home business that I just checked out online! What a wonderful family you have and what a great mom you are. Managing all that and SCD is huge. I admire you.

Count me in for a order of soap in the near future!

Terry