Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Hi Nancie! Very nice to meet you and welcome to the group! I hope you will like it here. Email me anytime you need to chat. This illness is very difficult. And it certainly doesn't help when you don't have a support system for you. Please know you are in my thoughts and prayers. Soft hugs, Annie C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Nancie, welcome to our group. I do agree that having fibro is better than having lupus and all of those other diseases that you mentioned. I think that we do have a good group. We are, for the most part, loving, caring and supportive. If you want to vent, please do so. We all have done so at one time or another. Need to know something? Ask and you will usually get an answer. There are times when members of this group, are having flares, are to sick to answer questions or just can't use their computers and no one answers. Please ask again. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2002 Report Share Posted September 2, 2002 Nancie, welcome to our group. I do agree that having fibro is better than having lupus and all of those other diseases that you mentioned. I think that we do have a good group. We are, for the most part, loving, caring and supportive. If you want to vent, please do so. We all have done so at one time or another. Need to know something? Ask and you will usually get an answer. There are times when members of this group, are having flares, are to sick to answer questions or just can't use their computers and no one answers. Please ask again. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 barbieann518 wrote: > hi yall! ...... > located in the Orlando Florida area. Okay I'd assumed you were in the South Easstern US just from the greeting ;-) > My first endo is easygoing about treatment: drugs, RAI, or surgery, > told me to come back in 6 weeks and he'll go with whatever I want to > do. but he's real cryptic and their clinic seems to be more of a > diabeties place, and I guess I felt like I wanted more TLC. Endo's aren't always big on TLC... > So I went to a 2nd endo, he's better at the TLC stuff, but is > encouraging RAI and wants to do it like next week. Around here we usually prefer to give the drugs at least a year or two, as many patients can get remission from the disease, before having surgery or RAI and possibly(surgery)/probably(RAI) having a life on thyroxine. So we are likely to go with the first guy, even without the TLC. I guess with mild symptoms it doesn't matter (did anyone prescribe betablockers?) so much, but I don't see why you have to wait 6 weeks to start treatment, just let em know your decision as soon as it is made. > I hope this isn't too much info, yall seem really knowledgeable, but > it's late, I'm tired, but I'm sure I'll have lots-o-questions for > yall this weekend. You making the chat on Sunday at www.mediboard.com to ask these questions then? -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+l6vDGFXfHI9FVgYRAqxxAJ9L7P7n9Xz2Tcs/y6u6toVSvuv+1QCfWpl/ H+NDcvXSabkB4cCEA+5k+UE= =WpDb -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Hi there!! You will love this group. I don't post often but am always reading. Most endo's are more familiar with diabetes because that's more common than Graves. It's not easy to find a god end who will be willing to work with you to do the treatment you want to do. Good luck and welcome!! in MA, USA Diagnosed w/Graves, March 1997 Glad I refused RAI Treatment and Surgery!!! Currently in Remission!!! Off Meds Since June 2000 Surpressed TSH and somehwat normal thyroid levels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Hi there!! You will love this group. I don't post often but am always reading. Most endo's are more familiar with diabetes because that's more common than Graves. It's not easy to find a god end who will be willing to work with you to do the treatment you want to do. Good luck and welcome!! in MA, USA Diagnosed w/Graves, March 1997 Glad I refused RAI Treatment and Surgery!!! Currently in Remission!!! Off Meds Since June 2000 Surpressed TSH and somehwat normal thyroid levels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 hiya Simon, LoL...yeppers, I'm a GRITS alright! thanks for the mediboard info I just joined up over there, posted my test results, and I'm gonna plan to make the Sunday chat...oh wait, I better check the scheule... (I'll be there as long as it doesn't interfere with the Nascar race...LoL!. I'm starting to think the 1st endo may the best also, " at your service " endos apparently aren't easy to find. Thanks again! > > hi yall! > ..... > > located in the Orlando Florida area. > > Okay I'd assumed you were in the South Easstern US just from the > greeting ;-) > > > My first endo is easygoing about treatment: drugs, RAI, or surgery, > > told me to come back in 6 weeks and he'll go with whatever I want to > > do. but he's real cryptic and their clinic seems to be more of a > > diabeties place, and I guess I felt like I wanted more TLC. > > Endo's aren't always big on TLC... > > > So I went to a 2nd endo, he's better at the TLC stuff, but is > > encouraging RAI and wants to do it like next week. > > Around here we usually prefer to give the drugs at least a year or two, > as many patients can get remission from the disease, before having > surgery or RAI and possibly(surgery)/probably(RAI) having a life on > thyroxine. > > So we are likely to go with the first guy, even without the TLC. > > I guess with mild symptoms it doesn't matter (did anyone prescribe > betablockers?) so much, but I don't see why you have to wait 6 weeks to > start treatment, just let em know your decision as soon as it is made. > > > I hope this isn't too much info, yall seem really knowledgeable, but > > it's late, I'm tired, but I'm sure I'll have lots-o-questions for > > yall this weekend. > > You making the chat on Sunday at www.mediboard.com to ask these > questions then? > -----BEGIN PGP SIGNATURE----- > Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org > > iD8DBQE+l6vDGFXfHI9FVgYRAqxxAJ9L7P7n9Xz2Tcs/y6u6toVSvuv+1QCfWpl/ > H+NDcvXSabkB4cCEA+5k+UE= > =WpDb > -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 hiya Simon, LoL...yeppers, I'm a GRITS alright! thanks for the mediboard info I just joined up over there, posted my test results, and I'm gonna plan to make the Sunday chat...oh wait, I better check the scheule... (I'll be there as long as it doesn't interfere with the Nascar race...LoL!. I'm starting to think the 1st endo may the best also, " at your service " endos apparently aren't easy to find. Thanks again! > > hi yall! > ..... > > located in the Orlando Florida area. > > Okay I'd assumed you were in the South Easstern US just from the > greeting ;-) > > > My first endo is easygoing about treatment: drugs, RAI, or surgery, > > told me to come back in 6 weeks and he'll go with whatever I want to > > do. but he's real cryptic and their clinic seems to be more of a > > diabeties place, and I guess I felt like I wanted more TLC. > > Endo's aren't always big on TLC... > > > So I went to a 2nd endo, he's better at the TLC stuff, but is > > encouraging RAI and wants to do it like next week. > > Around here we usually prefer to give the drugs at least a year or two, > as many patients can get remission from the disease, before having > surgery or RAI and possibly(surgery)/probably(RAI) having a life on > thyroxine. > > So we are likely to go with the first guy, even without the TLC. > > I guess with mild symptoms it doesn't matter (did anyone prescribe > betablockers?) so much, but I don't see why you have to wait 6 weeks to > start treatment, just let em know your decision as soon as it is made. > > > I hope this isn't too much info, yall seem really knowledgeable, but > > it's late, I'm tired, but I'm sure I'll have lots-o-questions for > > yall this weekend. > > You making the chat on Sunday at www.mediboard.com to ask these > questions then? > -----BEGIN PGP SIGNATURE----- > Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org > > iD8DBQE+l6vDGFXfHI9FVgYRAqxxAJ9L7P7n9Xz2Tcs/y6u6toVSvuv+1QCfWpl/ > H+NDcvXSabkB4cCEA+5k+UE= > =WpDb > -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 thanks lisa! yeah, I'm thinkin' with all the endo issues posted, the first one may be the best choice. Now I've just gotta decide on what treatment I'm most comfortable with! > Hi there!! > > You will love this group. I don't post often but am always reading. Most > endo's are more familiar with diabetes because that's more common than > Graves. It's not easy to find a god end who will be willing to work with you > to do the treatment you want to do. Good luck and welcome!! > > in MA, USA > Diagnosed w/Graves, March 1997 > Glad I refused RAI Treatment and Surgery!!! > Currently in Remission!!! > Off Meds Since June 2000 > Surpressed TSH and somehwat normal thyroid levels Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Hi, Meds are a good first line of approach because your thyroid hormone levels are reduced and your immune system is given a chance to heal. Meds are taken until your immune system stops producing the thyroid antibodies causing hyperthryoidism. Most people then end up with normal thyroid function. Having had RAI, I wouldn't recommend it. Being hypothyroid for me is far worse than being hyperthryoid. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 If I were you, I would meet with the oncologist and ask what the statistical likelihood of a reoccurence would be without having chemotherapy versus a reoccurence after having the recommended chemo treatment. A colonoscopy can detect a new primary tumor, but the reason for the chemo would be to reduce the chance of any stray cancer cells metastisizing. Your father needs to weigh the side effects of the chemo, which isn't necessarily unmanageable, against the benefits. For a patient who is age 78, I think you are asking a very valid question. > Hi I am in NC.My dad had emergency surgery 3 weeks ago for a > tumor that obstructed the colon.It was as big as his fist and it was > cancer -stage 2 B I think ,If I remember right.He removed 12 inches > of colon and 12 inches of small intestine.The tumor was at the top > of the colon, growing into the small intestine.The good news , the > margins were clear and the lymph nodes were free from cancer.The > surgeon beleives he got it all....However the surgeon is almost > positive the oncologist will recomend chemo and he will need a port. > > Here is our delema. He are trying to decide if Chemo is right for > him.Hes 78 years old and has always been active and vital until the > past 4 months or so.He travels and Birdwatches .He wants to know how > debilitating chemo is ,How long he will be out of commission, and > given that most men dont live past 80 years old whether it would be > worth it. > > The surgeon indicated it would be a 2 year recovery from the > chemo.Is this true?how long before he would be strong enough to > resume his lifestyle.? Amazingly he is recovering from surgery very > quickly and feeling stronger every day.without chemo hewill probably > be feeling pretty good ina couple of months.If he passes on the > chemo , would this cancer come back?Couldnt anual colonoscopys catch > a reoccurrence in time to remove it? > > Has anyone here had to face a similar decision?Any thoughts or > recomendations?Id appreciate allthe input we can get. > > IN NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 If I were you, I would meet with the oncologist and ask what the statistical likelihood of a reoccurence would be without having chemotherapy versus a reoccurence after having the recommended chemo treatment. A colonoscopy can detect a new primary tumor, but the reason for the chemo would be to reduce the chance of any stray cancer cells metastisizing. Your father needs to weigh the side effects of the chemo, which isn't necessarily unmanageable, against the benefits. For a patient who is age 78, I think you are asking a very valid question. > Hi I am in NC.My dad had emergency surgery 3 weeks ago for a > tumor that obstructed the colon.It was as big as his fist and it was > cancer -stage 2 B I think ,If I remember right.He removed 12 inches > of colon and 12 inches of small intestine.The tumor was at the top > of the colon, growing into the small intestine.The good news , the > margins were clear and the lymph nodes were free from cancer.The > surgeon beleives he got it all....However the surgeon is almost > positive the oncologist will recomend chemo and he will need a port. > > Here is our delema. He are trying to decide if Chemo is right for > him.Hes 78 years old and has always been active and vital until the > past 4 months or so.He travels and Birdwatches .He wants to know how > debilitating chemo is ,How long he will be out of commission, and > given that most men dont live past 80 years old whether it would be > worth it. > > The surgeon indicated it would be a 2 year recovery from the > chemo.Is this true?how long before he would be strong enough to > resume his lifestyle.? Amazingly he is recovering from surgery very > quickly and feeling stronger every day.without chemo hewill probably > be feeling pretty good ina couple of months.If he passes on the > chemo , would this cancer come back?Couldnt anual colonoscopys catch > a reoccurrence in time to remove it? > > Has anyone here had to face a similar decision?Any thoughts or > recomendations?Id appreciate allthe input we can get. > > IN NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Hi , Welcome to our group here. You will find a lot of good people here and a lot of information. I am so sorry your dad had to go through this. I am surprised that chemo was recomended for stage 2 colon cnacer. Most of the time it is done for stage 3. But all doctors are different. It would be best to talk to the Oncologist and see what he recomends. It would be your fathers decison no matter what. See what he feels after he sees the Onc. If he is otherwise healthy the chemo may not be that hard on him. But again he must weigh his options. Colonscopy can only detect the polops in the colon. If the cancer returns or spreads the colonscopy would not find it. Wishing you both the best. Ingrid > Hi I am in NC.My dad had emergency surgery 3 weeks ago for a > tumor that obstructed the colon.It was as big as his fist and it was > cancer -stage 2 B I think ,If I remember right.He removed 12 inches > of colon and 12 inches of small intestine.The tumor was at the top > of the colon, growing into the small intestine.The good news , the > margins were clear and the lymph nodes were free from cancer.The > surgeon beleives he got it all....However the surgeon is almost > positive the oncologist will recomend chemo and he will need a port. > > Here is our delema. He are trying to decide if Chemo is right for > him.Hes 78 years old and has always been active and vital until the > past 4 months or so.He travels and Birdwatches .He wants to know how > debilitating chemo is ,How long he will be out of commission, and > given that most men dont live past 80 years old whether it would be > worth it. > > The surgeon indicated it would be a 2 year recovery from the > chemo.Is this true?how long before he would be strong enough to > resume his lifestyle.? Amazingly he is recovering from surgery very > quickly and feeling stronger every day.without chemo hewill probably > be feeling pretty good ina couple of months.If he passes on the > chemo , would this cancer come back?Couldnt anual colonoscopys catch > a reoccurrence in time to remove it? > > Has anyone here had to face a similar decision?Any thoughts or > recomendations?Id appreciate allthe input we can get. > > IN NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Good Advice from ... I am nearly 64 (in Oct) and I just finished 6 mos of chemo, for Stage 3c with lymph node involvement. Doc thinks they killed whatever was still there, but I will be checked regularly for awhile. Due for colonoscopy in Sept. What is important too now for you and any siblings to get tested... Don't wait.. I knew I should have been tested several years ago when my sister told me she had some polyps removed that were precancerous. I put off one scope appt because at the time I was taking care of my hubby who had non hodgkins lymphoma. He passed away in 1999. Probably a couple years ago I had noticed some blood in my stool which I figured was from hemarrhoids, got some prep H, used it and that was the end of it. But what if it was from a polyp. If only I had had the scope back then, I might have avoided the surgery and chemo that followed. So many what ifs.. Awhile back I took a survey and one of the subjects addressed was how a doc determines whether a patient needs chemo or not. The answer was that they don't know... In breast cancer they do alot more examining of the cells to see if there is the slightest chance of recurring cancer but with colon cancer they don't do that. So theoretically a patient with your dad's diagnosis had maybe a 50% chance of getting cancer or not getting it. When I was diagnosed my CEA was 3.5. Pretty low but since 7 out of 12 lymph nodes showed cancer, my doc decided that I should have chemo. I came through it okay - they can adjust dosage somewhat to reduce severity of side effects. I did have low potassium, and low white blood count but got pills for the potassium and shots for the wbc count and I was pretty much okay. Felt pretty good other than being tired as I was coming down from chemo. During chemo felt great.. LOL. Well sorry to ramble on. I am glad that you will abide by whatever decision your dad will make concerning taking the chemo or not. This chemo is not as hard on a person has some of the other chemos are. Some folks even work while they are getting their chemo, just work around their chemo days etc. God bless your family and will keep you in my prayers. Big hugs Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Good Advice from ... I am nearly 64 (in Oct) and I just finished 6 mos of chemo, for Stage 3c with lymph node involvement. Doc thinks they killed whatever was still there, but I will be checked regularly for awhile. Due for colonoscopy in Sept. What is important too now for you and any siblings to get tested... Don't wait.. I knew I should have been tested several years ago when my sister told me she had some polyps removed that were precancerous. I put off one scope appt because at the time I was taking care of my hubby who had non hodgkins lymphoma. He passed away in 1999. Probably a couple years ago I had noticed some blood in my stool which I figured was from hemarrhoids, got some prep H, used it and that was the end of it. But what if it was from a polyp. If only I had had the scope back then, I might have avoided the surgery and chemo that followed. So many what ifs.. Awhile back I took a survey and one of the subjects addressed was how a doc determines whether a patient needs chemo or not. The answer was that they don't know... In breast cancer they do alot more examining of the cells to see if there is the slightest chance of recurring cancer but with colon cancer they don't do that. So theoretically a patient with your dad's diagnosis had maybe a 50% chance of getting cancer or not getting it. When I was diagnosed my CEA was 3.5. Pretty low but since 7 out of 12 lymph nodes showed cancer, my doc decided that I should have chemo. I came through it okay - they can adjust dosage somewhat to reduce severity of side effects. I did have low potassium, and low white blood count but got pills for the potassium and shots for the wbc count and I was pretty much okay. Felt pretty good other than being tired as I was coming down from chemo. During chemo felt great.. LOL. Well sorry to ramble on. I am glad that you will abide by whatever decision your dad will make concerning taking the chemo or not. This chemo is not as hard on a person has some of the other chemos are. Some folks even work while they are getting their chemo, just work around their chemo days etc. God bless your family and will keep you in my prayers. Big hugs Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Jolene, thanks for the info. Im glad to hear chemo isnt all that bad. I hope your cancer can be wiped out. IN NC Jolene Ehret jehret@...> wrote: Wilkins http//:www.juiceplus.com/+lw55887 The Children's Research Foundation Children 6-15 FREE for 3 years --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Jolene, thanks for the info. Im glad to hear chemo isnt all that bad. I hope your cancer can be wiped out. IN NC Jolene Ehret jehret@...> wrote: Wilkins http//:www.juiceplus.com/+lw55887 The Children's Research Foundation Children 6-15 FREE for 3 years --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Jolene, thanks for the info. Im glad to hear chemo isnt all that bad. I hope your cancer can be wiped out. IN NC Jolene Ehret jehret@...> wrote: Wilkins http//:www.juiceplus.com/+lw55887 The Children's Research Foundation Children 6-15 FREE for 3 years --------------------------------- Start your day with Yahoo! - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 I'm new here and wanted to say " Hi. " I found the SCD doing research for a diet for IBS (with C not D). I've had bronchitis and required antibiotics at least a couple of times a year all my life. I have developed allergies to three major classes of antibiotics and my doctor recommended immunotherapy shots to get over the allergies to the antibiotics because there are so few they can give me and it could be life threatening if I develop any more allergies or encounter a resistant bacterial infection. I have had pneumonia three times, sinusitis twice, and strep twice in the last eighteen months alone. I am so sick and tired of being sick and tired. I read Elaine's book and it made so much sense. I've been on a vicious cycle of illness, antibiotics and more illness. I knew I had to try the SCD. So here I am. Also, I was recently diagnosed with ADD-inattentive and I am hoping it will help me with that too. My doctor said I was self medicating with caffeine and carbs. I bought all the SCD cookbooks I could find on Amazon and I am learning a lot from reading all your old posts! Thanks so much, everyone! My best, Clichy Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2009 Report Share Posted August 9, 2009 Hi Clichy, Welcome and hope you feel better soon. PJ > > I'm new here and wanted to say " Hi. " > > I found the SCD doing research for a diet for IBS (with C not D). I've had bronchitis and required antibiotics at least a couple of times a year all my life. I have developed allergies to three major classes of antibiotics and my doctor recommended immunotherapy shots to get over the allergies to the antibiotics because there are so few they can give me and it could be life threatening if I develop any more allergies or encounter a resistant bacterial infection. > > I have had pneumonia three times, sinusitis twice, and strep twice in the last eighteen months alone. I am so sick and tired of being sick and tired. I read Elaine's book and it made so much sense. I've been on a vicious cycle of illness, antibiotics and more illness. I knew I had to try the SCD. So here I am. > > Also, I was recently diagnosed with ADD-inattentive and I am hoping it will help me with that too. My doctor said I was self medicating with caffeine and carbs. > > I bought all the SCD cookbooks I could find on Amazon and I am learning a lot from reading all your old posts! Thanks so much, everyone! > > My best, Clichy Rose > Quote Link to comment Share on other sites More sharing options...
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