Re: Coconut cream now legal commercial products

[Guest guest]

This only includes Yahoo groups. What about Google?

Lucy from the Kitchen shop doesn't hang online yet she deals with newbies all

the time.

Dr Hoffman deals with many SCD'ers that never go online.

There are many people doing this diet without being a member of online groups.

Just a thought.

Jodi

[Guest guest]

Hi Marilyn and Terry,

> >With all due respect to that well meaning

> >member, and I am not saying this in a mean way,

> >that's just ignorance about the composition of

> >macro nutrients. Cocoa butter is a fat, pure and

> >simple. Just like flax oil is the fat that is

> >allowed form the illegal flax seed.

>

> Agreed. That was my reasoning in saying that I

> thought it might be legal -- although, of course,

> you have to be sure it is the pure fat and that

> it doesn't have cocoa bean residues in it.

It's crazy to me that people cannot have their own line of thinking in this

community. I really feel for people in charge as their words come back to haunt

them..

> .......the question is: how do we insure the

> safety of these products for ourselves and those

> who will come after us, and make sure we don't adulterate the SCD?

>

> This is the dilemma. I think that to accumulate

> these company letters so that we have this

> assurance will help. This way, it can be

> suggested that after a year of being on SCD

> and/or lack of symptoms that PERHAPS these

> commercial items with letters could be tried, if

> someone wanted to. ( Or something to that effect,

> just a suggestion) Just like Elaine says that

> certain foods can be tried after 3 months or when

> symptom free, we can stipulate the same for these lettered food items

>

I think this is a fantastic idea!

Also to make people aware that these are the first items they should pull if

they start feeling awful. IMO this should apply to supplements as well but

that's another story. I don't want to dilute this thread.

> The first year of SCD is always the toughest.

> You're making radical changes in the kinds of

> foods you eat, and having to adjust to the " make

> your own " paradigm. Ironically, that's also the

> time when you most want the convenience type foods.

True. But Elaine approved items and we have seen reports of these items

formulations changing. So like what are we doing?

> Elaine's general rule was " one year symptom

> free, " which brings us back to Jodi's earlier

> question of " what defines symptom free, " which

> has kind of gotten lost in the shuffle.

This is a very interesting point for me. Doctors can't even answer this as they

cannot define " remission " .. They can look at blood work etc but that isn't a

true representation how a patient feels many times.

Does it just get better being on the diet longer and longer or is it just a way

to manage symptoms?

Jodi

[Guest guest]

Hi Marilyn and Terry,

> >With all due respect to that well meaning

> >member, and I am not saying this in a mean way,

> >that's just ignorance about the composition of

> >macro nutrients. Cocoa butter is a fat, pure and

> >simple. Just like flax oil is the fat that is

> >allowed form the illegal flax seed.

>

> Agreed. That was my reasoning in saying that I

> thought it might be legal -- although, of course,

> you have to be sure it is the pure fat and that

> it doesn't have cocoa bean residues in it.

It's crazy to me that people cannot have their own line of thinking in this

community. I really feel for people in charge as their words come back to haunt

them..

> .......the question is: how do we insure the

> safety of these products for ourselves and those

> who will come after us, and make sure we don't adulterate the SCD?

>

> This is the dilemma. I think that to accumulate

> these company letters so that we have this

> assurance will help. This way, it can be

> suggested that after a year of being on SCD

> and/or lack of symptoms that PERHAPS these

> commercial items with letters could be tried, if

> someone wanted to. ( Or something to that effect,

> just a suggestion) Just like Elaine says that

> certain foods can be tried after 3 months or when

> symptom free, we can stipulate the same for these lettered food items

>

I think this is a fantastic idea!

Also to make people aware that these are the first items they should pull if

they start feeling awful. IMO this should apply to supplements as well but

that's another story. I don't want to dilute this thread.

> The first year of SCD is always the toughest.

> You're making radical changes in the kinds of

> foods you eat, and having to adjust to the " make

> your own " paradigm. Ironically, that's also the

> time when you most want the convenience type foods.

True. But Elaine approved items and we have seen reports of these items

formulations changing. So like what are we doing?

> Elaine's general rule was " one year symptom

> free, " which brings us back to Jodi's earlier

> question of " what defines symptom free, " which

> has kind of gotten lost in the shuffle.

This is a very interesting point for me. Doctors can't even answer this as they

cannot define " remission " .. They can look at blood work etc but that isn't a

true representation how a patient feels many times.

Does it just get better being on the diet longer and longer or is it just a way

to manage symptoms?

Jodi

[Guest guest]

Hi Marilyn and Terry,

> >With all due respect to that well meaning

> >member, and I am not saying this in a mean way,

> >that's just ignorance about the composition of

> >macro nutrients. Cocoa butter is a fat, pure and

> >simple. Just like flax oil is the fat that is

> >allowed form the illegal flax seed.

>

> Agreed. That was my reasoning in saying that I

> thought it might be legal -- although, of course,

> you have to be sure it is the pure fat and that

> it doesn't have cocoa bean residues in it.

It's crazy to me that people cannot have their own line of thinking in this

community. I really feel for people in charge as their words come back to haunt

them..

> .......the question is: how do we insure the

> safety of these products for ourselves and those

> who will come after us, and make sure we don't adulterate the SCD?

>

> This is the dilemma. I think that to accumulate

> these company letters so that we have this

> assurance will help. This way, it can be

> suggested that after a year of being on SCD

> and/or lack of symptoms that PERHAPS these

> commercial items with letters could be tried, if

> someone wanted to. ( Or something to that effect,

> just a suggestion) Just like Elaine says that

> certain foods can be tried after 3 months or when

> symptom free, we can stipulate the same for these lettered food items

>

I think this is a fantastic idea!

Also to make people aware that these are the first items they should pull if

they start feeling awful. IMO this should apply to supplements as well but

that's another story. I don't want to dilute this thread.

> The first year of SCD is always the toughest.

> You're making radical changes in the kinds of

> foods you eat, and having to adjust to the " make

> your own " paradigm. Ironically, that's also the

> time when you most want the convenience type foods.

True. But Elaine approved items and we have seen reports of these items

formulations changing. So like what are we doing?

> Elaine's general rule was " one year symptom

> free, " which brings us back to Jodi's earlier

> question of " what defines symptom free, " which

> has kind of gotten lost in the shuffle.

This is a very interesting point for me. Doctors can't even answer this as they

cannot define " remission " .. They can look at blood work etc but that isn't a

true representation how a patient feels many times.

Does it just get better being on the diet longer and longer or is it just a way

to manage symptoms?

Jodi

[Guest guest]

At 06:55 PM 9/19/2009, you wrote:

This is something that the LDN

really helps with. Not that I eat

out that much, but on rare occasion, I'll find myself consuming a

few odds and ends - at a restaurant and so forth.

Not to mention that it would help with keeping you the way we

want you, healthy and in cancer remission.

Well, I've been researching the LDN, and may ask my oncologist about it

when I see her in January. <g> I see my gynecologist on Friday, but

I don't think she's the one to ask.

My oncologist is pretty cool -- when I was having BAD hot flashes right

after the surgery, she said she was reluctant to prescribe hormones since

I'd had a hormone-based cancer, and then suggested evening primrose oil.

And she was fully supportive of my having SCD food in the hospital after

the surgery.

I believe I would prefer the LDN cream, so must find the information on

how the script for that needs to be written.

I also need to find some reliable studies which I can print out abstracts

from to show her.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 09:37 PM 9/19/2009, you wrote:

Marilyn, seriously, I live in

Baton Rouge and would love to help!!!

I know! And I think we could do it... but I've been trying to get up

there to visit with Eileen -- hey, maybe if we are planning to come up,

we can meet yah in person! -- and take a look at a couple houses for sale

in her area. Also some lots. My dream is to have a

www.terrafirmabuilders.ca rammed earth house! Harry suggested that we

should build a " normal " kitchen (as if any SCD kitchen is

" normal! " ) and then put a commercial one adjacent to

it....

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 11:55 PM 9/19/2009, you wrote:

So what IS the drill? I thought

we just shared letters when we heard

back from these people. Wrong??

,

What we're attempting to do is build a library of letters that newcomers

can consult.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Mara,

Not exactly.. someone mentioned it to me the other day..

I need to reread Dr Haas's book to reignite my memory.

Marilyn is emphatic about Elaine's position on the issue which I totally

understand.. so I won't bring it up again. I hate aggravating her.

Jodi

[Guest guest]

,

What we're attempting to do is build a library of

letters that newcomers can consult.

That's what I thought, that we would contribute any letters that we

got from companies on their products, not just file when we wrote

them. Though I suppose there's some sense in that so six people don't

write the same place.

[Guest guest]

,

What we're attempting to do is build a library of

letters that newcomers can consult.

That's what I thought, that we would contribute any letters that we

got from companies on their products, not just file when we wrote

them. Though I suppose there's some sense in that so six people don't

write the same place.