OT: LDN, Sleep , Rx-ing (was: Re: nausea and thick mucus)

[Guest guest]

> n wrote:>>>> As for insomnia and LDN. I've had a lot of sleep problems over the years > also, which of course exacerbated the Crohn's and other problems because > I was never able to get enough rejuvenating rest. Now I am, however, on > the LDN. But not at first. For the first two or three weeks I did wake > up at 2 or 3 am. when my endorphins started kicking in in response to > the LDN opioid blockade receding. BUT -- and this is a huge "but" -- > after that period of adjustment I began to sleep better than I've slept > in many, many years. LDN actually helps you sleep very deeply; lots of > REM sleep, which is why many people report vivid dreams while on LDN.>>>> Oh n, that is so encouraging to hear. I also suffer from chronic> fatigue syndrome/fibromyalgia, and understand so much what you mean> about the sleep issue affecting everything. How did you find a doctor> to prescribe the LDN?>> Kathy>The sleep thing is still occasionally an issue, but more because I go to bed too late and if or when I wake up early I usually feel pretty good, and so just get up -- but then I don't really get enough rest. But that's my fault, not LDN's! I was very fortunate that my own gastroenterologist (in western NY State) was willing to prescribe it after I told him about it. He started looking it up on the Internet as we spoke, and came across the small but very positive study re: LDN and Crohn's done at Penn State. He of course knew I was (am) very drug sensitive and hadn't done well on the various Crohn's drugs I'd taken. And I reminded him of that. I had been to another doctor for an evaluation and he wanted me to start Cimzia, which I refused. My personal physician is also open to it, and to the SCD (I just saw him this week and he kept telling me how good I looked!  I'm not used to a doctor telling me that. :-) (I've also lost a lot of weight, which I actually needed to, though I didn't need to lose as much as I have.)My husband is taking LDN for post-polio syndrome and he's getting it offshore without a prescription, as many people do when/if their doctor won't prescribe it. Actually, he's waiting for his neurologist to get around to looking into it, but he's taking it in the meantime and it has stopped the progression of his symptoms (he began it this spring). n-- I blog at www.ReformedRevelry.wordpress.com

[Guest guest]

My husband is taking LDN for post-polio syndrome and he's getting it offshore without a prescription, as many people do when/if their doctor won't prescribe it. Actually, he's waiting for his neurologist to get around to looking into it, but he's taking it in the meantime and it has stopped the progression of his symptoms (he began it this spring). I hate it that we have to resort to this because physicians "know better".But while this is the reality, I hope we're all taking the opportunity to educate any doctors we have among our friends and family about LDN. I've been giving some of mine to my cat - and I think it is helping him, but the non-verbal thing makes it hard to know for sure. Mara

[Guest guest]

>

n,

What is the name and number of your GI that wrote you a prescription

for LDN? My GI would like to speak with other GI's that have

prescribed it.

Cathy

15yo son w uc

scd 2007

> I was very fortunate that my own gastroenterologist (in western NY

> State) was willing to prescribe it after I told him about it. He

> started looking it up on the Internet as we spoke, and came across the

> small but very positive study re: LDN and Crohn's done at Penn State.

[Guest guest]

Mine is Dr. Kim.

>>

> n,

> What is the name and number of your GI that wrote you a prescription

> for LDN? My GI would like to speak with other GI's that have

> prescribed it.

> Cathy

> 15yo son w uc

> scd 2007

>

>> I was very fortunate that my own gastroenterologist (in western NY

>> State) was willing to prescribe it after I told him about it. He

>> started looking it up on the Internet as we spoke, and came across

>> the small but very positive study re: LDN and Crohn's done at Penn

>> State.

[Guest guest]

Mine is Dr. Kim.

>>

> n,

> What is the name and number of your GI that wrote you a prescription

> for LDN? My GI would like to speak with other GI's that have

> prescribed it.

> Cathy

> 15yo son w uc

> scd 2007

>

>> I was very fortunate that my own gastroenterologist (in western NY

>> State) was willing to prescribe it after I told him about it. He

>> started looking it up on the Internet as we spoke, and came across

>> the small but very positive study re: LDN and Crohn's done at Penn

>> State.