Re: Eileen: Celiac and returning to normal diet

[Guest guest]

Is it possible to test for celiac after having been on SCD for 3 years? My

blood tests were negative for celiac last year, but it probably wasn't accurate

if I haven't been eating gluten.

Also, my allergy tests last year showed a strong reaction to rice and lesser

sensitivities to wheat, corn, barley, lentils ( " can rotate and eat every 4

days " ). Doesn't look like my allergies have " abated " from the diet. Even

without the auto-immune/gut issues, some of us may be better off without most

SCD-illegal foods anyway.

Debbie T (SCD 10/06, UC 29 yrs)

>

> What you have heard is correct Eileen.

> There has been some progress with certain allergies abating over time in

certain people under medical supervision.

>  

> Celiac disease is not an allergy.  It is an auto-immune problem for certain

people who are genetically predisposed to it.  It is a " forever " condition.

>  

> Maintaining a careful gluten-free diet over time will result in healing of the

small intestine and a resolution of many of the symptoms of malabsorption. 

However, if you are a celiac, and return to eating gluten-containing foods,

sooner or later you will regress and again have intestinal damage--whether or

not you are initially symptomatic.  Some people are silent celiacs and do not

experience initial symptoms, however they do have actual damage that is

demonstrated by biopsies taken during scoping.

>  

> Years ago it was believed that children with celiac would " outgrow " their

disease.  Unfortunately many adults learned too late that was not so.

> If you are unsure, Eileen, go to one of the many reputable sites that

exist......Mayo Clinic, Celiac Center at Columbia U. in NYC begun by

Green, MD,  U. land Center under Dr. Alessio Fasano,....these are just a few

but so many abound and can be Googled for accurate information.......and read

about Celiac Disease. 

>  

> For the present, a celiac diagnosis is for life and a clean diet is necessary

to prevent the many health conditions that follow missed diagnosis or refusal to

follow a careful GF regimen.  I would be very suspect of anyone who advises you

a celiac can  " outgrow " , heal or otherwise ignore following a GF diet and remain

healthy.  

> Again, Celiac Disease is not an " allergy " though some articles in the popular

press don't make this distinction.

> Additionally, this info. is relevent to individuals who have been diagnosed

via EGD and biopsy where typical intestinal damage have been verified.

>  

> Hope this helps,

> Gen

>  

>

[Guest guest]

There is no way you would test positive for celiac if you have been on scd for 3 years. To get a proper reading your have to eat the equivalent of 3 to 4 slices of bread for about 3 weeks. Even then the tests can sometimes not be accurate.

Sky

To: BTVC-SCD Sent: Fri, 9 October, 2009 7:03:49 AMSubject: Re: Eileen: Celiac and returning to normal diet

Is it possible to test for celiac after having been on SCD for 3 years? My blood tests were negative for celiac last year, but it probably wasn't accurate if I haven't been eating gluten.

Get more done like never before with Yahoo!7 Mail. Learn more.

[Guest guest]

There is no way you would test positive for celiac if you have been on scd for 3 years. To get a proper reading your have to eat the equivalent of 3 to 4 slices of bread for about 3 weeks. Even then the tests can sometimes not be accurate.

Sky

To: BTVC-SCD Sent: Fri, 9 October, 2009 7:03:49 AMSubject: Re: Eileen: Celiac and returning to normal diet

Is it possible to test for celiac after having been on SCD for 3 years? My blood tests were negative for celiac last year, but it probably wasn't accurate if I haven't been eating gluten.

Get more done like never before with Yahoo!7 Mail. Learn more.