Re: Eileen: Celiac and returning to normal diet

[Guest guest]

i thought so - i attended a workshop with Dr Green when 1st dx celiac

10/07- i never intended for boys or I to go back to gluten - thanks for

clarifying - i forget it's auto-immune sometimes - i list it under food

allergies on forms etc

eileen 20 months scd

>

> What you have heard is correct Eileen.

> There has been some progress with certain allergies abating over time in

certain people under medical supervision.

>  

> Celiac disease is not an allergy.  It is an auto-immune problem for certain

people who are genetically predisposed to it.  It is a " forever " condition.

>  

> Maintaining a careful gluten-free diet over time will result in healing of the

small intestine and a resolution of many of the symptoms of malabsorption. 

However, if you are a celiac, and return to eating gluten-containing foods,

sooner or later you will regress and again have intestinal damage--whether or

not you are initially symptomatic.  Some people are silent celiacs and do not

experience initial symptoms, however they do have actual damage that is

demonstrated by biopsies taken during scoping.

>  

> Years ago it was believed that children with celiac would " outgrow " their

disease.  Unfortunately many adults learned too late that was not so.

> If you are unsure, Eileen, go to one of the many reputable sites that

exist......Mayo Clinic, Celiac Center at Columbia U. in NYC begun by

Green, MD,  U. land Center under Dr. Alessio Fasano,....these are just a few

but so many abound and can be Googled for accurate information.......and read

about Celiac Disease. 

>  

> For the present, a celiac diagnosis is for life and a clean diet is necessary

to prevent the many health conditions that follow missed diagnosis or refusal to

follow a careful GF regimen.  I would be very suspect of anyone who advises you

a celiac can  " outgrow " , heal or otherwise ignore following a GF diet and remain

healthy.  

> Again, Celiac Disease is not an " allergy " though some articles in the popular

press don't make this distinction.

> Additionally, this info. is relevent to individuals who have been diagnosed

via EGD and biopsy where typical intestinal damage have been verified.

>  

> Hope this helps,

> Gen

>  

>

[Guest guest]

i thought so - i attended a workshop with Dr Green when 1st dx celiac

10/07- i never intended for boys or I to go back to gluten - thanks for

clarifying - i forget it's auto-immune sometimes - i list it under food

allergies on forms etc

eileen 20 months scd

>

> What you have heard is correct Eileen.

> There has been some progress with certain allergies abating over time in

certain people under medical supervision.

>  

> Celiac disease is not an allergy.  It is an auto-immune problem for certain

people who are genetically predisposed to it.  It is a " forever " condition.

>  

> Maintaining a careful gluten-free diet over time will result in healing of the

small intestine and a resolution of many of the symptoms of malabsorption. 

However, if you are a celiac, and return to eating gluten-containing foods,

sooner or later you will regress and again have intestinal damage--whether or

not you are initially symptomatic.  Some people are silent celiacs and do not

experience initial symptoms, however they do have actual damage that is

demonstrated by biopsies taken during scoping.

>  

> Years ago it was believed that children with celiac would " outgrow " their

disease.  Unfortunately many adults learned too late that was not so.

> If you are unsure, Eileen, go to one of the many reputable sites that

exist......Mayo Clinic, Celiac Center at Columbia U. in NYC begun by

Green, MD,  U. land Center under Dr. Alessio Fasano,....these are just a few

but so many abound and can be Googled for accurate information.......and read

about Celiac Disease. 

>  

> For the present, a celiac diagnosis is for life and a clean diet is necessary

to prevent the many health conditions that follow missed diagnosis or refusal to

follow a careful GF regimen.  I would be very suspect of anyone who advises you

a celiac can  " outgrow " , heal or otherwise ignore following a GF diet and remain

healthy.  

> Again, Celiac Disease is not an " allergy " though some articles in the popular

press don't make this distinction.

> Additionally, this info. is relevent to individuals who have been diagnosed

via EGD and biopsy where typical intestinal damage have been verified.

>  

> Hope this helps,

> Gen

>  

>

[Guest guest]

i thought so - i attended a workshop with Dr Green when 1st dx celiac

10/07- i never intended for boys or I to go back to gluten - thanks for

clarifying - i forget it's auto-immune sometimes - i list it under food

allergies on forms etc

eileen 20 months scd

>

> What you have heard is correct Eileen.

> There has been some progress with certain allergies abating over time in

certain people under medical supervision.

>  

> Celiac disease is not an allergy.  It is an auto-immune problem for certain

people who are genetically predisposed to it.  It is a " forever " condition.

>  

> Maintaining a careful gluten-free diet over time will result in healing of the

small intestine and a resolution of many of the symptoms of malabsorption. 

However, if you are a celiac, and return to eating gluten-containing foods,

sooner or later you will regress and again have intestinal damage--whether or

not you are initially symptomatic.  Some people are silent celiacs and do not

experience initial symptoms, however they do have actual damage that is

demonstrated by biopsies taken during scoping.

>  

> Years ago it was believed that children with celiac would " outgrow " their

disease.  Unfortunately many adults learned too late that was not so.

> If you are unsure, Eileen, go to one of the many reputable sites that

exist......Mayo Clinic, Celiac Center at Columbia U. in NYC begun by

Green, MD,  U. land Center under Dr. Alessio Fasano,....these are just a few

but so many abound and can be Googled for accurate information.......and read

about Celiac Disease. 

>  

> For the present, a celiac diagnosis is for life and a clean diet is necessary

to prevent the many health conditions that follow missed diagnosis or refusal to

follow a careful GF regimen.  I would be very suspect of anyone who advises you

a celiac can  " outgrow " , heal or otherwise ignore following a GF diet and remain

healthy.  

> Again, Celiac Disease is not an " allergy " though some articles in the popular

press don't make this distinction.

> Additionally, this info. is relevent to individuals who have been diagnosed

via EGD and biopsy where typical intestinal damage have been verified.

>  

> Hope this helps,

> Gen

>  

>

[Guest guest]

On Tue, 06 Oct 2009 16:39:36 -0400, Genevieve Carroll

genevievecarroll2003@...> wrote:

> What you have heard is correct Eileen.

> There has been some progress with certain allergies abating over time in

> certain people under medical supervision.

> Celiac disease is not an allergy. It is an auto-immune problem for

> certain people who are genetically predisposed to it. It is a " forever "

> condition.

It is only if you believe that auto-immune conditions are not

reversible/healable. But they are. (For starters, take LDN.) I could give

you a list of names of people who are living proof of it -- and put me on

that list as well.

> For the present, a celiac diagnosis is for life

Yes, it is in among those who practice conventional medicine. BUt they've

been known to be -- and often are -- wrong. A lot of here have experienced

that (and some of us many times).

n

[Guest guest]

marian

do you have celiac?? will you return after scd? just curious - i'll have to let

the future answer this one, but since i don't miss it - why return - at least

for me

thanks Eileen

>

> > What you have heard is correct Eileen.

> > There has been some progress with certain allergies abating over time in

> > certain people under medical supervision.

> > Celiac disease is not an allergy. It is an auto-immune problem for

> > certain people who are genetically predisposed to it. It is a " forever "

> > condition.

>

> It is only if you believe that auto-immune conditions are not

> reversible/healable. But they are. (For starters, take LDN.) I could give

> you a list of names of people who are living proof of it -- and put me on

> that list as well.

>

>

> > For the present, a celiac diagnosis is for life

>

> Yes, it is in among those who practice conventional medicine. BUt they've

> been known to be -- and often are -- wrong. A lot of here have experienced

> that (and some of us many times).

>

> n

>

[Guest guest]

> marian> do you have celiac?? will you return after scd? just curious - i'll > have to let the future answer this one, but since i don't miss it - why > return - at least for me> thanks Eileen>Hi Eileen,No, I've had Crohn's for 30 years (and several other wacked-out immune system conditions). I've had two small-bowel resections re: the Crohn's.Yes, I would certainly return to eating some of what I ate previously if or when I could. Not white sugar (I didn't have a sweet tooth), though I certianly wish I could eat molasses and brown sugar -- it's very hard to duplicate the taste of those in, say, BBQ sauce, or topping for almond flour coffee cake! I'd eat whole grain breads, if I could; and real pasta (I'm an Italian food freak), and certainly the 70% cocoa dark chocolate (more bitter than sweet) which I delighted in.I don't think about not eating that stuff, normally. But I do miss it periodically, sometimes intensely. Interestingly, that said, the worst "attacks" of remorse over food I've had have been at local festivals where there are food stands up and down the streets. You know the kind, where they sell fried dough, kettle corn, Italian rice balls with sauce, barbacued pulled pork, pizza, caramel appels, etc. (Sorry!) And I didn't even normally eat that kind of stuff very often. It's the food smells more than the taste memory, I think, that got to me.I'm enjoying being thin (but am too thin now) and feeling much better. And I'm enjoying what I now eat. But despite the variety possible on SCD, it does get boring at times, I find. And is so time consuming.  When one works every day (even if from a home office most of the time), spending so many hours in food preparation (even when you like to cook/bake, as I do) gets tedious periodically. (I deeply sympathize with those of you who also have young children to care for -- the children are a gift, of course; but I mean because you have so much work to do to keep an entire family fed -- and happy with what they're being fed!) n

[Guest guest]

oh I agree wholeheartedly with the ease of regular diet - 24/7 around here with

the lil guys and 5 different diets -but that said i'd personally return if

anything to gf cookies icecream etc (can you say sugar addict) - how else could

one have all this yeast??!! LOL

thanks

Eileen

>

> > marian

> > do you have celiac?? will you return after scd? just curious - i'llhave

> > to let the future answer this one, but since i don't miss it - whyreturn

> > - at least for me

> > thanks Eileen

> >

> Hi Eileen,

>

> No, I've had Crohn's for 30 years (and several other wacked-out immune

> system conditions). I've had two small-bowel resections re: the Crohn's.

>

> Yes, I would certainly return to eating some of what I ate previously if

> or when I could. Not white sugar (I didn't have a sweet tooth), though I

> certianly wish I could eat molasses and brown sugar -- it's very hard to

> duplicate the taste of those in, say, BBQ sauce, or topping for almond

> flour coffee cake! I'd eat whole grain breads, if I could; and real pasta

> (I'm an Italian food freak), and certainly the 70% cocoa dark chocolate

> (more bitter than sweet) which I delighted in.

>

> I don't think about not eating that stuff, normally. But I do miss it

> periodically, sometimes intensely. Interestingly, that said, the worst

> " attacks " of remorse over food I've had have been at local festivals where

> there are food stands up and down the streets. You know the kind, where

> they sell fried dough, kettle corn, Italian rice balls with sauce,

> barbacued pulled pork, pizza, caramel appels, etc. (Sorry!) And I didn't

> even normally eat that kind of stuff very often. It's the food smells more

> than the taste memory, I think, that got to me.

>

> I'm enjoying being thin (but am too thin now) and feeling much better. And

> I'm enjoying what I now eat. But despite the variety possible on SCD, it

> does get boring at times, I find. And is so time consuming. When one

> works every day (even if from a home office most of the time), spending so

> many hours in food preparation (even when you like to cook/bake, as I do)

> gets tedious periodically. (I deeply sympathize with those of you who also

> have young children to care for -- the children are a gift, of course; but

> I mean because you have so much work to do to keep an entire family fed --

> and happy with what they're being fed!)

>

> n

>

[Guest guest]

thanks for sharing - there's no butting in here - that's what's great about this

group!! :-)

eileen 20 months scd

> >

> > marian

> > do you have celiac?? will you return after scd? just curious - i'll have to

let the future answer this one, but since i don't miss it - why return - at

least for me

> > thanks Eileen

>

[Guest guest]

Hi, I'm pretty new to this, but after reading both the Sydney Haas and Elaine Gottschall books, I thought this diet was a "cure" for Celiac Disease if followed for a year, then gradually adding in "illegal" foods for six months, then resuming a "normal" diet.

Has anyone experienced this, and isn't that what Dr. Haas developed this diet for? Any answers would be very much appreciated! Thanks so much!!

And -- Thanks for all the great ideas on this group every day!!

Subject: Re: Eileen: Celiac and returning to normal dietTo: BTVC-SCD Date: Tuesday, October 6, 2009, 7:47 PM

mariando you have celiac?? will you return after scd? just curious - i'll have to let the future answer this one, but since i don't miss it - why return - at least for methanks Eileen> > > What you have heard is correct Eileen.> > There has been some progress with certain allergies abating over time in > > certain people under medical supervision.> > Celiac disease is not an allergy. It is an auto-immune problem for > > certain people who are genetically predisposed to it. It is a "forever" > > condition.> >

It is only if you believe that auto-immune conditions are not > reversible/healable . But they are. (For starters, take LDN.) I could give > you a list of names of people who are living proof of it -- and put me on > that list as well.> > > > For the present, a celiac diagnosis is for life> > Yes, it is in among those who practice conventional medicine. BUt they've > been known to be -- and often are -- wrong. A lot of here have experienced > that (and some of us many times).> > n>

[Guest guest]

Hi, I'm pretty new to this, but after reading both the Sydney Haas and Elaine Gottschall books, I thought this diet was a "cure" for Celiac Disease if followed for a year, then gradually adding in "illegal" foods for six months, then resuming a "normal" diet.

Has anyone experienced this, and isn't that what Dr. Haas developed this diet for? Any answers would be very much appreciated! Thanks so much!!

And -- Thanks for all the great ideas on this group every day!!

Subject: Re: Eileen: Celiac and returning to normal dietTo: BTVC-SCD Date: Tuesday, October 6, 2009, 7:47 PM

mariando you have celiac?? will you return after scd? just curious - i'll have to let the future answer this one, but since i don't miss it - why return - at least for methanks Eileen> > > What you have heard is correct Eileen.> > There has been some progress with certain allergies abating over time in > > certain people under medical supervision.> > Celiac disease is not an allergy. It is an auto-immune problem for > > certain people who are genetically predisposed to it. It is a "forever" > > condition.> >

It is only if you believe that auto-immune conditions are not > reversible/healable . But they are. (For starters, take LDN.) I could give > you a list of names of people who are living proof of it -- and put me on > that list as well.> > > > For the present, a celiac diagnosis is for life> > Yes, it is in among those who practice conventional medicine. BUt they've > been known to be -- and often are -- wrong. A lot of here have experienced > that (and some of us many times).> > n>

[Guest guest]

At 12:05 PM 10/7/2009, you wrote:

Has anyone experienced this, and

isn't that what Dr. Haas developed this diet for? Any answers would

be very much appreciated!

Dr. Haas worked primarily with children. Apparently, the younger you are

when the intervention takes place, the more likely you are to be able to

re-introduce non-SCD food.

Me, I was 50 when I started, so I'm probably going to stay with SCD food

the rest of my life. A though, btw, which does not bother me, because SCD

is now NORMAL to me.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 12:05 PM 10/7/2009, you wrote:

Has anyone experienced this, and

isn't that what Dr. Haas developed this diet for? Any answers would

be very much appreciated!

Dr. Haas worked primarily with children. Apparently, the younger you are

when the intervention takes place, the more likely you are to be able to

re-introduce non-SCD food.

Me, I was 50 when I started, so I'm probably going to stay with SCD food

the rest of my life. A though, btw, which does not bother me, because SCD

is now NORMAL to me.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 12:05 PM 10/7/2009, you wrote:

Has anyone experienced this, and

isn't that what Dr. Haas developed this diet for? Any answers would

be very much appreciated!

Dr. Haas worked primarily with children. Apparently, the younger you are

when the intervention takes place, the more likely you are to be able to

re-introduce non-SCD food.

Me, I was 50 when I started, so I'm probably going to stay with SCD food

the rest of my life. A though, btw, which does not bother me, because SCD

is now NORMAL to me.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

good to know - thanks!

eileen

> >Has anyone experienced this, and isn't that what

> >Dr. Haas developed this diet for? Any answers would be very much

appreciated!

>

> Dr. Haas worked primarily with children.

> Apparently, the younger you are when the

> intervention takes place, the more likely you are

> to be able to re-introduce non-SCD food.

>

> Me, I was 50 when I started, so I'm probably

> going to stay with SCD food the rest of my life.

> A though, btw, which does not bother me, because SCD is now NORMAL to me.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

good to know - thanks!

eileen

> >Has anyone experienced this, and isn't that what

> >Dr. Haas developed this diet for? Any answers would be very much

appreciated!

>

> Dr. Haas worked primarily with children.

> Apparently, the younger you are when the

> intervention takes place, the more likely you are

> to be able to re-introduce non-SCD food.

>

> Me, I was 50 when I started, so I'm probably

> going to stay with SCD food the rest of my life.

> A though, btw, which does not bother me, because SCD is now NORMAL to me.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

I've read that buckwheat honey tastes like molasses, so you might want to try it

in your recipes. I currently have a local honey called desert blue clover, and

it reminds me of molasses too. I plan on using it to make some ginger snaps.

Holly

Crohn's

SCD 12/01/08

> Hi Eileen,

>

> No, I've had Crohn's for 30 years (and several other wacked-out immune

> system conditions). I've had two small-bowel resections re: the Crohn's.

>

> Yes, I would certainly return to eating some of what I ate previously if

> or when I could. Not white sugar (I didn't have a sweet tooth), though I

> certianly wish I could eat molasses and brown sugar -- it's very hard to

> duplicate the taste of those in, say, BBQ sauce, or topping for almond

> flour coffee cake! I'd eat whole grain breads, if I could; and real pasta

> (I'm an Italian food freak), and certainly the 70% cocoa dark chocolate

> (more bitter than sweet) which I delighted in.

>

> I don't think about not eating that stuff, normally. But I do miss it

> periodically, sometimes intensely. Interestingly, that said, the worst

> " attacks " of remorse over food I've had have been at local festivals where

> there are food stands up and down the streets. You know the kind, where

> they sell fried dough, kettle corn, Italian rice balls with sauce,

> barbacued pulled pork, pizza, caramel appels, etc. (Sorry!) And I didn't

> even normally eat that kind of stuff very often. It's the food smells more

> than the taste memory, I think, that got to me.

>

> I'm enjoying being thin (but am too thin now) and feeling much better. And

> I'm enjoying what I now eat. But despite the variety possible on SCD, it

> does get boring at times, I find. And is so time consuming. When one

> works every day (even if from a home office most of the time), spending so

> many hours in food preparation (even when you like to cook/bake, as I do)

> gets tedious periodically. (I deeply sympathize with those of you who also

> have young children to care for -- the children are a gift, of course; but

> I mean because you have so much work to do to keep an entire family fed --

> and happy with what they're being fed!)

>

> n

>

[Guest guest]

yum ,thanks - the name buckwheat freaked me out for a sec!! lol

eileen

>

> I've read that buckwheat honey tastes like molasses, so you might want to try

it in your recipes. I currently have a local honey called desert blue clover,

and it reminds me of molasses too. I plan on using it to make some ginger snaps.

>

> Holly

> Crohn's

> SCD 12/01/08

>

> > Hi Eileen,

> >

> > No, I've had Crohn's for 30 years (and several other wacked-out immune

> > system conditions). I've had two small-bowel resections re: the Crohn's.

> >

> > Yes, I would certainly return to eating some of what I ate previously if

> > or when I could. Not white sugar (I didn't have a sweet tooth), though I

> > certianly wish I could eat molasses and brown sugar -- it's very hard to

> > duplicate the taste of those in, say, BBQ sauce, or topping for almond

> > flour coffee cake! I'd eat whole grain breads, if I could; and real pasta

> > (I'm an Italian food freak), and certainly the 70% cocoa dark chocolate

> > (more bitter than sweet) which I delighted in.

> >

> > I don't think about not eating that stuff, normally. But I do miss it

> > periodically, sometimes intensely. Interestingly, that said, the worst

> > " attacks " of remorse over food I've had have been at local festivals where

> > there are food stands up and down the streets. You know the kind, where

> > they sell fried dough, kettle corn, Italian rice balls with sauce,

> > barbacued pulled pork, pizza, caramel appels, etc. (Sorry!) And I didn't

> > even normally eat that kind of stuff very often. It's the food smells more

> > than the taste memory, I think, that got to me.

> >

> > I'm enjoying being thin (but am too thin now) and feeling much better. And

> > I'm enjoying what I now eat. But despite the variety possible on SCD, it

> > does get boring at times, I find. And is so time consuming. When one

> > works every day (even if from a home office most of the time), spending so

> > many hours in food preparation (even when you like to cook/bake, as I do)

> > gets tedious periodically. (I deeply sympathize with those of you who also

> > have young children to care for -- the children are a gift, of course; but

> > I mean because you have so much work to do to keep an entire family fed --

> > and happy with what they're being fed!)

> >

> > n

> >

>

[Guest guest]

yum ,thanks - the name buckwheat freaked me out for a sec!! lol

eileen

>

> I've read that buckwheat honey tastes like molasses, so you might want to try

it in your recipes. I currently have a local honey called desert blue clover,

and it reminds me of molasses too. I plan on using it to make some ginger snaps.

>

> Holly

> Crohn's

> SCD 12/01/08

>

> > Hi Eileen,

> >

> > No, I've had Crohn's for 30 years (and several other wacked-out immune

> > system conditions). I've had two small-bowel resections re: the Crohn's.

> >

> > Yes, I would certainly return to eating some of what I ate previously if

> > or when I could. Not white sugar (I didn't have a sweet tooth), though I

> > certianly wish I could eat molasses and brown sugar -- it's very hard to

> > duplicate the taste of those in, say, BBQ sauce, or topping for almond

> > flour coffee cake! I'd eat whole grain breads, if I could; and real pasta

> > (I'm an Italian food freak), and certainly the 70% cocoa dark chocolate

> > (more bitter than sweet) which I delighted in.

> >

> > I don't think about not eating that stuff, normally. But I do miss it

> > periodically, sometimes intensely. Interestingly, that said, the worst

> > " attacks " of remorse over food I've had have been at local festivals where

> > there are food stands up and down the streets. You know the kind, where

> > they sell fried dough, kettle corn, Italian rice balls with sauce,

> > barbacued pulled pork, pizza, caramel appels, etc. (Sorry!) And I didn't

> > even normally eat that kind of stuff very often. It's the food smells more

> > than the taste memory, I think, that got to me.

> >

> > I'm enjoying being thin (but am too thin now) and feeling much better. And

> > I'm enjoying what I now eat. But despite the variety possible on SCD, it

> > does get boring at times, I find. And is so time consuming. When one

> > works every day (even if from a home office most of the time), spending so

> > many hours in food preparation (even when you like to cook/bake, as I do)

> > gets tedious periodically. (I deeply sympathize with those of you who also

> > have young children to care for -- the children are a gift, of course; but

> > I mean because you have so much work to do to keep an entire family fed --

> > and happy with what they're being fed!)

> >

> > n

> >

>

[Guest guest]

It really does! I tried buckwheat honey a couple weekends ago (from our local

bee folks) and thought that it would be a perfect substitution in some recipes

that call for molasses as an ingredient!

Stacey

>

> I've read that buckwheat honey tastes like molasses, so you might want to try

it in your recipes. I currently have a local honey called desert blue clover,

and it reminds me of molasses too. I plan on using it to make some ginger snaps.

>

> Holly

> Crohn's

> SCD 12/01/08

>

[Guest guest]

Is it possible to test for celiac after having been on SCD for 3 years? My

blood tests were negative for celiac last year, but it probably wasn't accurate

if I haven't been eating gluten.

Also, my allergy tests last year showed a strong reaction to rice and lesser

sensitivities to wheat, corn, barley, lentils ( " can rotate and eat every 4

days " ). Doesn't look like my allergies have " abated " from the diet. Even

without the auto-immune/gut issues, some of us may be better off without most

SCD-illegal foods anyway.

Debbie T (SCD 10/06, UC 29 yrs)

>

> What you have heard is correct Eileen.

> There has been some progress with certain allergies abating over time in

certain people under medical supervision.

>  

> Celiac disease is not an allergy.  It is an auto-immune problem for certain

people who are genetically predisposed to it.  It is a " forever " condition.

>  

> Maintaining a careful gluten-free diet over time will result in healing of the

small intestine and a resolution of many of the symptoms of malabsorption. 

However, if you are a celiac, and return to eating gluten-containing foods,

sooner or later you will regress and again have intestinal damage--whether or

not you are initially symptomatic.  Some people are silent celiacs and do not

experience initial symptoms, however they do have actual damage that is

demonstrated by biopsies taken during scoping.

>  

> Years ago it was believed that children with celiac would " outgrow " their

disease.  Unfortunately many adults learned too late that was not so.

> If you are unsure, Eileen, go to one of the many reputable sites that

exist......Mayo Clinic, Celiac Center at Columbia U. in NYC begun by

Green, MD,  U. land Center under Dr. Alessio Fasano,....these are just a few

but so many abound and can be Googled for accurate information.......and read

about Celiac Disease. 

>  

> For the present, a celiac diagnosis is for life and a clean diet is necessary

to prevent the many health conditions that follow missed diagnosis or refusal to

follow a careful GF regimen.  I would be very suspect of anyone who advises you

a celiac can  " outgrow " , heal or otherwise ignore following a GF diet and remain

healthy.  

> Again, Celiac Disease is not an " allergy " though some articles in the popular

press don't make this distinction.

> Additionally, this info. is relevent to individuals who have been diagnosed

via EGD and biopsy where typical intestinal damage have been verified.

>  

> Hope this helps,

> Gen

>  

>

[Guest guest]

thanks -don't imagine you'd get accurate results without gluten in- they made

me put gluten back in before scoping my boys and yes alot of that food is

un-needed

eileen

> >

> > What you have heard is correct Eileen.

> > There has been some progress with certain allergies abating over time in

certain people under medical supervision.

> >  

> > Celiac disease is not an allergy.  It is an auto-immune problem for certain

people who are genetically predisposed to it.  It is a " forever " condition.

> >  

> > Maintaining a careful gluten-free diet over time will result in healing of

the small intestine and a resolution of many of the symptoms of malabsorption. 

However, if you are a celiac, and return to eating gluten-containing foods,

sooner or later you will regress and again have intestinal damage--whether or

not you are initially symptomatic.  Some people are silent celiacs and do not

experience initial symptoms, however they do have actual damage that is

demonstrated by biopsies taken during scoping.

> >  

> > Years ago it was believed that children with celiac would " outgrow " their

disease.  Unfortunately many adults learned too late that was not so.

> > If you are unsure, Eileen, go to one of the many reputable sites that

exist......Mayo Clinic, Celiac Center at Columbia U. in NYC begun by

Green, MD,  U. land Center under Dr. Alessio Fasano,....these are just a few

but so many abound and can be Googled for accurate information.......and read

about Celiac Disease. 

> >  

> > For the present, a celiac diagnosis is for life and a clean diet is

necessary to prevent the many health conditions that follow missed diagnosis or

refusal to follow a careful GF regimen.  I would be very suspect of anyone

who advises you a celiac can  " outgrow " , heal or otherwise ignore following a GF

diet and remain healthy.  

> > Again, Celiac Disease is not an " allergy " though some articles in the

popular press don't make this distinction.

> > Additionally, this info. is relevent to individuals who have been diagnosed

via EGD and biopsy where typical intestinal damage have been verified.

> >  

> > Hope this helps,

> > Gen

> >  

> >

>

[Guest guest]

There is no way you would test positive for celiac if you have been on scd for 3 years. To get a proper reading your have to eat the equivalent of 3 to 4 slices of bread for about 3 weeks. Even then the tests can sometimes not be accurate.

Sky

To: BTVC-SCD Sent: Fri, 9 October, 2009 7:03:49 AMSubject: Re: Eileen: Celiac and returning to normal diet

Is it possible to test for celiac after having been on SCD for 3 years? My blood tests were negative for celiac last year, but it probably wasn't accurate if I haven't been eating gluten.

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[Guest guest]

I know Elaine's daughter can't eat rice to this

> day, though she can apparently eat a few other things

any clue if Elaine's daughter can do dairy?? i've heard if you're without you

loose the ability to digest it??

thanks Eileen

20 months scd

[Guest guest]

I know Elaine's daughter can't eat rice to this

> day, though she can apparently eat a few other things

any clue if Elaine's daughter can do dairy?? i've heard if you're without you

loose the ability to digest it??

thanks Eileen

20 months scd