Re: Celiac and returning to normal diet

[Guest guest]

Thanks, but I forgot to mention that it is my 14 year old daughter who is on SCD, and for her it is EXTREMELY difficult, as I am sure you can imagine, being a teenager is tough enough without missing out on going out to eat and parties, not having popcorn, pasta, regular pizza, candy and, ugh, chocolate.  I understand that Dr. Haas worked with mostly younger children, but he also cited a couple of cases in the book of young adults who were unable to follow the diet as children and then returned to him when they were older.Does anyone know of anyone who successfully completed the diet and returned to eating non scd food?  It would be nice to give my daughter some hope of returning to "normal".   Thanks very much, again!Subject: Re: Eileen: Celiac and returning to normal dietTo: BTVC-SCD Date: Wednesday, October 7, 2009, 7:47 PM

 

good to know - thanks!

eileen

> >Has anyone experienced this, and isn't that what

> >Dr. Haas developed this diet for? Any answers would be very much appreciated!

>

> Dr. Haas worked primarily with children.

> Apparently, the younger you are when the

> intervention takes place, the more likely you are

> to be able to re-introduce non-SCD food.

>

> Me, I was 50 when I started, so I'm probably

> going to stay with SCD food the rest of my life.

> A though, btw, which does not bother me, because SCD is now NORMAL to me.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

Thanks, but I forgot to mention that it is my 14 year old daughter who is on SCD, and for her it is EXTREMELY difficult, as I am sure you can imagine, being a teenager is tough enough without missing out on going out to eat and parties, not having popcorn, pasta, regular pizza, candy and, ugh, chocolate.  I understand that Dr. Haas worked with mostly younger children, but he also cited a couple of cases in the book of young adults who were unable to follow the diet as children and then returned to him when they were older.Does anyone know of anyone who successfully completed the diet and returned to eating non scd food?  It would be nice to give my daughter some hope of returning to "normal".   Thanks very much, again!Subject: Re: Eileen: Celiac and returning to normal dietTo: BTVC-SCD Date: Wednesday, October 7, 2009, 7:47 PM

 

good to know - thanks!

eileen

> >Has anyone experienced this, and isn't that what

> >Dr. Haas developed this diet for? Any answers would be very much appreciated!

>

> Dr. Haas worked primarily with children.

> Apparently, the younger you are when the

> intervention takes place, the more likely you are

> to be able to re-introduce non-SCD food.

>

> Me, I was 50 when I started, so I'm probably

> going to stay with SCD food the rest of my life.

> A though, btw, which does not bother me, because SCD is now NORMAL to me.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

Yes, I can understand it, but perhaps she will feel differently once she begins

to feel better. Start with one day at a time...BTVC says 2 years- not forever

Elaine's daughter can eat some illegals. I think the idea of " normal " varies.

Few of us can eat like we did when we were teens- GI issues or not. Hopefully

she will get to the point where an occasional treat is possible. But focus on

NOW. Soon she may be able to tolerate some great SCD treats.

PJ

>

> > >Has anyone experienced this, and isn't that what

>

> > >Dr. Haas developed this diet for? Any answers would be very much

appreciated!

>

> >

>

> > Dr. Haas worked primarily with children.

>

> > Apparently, the younger you are when the

>

> > intervention takes place, the more likely you are

>

> > to be able to re-introduce non-SCD food.

>

> >

>

> > Me, I was 50 when I started, so I'm probably

>

> > going to stay with SCD food the rest of my life.

>

> > A though, btw, which does not bother me, because SCD is now NORMAL to me.

>

> >

>

> >

>

> > †" Marilyn

>

> > New Orleans, Louisiana, USA

>

> > Undiagnosed IBS since 1976, SCD since 2001

>

> > Darn Good SCD Cook

>

> > No Human Children

>

> > Shadow & Sunny Longhair Dachshund

>

> >

>

[Guest guest]

At 08:02 PM 10/7/2009, you wrote:

Does anyone know of anyone who

successfully completed the diet and returned to eating non scd food? Â It

would be nice to give my daughter some hope of returning to

" normal " .

My niece is celiac (per gluten challenge tests).

She was on SCD for about two years, and prefers to eat SCD if she can.

BUT: she can eat gluten-free if the demands of a full-time job and two

small boys get to be too much.

I also know of a lady with Crohn's, who was about two years ahead of me

on the diet. In 2004, she visited me, and I sat and watched in awe and

wonder as she was able to eat breaded and fried N'Awlins seafood, and

N'Awlins-style French bread. She allowed that she might be strict when

she returned home, but for vacations, she could go non-SCD for up to 2-3

weeks.

I know of another person who can, occasionally, have Lindt 85% dark

chocolate and who has even tested the occasional handful of her husband's

popcorn at the movie. She notes, however, that (a) she does this maybe

once every 2-3 months, and ( she never has one item within 2-3 weeks of

the other.

NORMAL is what you make it. I realize that neither you, nor your daughter

want to hear this, but the Standard American Diet is a bad way to eat. If

she were diabetic, she would always have to watch her carbs, and

calculate insulin. If she had sleep apnea, she would always have to sleep

with a CPAP.

One thing to keep in mind is that the " normal food " of fifty

years ago is not the adulterated and processed food of today. I suspect

Dr. Haas would be appalled by the standard diet of today.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 08:02 PM 10/7/2009, you wrote:

Does anyone know of anyone who

successfully completed the diet and returned to eating non scd food? Â It

would be nice to give my daughter some hope of returning to

" normal " .

My niece is celiac (per gluten challenge tests).

She was on SCD for about two years, and prefers to eat SCD if she can.

BUT: she can eat gluten-free if the demands of a full-time job and two

small boys get to be too much.

I also know of a lady with Crohn's, who was about two years ahead of me

on the diet. In 2004, she visited me, and I sat and watched in awe and

wonder as she was able to eat breaded and fried N'Awlins seafood, and

N'Awlins-style French bread. She allowed that she might be strict when

she returned home, but for vacations, she could go non-SCD for up to 2-3

weeks.

I know of another person who can, occasionally, have Lindt 85% dark

chocolate and who has even tested the occasional handful of her husband's

popcorn at the movie. She notes, however, that (a) she does this maybe

once every 2-3 months, and ( she never has one item within 2-3 weeks of

the other.

NORMAL is what you make it. I realize that neither you, nor your daughter

want to hear this, but the Standard American Diet is a bad way to eat. If

she were diabetic, she would always have to watch her carbs, and

calculate insulin. If she had sleep apnea, she would always have to sleep

with a CPAP.

One thing to keep in mind is that the " normal food " of fifty

years ago is not the adulterated and processed food of today. I suspect

Dr. Haas would be appalled by the standard diet of today.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 08:02 PM 10/7/2009, you wrote:

Does anyone know of anyone who

successfully completed the diet and returned to eating non scd food? Â It

would be nice to give my daughter some hope of returning to

" normal " .

My niece is celiac (per gluten challenge tests).

She was on SCD for about two years, and prefers to eat SCD if she can.

BUT: she can eat gluten-free if the demands of a full-time job and two

small boys get to be too much.

I also know of a lady with Crohn's, who was about two years ahead of me

on the diet. In 2004, she visited me, and I sat and watched in awe and

wonder as she was able to eat breaded and fried N'Awlins seafood, and

N'Awlins-style French bread. She allowed that she might be strict when

she returned home, but for vacations, she could go non-SCD for up to 2-3

weeks.

I know of another person who can, occasionally, have Lindt 85% dark

chocolate and who has even tested the occasional handful of her husband's

popcorn at the movie. She notes, however, that (a) she does this maybe

once every 2-3 months, and ( she never has one item within 2-3 weeks of

the other.

NORMAL is what you make it. I realize that neither you, nor your daughter

want to hear this, but the Standard American Diet is a bad way to eat. If

she were diabetic, she would always have to watch her carbs, and

calculate insulin. If she had sleep apnea, she would always have to sleep

with a CPAP.

One thing to keep in mind is that the " normal food " of fifty

years ago is not the adulterated and processed food of today. I suspect

Dr. Haas would be appalled by the standard diet of today.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

did your neice have symptoms of celiac when she started?? or just did it for 2

years to be completely healed??

thanks eileen

> >Does anyone know of anyone who successfully

> >completed the diet and returned to eating non

> >scd food? Â It would be nice to give my daughter

> >some hope of returning to " normal " .

>

> My niece is celiac (per gluten challenge tests).

>

> She was on SCD for about two years, and prefers

> to eat SCD if she can. BUT: she can eat

> gluten-free if the demands of a full-time job and

> two small boys get to be too much.

>

> I also know of a lady with Crohn's, who was about

> two years ahead of me on the diet. In 2004, she

> visited me, and I sat and watched in awe and

> wonder as she was able to eat breaded and fried

> N'Awlins seafood, and N'Awlins-style French

> bread. She allowed that she might be strict when

> she returned home, but for vacations, she could go non-SCD for up to 2-3

weeks.

>

> I know of another person who can, occasionally,

> have Lindt 85% dark chocolate and who has even

> tested the occasional handful of her husband's

> popcorn at the movie. She notes, however, that

> (a) she does this maybe once every 2-3 months,

> and ( she never has one item within 2-3 weeks of the other.

>

> NORMAL is what you make it. I realize that

> neither you, nor your daughter want to hear this,

> but the Standard American Diet is a bad way to

> eat. If she were diabetic, she would always have

> to watch her carbs, and calculate insulin. If she

> had sleep apnea, she would always have to sleep with a CPAP.

>

> One thing to keep in mind is that the " normal

> food " of fifty years ago is not the adulterated

> and processed food of today. I suspect Dr. Haas

> would be appalled by the standard diet of today.

>

>

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

did your neice have symptoms of celiac when she started?? or just did it for 2

years to be completely healed??

thanks eileen

> >Does anyone know of anyone who successfully

> >completed the diet and returned to eating non

> >scd food? Â It would be nice to give my daughter

> >some hope of returning to " normal " .

>

> My niece is celiac (per gluten challenge tests).

>

> She was on SCD for about two years, and prefers

> to eat SCD if she can. BUT: she can eat

> gluten-free if the demands of a full-time job and

> two small boys get to be too much.

>

> I also know of a lady with Crohn's, who was about

> two years ahead of me on the diet. In 2004, she

> visited me, and I sat and watched in awe and

> wonder as she was able to eat breaded and fried

> N'Awlins seafood, and N'Awlins-style French

> bread. She allowed that she might be strict when

> she returned home, but for vacations, she could go non-SCD for up to 2-3

weeks.

>

> I know of another person who can, occasionally,

> have Lindt 85% dark chocolate and who has even

> tested the occasional handful of her husband's

> popcorn at the movie. She notes, however, that

> (a) she does this maybe once every 2-3 months,

> and ( she never has one item within 2-3 weeks of the other.

>

> NORMAL is what you make it. I realize that

> neither you, nor your daughter want to hear this,

> but the Standard American Diet is a bad way to

> eat. If she were diabetic, she would always have

> to watch her carbs, and calculate insulin. If she

> had sleep apnea, she would always have to sleep with a CPAP.

>

> One thing to keep in mind is that the " normal

> food " of fifty years ago is not the adulterated

> and processed food of today. I suspect Dr. Haas

> would be appalled by the standard diet of today.

>

>

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

At 09:00 AM 10/8/2009, you wrote:

did your neice have symptoms of

celiac when she started?? or just did it for 2 years to be completely

healed??

My niece had been ill for a number of years with celiac

symptoms.

She did it for two full years. Her symptoms cleared. She chose to add

non-SCD foods, per Elaine's suggestions in BTVC. Makes me wish I'd found

BTVC when I was 30, too... except that Elaine hadn't written it

yet!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 09:00 AM 10/8/2009, you wrote:

did your neice have symptoms of

celiac when she started?? or just did it for 2 years to be completely

healed??

My niece had been ill for a number of years with celiac

symptoms.

She did it for two full years. Her symptoms cleared. She chose to add

non-SCD foods, per Elaine's suggestions in BTVC. Makes me wish I'd found

BTVC when I was 30, too... except that Elaine hadn't written it

yet!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 09:00 AM 10/8/2009, you wrote:

did your neice have symptoms of

celiac when she started?? or just did it for 2 years to be completely

healed??

My niece had been ill for a number of years with celiac

symptoms.

She did it for two full years. Her symptoms cleared. She chose to add

non-SCD foods, per Elaine's suggestions in BTVC. Makes me wish I'd found

BTVC when I was 30, too... except that Elaine hadn't written it

yet!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Thanks for your reply, your thoughts, and your stories!!!

Though you are absolutely right about Dr. Haas being appalled at today's average diet, there are still a lot of us who make the extra effort to eat healthy. I have always been very careful about what I eat and have tried to pass that on to my husband and kids (vegetarian for many years, buy mostly organic, try to buy foods without hydrogenated oils,msg,high fructose corn syrup,aspartame,nitrites/nitrates, etc, etc, cook from scratch a lot, kids don't drink any pop/only 100% juice, etc) And, cooking from now on will always include a lot of SCD foods, because we have discovered a lot of great alternatives over the past few months, though some of it does begin to taste very similar after awhile, and the bread and snacks are just not the same. Also, it is difficult, if not impossible, to eat out anywhere and find SCD legal foods

--- even gluten free (avoiding cross contamination) is a bit of a challenge.

We are doing our best, and my daughter felt better almost as soon as she began SCD, so it it definately working! We will keep you all posted once she slowly begins to add in illegal foods at the end of her year. I sure hope it is successful!!

We gratefully welcome any more suggestions or stories.

Thanks again to all of you for your questions and words of wisdom and encouragement each day!!!

Does anyone know of anyone who successfully completed the diet and returned to eating non scd food? Â It would be nice to give my daughter some hope of returning to "normal".

My niece is celiac (per gluten challenge tests).She was on SCD for about two years, and prefers to eat SCD if she can. BUT: she can eat gluten-free if the demands of a full-time job and two small boys get to be too much. I also know of a lady with Crohn's, who was about two years ahead of me on the diet. In 2004, she visited me, and I sat and watched in awe and wonder as she was able to eat breaded and fried N'Awlins seafood, and N'Awlins-style French bread. She allowed that she might be strict when she returned home, but for vacations, she could go non-SCD for up to 2-3 weeks.I know of another person who can, occasionally, have Lindt 85% dark chocolate and who has even tested the occasional handful of her husband's popcorn at the movie. She notes, however, that (a) she does this maybe once every 2-3 months, and ( she never has one item within 2-3 weeks of the other. NORMAL is what you make it. I realize that

neither you, nor your daughter want to hear this, but the Standard American Diet is a bad way to eat. If she were diabetic, she would always have to watch her carbs, and calculate insulin. If she had sleep apnea, she would always have to sleep with a CPAP.

One thing to keep in mind is that the "normal food" of fifty years ago is not the adulterated and processed food of today. I suspect Dr. Haas would be appalled by the standard diet of today.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund

[Guest guest]

>> We gratefully welcome any more suggestions or stories. 

My 14 year old son is on the diet for UC. We know firsthand how hard the SCD

can be for a teenager. I'm doing it 100% with him for moral support and we have

kind of a challenge going - who will go the longest without cheating (even 1

bite).

Some things that I've found that have made it easier for him (but not

necessarily easier for me):

1) Keep LOTS of legal food around the house so he's never gets too hungry.

2) Be willing to " duplicate " party or special event food and deliver it when

needed. My son went to a football team party where they were having chili and

cornbread. I made chili with spiced ground turkey and tomato sauce and

applesauce muffins and took them to the party so he'd have something similar to

eat. Apple crisp for dessert too, which is what everyone else had. I've also

made pizza.

3) Help plan ahead and pack lunches that don't look " gross " . His favorite lunch

is 2 sirloin burgers, pecan flat bread to wrap them in (in a separate bag so it

doesn't get soggy), a baggy of ketchup, applesauce, juice and muffins or almond

butter " brownies " . The kids at school don't seem to think this looks too weird,

so he eats it and fills up. He also takes an after school snack - usually juice

and muffins.

Good luck!

Liz