Re: Celiac and returning to normal diet

[Guest guest]

Thanks for your reply, your thoughts, and your stories!!!

Though you are absolutely right about Dr. Haas being appalled at today's average diet, there are still a lot of us who make the extra effort to eat healthy. I have always been very careful about what I eat and have tried to pass that on to my husband and kids (vegetarian for many years, buy mostly organic, try to buy foods without hydrogenated oils,msg,high fructose corn syrup,aspartame,nitrites/nitrates, etc, etc, cook from scratch a lot, kids don't drink any pop/only 100% juice, etc) And, cooking from now on will always include a lot of SCD foods, because we have discovered a lot of great alternatives over the past few months, though some of it does begin to taste very similar after awhile, and the bread and snacks are just not the same. Also, it is difficult, if not impossible, to eat out anywhere and find SCD legal foods

--- even gluten free (avoiding cross contamination) is a bit of a challenge.

We are doing our best, and my daughter felt better almost as soon as she began SCD, so it it definately working! We will keep you all posted once she slowly begins to add in illegal foods at the end of her year. I sure hope it is successful!!

We gratefully welcome any more suggestions or stories.

Thanks again to all of you for your questions and words of wisdom and encouragement each day!!!

Does anyone know of anyone who successfully completed the diet and returned to eating non scd food? Â It would be nice to give my daughter some hope of returning to "normal".

My niece is celiac (per gluten challenge tests).She was on SCD for about two years, and prefers to eat SCD if she can. BUT: she can eat gluten-free if the demands of a full-time job and two small boys get to be too much. I also know of a lady with Crohn's, who was about two years ahead of me on the diet. In 2004, she visited me, and I sat and watched in awe and wonder as she was able to eat breaded and fried N'Awlins seafood, and N'Awlins-style French bread. She allowed that she might be strict when she returned home, but for vacations, she could go non-SCD for up to 2-3 weeks.I know of another person who can, occasionally, have Lindt 85% dark chocolate and who has even tested the occasional handful of her husband's popcorn at the movie. She notes, however, that (a) she does this maybe once every 2-3 months, and ( she never has one item within 2-3 weeks of the other. NORMAL is what you make it. I realize that

neither you, nor your daughter want to hear this, but the Standard American Diet is a bad way to eat. If she were diabetic, she would always have to watch her carbs, and calculate insulin. If she had sleep apnea, she would always have to sleep with a CPAP.

One thing to keep in mind is that the "normal food" of fifty years ago is not the adulterated and processed food of today. I suspect Dr. Haas would be appalled by the standard diet of today.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund

[Guest guest]

>> We gratefully welcome any more suggestions or stories. 

My 14 year old son is on the diet for UC. We know firsthand how hard the SCD

can be for a teenager. I'm doing it 100% with him for moral support and we have

kind of a challenge going - who will go the longest without cheating (even 1

bite).

Some things that I've found that have made it easier for him (but not

necessarily easier for me):

1) Keep LOTS of legal food around the house so he's never gets too hungry.

2) Be willing to " duplicate " party or special event food and deliver it when

needed. My son went to a football team party where they were having chili and

cornbread. I made chili with spiced ground turkey and tomato sauce and

applesauce muffins and took them to the party so he'd have something similar to

eat. Apple crisp for dessert too, which is what everyone else had. I've also

made pizza.

3) Help plan ahead and pack lunches that don't look " gross " . His favorite lunch

is 2 sirloin burgers, pecan flat bread to wrap them in (in a separate bag so it

doesn't get soggy), a baggy of ketchup, applesauce, juice and muffins or almond

butter " brownies " . The kids at school don't seem to think this looks too weird,

so he eats it and fills up. He also takes an after school snack - usually juice

and muffins.

Good luck!

Liz

[Guest guest]

Liz,

Thank you so much for the reply, and great information!!!

I have been doing a lot of what you are (keeping lots of food for her in the house all the time, making food for her to bring to parties -- feel like all I do is cook, but if it helps them feel better and "more normal", it's worth it). I've also elilminated most of the SCD illegals from the whole family's diet, however, I haven't gone "all the way" -- I give you SO MUCH credit for doing the diet 100% with him -- what a wonderful mom you are!!

Again, thank you very much!

Judy

Subject: Re: Celiac and returning to normal dietTo: BTVC-SCD Date: Thursday, October 8, 2009, 12:00 PM

>> We gratefully welcome any more suggestions or stories. My 14 year old son is on the diet for UC. We know firsthand how hard the SCD can be for a teenager. I'm doing it 100% with him for moral support and we have kind of a challenge going - who will go the longest without cheating (even 1 bite).Some things that I've found that have made it easier for him (but not necessarily easier for me):1) Keep LOTS of legal food around the house so he's never gets too hungry.2) Be willing to "duplicate" party or special event food and deliver it when needed. My son went to a football team party where they were having chili and cornbread. I made chili with

spiced ground turkey and tomato sauce and applesauce muffins and took them to the party so he'd have something similar to eat. Apple crisp for dessert too, which is what everyone else had. I've also made pizza.3) Help plan ahead and pack lunches that don't look "gross". His favorite lunch is 2 sirloin burgers, pecan flat bread to wrap them in (in a separate bag so it doesn't get soggy), a baggy of ketchup, applesauce, juice and muffins or almond butter "brownies". The kids at school don't seem to think this looks too weird, so he eats it and fills up. He also takes an after school snack - usually juice and muffins. Good luck!Liz

[Guest guest]

Liz,

Thank you so much for the reply, and great information!!!

I have been doing a lot of what you are (keeping lots of food for her in the house all the time, making food for her to bring to parties -- feel like all I do is cook, but if it helps them feel better and "more normal", it's worth it). I've also elilminated most of the SCD illegals from the whole family's diet, however, I haven't gone "all the way" -- I give you SO MUCH credit for doing the diet 100% with him -- what a wonderful mom you are!!

Again, thank you very much!

Judy

Subject: Re: Celiac and returning to normal dietTo: BTVC-SCD Date: Thursday, October 8, 2009, 12:00 PM

>> We gratefully welcome any more suggestions or stories. My 14 year old son is on the diet for UC. We know firsthand how hard the SCD can be for a teenager. I'm doing it 100% with him for moral support and we have kind of a challenge going - who will go the longest without cheating (even 1 bite).Some things that I've found that have made it easier for him (but not necessarily easier for me):1) Keep LOTS of legal food around the house so he's never gets too hungry.2) Be willing to "duplicate" party or special event food and deliver it when needed. My son went to a football team party where they were having chili and cornbread. I made chili with

spiced ground turkey and tomato sauce and applesauce muffins and took them to the party so he'd have something similar to eat. Apple crisp for dessert too, which is what everyone else had. I've also made pizza.3) Help plan ahead and pack lunches that don't look "gross". His favorite lunch is 2 sirloin burgers, pecan flat bread to wrap them in (in a separate bag so it doesn't get soggy), a baggy of ketchup, applesauce, juice and muffins or almond butter "brownies". The kids at school don't seem to think this looks too weird, so he eats it and fills up. He also takes an after school snack - usually juice and muffins. Good luck!Liz

[Guest guest]

Liz,

Thank you so much for the reply, and great information!!!

I have been doing a lot of what you are (keeping lots of food for her in the house all the time, making food for her to bring to parties -- feel like all I do is cook, but if it helps them feel better and "more normal", it's worth it). I've also elilminated most of the SCD illegals from the whole family's diet, however, I haven't gone "all the way" -- I give you SO MUCH credit for doing the diet 100% with him -- what a wonderful mom you are!!

Again, thank you very much!

Judy

Subject: Re: Celiac and returning to normal dietTo: BTVC-SCD Date: Thursday, October 8, 2009, 12:00 PM

>> We gratefully welcome any more suggestions or stories. My 14 year old son is on the diet for UC. We know firsthand how hard the SCD can be for a teenager. I'm doing it 100% with him for moral support and we have kind of a challenge going - who will go the longest without cheating (even 1 bite).Some things that I've found that have made it easier for him (but not necessarily easier for me):1) Keep LOTS of legal food around the house so he's never gets too hungry.2) Be willing to "duplicate" party or special event food and deliver it when needed. My son went to a football team party where they were having chili and cornbread. I made chili with

spiced ground turkey and tomato sauce and applesauce muffins and took them to the party so he'd have something similar to eat. Apple crisp for dessert too, which is what everyone else had. I've also made pizza.3) Help plan ahead and pack lunches that don't look "gross". His favorite lunch is 2 sirloin burgers, pecan flat bread to wrap them in (in a separate bag so it doesn't get soggy), a baggy of ketchup, applesauce, juice and muffins or almond butter "brownies". The kids at school don't seem to think this looks too weird, so he eats it and fills up. He also takes an after school snack - usually juice and muffins. Good luck!Liz