Re: Need help to stay strong!

October 8, 2009

Also, he's a distance runner and needs to eat a LOT, hence he is always hungry. Any suggestions for high-calorie "mild" SCD foods??steak, bacon cheeseburgers, all cream yogurt, cheese omelets,add butter and mayonnaise whenever you can. Mara

October 8, 2009

Also, he's a distance runner and needs to eat a LOT, hence he is always hungry. Any suggestions for high-calorie "mild" SCD foods??steak, bacon cheeseburgers, all cream yogurt, cheese omelets,add butter and mayonnaise whenever you can. Mara

October 8, 2009

Also, he's a distance runner and needs to eat a LOT, hence he is always hungry. Any suggestions for high-calorie "mild" SCD foods??steak, bacon cheeseburgers, all cream yogurt, cheese omelets,add butter and mayonnaise whenever you can. Mara

October 8, 2009

A nutritionist who specializes in SCD would be beneficial. A general

nutritionist or dietician would not likely be beneficial. " SCD Solutions " is a

group of SCD counselors approved by Elaine Gottschall. That would be another

good option.

Higher-calorie mild foods would be roast/broiled/boiled meats (like chicken,

turkey, beef, lean pork), eggs and homemade yoghurt. When ready for them,

nuts/nuts butters/nut milks/nut flours would also fuel him longer.

>

> My boyfriend has had UC for 5 years and we are just learning about SCD

together. We've both been on the diet for 2 months now (me, just for support).

He is now on the intro diet for the 2nd time around and is getting very

discouraged. He doesn't have cramps but the B won't subside. I'm trying to get

him to see a nutritionist that specializes in SCD, but he is very skeptical.

Have any of you had success with nutritionists??

>

> Also, he's a distance runner and needs to eat a LOT, hence he is always

hungry. Any suggestions for high-calorie " mild " SCD foods??

>

> Thanks!

> ~Maya

>

October 9, 2009

Hi Maya -

Two months is still pretty early to expect his symptoms to go away. Is

he having any other symptoms (D, mucus, pain)? If not, from what I'm

learning, B is one of the last things to resolve. In fact, after almost

3 years of no B, I've started to have some this year after getting some

IV antibiotics - but no other symptoms. It's very emotionally

distressing, but I'm starting to believe it's just not that big of a

deal because all my other symptoms are A-okay (perfectly formed stools,

no bloating, cramping, mucus, or pain). Also, has he tried Canasa

suppositories or Rowasa enemas (if it seems like the B is very bright

red, indicating that it's close to the rectum)? The Canasa suppositories

work well to stop my bleeding.

The first couple of months on the diet are very challenging (to say the

least!), especially because your body is adjusting to not having all the

carbs and you feel like you're constantly starving. In fact, the bad

bacteria ARE starving and demanding their old foods! I do a lot of

mountain bike riding and can remember when I first started, I would have

to bring food with me to eat both before and after riding - and I was

STILL starving! The other members have given you good suggestions. If

your boyfriend can handle dairy, adding cheese, butter, mayo, etc. to

everything will help fill him up. Some of the things I used to bring for

after-ride snacks were grilled chicken & cheese, hard-boiled eggs and

cheese, sliced turkey and cheese (all of which are fine to eat cold),

ripe bananas, cooked carrot sticks (these are actually okay cold, too).

When he can tolerate nut butters, the nut butter brownies from the BTVC

book are an amazing delicious and filling snack. I make mine with 1/2

pecans and 1/2 cashews instead of peanut butter because I like that

better, plus PB can be a more advanced food. Ice cream made from whole

cream yogurt is also sinful and filling.

It's also likely that he's going through some die-off. Give it a bit

more time and his body will normalize and he won't feel so hungry all

the time. Don't hesitate to keep asking for support from this group -

we've all been there and know just how difficult this lifestyle change

can be.

Kathy

UC since 12/05

SCD since 7/07

med-free and symptom-free from 7/08 to 4/09

Back on sulfasalazine and occasional Canasa due to IV antibiotics

messing with my bacterial balance 4/09

>

> My boyfriend has had UC for 5 years and we are just learning about SCD

together. We've both been on the diet for 2 months now (me, just for

support). He is now on the intro diet for the 2nd time around and is

getting very discouraged. He doesn't have cramps but the B won't

subside. I'm trying to get him to see a nutritionist that specializes

in SCD, but he is very skeptical. Have any of you had success with

nutritionists??

>

> Also, he's a distance runner and needs to eat a LOT, hence he is

always hungry. Any suggestions for high-calorie " mild " SCD foods??

>

> Thanks!

> ~Maya

>

October 9, 2009

Thank you so much for your support! I just passed this email on to him, and I just know it will incite some relief.

He's back on Prednizone (sp?) right now because his B got so bad and he has a 1/2 marathon race this weekend. He's not off the diet yet, and I'm hoping that after seeing a nutritionist and getting support from this group, he will start to heal.

Thanks again!

~Maya

To: BTVC-SCD Sent: Friday, October 9, 2009 12:33:03 PMSubject: Re: Need help to stay strong!

Hi Maya -Two months is still pretty early to expect his symptoms to go away. Ishe having any other symptoms (D, mucus, pain)? If not, from what I'mlearning, B is one of the last things to resolve. In fact, after almost3 years of no B, I've started to have some this year after getting someIV antibiotics - but no other symptoms. It's very emotionallydistressing, but I'm starting to believe it's just not that big of adeal because all my other symptoms are A-okay (perfectly formed stools,no bloating, cramping, mucus, or pain). Also, has he tried Canasasuppositories or Rowasa enemas (if it seems like the B is very brightred, indicating that it's close to the rectum)? The Canasa suppositorieswork well to stop my bleeding.The first couple of months on the diet are very challenging (to say theleast!), especially because your body is adjusting to not having all thecarbs and you feel like

you're constantly starving. In fact, the badbacteria ARE starving and demanding their old foods! I do a lot ofmountain bike riding and can remember when I first started, I would haveto bring food with me to eat both before and after riding - and I wasSTILL starving! The other members have given you good suggestions. Ifyour boyfriend can handle dairy, adding cheese, butter, mayo, etc. toeverything will help fill him up. Some of the things I used to bring forafter-ride snacks were grilled chicken & cheese, hard-boiled eggs andcheese, sliced turkey and cheese (all of which are fine to eat cold),ripe bananas, cooked carrot sticks (these are actually okay cold, too).When he can tolerate nut butters, the nut butter brownies from the BTVCbook are an amazing delicious and filling snack. I make mine with 1/2pecans and 1/2 cashews instead of peanut butter because I like thatbetter, plus PB can be a more

advanced food. Ice cream made from wholecream yogurt is also sinful and filling.It's also likely that he's going through some die-off. Give it a bitmore time and his body will normalize and he won't feel so hungry allthe time. Don't hesitate to keep asking for support from this group -we've all been there and know just how difficult this lifestyle changecan be.KathyUC since 12/05SCD since 7/07med-free and symptom-free from 7/08 to 4/09Back on sulfasalazine and occasional Canasa due to IV antibioticsmessing with my bacterial balance 4/09>> My boyfriend has had UC for 5 years and we are just learning about SCDtogether. We've both been on the diet for 2 months now (me, just

forsupport). He is now on the intro diet for the 2nd time around and isgetting very discouraged. He doesn't have cramps but the B won'tsubside. I'm trying to get him to see a nutritionist that specializesin SCD, but he is very skeptical. Have any of you had success withnutritionists? ?>> Also, he's a distance runner and needs to eat a LOT, hence he isalways hungry. Any suggestions for high-calorie "mild" SCD foods??>> Thanks!> ~Maya>

October 9, 2009

Thank you so much for your support! I just passed this email on to him, and I just know it will incite some relief.

He's back on Prednizone (sp?) right now because his B got so bad and he has a 1/2 marathon race this weekend. He's not off the diet yet, and I'm hoping that after seeing a nutritionist and getting support from this group, he will start to heal.

Thanks again!

~Maya

To: BTVC-SCD Sent: Friday, October 9, 2009 12:33:03 PMSubject: Re: Need help to stay strong!

Hi Maya -Two months is still pretty early to expect his symptoms to go away. Ishe having any other symptoms (D, mucus, pain)? If not, from what I'mlearning, B is one of the last things to resolve. In fact, after almost3 years of no B, I've started to have some this year after getting someIV antibiotics - but no other symptoms. It's very emotionallydistressing, but I'm starting to believe it's just not that big of adeal because all my other symptoms are A-okay (perfectly formed stools,no bloating, cramping, mucus, or pain). Also, has he tried Canasasuppositories or Rowasa enemas (if it seems like the B is very brightred, indicating that it's close to the rectum)? The Canasa suppositorieswork well to stop my bleeding.The first couple of months on the diet are very challenging (to say theleast!), especially because your body is adjusting to not having all thecarbs and you feel like

you're constantly starving. In fact, the badbacteria ARE starving and demanding their old foods! I do a lot ofmountain bike riding and can remember when I first started, I would haveto bring food with me to eat both before and after riding - and I wasSTILL starving! The other members have given you good suggestions. Ifyour boyfriend can handle dairy, adding cheese, butter, mayo, etc. toeverything will help fill him up. Some of the things I used to bring forafter-ride snacks were grilled chicken & cheese, hard-boiled eggs andcheese, sliced turkey and cheese (all of which are fine to eat cold),ripe bananas, cooked carrot sticks (these are actually okay cold, too).When he can tolerate nut butters, the nut butter brownies from the BTVCbook are an amazing delicious and filling snack. I make mine with 1/2pecans and 1/2 cashews instead of peanut butter because I like thatbetter, plus PB can be a more

advanced food. Ice cream made from wholecream yogurt is also sinful and filling.It's also likely that he's going through some die-off. Give it a bitmore time and his body will normalize and he won't feel so hungry allthe time. Don't hesitate to keep asking for support from this group -we've all been there and know just how difficult this lifestyle changecan be.KathyUC since 12/05SCD since 7/07med-free and symptom-free from 7/08 to 4/09Back on sulfasalazine and occasional Canasa due to IV antibioticsmessing with my bacterial balance 4/09>> My boyfriend has had UC for 5 years and we are just learning about SCDtogether. We've both been on the diet for 2 months now (me, just

forsupport). He is now on the intro diet for the 2nd time around and isgetting very discouraged. He doesn't have cramps but the B won'tsubside. I'm trying to get him to see a nutritionist that specializesin SCD, but he is very skeptical. Have any of you had success withnutritionists? ?>> Also, he's a distance runner and needs to eat a LOT, hence he isalways hungry. Any suggestions for high-calorie "mild" SCD foods??>> Thanks!> ~Maya>

October 9, 2009

Thank you so much for your support! I just passed this email on to him, and I just know it will incite some relief.

He's back on Prednizone (sp?) right now because his B got so bad and he has a 1/2 marathon race this weekend. He's not off the diet yet, and I'm hoping that after seeing a nutritionist and getting support from this group, he will start to heal.

Thanks again!

~Maya

To: BTVC-SCD Sent: Friday, October 9, 2009 12:33:03 PMSubject: Re: Need help to stay strong!

Hi Maya -Two months is still pretty early to expect his symptoms to go away. Ishe having any other symptoms (D, mucus, pain)? If not, from what I'mlearning, B is one of the last things to resolve. In fact, after almost3 years of no B, I've started to have some this year after getting someIV antibiotics - but no other symptoms. It's very emotionallydistressing, but I'm starting to believe it's just not that big of adeal because all my other symptoms are A-okay (perfectly formed stools,no bloating, cramping, mucus, or pain). Also, has he tried Canasasuppositories or Rowasa enemas (if it seems like the B is very brightred, indicating that it's close to the rectum)? The Canasa suppositorieswork well to stop my bleeding.The first couple of months on the diet are very challenging (to say theleast!), especially because your body is adjusting to not having all thecarbs and you feel like

you're constantly starving. In fact, the badbacteria ARE starving and demanding their old foods! I do a lot ofmountain bike riding and can remember when I first started, I would haveto bring food with me to eat both before and after riding - and I wasSTILL starving! The other members have given you good suggestions. Ifyour boyfriend can handle dairy, adding cheese, butter, mayo, etc. toeverything will help fill him up. Some of the things I used to bring forafter-ride snacks were grilled chicken & cheese, hard-boiled eggs andcheese, sliced turkey and cheese (all of which are fine to eat cold),ripe bananas, cooked carrot sticks (these are actually okay cold, too).When he can tolerate nut butters, the nut butter brownies from the BTVCbook are an amazing delicious and filling snack. I make mine with 1/2pecans and 1/2 cashews instead of peanut butter because I like thatbetter, plus PB can be a more

advanced food. Ice cream made from wholecream yogurt is also sinful and filling.It's also likely that he's going through some die-off. Give it a bitmore time and his body will normalize and he won't feel so hungry allthe time. Don't hesitate to keep asking for support from this group -we've all been there and know just how difficult this lifestyle changecan be.KathyUC since 12/05SCD since 7/07med-free and symptom-free from 7/08 to 4/09Back on sulfasalazine and occasional Canasa due to IV antibioticsmessing with my bacterial balance 4/09>> My boyfriend has had UC for 5 years and we are just learning about SCDtogether. We've both been on the diet for 2 months now (me, just

forsupport). He is now on the intro diet for the 2nd time around and isgetting very discouraged. He doesn't have cramps but the B won'tsubside. I'm trying to get him to see a nutritionist that specializesin SCD, but he is very skeptical. Have any of you had success withnutritionists? ?>> Also, he's a distance runner and needs to eat a LOT, hence he isalways hungry. Any suggestions for high-calorie "mild" SCD foods??>> Thanks!> ~Maya>

October 9, 2009

My son has the same problem - his B had almost stopped and then he got a flu bug

and it started again. It's almost as bad as it was before the diet now, but his

other symptoms are better and he is slowly gaining a little weight. The doctor

wants him to try steroid enemas, which I am going to have him start tonight.

Not my first choice, but the B needs to stop or he'll get too anemic. Your BF

might want to ask his doctor about treatment options. Has he done Rowasa,

Canasa or steroid enemas before?

As for high calorie foods - if he can handle almond butter, the " brownies " are

delicious and VERY fattening. I'm gaining weight and I'm trying to not eat too

many of them.

Good luck!

Liz

>

> My boyfriend has had UC for 5 years and we are just learning about SCD

together. We've both been on the diet for 2 months now (me, just for support).

He is now on the intro diet for the 2nd time around and is getting very

discouraged. He doesn't have cramps but the B won't subside. I'm trying to get

him to see a nutritionist that specializes in SCD, but he is very skeptical.

Have any of you had success with nutritionists??

>

> Also, he's a distance runner and needs to eat a LOT, hence he is always

hungry. Any suggestions for high-calorie " mild " SCD foods??

>

> Thanks!

> ~Maya

>

October 9, 2009

Maya,

I wonder if his running might be aggrivating things. Not saying he should stop, but something to think about. Here's why I say this:

My husband used to run marathons. When I met him he was training for a marathon but got sick with pancreatitis (that's how his Crohn's started - he had a few pancreatitis attacks. It was really weird - long story). So he stopped running for a while. In 2005, he decided to start training again for a marathon. When he started running, he started having symptoms of Crohn's. This was the first time he had typical Crohns symptoms. He did finish the marathon, but the poor guy had to take toilet paper with him in his pouch. Between then and now, he has had some small flares on and off. A few months ago, he decided to start running again. As soon as he started, the flares came back with a vengeance. The urgency, pain, LOTS of blood, he was really in bad shape. It was the worst he has ever had it.

It seems to me that the running puts a lot of pressure on the body. It cannot be coincidence that every time DH starts running, he gets worse.

Again - not saying he should stop. I know that might really break his spirit (DH was really bummed, but has stopped for now till he feels better). But just something to think about. I wonder if your boyfriend has noticed anything similar like my husband?

Good luck to you both!

Devorah

To: BTVC-SCD Sent: Fri, October 9, 2009 1:14:11 PMSubject: Re: Re: Need help to stay strong!

Thank you so much for your support! I just passed this email on to him, and I just know it will incite some relief.

He's back on Prednizone (sp?) right now because his B got so bad and he has a 1/2 marathon race this weekend. He's not off the diet yet, and I'm hoping that after seeing a nutritionist and getting support from this group, he will start to heal.

Thanks again!

~Maya

From: s2k_redhead <s2kredhead (AT) gmail (DOT) com>To: BTVC-SCD@yahoogroup s.comSent: Friday, October 9, 2009 12:33:03 PMSubject: Re: Need help to stay strong!

Hi Maya -Two months is still pretty early to expect his symptoms to go away. Ishe having any other symptoms (D, mucus, pain)? If not, from what I'mlearning, B is one of the last things to resolve. In fact, after almost3 years of no B, I've started to have some this year after getting someIV antibiotics - but no other symptoms. It's very emotionallydistressing, but I'm starting to believe it's just not that big of adeal because all my other symptoms are A-okay (perfectly formed stools,no bloating, cramping, mucus, or pain). Also, has he tried Canasasuppositories or Rowasa enemas (if it seems like the B is very brightred, indicating that it's close to the rectum)? The Canasa suppositorieswork well to stop my bleeding.The first couple of months on the diet are very challenging (to say theleast!), especially because your body is adjusting to not having all thecarbs and you feel like

you're constantly starving. In fact, the badbacteria ARE starving and demanding their old foods! I do a lot ofmountain bike riding and can remember when I first started, I would haveto bring food with me to eat both before and after riding - and I wasSTILL starving! The other members have given you good suggestions. Ifyour boyfriend can handle dairy, adding cheese, butter, mayo, etc. toeverything will help fill him up. Some of the things I used to bring forafter-ride snacks were grilled chicken & cheese, hard-boiled eggs andcheese, sliced turkey and cheese (all of which are fine to eat cold),ripe bananas, cooked carrot sticks (these are actually okay cold, too).When he can tolerate nut butters, the nut butter brownies from the BTVCbook are an amazing delicious and filling snack. I make mine with 1/2pecans and 1/2 cashews instead of peanut butter because I like thatbetter, plus PB can be a more

advanced food. Ice cream made from wholecream yogurt is also sinful and filling.It's also likely that he's going through some die-off. Give it a bitmore time and his body will normalize and he won't feel so hungry allthe time. Don't hesitate to keep asking for support from this group -we've all been there and know just how difficult this lifestyle changecan be.KathyUC since 12/05SCD since 7/07med-free and symptom-free from 7/08 to 4/09Back on sulfasalazine and occasional Canasa due to IV antibioticsmessing with my bacterial balance 4/09>> My boyfriend has had UC for 5 years and we are just learning about SCDtogether. We've both been on the diet for 2 months now (me, just

forsupport). He is now on the intro diet for the 2nd time around and isgetting very discouraged. He doesn't have cramps but the B won'tsubside. I'm trying to get him to see a nutritionist that specializesin SCD, but he is very skeptical. Have any of you had success withnutritionists? ?>> Also, he's a distance runner and needs to eat a LOT, hence he isalways hungry. Any suggestions for high-calorie "mild" SCD foods??>> Thanks!> ~Maya>

October 10, 2009

Maya,

I wanted to share a little about my journey thus far with SCD. I am also a long

distance runner and one of the greatest concern I had going into the diet was

if I would be able to continue my running while following the diet. I have UC,

and at the time I started the diet I had dropped to 95 lbs (I am 5'7 " ) and

hadn't been able to really run in about a year from being so sick. When I began

the diet, the first 2-3 months were the most difficult and I still didn't have

any energy to begin thinking about running. I was making some progress, but it

was slow, with many ups and downs. As my body began to heal, I was able to

slowly start running again, and in fact ran a 1/2 marathon about 8 months into

the diet while raising funds for the Crohns and Colitis Foundation. This past

May (after being on the diet a little over a year) I completed my first

marathon, a feat I never would have dreamed I'd be able to accomplish just a

year prior! So, yes it is possible to keep up the endurance sports while being

on SCD...you just have to be patient, and give your body a chance to fully heal.

Some tips I have for eating: First, you have to adjust your thinking. You

really have to eat a large volume of food because the foods you can eat in the

beginning are not as calorie dense as pasta or bread or the typical carbs us

runners are used to. I found that eating many small meals throughout the day

works best, and yes, it will seem like you are eating ALL the time. Just listen

to your body, and when you're hungry..EAT! I also ate a lot of protein, for

example, everyday I would consume 4-8 eggs and one, whole, 4-5lb. chicken. For

fats, I would eat 1-2 avocados daily and put olive oil or butter on everything I

could.

I can give you additional tips and ideas I came up with while training for the

marathon if you want to email me off list...I'd be happy to share! In the

meantime, keep it up! It is definitely worth it and I have never felt more

healthy! You just have to be patient and diligent, and you will see the

results:)

na

UC

SCD 03/08

October 10, 2009