Guest guest Posted January 6, 1996 Report Share Posted January 6, 1996 Mark, Welcome to the group. I was so sorry to read about your daughter. What was her name? You may have lost your daughter to mito but may you will never lose, her smile, her laughter, her photos, her image, the memories of you both being together, and most of her love to you and your love to her. God bless, . Missing my Baby !! Hi I am new here to this group , Thank you for having me here .I lost my 2 year old daughter on december 28 2002. She was diagnosed with mitochondrial , and a complex iv deficiencay . She was so full of life , I could have never imagine living without her !! All I want now is answers , Till this date her doctors in my opinion has not really explained what happened to my little angel . except that she had mitochondrial . It is a really cruel disease . though my daughter is not here, she fought really hard !! I miss her so much !! Thank you amandasdaddy@... Mark Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Dear Mark, My condolences go out to you on the loss of your angel. My daughter died right before yours on December 10, 2002 from mito. I am also missing my Samya very much. What would have been her 10th birthday is on Wednesday. She was a st. Patty’s baby. I have been having a rough month. You will find lots of support from this group. You can vent anytime. There is also a group, which I bet you already know about called mitoangels (AT) yahoo (DOT) This is solely for parents who have lost children to mito. We all understand all too well the devastation of this disease. I am left with Leanna, who will be 7 soon and suffers the same disease with a BAD prognosis, just like her sister. If you go on Samya’s website at www.samya.org you will find out just how much us parents have in common. May god give you strength, peace and acceptance. God bless, Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.Samya.org Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 From: desertfox20117 Sent: Sunday, March 14, 2004 8:15 PM To: Mito Subject: Missing my Baby !! Hi I am new here to this group , Thank you for having me here . I lost my 2 year old daughter on december 28 2002. She was diagnosed with mitochondrial , and a complex iv deficiencay .. She was so full of life , I could have never imagine living without her !! All I want now is answers , Till this date her doctors in my opinion has not really explained what happened to my little angel . except that she had mitochondrial . It is a really cruel disease . though my daughter is not here, she fought really hard !! I miss her so much !! Thank you amandasdaddy@... Mark Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.