Guest guest Posted January 6, 1996 Report Share Posted January 6, 1996 Mark, Welcome to the group. I was so sorry to read about your daughter. What was her name? You may have lost your daughter to mito but may you will never lose, her smile, her laughter, her photos, her image, the memories of you both being together, and most of her love to you and your love to her. God bless, . Missing my Baby !! Hi I am new here to this group , Thank you for having me here .I lost my 2 year old daughter on december 28 2002. She was diagnosed with mitochondrial , and a complex iv deficiencay . She was so full of life , I could have never imagine living without her !! All I want now is answers , Till this date her doctors in my opinion has not really explained what happened to my little angel . except that she had mitochondrial . It is a really cruel disease . though my daughter is not here, she fought really hard !! I miss her so much !! Thank you amandasdaddy@... Mark Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 mark i can feel you on that note ... i miss my little brandy she had lieghs disease ... they told me i had to watch her die and she fought like crazy to stay alive she lived six monthes eight days she passed last year may , 15 2003 so i know how you feel ... i ask why all the time but i have never got the anwser so when you get your answer let me know because they told me there was no cure nor treatment but yet they have cures and treatments every day for other people ... so i do feel you .. i have been trying for a few monthes now to get on a talk show and discuss this matter and let people know about this disease .. there is alot of doctors that dont know about this disease and you would not beieve the people that dont know what i am talking about .... its crazy i didnt know about it til brandy got it.... well i hope you so find some kind of comfort an peace in her heart and i am so sorry to hear about your child but i am sure all of our little mito babies are togeather in heaven playing so dont worry or question about that one cause we all know ... god bless and i will keep you oin my prayers your friend shannon Quote Link to comment Share on other sites More sharing options...
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