Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 --Hi, My son is still pretty little yet (3.4) But we had HUGE problems with listening and following direction and really bad defiance. We started the diet in July and he got 50% better. We started enzymes in Oct and he got another 40% better. We did see a regression when we had a yeast flare-up but now have that under controll. We only use enzymes,pro-biotics,electrolyte replacement and calcium and magnesium and he is doing really well. We will start amino acids in a while as blood work showed he is really deficient and we want to chelate in a few months. I don't think that he will truely be 100% untill we get the heavy metals out. (he is toxic in several.) We really think the enzymes and pro-biotics are the best but every child is different. You may however find that once on enzymes for awhile you don't need as many meds. Good luck Patti - In @y..., Momlaw@a... wrote: > Hi all, > > Do any of your children take medications with the enzymes--my son is starting > a (small) trial of Adderall, because he truly has such HUGE attention > problems in school--and at home--that we can no longer avoid at least seeing > if this will improve his schoolday. We have tried many other therapies, > vitamins and supplements to no avail and school is becomeing torture for him > as he fails to advance. My goal would be, of course, to minimize meds as > much as possible--maybe even eliminate the med if the enzymes--which we have > not started--do help. > > Does everyone on this list do purely natural treatments--vitamins, enzymes, > supps., or is anyone else doing medications as well along with the enzymes? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 , Boy did I appreciate your post--my poor Nick has emerging anxiety issues that were beginning to interfere with school big time. So a pedicatric psychiatrist put him on Paxil with horrible results--super physical and verbal hyperactivity (Nick's never been hyper), horrible sleep disruptions, and of course, no lessening in the anxiety (which of course got even worse with sleep disruption). The psych wanted to try Eflexor, another SSRI, and I decided to wait until we got through a long-ago scheduled appointment with a highly recommended pediatric neurologist. She--the neurologist--turned out to be fabulous. Nicky's anxiety was on the wane--she said our kids are so cyclic, and this just may be a life-long problem that might do well with behavior interventions, like neurofeedback or even theropeutic hypnosis. But attention has been so hard to pinpoint, given the anxiety, audiotory processing problems and sensory integration disorder, all of which Nicky has which can each mimic attention problems. So she suggested a SMALL trial dose of Adderall--which evidently works a little better with the ASI population. If we see improvement, at least we know attention might be ADD/ADHD based. Because of his reaction to Paxil, we have to really scrutinize any side effects, because 10-15% of the total population cannot tolerate stimulants. At least with Adderall, it gets out of the system quickly if there is a problem unlike the Paxil which took weeks to get out. I'm sort of at the end of my rope--poor Nicky is really falling behind academically--3rd grade is the turning point academically because of the higher expections. We've done loads of other interventions--AIT, Interactive Metronome, lots of sensory breaks in school--but his attention is getting less and less available. Homework is a nightmare--I will literally hold his chin in my hand and ask him to focus on what he's doing and his eyes wander away and his thoughts are anywhere but on homework. So I have to try it--he KNOWS everyone in class is doing work that for some reason, he cannot attend to. It's at the point where his self-esteem is hurting, and he is calling himself " dumb " because he can't do the work. While I hate the thought of stimulants, I hate the idea of him being miserble everyday a 1000 times more. But now this other drug you mention, has got me interested--amitrypiline. This is a prescription drug? Nicky has always had trouble getting to sleep since he was a toddler. Add in anxiety--and that stupid Paxil--and sensory--hmmm. I think I'll take a look closer at that. If the Adderall helps--and even if it doesn't--I starting the enzymes. Perhaps it will at least help minimize the dosage of Adderall, which is easier to live with. Thanks so much for your input! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 >> Do any of your children take medications Yep, we sure do! I and both boys take 25-50 mg of Zoloft each morning for " preventive maintenance. " Doctor says anyone who deals with chronic pain should be on an antidepressant because constant pain can cause you to slip into depression at any time. The Zoloft does help a bit, especially if you are serotonin deficient. Some autistic spectrum people are serotonin deficient (at least 15%) and some are too high in serotonin (around 25%). If you are too high, the SSRIs can make you wacko. I don't know how to find out if you are high or low ahead of time. We also take my all time favorite: amitryptiline. This helped so much in recovery. It is an older med which used to be used at higher doses for depression until the newer SSRIs came out. It is still the standard one used for sleep disorders and head pain, which we have. It went a very long way in reducing the sensory integration issues and 's head-banging. The ami helps induce the deep sleep that some people cannot achieve on their own. During this deep sleep certain hormones are produced in the body that are not produced any other way. These hormones regulate pain sensation. Therefore, the ami de-sensitizes the person so they interpret sensory input in a more " typical " way. It is also very cheap and safe (I pay $5 for a month's supply for the 3 of us). We were taking 35 mg/day, but on enzymes I have reduced this to 20 mg/day. I was on 150 mg of the Zoloft before enzymes and now I take just 25-50 mg. Eventually, we may be able to end it altogether, but I don't consider these amounts to be terrible and they are cheap so this isn't a big priority for me at the moment. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Evan's Tele-medicine psychiatrist wanted to try him on Adderall starting off at 2.5 mg. His pediatrician wanted to start him off at 5 mg and go to 20 mg since that was what his brothers are on. It did work out. He became aggressive and more agitated. His psychiatrist said that was why we were suppose to go very slow with it because many with autism cannot handle this medication unless given at small doses and built up slowly. We never did try going back to it and doing it slowly. I have him on Gingko Biloba and L-Glutamine from Kirkmanlabs.com that seem to be bringing an improvement both at home and at school. He still is nonverbal but he is following through with directions better. ex. He will not wear anything but his underwear on around the house. I put his clothes on (if he won't) and he takes them off as soon as I turn around or he just screams and takes them off as soon as I let go of them. He wanted to go out in the back yard last week and I told him that he could not go without his clothes on and I walked off because I was doing something. The next thing I knew, Evan was dressed and dragging me to the back door.! This morning I got his pants out and told him to put them on which he did but I helped him with his socks because they are not tube socks. I had not yet got his shirt out. I was doing something else and he went to his drawer and got out a shirt and put it on. His is considered moderate to low-functioning at his last evaluation at 6 yo. Betty grandmother and guardian to age 10 ADHD/bipolar Evan age 7 nonverbal autism age 5 ADHD/RAD and maybe bipolar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Hi , Maybe you would also be interested to find out about 5-HTP. I will copy and paste here just a small part of some article that I just sent to somebody else that was interested... This person was taking Prozac... If you want to read more, I guess you can make a search in any search engine for " 5-HTP " or " serotonin " or " depression " and you will find lots of information. Anyway, I hope this helps a little... Valentina " 5-HTP (5-hydroxytryptophan) is a natural compound produced by the body from tryptophan, an amino acid found in many foods. It is the immediate precursor of serotonin -- a neurotransmitter that carries vital signals between certain brain cells. Poor diet, lack of exercise, use of harmful substances such as caffeine or alcohol, and ongoing physical and emotional stress can depress the levels of serotonin your body makes, resulting in a range of serious problems: depression, obesity, insomnia, migraine headaches, chronic fatigue and fibromyalgia, or what is collectively known as serotonin deficiency syndrome. The idea is you can correct these maladies by talking supplemental 5-HTP and raise serotonin to preferable levels. In Europe, 5-HTP has been used for decades as an approved treatment for depression, sleep problems and other medical complaints. It is just now starting to sweep America. There is substantial scientific evidence to support the contention that 5-HTP is a safe, natural way to boost brain serotonin levels. Detailed clinical trials have shown 5-HTP to produce results equal to or better than standard synthetic drugs used in the treatment of problems arising from serotonin deficiency syndrome, including depression. If you want to give 5-HTP a try, naturopath T. Murray, author of " 5-Htp: The Natural Way to Overcome Depression, Obesity, & Insomnia " (Bantam, 1998), recommends that you begin by taking 50 mg of 5-HTP about 20 minutes before meals for two weeks and then doubling dosage if necessary. While higher dosages of 5-HTP (e.g., 300 mg) are associated with nausea, these lower dosages seem to be just as effective without the nuisance of mild nausea during the first few weeks of use. Be sure to use products that are " enteric coated " so that they do not dissolve in the stomach. This will also help prevent nausea. Also, if you are taking any of the newer antidepressant drugs such as Prozac, Zoloft or Paxil, be sure to notify your doctor before taking 5-HTP. " > But now this other drug you mention, has got me interested--amitrypiline. > This is a prescription drug? Nicky has always had trouble getting to sleep > since he was a toddler. Add in anxiety--and that stupid Paxil--and > sensory--hmmm. I think I'll take a look closer at that. > > If the Adderall helps--and even if it doesn't--I starting the enzymes. > Perhaps it will at least help minimize the dosage of Adderall, which is > easier to live with. > > Thanks so much for your input! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 low dose melatonin also seems to have an anti depressant effect, maybe because it relieves the body of the need to produce seratonin since melatonin is made from seratonin. by low dose i mean about 250 mcg(micrograms) which is 1/4 of a 1mg tablet. the advantage is melatonin is its non toxicity and relative ease of taking. > Hi , > > Maybe you would also be interested to find out about 5-HTP. > I will copy and paste here just a small part of some article that I just sent to somebody else that was interested... This person was taking Prozac... > If you want to read more, I guess you can make a search in any search engine for " 5-HTP " or " serotonin " or " depression " and you will find lots of information. > Anyway, I hope this helps a little... > > > Valentina > > > " 5-HTP (5-hydroxytryptophan) is a natural compound produced by the body from tryptophan, an amino acid found in many foods. It is the immediate precursor of serotonin -- a neurotransmitter that carries vital signals between certain brain cells. Poor diet, lack of exercise, use of harmful substances such as caffeine or alcohol, and ongoing physical and emotional stress can depress the levels of serotonin your body makes, resulting in a range of serious problems: depression, obesity, insomnia, migraine headaches, chronic fatigue and fibromyalgia, or what is collectively known as serotonin deficiency syndrome. > The idea is you can correct these maladies by talking supplemental 5-HTP and > raise serotonin to preferable levels. > In Europe, 5-HTP has been used for decades as an approved treatment for depression, sleep problems and other medical complaints. It is just now starting to sweep America. There is substantial scientific evidence to support the contention that 5-HTP is a safe, natural way to boost brain serotonin levels. Detailed clinical trials have shown 5-HTP to produce results equal to or better than standard synthetic drugs used in the treatment of problems arising from serotonin deficiency syndrome, including depression. > If you want to give 5-HTP a try, naturopath T. Murray, author of " 5-Htp: The Natural Way to Overcome Depression, Obesity, & Insomnia " (Bantam, 1998), recommends that you begin by taking 50 mg of 5-HTP about 20 minutes before meals for two weeks and then doubling dosage if necessary. While higher dosages of 5-HTP (e.g., 300 mg) are associated with nausea, these lower dosages seem to be just as effective without the nuisance of mild nausea during the first few weeks of use. Be sure to use products that are " enteric coated " so that they do not dissolve in the stomach. This will also help prevent nausea. Also, if you are taking any of the newer antidepressant drugs such as Prozac, Zoloft or Paxil, be sure to notify your doctor before taking 5-HTP. " > > > > > > But now this other drug you mention, has got me interested-- amitrypiline. > > This is a prescription drug? Nicky has always had trouble getting to sleep > > since he was a toddler. Add in anxiety--and that stupid Paxil-- and > > sensory--hmmm. I think I'll take a look closer at that. > > > > If the Adderall helps--and even if it doesn't--I starting the enzymes. > > Perhaps it will at least help minimize the dosage of Adderall, which is > > easier to live with. > > > > Thanks so much for your input! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Dear , As my daughter is going through the emotional ups and downs of puberty, she is currently on Risperdol for anger and aggression management along with both Houston enzymes. However, since being on the enzymes, we were successfully able to wean her off Luvox for several obsessive compulsive behaviors she kept engaging in and these behaviors subsided dramatically. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Noah takes clonidine to help him sleep, He is one of these kids that would stay up till 3 or 4 in the morning without it, I have been wanting to try to see if he will sleep better now that he has been on enzymes for a month, but he recently started back at his preschool and I am working on getting him back used to that before I try anything new, Talk to you later, Janet Quote Link to comment Share on other sites More sharing options...
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