RE: Re: Holly

[Guest guest]

Thanks for the reply Holly! Have you had an obstruction or resection before? How long have you been diagnosed with CD? I am hoping that just because my husband had a partial obstruction that his GI won't suggest surgery! Thanks again, Heidi

To: BTVC-SCD From: spookyhurst@...Date: Mon, 31 Aug 2009 21:25:50 +0000Subject: Re: Holly

Hi Heidi,Two weeks ago, I had too much fruit in one day. The cherry caflouti probably was the main problem. I started having pain "contractions" a couple hours after eating. Luckily, I was able to hold out and not go to the ER. The pain finally subsided after vomiting in the middle of the night.The next day, I only drank liquids. I also had some prednisone pills left over and did a prednisone "burst" (40 mg for 2 days, 30 mg for 2, 20 mg for 2 days, and 10 mg for 2 days). Then I added in some yogurt on the 2nd day, and the 3rd day I also had 1 egg. Day 4 & 5 I had 2 eggs. Then I started eating squash pie filling (I ran the squash through a food mill so that it was pure mush), cheesecake, cheese, and an almond butter brownie. I just added back zucchini, meat, and green beans a couple days ago.I'd say I'm probably back to normal now, but I'm only going to eat stage 1 & 2 foods for awhile. I see my surgeon this afternoon (appointment made before the obstruction), so I'll find out more then. I anticipate that I'll be having a resection within the next couple months though.I hope your husband gets to feeling better soon! It's no fun dealing with this sort of thing.HollyCrohn'sSCD 12/01/08 >> > Hi Holly,> > > I hope you don't mind me asking but did your partial obstruction require hospitalization and what follow up care are you doing? We have an appointment with my DH's GI thursday and want to be prepared. Thank you, Heidi>

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[Guest guest]

Hi Holly,

I really appreciate your information. We have been floating along on a bubble of "my DH has crohns but it is mild" and wham, this partial obstruction hit and I guess I am in a bit of a panic with the thought of Remicade/Humira and the potential for surgery. I was really pinning my hopes on this diet taking care of the disease and being able to manage it with the diet. I really think this flare was caused from stress and the 3 capsules of L-acidophilus at once but I am sure the GI won't really care about that. Did I see in a previous post that you live in Oregon? We are thinking of checking out the two SCD GI's on the SCD list in the Portland area and wondered if you were familiar with either. Thanks again for your info. Heidi

To: BTVC-SCD From: spookyhurst@...Date: Tue, 1 Sep 2009 01:18:54 +0000Subject: Re: Holly

Hi Heidi,I was diagnosed with crohn's in 1996, although I had been sick for a couple of years before that. The only surgery I've had is gallbladder removal in 2003. I've had multiple obstructions though. The first one that I was hospitalized for was in 2002. Each time, they just loaded me up with pain meds and anti-nausea meds for a day or 2, as well as prednisone. Typically, I would only be in the hospital for 3 or 4 days. A couple of years ago, I had a complete obstruction and they wanted to do surgery. I chose not to, and it resolved itself pretty quickly. I went to the hospital on Wednesday evening (the symptoms had started that morning), and was released Saturday morning. I'm really glad I didn't do surgery then, since I hadn't yet found SCD.I just got back from my surgeon, and we agreed that I will have my first resection. The ileocecal valve is scarred so bad that it's only 7mm wide. Since you can't heal scar tissue, both the surgeon and I agree that it's best to take it out before it causes a major problem. The rest of my intestines appear to be in good shape, so they won't have to take much out. Plus, the surgeon said that I could quit taking Humira after the surgery. Hurray!As far as your husband goes, it depends on whether his narrow spot is inflammation or scar tissue. If it's "just" inflammation, that can be fixed without surgery. SCD and/or meds can heal it. If it's scar tissue, then surgery would be something you would need to think about.I decided I'd rather have the surgery when I'm doing relatively well rather than wait and potentially need an emergency resection when I'm really sick. I'm hopeful that SCD will allow me to heal and never need a second one!I hope your husband won't need surgery though!HollyCrohn'sSCD 12/01/08 >> > Thanks for the reply Holly! Have you had an obstruction or resection before? How long have you been diagnosed with CD? I am hoping that just because my husband had a partial obstruction that his GI won't suggest surgery! Thanks again, Heidi> >

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[Guest guest]

Hi Holly,

I really appreciate your information. We have been floating along on a bubble of "my DH has crohns but it is mild" and wham, this partial obstruction hit and I guess I am in a bit of a panic with the thought of Remicade/Humira and the potential for surgery. I was really pinning my hopes on this diet taking care of the disease and being able to manage it with the diet. I really think this flare was caused from stress and the 3 capsules of L-acidophilus at once but I am sure the GI won't really care about that. Did I see in a previous post that you live in Oregon? We are thinking of checking out the two SCD GI's on the SCD list in the Portland area and wondered if you were familiar with either. Thanks again for your info. Heidi

To: BTVC-SCD From: spookyhurst@...Date: Tue, 1 Sep 2009 01:18:54 +0000Subject: Re: Holly

Hi Heidi,I was diagnosed with crohn's in 1996, although I had been sick for a couple of years before that. The only surgery I've had is gallbladder removal in 2003. I've had multiple obstructions though. The first one that I was hospitalized for was in 2002. Each time, they just loaded me up with pain meds and anti-nausea meds for a day or 2, as well as prednisone. Typically, I would only be in the hospital for 3 or 4 days. A couple of years ago, I had a complete obstruction and they wanted to do surgery. I chose not to, and it resolved itself pretty quickly. I went to the hospital on Wednesday evening (the symptoms had started that morning), and was released Saturday morning. I'm really glad I didn't do surgery then, since I hadn't yet found SCD.I just got back from my surgeon, and we agreed that I will have my first resection. The ileocecal valve is scarred so bad that it's only 7mm wide. Since you can't heal scar tissue, both the surgeon and I agree that it's best to take it out before it causes a major problem. The rest of my intestines appear to be in good shape, so they won't have to take much out. Plus, the surgeon said that I could quit taking Humira after the surgery. Hurray!As far as your husband goes, it depends on whether his narrow spot is inflammation or scar tissue. If it's "just" inflammation, that can be fixed without surgery. SCD and/or meds can heal it. If it's scar tissue, then surgery would be something you would need to think about.I decided I'd rather have the surgery when I'm doing relatively well rather than wait and potentially need an emergency resection when I'm really sick. I'm hopeful that SCD will allow me to heal and never need a second one!I hope your husband won't need surgery though!HollyCrohn'sSCD 12/01/08 >> > Thanks for the reply Holly! Have you had an obstruction or resection before? How long have you been diagnosed with CD? I am hoping that just because my husband had a partial obstruction that his GI won't suggest surgery! Thanks again, Heidi> >

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