Re: Partial Blockage Last Night :-(

[Guest guest]

I'm not a great swallower so I chew some (wonder if that would help you?? )but I

take upwards of 40 things a day plus IV (temporarily stopped) but hubby thinks

this is just TOO much stuff I'm taking - doc tells me what to take and i feel

good most of the time - anyone have vit/supplement thoughts??? is this a lot

compared to most????

eileen 19 months scd

>

> Thanks Tom,

>

> I had an ileocolic resection in May..

>

> I don't use vitamin capsules. My Surgeon told me that the area in the

terminal ileum that is responsible absorbing many nutrients didn't really do any

of that for me anyway since it was so scarred.

>

> I look at my nails post surgery and they have changed; some are flat, have

ridges and more white spots.

>

> I try and supplement with liquid nutrients from Body Bio but I have a hard

time taking regular supplements. I therefore do juicing and I get weekly IV's.

I still somehow don't feel this is enough.

>

> Maybe it is a matter of time?

>

> Jodi

>

[Guest guest]

> I'm not a great swallower so I chew some (wonder if that would help

> you?? )but I take upwards of 40 things a day plus IV (temporarily

> stopped) but hubby thinks this is just TOO much stuff I'm taking -

> doc tells me what to take and i feel good most of the time - anyone

> have vit/supplement thoughts??? is this a lot compared to most????

I'm just doing LDN - no supplements at the moment - though

when winter comes I may start up the vit. D3s again because

of lack of sunshine.

40 a day seems way too many to me.

How do you think your yeast treatment is doing? Is it helping you?

Mara

[Guest guest]

> I'm not a great swallower so I chew some (wonder if that would help

> you?? )but I take upwards of 40 things a day plus IV (temporarily

> stopped) but hubby thinks this is just TOO much stuff I'm taking -

> doc tells me what to take and i feel good most of the time - anyone

> have vit/supplement thoughts??? is this a lot compared to most????

I'm just doing LDN - no supplements at the moment - though

when winter comes I may start up the vit. D3s again because

of lack of sunshine.

40 a day seems way too many to me.

How do you think your yeast treatment is doing? Is it helping you?

Mara

[Guest guest]

Mara,

No probiotics?

Jodi

[Guest guest]

Mara,

No probiotics?

Jodi

[Guest guest]

Mara,

No probiotics?

Jodi

[Guest guest]

> Mara,

>

> No probiotics?

Just plenty of yogurt and some kimchi and pickles. That's more

effective for me at the moment than taking probiotics ever

seemed to be.

I never had a clue if they were helping or not - didn't

feel a measurable effect. But I know definitely that when

I started yogurt back up after being dairy free that it made

a big difference.

I tried S. boulardi for a while but never knew whether it helped

or not.

Mara

[Guest guest]

> Mara,

>

> No probiotics?

Just plenty of yogurt and some kimchi and pickles. That's more

effective for me at the moment than taking probiotics ever

seemed to be.

I never had a clue if they were helping or not - didn't

feel a measurable effect. But I know definitely that when

I started yogurt back up after being dairy free that it made

a big difference.

I tried S. boulardi for a while but never knew whether it helped

or not.

Mara

[Guest guest]

That's great Mara..

I feel immediately different with probiotic supplements.

I wonder if they implant differently in all of us?

Pretty fascinating always learning how we are all so alike and yet so different.

Jodi

[Guest guest]

That's great Mara..

I feel immediately different with probiotic supplements.

I wonder if they implant differently in all of us?

Pretty fascinating always learning how we are all so alike and yet so different.

Jodi

[Guest guest]

Hi Tom,

I take a Freeda B Complex vitamin everyday. The last time my blood levels were

checked (March, I think), they were good.

I did have my ileum shut down once a few years ago though. I wasn't taking any

vitamins back then (that I can remember anyway).

Holly

Crohn's

SCD 12/01/08

> >

> >

> > I had my first blockage since starting SCD. I think it was " just " a

> > partial one, since I was able to avoid going to the ER.

>

>

> Holly,

>

> It could be a lack of nutrients, especially B-vitamins.

>

> That has happened to me a few times in the past when I ran out and/or forgot

to take, vitamins. Including one time when I went too long between B-12 shots.

>

> Some of the B-vitamins (I forget which ones), are very important to keeping

the peristaltic motions of the intestines running properly. A very important

thing for those of us that are susceptible to blockages.

>

>

> Tom

>

[Guest guest]

Hi Tom,

I take a Freeda B Complex vitamin everyday. The last time my blood levels were

checked (March, I think), they were good.

I did have my ileum shut down once a few years ago though. I wasn't taking any

vitamins back then (that I can remember anyway).

Holly

Crohn's

SCD 12/01/08

> >

> >

> > I had my first blockage since starting SCD. I think it was " just " a

> > partial one, since I was able to avoid going to the ER.

>

>

> Holly,

>

> It could be a lack of nutrients, especially B-vitamins.

>

> That has happened to me a few times in the past when I ran out and/or forgot

to take, vitamins. Including one time when I went too long between B-12 shots.

>

> Some of the B-vitamins (I forget which ones), are very important to keeping

the peristaltic motions of the intestines running properly. A very important

thing for those of us that are susceptible to blockages.

>

>

> Tom

>

[Guest guest]

So do you think you're going to have another stricture at the site of the

surgery? That's what scares me. I'd hate to have surgery just to have another

stricture form in the same spot.

I normally try to chew my food good (although it's usually not necessary since I

eat so much soft food). But I think I may have scarfed down those cherries and

didn't chew them up as good as I usually do. I guess I got complacent since I

had seemed to be doing so well.

Holly

Crohn's

SCD 12/01/08

>

> Hi Holly..

>

> I had that happen too

> That I would eat foods that would be fine and sometimes I'd react violently.

>

> I am dealing with some scar tissue now post surgery..

>

> Cherries are so delicious.. bummer that they may be a culprit.

>

> I need to learn to chew better.

> I should go live in a monastery unfortunately they eat a lot of rice LOL.

>

> Jodi

>

[Guest guest]

So do you think you're going to have another stricture at the site of the

surgery? That's what scares me. I'd hate to have surgery just to have another

stricture form in the same spot.

I normally try to chew my food good (although it's usually not necessary since I

eat so much soft food). But I think I may have scarfed down those cherries and

didn't chew them up as good as I usually do. I guess I got complacent since I

had seemed to be doing so well.

Holly

Crohn's

SCD 12/01/08

>

> Hi Holly..

>

> I had that happen too

> That I would eat foods that would be fine and sometimes I'd react violently.

>

> I am dealing with some scar tissue now post surgery..

>

> Cherries are so delicious.. bummer that they may be a culprit.

>

> I need to learn to chew better.

> I should go live in a monastery unfortunately they eat a lot of rice LOL.

>

> Jodi

>

[Guest guest]

So do you think you're going to have another stricture at the site of the

surgery? That's what scares me. I'd hate to have surgery just to have another

stricture form in the same spot.

I normally try to chew my food good (although it's usually not necessary since I

eat so much soft food). But I think I may have scarfed down those cherries and

didn't chew them up as good as I usually do. I guess I got complacent since I

had seemed to be doing so well.

Holly

Crohn's

SCD 12/01/08

>

> Hi Holly..

>

> I had that happen too

> That I would eat foods that would be fine and sometimes I'd react violently.

>

> I am dealing with some scar tissue now post surgery..

>

> Cherries are so delicious.. bummer that they may be a culprit.

>

> I need to learn to chew better.

> I should go live in a monastery unfortunately they eat a lot of rice LOL.

>

> Jodi

>

[Guest guest]

Hi Holly..

It's too early to tell with me- The incision scar formed Keloids which is an

indication as to how I am healing on the inside.

There are different procedures for intestinal scarring today not necessarily a

resection. But yes, this happens over the years. For some it takes quite a

while for scar tissue to form. Not all people with scar tissue get bothered-

that's another thing.. they are completely ok.

You should ask the consult about this. Also if you think you have weak

abdominal muscles (I'm like flabby as I haven't really worked out in years- a

major goal of mine.. I try a bit here and there post surgery- YAY but it makes

the incisional hernia worse) Ask about what they do to avoid incisional hernia.

I wish I knew about this and made a stink. Despite flabbyness I always had a

flat belly. Now I have a bulge that is my personal cup holder. I hate it!

I hope you don't need surgery but if you do ask if you are a candidate to have

it done laparscopically.

I eat a lot of mush too. I try to chew but I am not really mindful. That's why

I run a bunch of stuff through the Omega and strain. Perhaps it is a force of

habit.

Keep us posted.

Jodi

[Guest guest]

Hi Holly..

It's too early to tell with me- The incision scar formed Keloids which is an

indication as to how I am healing on the inside.

There are different procedures for intestinal scarring today not necessarily a

resection. But yes, this happens over the years. For some it takes quite a

while for scar tissue to form. Not all people with scar tissue get bothered-

that's another thing.. they are completely ok.

You should ask the consult about this. Also if you think you have weak

abdominal muscles (I'm like flabby as I haven't really worked out in years- a

major goal of mine.. I try a bit here and there post surgery- YAY but it makes

the incisional hernia worse) Ask about what they do to avoid incisional hernia.

I wish I knew about this and made a stink. Despite flabbyness I always had a

flat belly. Now I have a bulge that is my personal cup holder. I hate it!

I hope you don't need surgery but if you do ask if you are a candidate to have

it done laparscopically.

I eat a lot of mush too. I try to chew but I am not really mindful. That's why

I run a bunch of stuff through the Omega and strain. Perhaps it is a force of

habit.

Keep us posted.

Jodi

[Guest guest]

Hi Holly..

It's too early to tell with me- The incision scar formed Keloids which is an

indication as to how I am healing on the inside.

There are different procedures for intestinal scarring today not necessarily a

resection. But yes, this happens over the years. For some it takes quite a

while for scar tissue to form. Not all people with scar tissue get bothered-

that's another thing.. they are completely ok.

You should ask the consult about this. Also if you think you have weak

abdominal muscles (I'm like flabby as I haven't really worked out in years- a

major goal of mine.. I try a bit here and there post surgery- YAY but it makes

the incisional hernia worse) Ask about what they do to avoid incisional hernia.

I wish I knew about this and made a stink. Despite flabbyness I always had a

flat belly. Now I have a bulge that is my personal cup holder. I hate it!

I hope you don't need surgery but if you do ask if you are a candidate to have

it done laparscopically.

I eat a lot of mush too. I try to chew but I am not really mindful. That's why

I run a bunch of stuff through the Omega and strain. Perhaps it is a force of

habit.

Keep us posted.

Jodi

[Guest guest]

Hi Jodi,

That really sucks about the scarring :-(. I'll be sure to ask my surgeon about

incisional hernia and laproscopy. I think I need to write out a list of things

to ask, so I don't forget!

I have a fat flabby tummy. If I need surgery, maybe I better try harder to get

it in better shape!

Holly

Crohn's

SCD 12/01/08

>

> Hi Holly..

>

> It's too early to tell with me- The incision scar formed Keloids which is an

indication as to how I am healing on the inside.

>

> There are different procedures for intestinal scarring today not necessarily a

resection. But yes, this happens over the years. For some it takes quite a

while for scar tissue to form. Not all people with scar tissue get bothered-

that's another thing.. they are completely ok.

>

> You should ask the consult about this. Also if you think you have weak

abdominal muscles (I'm like flabby as I haven't really worked out in years- a

major goal of mine.. I try a bit here and there post surgery- YAY but it makes

the incisional hernia worse) Ask about what they do to avoid incisional hernia.

I wish I knew about this and made a stink. Despite flabbyness I always had a

flat belly. Now I have a bulge that is my personal cup holder. I hate it!

>

> I hope you don't need surgery but if you do ask if you are a candidate to have

it done laparscopically.

>

> I eat a lot of mush too. I try to chew but I am not really mindful. That's

why I run a bunch of stuff through the Omega and strain. Perhaps it is a force

of habit.

>

> Keep us posted.

>

> Jodi

>

[Guest guest]

Holly,

You like want to be at your " healthiest " when you have surgery.

Oxymoron I know.. but still. Best not to be on Prednisone too but sometimes you

can't avoid it (I was on Prednisone as I had a whopping obstruction something

like 2 weeks before surgery)

Not sure about the efficacy of working out for that- I mean working out in

general is really good. Some gentle Yoga even. Before pre surgery gentle Yoga

made me really sick- now I can do a couple of things and feel good. Ask your

doc about what kind of excersizes would be good for you- and how long you would

need to do it for it to really count? Not sure if they will answer this if they

want you in the OR. They basically sold the rainbow to me to get me in the OR.

Jodi

[Guest guest]

Holly,

You like want to be at your " healthiest " when you have surgery.

Oxymoron I know.. but still. Best not to be on Prednisone too but sometimes you

can't avoid it (I was on Prednisone as I had a whopping obstruction something

like 2 weeks before surgery)

Not sure about the efficacy of working out for that- I mean working out in

general is really good. Some gentle Yoga even. Before pre surgery gentle Yoga

made me really sick- now I can do a couple of things and feel good. Ask your

doc about what kind of excersizes would be good for you- and how long you would

need to do it for it to really count? Not sure if they will answer this if they

want you in the OR. They basically sold the rainbow to me to get me in the OR.

Jodi

[Guest guest]

Holly,

You like want to be at your " healthiest " when you have surgery.

Oxymoron I know.. but still. Best not to be on Prednisone too but sometimes you

can't avoid it (I was on Prednisone as I had a whopping obstruction something

like 2 weeks before surgery)

Not sure about the efficacy of working out for that- I mean working out in

general is really good. Some gentle Yoga even. Before pre surgery gentle Yoga

made me really sick- now I can do a couple of things and feel good. Ask your

doc about what kind of excersizes would be good for you- and how long you would

need to do it for it to really count? Not sure if they will answer this if they

want you in the OR. They basically sold the rainbow to me to get me in the OR.

Jodi