Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 I'm either reacting to a new food or having the "3 month flare" or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!When did you get off pred? Perhaps it was masking your reactions to some foods? What were the foods you introduced?The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. Do the believe the meds help you? If so, take them as well. It's probably the 3 month flare, which is very common for UC people. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 I'm either reacting to a new food or having the "3 month flare" or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!When did you get off pred? Perhaps it was masking your reactions to some foods? What were the foods you introduced?The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. Do the believe the meds help you? If so, take them as well. It's probably the 3 month flare, which is very common for UC people. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 I'm either reacting to a new food or having the "3 month flare" or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!When did you get off pred? Perhaps it was masking your reactions to some foods? What were the foods you introduced?The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. Do the believe the meds help you? If so, take them as well. It's probably the 3 month flare, which is very common for UC people. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!To: BTVC-SCD From: alcibiades@...Date: Sun, 23 Aug 2009 22:01:50 -0400Subject: Re: 3 month flare. Take more medicine? I'm either reacting to a new food or having the "3 month flare" or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!When did you get off pred? Perhaps it was masking your reactions to some foods? What were the foods you introduced?The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. Do the believe the meds help you? If so, take them as well. It's probably the 3 month flare, which is very common for UC people. Mara Windows Live: Make it easier for your friends to see what you’re up to on Facebook. Find out more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 , I seemed to get worse at about 3 months which scared the daylights out of me, as I had been doing well, but it thankfully did not get much worse and did not last long. I immediately went back to intro- strict intro- for a few days and then slowly progressed forward. I had been trying nut flour recipes, but I just stuck the food in the freezer to take out for later (but my kids have found my SCD muffin stash..so much for later LOL) I also went up a bit on the sulfasalazine ( I was not at the maximum dose) until things got better and then back to the maintenance dose. This is my take on meds and SCD. It's not an either or thing. I too hope for the day when I can throw the darn things out. I noticed the authors of some of the cookbooks stopped meds after being symptom free for a long time- much longer than a few months. Elaine never said to stop meds- it's a personal decision and not one most doctors agree to, so cross that bridge when you are also better if you choose. I look at SCD as a long term healing process. I found the broths the most helpful- lots of chicken broth. Hope you feel better soon. PJ > > > I'm either reacting to a new food or having the " 3 month flare " or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! > No more Hydrocortisone or Prednisone! > > > > > _________________________________________________________________ > Get back to school stuff for them and cashback for you. > http://www.bing.com/cashback?form=MSHYCB&publ=WLHMTAG&crea=TEXT_MSHYCB_BackToSch\ ool_Cashback_BTSCashback_1x1 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 " The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. " These are pretty advanced-peanuts are. I had also tried a few raw fruits at about 3 months- I went right back to cooked- apples and pineapples, raw bananas. I can tolerate a little white wine at this point. From what I've been told- Elaine said to take the meds you need- Slow and steady wins the race here.. PJ > > > I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! > No more Hydrocortisone or Prednisone! > > > > > > To: BTVC-SCD > From: alcibiades@... > Date: Sun, 23 Aug 2009 22:01:50 -0400 > Subject: Re: 3 month flare. Take more medicine? > > > > > > > > > > > > > > > > > > > > > > > > > > I'm either reacting to a new food or having the " 3 month flare " or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! > When did you get off pred? Perhaps it was masking your reactions to some foods? > What were the foods you introduced? > The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. > Do the believe the meds help you? If so, take them as well. > It's probably the 3 month flare, which is very common for UC people. > Mara > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live: Make it easier for your friends to see what you're up to on Facebook. > http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 " The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. " These are pretty advanced-peanuts are. I had also tried a few raw fruits at about 3 months- I went right back to cooked- apples and pineapples, raw bananas. I can tolerate a little white wine at this point. From what I've been told- Elaine said to take the meds you need- Slow and steady wins the race here.. PJ > > > I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! > No more Hydrocortisone or Prednisone! > > > > > > To: BTVC-SCD > From: alcibiades@... > Date: Sun, 23 Aug 2009 22:01:50 -0400 > Subject: Re: 3 month flare. Take more medicine? > > > > > > > > > > > > > > > > > > > > > > > > > > I'm either reacting to a new food or having the " 3 month flare " or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! > When did you get off pred? Perhaps it was masking your reactions to some foods? > What were the foods you introduced? > The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. > Do the believe the meds help you? If so, take them as well. > It's probably the 3 month flare, which is very common for UC people. > Mara > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live: Make it easier for your friends to see what you're up to on Facebook. > http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 " The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. " These are pretty advanced-peanuts are. I had also tried a few raw fruits at about 3 months- I went right back to cooked- apples and pineapples, raw bananas. I can tolerate a little white wine at this point. From what I've been told- Elaine said to take the meds you need- Slow and steady wins the race here.. PJ > > > I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! > No more Hydrocortisone or Prednisone! > > > > > > To: BTVC-SCD > From: alcibiades@... > Date: Sun, 23 Aug 2009 22:01:50 -0400 > Subject: Re: 3 month flare. Take more medicine? > > > > > > > > > > > > > > > > > > > > > > > > > > I'm either reacting to a new food or having the " 3 month flare " or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well. > > - > UC - 1 year > SCD - 3.5 months 100% strict and 4 months restricted diet. > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! > When did you get off pred? Perhaps it was masking your reactions to some foods? > What were the foods you introduced? > The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. > Do the believe the meds help you? If so, take them as well. > It's probably the 3 month flare, which is very common for UC people. > Mara > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live: Make it easier for your friends to see what you're up to on Facebook. > http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. Maybe you should try to get a prescription for sulfasalazine instead of asacol, if you sawthe comment about the two drugs earlier in the day from Elaine. Sulfasalazine seemsto be the more effective formulation of the two related drugs - and that seems to reflect my experience as well, though I did not realize until I read that passage last year, so in retrospect. But, then, lots of things only became clear about the course of my illness inretrospect, so that's not a surprise. It's not a good idea in the middle of a flare to drop a drug - so if the hydrocortisone was helping until you stopped, go back to it. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them.Well, you are allowed to take illegals in medicine.If you want to get off of it after you recover from the flare, wean off of it slowly. Peanut butter may take some time for you to be able to eat. Are you eatingthe other nut butters and reacting well to them? And stay off the raw berries for a while yet, I guess. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!To: BTVC-SCD From: alcibiades@...Date: Sun, 23 Aug 2009 22:45:15 -0400Subject: Re: 3 month flare. Take more medicine? I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. Maybe you should try to get a prescription for sulfasalazine instead of asacol, if you sawthe comment about the two drugs earlier in the day from Elaine. Sulfasalazine seemsto be the more effective formulation of the two related drugs - and that seems to reflect my experience as well, though I did not realize until I read that passage last year, so in retrospect. But, then, lots of things only became clear about the course of my illness inretrospect, so that's not a surprise. It's not a good idea in the middle of a flare to drop a drug - so if the hydrocortisone was helping until you stopped, go back to it. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them.Well, you are allowed to take illegals in medicine.If you want to get off of it after you recover from the flare, wean off of it slowly. Peanut butter may take some time for you to be able to eat. Are you eatingthe other nut butters and reacting well to them? And stay off the raw berries for a while yet, I guess. Mara Windows Live: Keep your friends up to date with what you do online. Find out more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!To: BTVC-SCD From: alcibiades@...Date: Sun, 23 Aug 2009 22:45:15 -0400Subject: Re: 3 month flare. Take more medicine? I have been of prednisone for months, and it was not making me better while I was on it, so def not masking anything. I was using hydrocortisone enemas and that is what made me turn the corner in getting better. Now I am still on the diet strict and on asacol. I was thinking of not taking the hydrocortisone to see if this would go away on it's own with just the asacol and diet. Maybe you should try to get a prescription for sulfasalazine instead of asacol, if you sawthe comment about the two drugs earlier in the day from Elaine. Sulfasalazine seemsto be the more effective formulation of the two related drugs - and that seems to reflect my experience as well, though I did not realize until I read that passage last year, so in retrospect. But, then, lots of things only became clear about the course of my illness inretrospect, so that's not a surprise. It's not a good idea in the middle of a flare to drop a drug - so if the hydrocortisone was helping until you stopped, go back to it. The new foods I introduced were a raw strawberry, a raw rasberry, peanut butter, and I took a sip of dry wine 2 days ago. I just don't want the hydrocortisone to interfere with anything good the diet is doing. Like introduce illegals where I am trying to get rid of them.Well, you are allowed to take illegals in medicine.If you want to get off of it after you recover from the flare, wean off of it slowly. Peanut butter may take some time for you to be able to eat. Are you eatingthe other nut butters and reacting well to them? And stay off the raw berries for a while yet, I guess. Mara Windows Live: Keep your friends up to date with what you do online. Find out more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 At the risk of sounding once again like a broken record, have you considered LDN?It will get you off the other meds.http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643MaraOn Aug 24, 2009, at 6:36 AM, T wrote:i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 At the risk of sounding once again like a broken record, have you considered LDN?It will get you off the other meds.http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643MaraOn Aug 24, 2009, at 6:36 AM, T wrote:i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 At the risk of sounding once again like a broken record, have you considered LDN?It will get you off the other meds.http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643MaraOn Aug 24, 2009, at 6:36 AM, T wrote:i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 yes, I have looked into LDN and spoke to my doc about it. He is ok with me wanting to try it if things don't improve down the road. For now my goal is still no meds at all. So I will take the entocort to get this flare calmed down, and if this keeps repeating itself I will try the LDN-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! To: BTVC-SCD From: alcibiades@...Date: Mon, 24 Aug 2009 11:21:51 -0400Subject: Re: 3 month flare. Take more medicine? At the risk of sounding once again like a broken record, have you considered LDN? It will get you off the other meds. http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643 Mara i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! With Windows Live, you can organize, edit, and share your photos. Click here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 yes, I have looked into LDN and spoke to my doc about it. He is ok with me wanting to try it if things don't improve down the road. For now my goal is still no meds at all. So I will take the entocort to get this flare calmed down, and if this keeps repeating itself I will try the LDN-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! To: BTVC-SCD From: alcibiades@...Date: Mon, 24 Aug 2009 11:21:51 -0400Subject: Re: 3 month flare. Take more medicine? At the risk of sounding once again like a broken record, have you considered LDN? It will get you off the other meds. http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643 Mara i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go.-UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! With Windows Live, you can organize, edit, and share your photos. Click here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2009 Report Share Posted August 24, 2009 This thread highlights the many differences that people experience with the SCD. Almost from the start, I didn't have a problem with strawberries, possibly since they're mainly water and therefore seem to be gentle on my digestive system. Peaches, nectarines, and other skinned fruits, on the other hand, have caused problems when I've neglected to peel them. Jill > > > > I'm either reacting to a new food or having the " 3 month flare " or something else i'm not thinking of. I was fine after taking meds for about the last 1.5 months and now i'm getting worse, fast. Every 6 hours I notice a change in the wrong direction and I don't know why. I did introduce 3 new foods almost all at once within the last week and a half, and I skipped taking meds twice by accident because I was feeling so great I forgot. My question is, do I take the meds to stop this flare? or let it run it's course and try to see if it goes away on it's own. What did everyone else do? I may try re-starting the intro diet for a little bit as well. > > > > - > > UC - 1 year > > SCD - 3.5 months 100% strict and 4 months restricted diet. > > Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! > > When did you get off pred? Perhaps it was masking your reactions to some foods? > > What were the foods you introduced? > > The best thing to do is start the intro tonight or tomorrow or as soon as you canget prepared. > > Do the believe the meds help you? If so, take them as well. > > It's probably the 3 month flare, which is very common for UC people. > > Mara > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > > Windows Live: Make it easier for your friends to see what you're up to on Facebook. > > http://windowslive.com/Campaign/SocialNetworking?ocid=PID23285::T:WLMTAGL:ON:WL:\ en-US:SI_SB_facebook:082009 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 I have to confess, I don’t understand why you would take Entocort – a drug, and one with side-effects (and one which didn’t do anything positive for me, I might add) – rather than LDN, admittedly a drug, but one without bad side-effects, and one which will help your body heal your immune system, which none of the Crohn’s or Colitis drugs can do. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of T Sent: Monday, August 24, 2009 12:05 PM To: btvc-scd Subject: RE: 3 month flare. Take more medicine? yes, I have looked into LDN and spoke to my doc about it. He is ok with me wanting to try it if things don't improve down the road. For now my goal is still no meds at all. So I will take the entocort to get this flare calmed down, and if this keeps repeating itself I will try the LDN - UC - 1 year SCD - 3.5 months 100% strict and 4 months restricted diet. Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! To: BTVC-SCD From: alcibiades@... Date: Mon, 24 Aug 2009 11:21:51 -0400 Subject: Re: 3 month flare. Take more medicine? At the risk of sounding once again like a broken record, have you considered LDN? It will get you off the other meds. http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643 Mara i'm eating the other nut flowers with no reactions, and I would take sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the entocort...we'll see how things go. - UC - 1 year SCD - 3.5 months 100% strict and 4 months restricted diet. Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone! With Windows Live, you can organize, edit, and share your photos. Click here. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.409 / Virus Database: 270.13.66/2325 - Release Date: 08/25/09 06:08:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2009 Report Share Posted August 25, 2009 > Mara, > > There are still no long term studies about the side effects of LDN > if one stays on it long term. I think the idea that it is a cure > all and preventative is quite far fetched. Where is the data to > prove such claims? Yes, I understand it helps the immune system.. > But let's not overshoot here. There are many cofactors with disease. I think this may be the position of Dr. Bihari. After all, he has his entire staff on LDN, sick or well. But I was not endorsing any POV - I was merely reporting the info that came up when I queried if Dr. McCandless knew whether Crohn's or colitis people who take the drug have to stay on indefinitely. I think it is perfectly valid to report various informed opinions. Obviously LDN is not going to counteract all cofactors - but it was pretty interesting to see, in that recent cancer study that came out of Scandinavia recently, that long term, people who exercised regularly had lower cancer rates - I think that is quite likely related to endorphin production. And the fact that the researchers seemed unaware of the endorphin connection when cancer is their field is kind of mindboggling to me. Obviously, though, someone simultaneously smoking 3 packs of cigs a day or working in asbestos infested areas, or doing a host of other cancer causing things, or someone with rotten gene pool luck or someone whose immune system was already compromised, would be less likely to be benefitted by the production of endorphins through exercise than someone who did not engage in those causative factors. In any case, I listed illnesses currently being treated by LDN successfully. And I guess I do feel that this may provide extra benefits that way. The way a healthy diet does as well. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Mara, Ok.. I understand what you are saying.. I get triggered with the idea of " miracle cure " kind of talk. But I see where you were coming from. I was a little tired after my treatment yesterday- I hsouldn't of opened my computer. I am super supportive of LDN and think it is one of the best options out there for the unhealthy.. but these things work in tandem as you pointed out. I still feel it is a drug after all even if it is in low doses. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Mara, Ok.. I understand what you are saying.. I get triggered with the idea of " miracle cure " kind of talk. But I see where you were coming from. I was a little tired after my treatment yesterday- I hsouldn't of opened my computer. I am super supportive of LDN and think it is one of the best options out there for the unhealthy.. but these things work in tandem as you pointed out. I still feel it is a drug after all even if it is in low doses. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 Mara, Ok.. I understand what you are saying.. I get triggered with the idea of " miracle cure " kind of talk. But I see where you were coming from. I was a little tired after my treatment yesterday- I hsouldn't of opened my computer. I am super supportive of LDN and think it is one of the best options out there for the unhealthy.. but these things work in tandem as you pointed out. I still feel it is a drug after all even if it is in low doses. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 > Mara, > > Ok.. I understand what you are saying.. > I get triggered with the idea of " miracle cure " kind of talk. > But I see where you were coming from. > I was a little tired after my treatment yesterday- I hsouldn't of > opened my computer. > > I am super supportive of LDN and think it is one of the best options > out there for the unhealthy.. but these things work in tandem as you > pointed out. > > I still feel it is a drug after all even if it is in low doses. Yeah it's a drug, but it is making use of the body's own self healing and regulatory systems. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 > Mara, > > Ok.. I understand what you are saying.. > I get triggered with the idea of " miracle cure " kind of talk. > But I see where you were coming from. > I was a little tired after my treatment yesterday- I hsouldn't of > opened my computer. > > I am super supportive of LDN and think it is one of the best options > out there for the unhealthy.. but these things work in tandem as you > pointed out. > > I still feel it is a drug after all even if it is in low doses. Yeah it's a drug, but it is making use of the body's own self healing and regulatory systems. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2009 Report Share Posted August 26, 2009 > Mara, > > Ok.. I understand what you are saying.. > I get triggered with the idea of " miracle cure " kind of talk. > But I see where you were coming from. > I was a little tired after my treatment yesterday- I hsouldn't of > opened my computer. > > I am super supportive of LDN and think it is one of the best options > out there for the unhealthy.. but these things work in tandem as you > pointed out. > > I still feel it is a drug after all even if it is in low doses. Yeah it's a drug, but it is making use of the body's own self healing and regulatory systems. Mara Quote Link to comment Share on other sites More sharing options...
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