RE: 3 month flare. Take more medicine?

[Guest guest]

I have to confess, I don’t understand why you would take

Entocort – a drug, and one with side-effects (and one which didn’t do anything

positive for me, I might add) – rather than LDN, admittedly a drug, but one

without bad side-effects, and one which will help your body heal your immune

system, which none of the Crohn’s or Colitis drugs can do.

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of

T

Sent: Monday, August 24, 2009 12:05 PM

To: btvc-scd

Subject: RE: 3 month flare. Take more medicine?

yes, I have looked into LDN and spoke to my doc about it. He is ok with me

wanting to try it if things don't improve down the road. For now my goal is

still no meds at all. So I will take the entocort to get this flare calmed

down, and if this keeps repeating itself I will try the LDN

-

UC - 1 year

SCD - 3.5 months 100% strict and 4 months restricted diet.

Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No

more Hydrocortisone or Prednisone!

To: BTVC-SCD

From: alcibiades@...

Date: Mon, 24 Aug 2009 11:21:51 -0400

Subject: Re: 3 month flare. Take more medicine?

At the risk of sounding once again like a broken record,

have you considered LDN?

It will get you off the other meds.

http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=19643

Mara

i'm eating the other nut flowers with no reactions, and I would take

sulfasaline but I am allergic to sulfa drugs, so i can't. I'm back on the

entocort...we'll see how things go.

-

UC - 1 year

SCD - 3.5 months 100% strict and 4 months restricted diet.

Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No

more Hydrocortisone or Prednisone!

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06:08:00

[Guest guest]

BTW, if the issue is getting off LDN down the road when you are healed, I asked Dr. McCandless about that andshe said that there was currently no consensus on taking it indefinitely if you have crohn's or colitis amongsttreating physicians. The people tested in that U Penn (or was it Penn State)test were only put on it short term - and that was forCrohn's - so people do come off of it. She says she takes the kids she treats off of it as wellonce they are healed of many of their symptoms (theyare autistic kids - so I guess she does it for gut regulationand a host of other illneses.)Someone else who is very knowledgeable respondedthat people who have autoimmune diseases very oftenwill get another one later on - there's a propensity to develop more than one. So from that POV, staying onLDN for life lessens the possibility of that developingin the body. As well as being an excellent proactivedefense against developing cancer or parkinsons oralzheimers. MaraI have to confess, I don’t understand why you would take Entocort – a drug, and one with side-effects (and one which didn’t do anything positive for me, I might add) – rather than LDN, admittedly a drug, but one without bad side-effects, and one which will help your body heal your immune system, which none of the Crohn’s or Colitis drugs can do. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of TSent: Monday, August 24, 2009 12:05 PMTo: btvc-scd Subject: RE: 3 month flare. Take more medicine? yes, I have looked into LDN and spoke to my doc about it. He is ok with me wanting to try it if things don't improve down the road. For now my goal is still no meds at all. So I will take the entocort to get this flare calmed down, and if this keeps repeating itself I will try the LDN

[Guest guest]

BTW, if the issue is getting off LDN down the road when you are healed, I asked Dr. McCandless about that andshe said that there was currently no consensus on taking it indefinitely if you have crohn's or colitis amongsttreating physicians. The people tested in that U Penn (or was it Penn State)test were only put on it short term - and that was forCrohn's - so people do come off of it. She says she takes the kids she treats off of it as wellonce they are healed of many of their symptoms (theyare autistic kids - so I guess she does it for gut regulationand a host of other illneses.)Someone else who is very knowledgeable respondedthat people who have autoimmune diseases very oftenwill get another one later on - there's a propensity to develop more than one. So from that POV, staying onLDN for life lessens the possibility of that developingin the body. As well as being an excellent proactivedefense against developing cancer or parkinsons oralzheimers. MaraI have to confess, I don’t understand why you would take Entocort – a drug, and one with side-effects (and one which didn’t do anything positive for me, I might add) – rather than LDN, admittedly a drug, but one without bad side-effects, and one which will help your body heal your immune system, which none of the Crohn’s or Colitis drugs can do. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of TSent: Monday, August 24, 2009 12:05 PMTo: btvc-scd Subject: RE: 3 month flare. Take more medicine? yes, I have looked into LDN and spoke to my doc about it. He is ok with me wanting to try it if things don't improve down the road. For now my goal is still no meds at all. So I will take the entocort to get this flare calmed down, and if this keeps repeating itself I will try the LDN

[Guest guest]

BTW, if the issue is getting off LDN down the road when you are healed, I asked Dr. McCandless about that andshe said that there was currently no consensus on taking it indefinitely if you have crohn's or colitis amongsttreating physicians. The people tested in that U Penn (or was it Penn State)test were only put on it short term - and that was forCrohn's - so people do come off of it. She says she takes the kids she treats off of it as wellonce they are healed of many of their symptoms (theyare autistic kids - so I guess she does it for gut regulationand a host of other illneses.)Someone else who is very knowledgeable respondedthat people who have autoimmune diseases very oftenwill get another one later on - there's a propensity to develop more than one. So from that POV, staying onLDN for life lessens the possibility of that developingin the body. As well as being an excellent proactivedefense against developing cancer or parkinsons oralzheimers. MaraI have to confess, I don’t understand why you would take Entocort – a drug, and one with side-effects (and one which didn’t do anything positive for me, I might add) – rather than LDN, admittedly a drug, but one without bad side-effects, and one which will help your body heal your immune system, which none of the Crohn’s or Colitis drugs can do. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of TSent: Monday, August 24, 2009 12:05 PMTo: btvc-scd Subject: RE: 3 month flare. Take more medicine? yes, I have looked into LDN and spoke to my doc about it. He is ok with me wanting to try it if things don't improve down the road. For now my goal is still no meds at all. So I will take the entocort to get this flare calmed down, and if this keeps repeating itself I will try the LDN