Guest guest Posted October 16, 2009 Report Share Posted October 16, 2009 Dear Tom, I am in a position to respond well to your quesrioes as I have had H.. Pylori attacks already 5 times in my life. pls follow the instructions as I have given below ; 1) immediately go for the H. Pylori test, there are various tests a) blood test, stool test c) Endoscopy with biopsy and d) breath test, the blood and stool test is usefless , the only reliable ones are c) and d) , the breath test is the most reliable one, it lasts for half hour, no pain nothing, bit expensive but worth going for, if the breath test is not abvailable at your place , you need to go for endoscopy with biopsy, the biopsy needs to be taken from at least 4 different parts in your stomach, taking 1 piece is not sufficient, you need to tell this to your GI, because last year they made the mistake in my case, they took the boiopsy only 1 piece and the H. Pylori test came back negative, I was 101% sure I had pylori , so I went for the breath test and it came back positive, I went to another GI because it was useless to argue with the first GI, some are so stubborn that they refuse to believe even on the breath test which can detect even that what the biosy cannot detect. tretament is always a cocktail of antibiotics, Amoxicillin, Clarithromycin and Pepto Bismuth, with any PPI if you have resistant pylori, then the above therapy will not help you, you need ot take Levofloxacin along with Amoxycillin , plus any PPI If your test for Pylori is negative, then be happy you are safe , but as you are having severe reflux, you need Nexium for 6 months, The Zantac is a very weak PPI for those with severe reflux, pls get your Pylori treated on time, it is associated with stomach cancer, if left untreated. I do not believe in alterate therapy for treating Pylori, it is useless, believe me, H. Pylori can be treated only with a cocktail of antibiotis. Pls go to H. Pylori foundation in the web, everything is explianed so properly there. I hope the info i have given above is helpful. Sandhya -- Subject: Re: H. pylori treatment?To: BTVC-SCD Date: Thursday, October 15, 2009, 8:46 AM Tom,Sorry to hear about your stomach pain. I can certainly identify with that. I would see a GI doctor if I were you to get tested for H-Pylori. It will need to be treated if you have it otherwise it will continue to get worse. Ignoring this can cause even more serious problems.There are a lot of alternative remedies other than the usual three antibiotics and ppi protocol, but I cannot vouch for their effectiveness. Many people claim that taking Zinc-Carnosine will clear up the H-Pylori. In Japan this product is given by prescription and prescribed for H-Pylori. Here you can get it in health stores.Check out the information on this here and come to your own conclusions. http://www.google. com/search? hl=en & client= safari & rls= en & q=zinc- carnosine+ h-pylori & aq=f & oq= & aqi=There are other alternative remedies available, but most all of them will only bring you temporary relief and not kill the H-Pylori. Plus, many of the ingredients in them are on the illegal list. Again, I think it's wise to get tested to see if you have it before making any decisions on how to treat it.I hope you get better soon.>> Hi all,> I've had increasingly bad acid stomach the last few days. I wake up with it> and it comes for longer periods during the day. Some times food helps (short> term), sometimes not. (just ate breakfast, and it already hurts)> At first I thought it was related to 3 week cold I can't shake or to stress or> just something I ate (bad piece of meat?), but the progression of symptoms made> me wonder if it isn't H. pylori? I've had reflux from hiatal hernia since July,> but this feels like something different; didn't have the intense stomach pain> with reflux. As a stop gap measure I've used Zantac sparingly (i know that> stuff ain't good long term), with minimal relief.> What treatments, mainstream medical and alternative / home remedies, have> folks used? Is there any point in going to see doc, who will probably just> suggest an antacid or PPI?> > thanks,> tom> scd, July 09> ibs / cfs 2+ years> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2009 Report Share Posted October 17, 2009 Tom, Just to give you a different perspective on the h pylori bacterium. Stool testing is considered highly accurate, but depends of the quality of the laboratory you are using. After 15+ years of thinking I had an ulcer/stomach cancer (15 years ago, Barry Marshall, who won the Nobel Prize in Medicine, was just discovering that ulcers were caused by h pylori. Check out his Center for Digestive Diseases in Australia--definately the cutting edge in h pylori treatment), endless doctors visists, three negative blood tests and one negative endoscopy later, I finally tested positive via stool test. From what I've read in peer-reviewed medical literature, blood tests are roughly 80% accurate, while stool and breath rate in the high 90's. I'm not sure on the endoscopy, but both me and friend scoped negative when other tests showed positive results. It may be beneficial to re-test if you get a negative since h pylori can really impact your health. I'm fairly certain that the beginning of my stomach troubles was when I contacted the h pylori, but went untreated for those 15+ years. In that time, I was prescriped PPI's and lots of tetracycline to deal with chronic sinus infections and rosacea, both of which I know now can be associated with h pylori. The PPI's reduced/shut off my stomach acid, the tetracycline (which I was on for years) altered my intestinal flora, and sure enough disaster struck after yet another round of antibiotics (amoxicillan this time) for a sinus infection followed by the flu a few years ago. I have been very sick ever since that time. After figuring out that I had autoimmune thyroiditis, chronic fatigue, bacterial overgrowth and the h pylori, I started the SCD with very positive results. I did not attempt to treat the h pylori until I was on the diet for 8 months, and then took a course of antibiotics as found on the CDD webpage (flagyl, clarithromycin, PPI) under my doctors care (which means about absolutely nothing to me at this time, but it seems to make others happy when I throw in that caveat). I'm uncertain if it cleared the h pylori, as a one-month wait to re-test is pretty standard, but the antibiotics have allowed the other bad bacteria still existing in my system to thrive, and I feel horrible. It's been two weeks, and I'm waiting to see if the SCD will work its magic again. To note, I tried various alternative remedies, and have done a tremendous amount of internet research on them. There are any number of anecdotal cases where people tried alternative methods that worked for them. The alternative methods are time intensive and lengthy (it takes multiple doses of multiple substances per day and months of time to see results). Warning on mastic gum, however, as it is not SCD legal, and it made me feel very, very bad both times I took it. My doc kept telling me I was feeling bad from a die-off reaction and talked me into staying on it and going back on it, but I kept feeling worse the longer I was on it, and felt very bad for sometime afterwards, and I am absolutely certain it wasn't a die-off. I had positive results with coconut oil, but never enough to eradicate it. Also, certain labs (notably Genova) perform susceptability testing on any pathogens found in your gut, which is tremendously beneficial in determining a course of antibiotics if you do test positive. It is also possible that you have gastritis or a different bacteria/virus that is upsetting your digestive system. (My stomach got messed up on the antibiotics, and I have many of the symptoms of h pylori while on and just off of them, although it is really, really unlikely that the h pylori would be active in this manner during and immediately following an eradication attempt). Comprehensive stool testing can help you pinpoint what might be going on it your gut. Genova, Metametrix, etc. can be ordered on-line (I go through Forrest Health out here in California, but there other options to be found) and you can see what is going on inside you. From what I've read, these independent labs, which use FDA-certified techniques, are better than your average hospital lab, in that they test for greater sensitivity (I kept saying to my doc that I thought I had h pylori, but my blood tests were negative, but if 80 is positive, what is a 79? Standard testing just shows this as a negative). Enough out of me. Good luck to you, and I'd highly recommend no antibiotics until you get a definitive result. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2009 Report Share Posted October 17, 2009 Tom, Just to give you a different perspective on the h pylori bacterium. Stool testing is considered highly accurate, but depends of the quality of the laboratory you are using. After 15+ years of thinking I had an ulcer/stomach cancer (15 years ago, Barry Marshall, who won the Nobel Prize in Medicine, was just discovering that ulcers were caused by h pylori. Check out his Center for Digestive Diseases in Australia--definately the cutting edge in h pylori treatment), endless doctors visists, three negative blood tests and one negative endoscopy later, I finally tested positive via stool test. From what I've read in peer-reviewed medical literature, blood tests are roughly 80% accurate, while stool and breath rate in the high 90's. I'm not sure on the endoscopy, but both me and friend scoped negative when other tests showed positive results. It may be beneficial to re-test if you get a negative since h pylori can really impact your health. I'm fairly certain that the beginning of my stomach troubles was when I contacted the h pylori, but went untreated for those 15+ years. In that time, I was prescriped PPI's and lots of tetracycline to deal with chronic sinus infections and rosacea, both of which I know now can be associated with h pylori. The PPI's reduced/shut off my stomach acid, the tetracycline (which I was on for years) altered my intestinal flora, and sure enough disaster struck after yet another round of antibiotics (amoxicillan this time) for a sinus infection followed by the flu a few years ago. I have been very sick ever since that time. After figuring out that I had autoimmune thyroiditis, chronic fatigue, bacterial overgrowth and the h pylori, I started the SCD with very positive results. I did not attempt to treat the h pylori until I was on the diet for 8 months, and then took a course of antibiotics as found on the CDD webpage (flagyl, clarithromycin, PPI) under my doctors care (which means about absolutely nothing to me at this time, but it seems to make others happy when I throw in that caveat). I'm uncertain if it cleared the h pylori, as a one-month wait to re-test is pretty standard, but the antibiotics have allowed the other bad bacteria still existing in my system to thrive, and I feel horrible. It's been two weeks, and I'm waiting to see if the SCD will work its magic again. To note, I tried various alternative remedies, and have done a tremendous amount of internet research on them. There are any number of anecdotal cases where people tried alternative methods that worked for them. The alternative methods are time intensive and lengthy (it takes multiple doses of multiple substances per day and months of time to see results). Warning on mastic gum, however, as it is not SCD legal, and it made me feel very, very bad both times I took it. My doc kept telling me I was feeling bad from a die-off reaction and talked me into staying on it and going back on it, but I kept feeling worse the longer I was on it, and felt very bad for sometime afterwards, and I am absolutely certain it wasn't a die-off. I had positive results with coconut oil, but never enough to eradicate it. Also, certain labs (notably Genova) perform susceptability testing on any pathogens found in your gut, which is tremendously beneficial in determining a course of antibiotics if you do test positive. It is also possible that you have gastritis or a different bacteria/virus that is upsetting your digestive system. (My stomach got messed up on the antibiotics, and I have many of the symptoms of h pylori while on and just off of them, although it is really, really unlikely that the h pylori would be active in this manner during and immediately following an eradication attempt). Comprehensive stool testing can help you pinpoint what might be going on it your gut. Genova, Metametrix, etc. can be ordered on-line (I go through Forrest Health out here in California, but there other options to be found) and you can see what is going on inside you. From what I've read, these independent labs, which use FDA-certified techniques, are better than your average hospital lab, in that they test for greater sensitivity (I kept saying to my doc that I thought I had h pylori, but my blood tests were negative, but if 80 is positive, what is a 79? Standard testing just shows this as a negative). Enough out of me. Good luck to you, and I'd highly recommend no antibiotics until you get a definitive result. Ellen Quote Link to comment Share on other sites More sharing options...
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