Re: Can anyone offer feedback about their progress at one year

[Guest guest]

Hi Aiazeen,

I've been on SCD a little over a year now and have done great with the CD, still had some joint pain though so I started ldn 3 weeks ago. I was able to eat most foods by 6 months though nut flours took a bit longer and just recently I've tried potatoes with no ill effects. I've never had a flare-up since starting the diet. I was off prednisone and all other meds for about 9 months. A month ago I started adding 2.5 or 5 mg of prednisone for the joint pain so I decided to try ldn to see if it would help and it did so I'm off the pred for pain again. The ldn this week has also tweaked my intestines even more and I feel even better than when I was just on scd though I didn't think I was having any problems. Since the 4th day of SCD I have had no bleeding, mucous, pain (except joint) or serious D. I would get occasional D if I ate something containing an illegal or mold but was always

able to identifiy it, even if too late. I consider myself almost healed with SCD, though I won't go crazy adding in non-legals any time soon it's nice to think that one day I will be able to add more.

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Thursday, September 10, 2009 7:19:36 PMSubject: Can anyone offer feedback about their progress at one year

Hi all - while I realize that this is an individual journey I am just curious how people who are or wee athe the one year mark were doing. I just got off a eight month run with Prednisone in July (maybe a 3/4 a month at 15-40 mg, but everything after that was mainly 12 mg and lower) and still can only eat beef, buffalo elk and fish (Chicken, turkey pork, lamb and eggs I react to),I can eat cheeses, red wine, really no fruit at this point (recently found out that the ripe banana I was putting in my daily smoothies seemed to coordinate with about 2-3 more BMs per day)and I can eat well cooked, skinned, zucchini, tomato I am on the fence about (minus seeds) and bell peppers. I may be dealing with a salyciliate issue. I can also have dry red wine but white seems to give me trouble - wine in general seems to give me trouble because it is one of the few coping mechanisms that I have ot had to completely move away from so I lean on it probably more than I

should as a result...makes me eat more ...into the evening...you get the idea. I'd say all and all I eat about 30-40 different ingredients but very very heavy in protein with remaining nutrition coming from supplements. I still have about 4-13 BMS a day and there is bleeding and D. I do realize that some of this has to do with my struggle to not eat later into the evening when the digestion slows among other things, mainly that evolve around impatience, but I can usually get back down to the lower end of BMS with diet modifications. Just could use some feedback about if this is common place at a little over a year. I do know the UC tends to take longer to heal from than Chrones- not sure why, so if anyone has info on that - this too would be helpful.P.S. I am not interested in the LDN option at this time - I tried it briefly, Eileen's daughter healed without it and I am struggling with the variables of what works and what does not. I am not

interested in adding yet another variable to the mix at this point.aiazeenUC 7 yearsasacol 400 mg 3x/dayImipramine 30 mg/daySCD 1 yr 1 and 1 1/2 months

[Guest guest]

I was on the diet for 8 months and then started adding back old foods. I was going strong for almost 4 years before I had a flare 3 months ago. I'm back to the intro diet and can't move ahead. It's all stress.

[Guest guest]

I was on the diet for 8 months and then started adding back old foods. I was going strong for almost 4 years before I had a flare 3 months ago. I'm back to the intro diet and can't move ahead. It's all stress.

[Guest guest]

I've been on the diet just shy of a year.  I have a mild case, but I did have flares at 3, 6, and 9 months. Probably die-off flares.Right now things are as normal as they can be, and I had a normal colonoscopy (yay!) at 9 months.  I have occasional bouts with C, but find if I keep myself well-hydrated throughout the day and eat lots of fiber that that gets rid of it. If the C causes B I use Rowasa for a day or two.

I plan on staying on this diet for life. In another year I may be able to eat something illegal occasionally. But I'll tell you, I cheated and had some bread early on and it just didn't taste all that great anymore.  All my life I've been a carboholic, and as I moved into perimenopause, a sweetoholic.  So I think I belong on the diet anyway and find that I love all the home-cooked food I'm making.  I can't believe all the processed cr@p I ate before. When I bring SCD desserts to a potluck, they disappear immediately and everyone raves about them.

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[Guest guest]

I've been on the diet just shy of a year.  I have a mild case, but I did have flares at 3, 6, and 9 months. Probably die-off flares.Right now things are as normal as they can be, and I had a normal colonoscopy (yay!) at 9 months.  I have occasional bouts with C, but find if I keep myself well-hydrated throughout the day and eat lots of fiber that that gets rid of it. If the C causes B I use Rowasa for a day or two.

I plan on staying on this diet for life. In another year I may be able to eat something illegal occasionally. But I'll tell you, I cheated and had some bread early on and it just didn't taste all that great anymore.  All my life I've been a carboholic, and as I moved into perimenopause, a sweetoholic.  So I think I belong on the diet anyway and find that I love all the home-cooked food I'm making.  I can't believe all the processed cr@p I ate before. When I bring SCD desserts to a potluck, they disappear immediately and everyone raves about them.

--

[Guest guest]

I've been on the diet just shy of a year.  I have a mild case, but I did have flares at 3, 6, and 9 months. Probably die-off flares.Right now things are as normal as they can be, and I had a normal colonoscopy (yay!) at 9 months.  I have occasional bouts with C, but find if I keep myself well-hydrated throughout the day and eat lots of fiber that that gets rid of it. If the C causes B I use Rowasa for a day or two.

I plan on staying on this diet for life. In another year I may be able to eat something illegal occasionally. But I'll tell you, I cheated and had some bread early on and it just didn't taste all that great anymore.  All my life I've been a carboholic, and as I moved into perimenopause, a sweetoholic.  So I think I belong on the diet anyway and find that I love all the home-cooked food I'm making.  I can't believe all the processed cr@p I ate before. When I bring SCD desserts to a potluck, they disappear immediately and everyone raves about them.

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