Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , You need to be in the hospital where they can address these new seizures. You may be having more vasculitis (blood vessel inflammation) and it could be causing a decrease in the bloodflow to your brain, and that would cause whatever area of the body that is controlled by that area to lose function. Get your ass into ER. Please. Love to you, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , You need to be in the hospital where they can address these new seizures. You may be having more vasculitis (blood vessel inflammation) and it could be causing a decrease in the bloodflow to your brain, and that would cause whatever area of the body that is controlled by that area to lose function. Get your ass into ER. Please. Love to you, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , You need to be in the hospital where they can address these new seizures. You may be having more vasculitis (blood vessel inflammation) and it could be causing a decrease in the bloodflow to your brain, and that would cause whatever area of the body that is controlled by that area to lose function. Get your ass into ER. Please. Love to you, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 U appreciate your concern, and I thank you for that.. there doesn't seem to be of that going around here. as far as my parents or my son.. which is more aggravated about the issue. than anything else.. My mom says that they its my nerves, and they will put me in an institution.. before anything..lol... and I may need to go there as some of you could a test too.. but not over this problem. Its Ok, how do we drop kick the "one's we love." AAARGGGHHH. Girl, I doubt increasing the Imuran is going to help--you need something in addition to it. You need to get in and find out what is causing these seizures. Rose said it best-- is it infection, sepsis, drug reaction, TIA's, seizures from vasculitis? ER my friend, it's time to check in. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Theresa I'm so worried about you. Please contact your doctors and make them explain what it was or make them find out what it was. I'll be praying for you. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Theresa I'm so worried about you. Please contact your doctors and make them explain what it was or make them find out what it was. I'll be praying for you. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Theresa I'm so worried about you. Please contact your doctors and make them explain what it was or make them find out what it was. I'll be praying for you. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , is this the first time you've had symptoms like this? Did you lose consciousness or have any vomiting/incontinence? And, most important, did you call one of your doctors? Several things are running through my mind--a drug reaction or interaction, hypoxia (low oxygen levels) causing confusion & tremors, some type of seizures, even infection (sometimes sepsis can actually produce a drop in temperature). Does any of this sound likely or possible? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "NS Group" <Neurosarcoidosis >Subject: Definatey SickDate: Sat, 25 Feb 2006 17:45:15 -0600 (Central Standard Time) Hi friends, Wanted to write to let you know, that something is definitely happening here. I started with these jerks bad yesterday in different parts of my body.. but last night I woke up in the floor..jerking really bad and I mean bad, yelling for my mom, which lives 3 doors away, and for my son... that was asleep in the next room, I don't remember how I got there if I had fallen or just sat down in the floor... When I woke up I was trying to find a piece of my C-pap machine...Jerking so much my arms and shoulders where hurting...Damian came in and asked me "Moma, what are doing in the floor, and took by the hand and got me up... he was teenager mad at me, or disgusted because I was in the floor.. it wasn't exactly the place I wanted to be either. if you guys know what I mean.... he put me back to bed got my C-Pap machine back together, and I went back to sleep, it was 7:30am but I had been there for ...HOURS.... working on that damn machine.. I had electrical wires every where......When I awoken again at 10:00am I woke up my eyes where like awake like scared. and the jerking and tremors are much much worse. I get up, dressed ok, and I asked Damian to take me to my mom's house. he does do that, my little little sister is there, they try to avoid eye contact with me, but I finally blurted out "I'm sick" which evidently they couldn't tell because they hadn't looked at me.. My little niece was there she is only 4 months old. and I wanted to hold her so bad.. finally said well ok, only if you sit way back in the chair.. So I did get to hold her a bit. after my mental confusion got some better.. My temp which is normally 99.6 or above, has suddenly taken a dive to 99.6 which I find odd if I'm finding a flare... I'm pretty scared at the moment, as I did find add Klonopin I took it and did calm down for about 5 hours later, and now I find myself heading for a worse night as the symptoms are getting worse already tonight. Tracie, Darlene, Rosie.. I'd like to hear your thoughts... if you have any.. T ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , is this the first time you've had symptoms like this? Did you lose consciousness or have any vomiting/incontinence? And, most important, did you call one of your doctors? Several things are running through my mind--a drug reaction or interaction, hypoxia (low oxygen levels) causing confusion & tremors, some type of seizures, even infection (sometimes sepsis can actually produce a drop in temperature). Does any of this sound likely or possible? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "NS Group" <Neurosarcoidosis >Subject: Definatey SickDate: Sat, 25 Feb 2006 17:45:15 -0600 (Central Standard Time) Hi friends, Wanted to write to let you know, that something is definitely happening here. I started with these jerks bad yesterday in different parts of my body.. but last night I woke up in the floor..jerking really bad and I mean bad, yelling for my mom, which lives 3 doors away, and for my son... that was asleep in the next room, I don't remember how I got there if I had fallen or just sat down in the floor... When I woke up I was trying to find a piece of my C-pap machine...Jerking so much my arms and shoulders where hurting...Damian came in and asked me "Moma, what are doing in the floor, and took by the hand and got me up... he was teenager mad at me, or disgusted because I was in the floor.. it wasn't exactly the place I wanted to be either. if you guys know what I mean.... he put me back to bed got my C-Pap machine back together, and I went back to sleep, it was 7:30am but I had been there for ...HOURS.... working on that damn machine.. I had electrical wires every where......When I awoken again at 10:00am I woke up my eyes where like awake like scared. and the jerking and tremors are much much worse. I get up, dressed ok, and I asked Damian to take me to my mom's house. he does do that, my little little sister is there, they try to avoid eye contact with me, but I finally blurted out "I'm sick" which evidently they couldn't tell because they hadn't looked at me.. My little niece was there she is only 4 months old. and I wanted to hold her so bad.. finally said well ok, only if you sit way back in the chair.. So I did get to hold her a bit. after my mental confusion got some better.. My temp which is normally 99.6 or above, has suddenly taken a dive to 99.6 which I find odd if I'm finding a flare... I'm pretty scared at the moment, as I did find add Klonopin I took it and did calm down for about 5 hours later, and now I find myself heading for a worse night as the symptoms are getting worse already tonight. Tracie, Darlene, Rosie.. I'd like to hear your thoughts... if you have any.. T ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , is this the first time you've had symptoms like this? Did you lose consciousness or have any vomiting/incontinence? And, most important, did you call one of your doctors? Several things are running through my mind--a drug reaction or interaction, hypoxia (low oxygen levels) causing confusion & tremors, some type of seizures, even infection (sometimes sepsis can actually produce a drop in temperature). Does any of this sound likely or possible? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "NS Group" <Neurosarcoidosis >Subject: Definatey SickDate: Sat, 25 Feb 2006 17:45:15 -0600 (Central Standard Time) Hi friends, Wanted to write to let you know, that something is definitely happening here. I started with these jerks bad yesterday in different parts of my body.. but last night I woke up in the floor..jerking really bad and I mean bad, yelling for my mom, which lives 3 doors away, and for my son... that was asleep in the next room, I don't remember how I got there if I had fallen or just sat down in the floor... When I woke up I was trying to find a piece of my C-pap machine...Jerking so much my arms and shoulders where hurting...Damian came in and asked me "Moma, what are doing in the floor, and took by the hand and got me up... he was teenager mad at me, or disgusted because I was in the floor.. it wasn't exactly the place I wanted to be either. if you guys know what I mean.... he put me back to bed got my C-Pap machine back together, and I went back to sleep, it was 7:30am but I had been there for ...HOURS.... working on that damn machine.. I had electrical wires every where......When I awoken again at 10:00am I woke up my eyes where like awake like scared. and the jerking and tremors are much much worse. I get up, dressed ok, and I asked Damian to take me to my mom's house. he does do that, my little little sister is there, they try to avoid eye contact with me, but I finally blurted out "I'm sick" which evidently they couldn't tell because they hadn't looked at me.. My little niece was there she is only 4 months old. and I wanted to hold her so bad.. finally said well ok, only if you sit way back in the chair.. So I did get to hold her a bit. after my mental confusion got some better.. My temp which is normally 99.6 or above, has suddenly taken a dive to 99.6 which I find odd if I'm finding a flare... I'm pretty scared at the moment, as I did find add Klonopin I took it and did calm down for about 5 hours later, and now I find myself heading for a worse night as the symptoms are getting worse already tonight. Tracie, Darlene, Rosie.. I'd like to hear your thoughts... if you have any.. T ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , to be truthful, I'm worried about me too..I know about the disease pretty well, and I know that I'm in a flare, they've gone thru every system to rule our flare, except my neurologist is a nit wit. I'm not even sure if I went to see Baughman, that they would follow his recommendations / nor do I know if they would follow his directions if made way North..My last visit with my Neuro/Nurse Practitioner asked me just who treated my Neuro/sarc.. and I replied "you" she said ohhhhh no I don't.. I don't even pretend to know about that of course if I'm doing ok.. She draws the lab work when I think I need it, she'll draw the lab work that I ask for. Ace. Sed rate and CRP.. I don't know that just increasing my Imuran is gonna do the trick.. U appreciate your concern, and I thank you for that.. there doesn't seem to be of that going around here. as far as my parents or my son.. which is more aggravated about the issue. than anything else.. My mom says that they its my nerves, and they will put me in an institution.. before anything..lol... and I may need to go there as some of you could a test too.. but not over this problem. Its neurological not psychological.. lol.. Gotta love our mom's huh? Hugz, -- Re: Definatey Sick TheresaI'm so worried about you. Please contact your doctorsand make them explain what it was or make them findout what it was. I'll be praying for you.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , to be truthful, I'm worried about me too..I know about the disease pretty well, and I know that I'm in a flare, they've gone thru every system to rule our flare, except my neurologist is a nit wit. I'm not even sure if I went to see Baughman, that they would follow his recommendations / nor do I know if they would follow his directions if made way North..My last visit with my Neuro/Nurse Practitioner asked me just who treated my Neuro/sarc.. and I replied "you" she said ohhhhh no I don't.. I don't even pretend to know about that of course if I'm doing ok.. She draws the lab work when I think I need it, she'll draw the lab work that I ask for. Ace. Sed rate and CRP.. I don't know that just increasing my Imuran is gonna do the trick.. U appreciate your concern, and I thank you for that.. there doesn't seem to be of that going around here. as far as my parents or my son.. which is more aggravated about the issue. than anything else.. My mom says that they its my nerves, and they will put me in an institution.. before anything..lol... and I may need to go there as some of you could a test too.. but not over this problem. Its neurological not psychological.. lol.. Gotta love our mom's huh? Hugz, -- Re: Definatey Sick TheresaI'm so worried about you. Please contact your doctorsand make them explain what it was or make them findout what it was. I'll be praying for you.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 , to be truthful, I'm worried about me too..I know about the disease pretty well, and I know that I'm in a flare, they've gone thru every system to rule our flare, except my neurologist is a nit wit. I'm not even sure if I went to see Baughman, that they would follow his recommendations / nor do I know if they would follow his directions if made way North..My last visit with my Neuro/Nurse Practitioner asked me just who treated my Neuro/sarc.. and I replied "you" she said ohhhhh no I don't.. I don't even pretend to know about that of course if I'm doing ok.. She draws the lab work when I think I need it, she'll draw the lab work that I ask for. Ace. Sed rate and CRP.. I don't know that just increasing my Imuran is gonna do the trick.. U appreciate your concern, and I thank you for that.. there doesn't seem to be of that going around here. as far as my parents or my son.. which is more aggravated about the issue. than anything else.. My mom says that they its my nerves, and they will put me in an institution.. before anything..lol... and I may need to go there as some of you could a test too.. but not over this problem. Its neurological not psychological.. lol.. Gotta love our mom's huh? Hugz, -- Re: Definatey Sick TheresaI'm so worried about you. Please contact your doctorsand make them explain what it was or make them findout what it was. I'll be praying for you.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 My mother's had health problems off & on all her life. She even had a gp tell her it was all in her head when she was in the hospital. He prescribed tranquilizer for her (this was back in the 60's) & when they came around to give it to her she refused it. I think she was in there for her ulcer & she also had gall bladder trouble. When he came in & saw she was better the next day he got all smug about " that pill last night did you some good " & she told him she refused it & what she really needed was a good nights rest. Wish it would be as simple as that for us. I'm not exactly sure about a flare. I had the hydro & the shunt and then this slow downhill slide. But just like on a sled it sped up on me! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 My mother's had health problems off & on all her life. She even had a gp tell her it was all in her head when she was in the hospital. He prescribed tranquilizer for her (this was back in the 60's) & when they came around to give it to her she refused it. I think she was in there for her ulcer & she also had gall bladder trouble. When he came in & saw she was better the next day he got all smug about " that pill last night did you some good " & she told him she refused it & what she really needed was a good nights rest. Wish it would be as simple as that for us. I'm not exactly sure about a flare. I had the hydro & the shunt and then this slow downhill slide. But just like on a sled it sped up on me! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 My mother's had health problems off & on all her life. She even had a gp tell her it was all in her head when she was in the hospital. He prescribed tranquilizer for her (this was back in the 60's) & when they came around to give it to her she refused it. I think she was in there for her ulcer & she also had gall bladder trouble. When he came in & saw she was better the next day he got all smug about " that pill last night did you some good " & she told him she refused it & what she really needed was a good nights rest. Wish it would be as simple as that for us. I'm not exactly sure about a flare. I had the hydro & the shunt and then this slow downhill slide. But just like on a sled it sped up on me! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 , Its very hard to find a good dr. too take you on and reallly listen and take immediate action. Most of them brush you off and sort of like guess what the problem is. They really get do "smug", I know what you mean. They think they are "Gods gift" and we shoulnt question their authority because of their egos. They give us pills and tell us to go home and take them.Everybody body is different and their body'r reactions react to meds in different ways with different reactions. The script might work great for one person, but doesn't do crap for another. So when it works for someone ,, they so get ll smug or their ego is inflared some more. Well, enough abour my stories, I hope everything is succesfull for you and you feel better soon. HEY , we need someone to to go one on one with Rosie's sense of humor!!!! lOVE, dEBBIE wrote: My mother's had health problems off & on all her life.She even had a gp tell her it was all in her head whenshe was in the hospital. He prescribed tranquilizerfor her (this was back in the 60's) & when they camearound to give it to her she refused it. I think shewas in there for her ulcer & she also had gall bladdertrouble. When he came in & saw she was better the nextday he got all smug about "that pill last night didyou some good" & she told him she refused it & whatshe really needed was a good nights rest. Wish itwould be as simple as that for us. I'm not exactlysure about a flare. I had the hydro & the shunt andthen this slow downhill slide. But just like on a sledit sped up on me!grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 , Its very hard to find a good dr. too take you on and reallly listen and take immediate action. Most of them brush you off and sort of like guess what the problem is. They really get do "smug", I know what you mean. They think they are "Gods gift" and we shoulnt question their authority because of their egos. They give us pills and tell us to go home and take them.Everybody body is different and their body'r reactions react to meds in different ways with different reactions. The script might work great for one person, but doesn't do crap for another. So when it works for someone ,, they so get ll smug or their ego is inflared some more. Well, enough abour my stories, I hope everything is succesfull for you and you feel better soon. HEY , we need someone to to go one on one with Rosie's sense of humor!!!! lOVE, dEBBIE wrote: My mother's had health problems off & on all her life.She even had a gp tell her it was all in her head whenshe was in the hospital. He prescribed tranquilizerfor her (this was back in the 60's) & when they camearound to give it to her she refused it. I think shewas in there for her ulcer & she also had gall bladdertrouble. When he came in & saw she was better the nextday he got all smug about "that pill last night didyou some good" & she told him she refused it & whatshe really needed was a good nights rest. Wish itwould be as simple as that for us. I'm not exactlysure about a flare. I had the hydro & the shunt andthen this slow downhill slide. But just like on a sledit sped up on me!grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 , Its very hard to find a good dr. too take you on and reallly listen and take immediate action. Most of them brush you off and sort of like guess what the problem is. They really get do "smug", I know what you mean. They think they are "Gods gift" and we shoulnt question their authority because of their egos. They give us pills and tell us to go home and take them.Everybody body is different and their body'r reactions react to meds in different ways with different reactions. The script might work great for one person, but doesn't do crap for another. So when it works for someone ,, they so get ll smug or their ego is inflared some more. Well, enough abour my stories, I hope everything is succesfull for you and you feel better soon. HEY , we need someone to to go one on one with Rosie's sense of humor!!!! lOVE, dEBBIE wrote: My mother's had health problems off & on all her life.She even had a gp tell her it was all in her head whenshe was in the hospital. He prescribed tranquilizerfor her (this was back in the 60's) & when they camearound to give it to her she refused it. I think shewas in there for her ulcer & she also had gall bladdertrouble. When he came in & saw she was better the nextday he got all smug about "that pill last night didyou some good" & she told him she refused it & whatshe really needed was a good nights rest. Wish itwould be as simple as that for us. I'm not exactlysure about a flare. I had the hydro & the shunt andthen this slow downhill slide. But just like on a sledit sped up on me!grannylunatic@...__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Debbie I could never match Rose! She's too creative in her insanity mine just flows out my butt without thought. lol What I was really trying to say is I feel like a real whiny ass when most are feeling so bad & I complain. I do apologize. OK Rose, what's my punishment? Your red beans & me in a locked closet alone with myself? No Beano, of course. I tried to download the smilies but they won't go on the old mac so here's my version. :^) That's all I could see on AOL on the older mac. Night all & sweet painfree dreams! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Debbie I could never match Rose! She's too creative in her insanity mine just flows out my butt without thought. lol What I was really trying to say is I feel like a real whiny ass when most are feeling so bad & I complain. I do apologize. OK Rose, what's my punishment? Your red beans & me in a locked closet alone with myself? No Beano, of course. I tried to download the smilies but they won't go on the old mac so here's my version. :^) That's all I could see on AOL on the older mac. Night all & sweet painfree dreams! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Debbie I could never match Rose! She's too creative in her insanity mine just flows out my butt without thought. lol What I was really trying to say is I feel like a real whiny ass when most are feeling so bad & I complain. I do apologize. OK Rose, what's my punishment? Your red beans & me in a locked closet alone with myself? No Beano, of course. I tried to download the smilies but they won't go on the old mac so here's my version. :^) That's all I could see on AOL on the older mac. Night all & sweet painfree dreams! grannylunatic@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Thersa, I know exactly how you felt. The rug was pulled right out from under you, right? Well, I was told by my therapis that I getting the big lump of money form the Backpay of SS but at the time , I was shocked that I had to pay most of it back to my long term back pack pay. That left me with $1000.after aboout 2 1/2 years out of waiting for it. Then I was caught up in a "tizzy fit" wondering what happens if the cars break down, of sometime happens in the hosue (expensive repairs), and also two sons going off tho college this year. ANyway , it did effect my health. My sarcodosis flared .. My asthama kicked in, had to take my neulizer, my acid relux bothered me, My tremors kicked in and the awful chronic headaces came back. Headaches too. with the muscle stiffness and joint pain. SO don't feel alone right now. A lot of us here has to go thru all thiis extra work and paper work. I am just glad I tried to keep everything organized since I got sick. It made a mess but helped with all the piles for SS, utility bills, Kids Stuff, etc. So hang in ther. Debbievans wrote: , is this the first time you've had symptoms like this? Did you lose consciousness or have any vomiting/incontinence? And, most important, did you call one of your doctors? Several things are running through my mind--a drug reaction or interaction, hypoxia (low oxygen levels) causing confusion & tremors, some type of seizures, even infection (sometimes sepsis can actually produce a drop in temperature). Does any of this sound likely or possible? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "NS Group" <Neurosarcoidosis >Subject: Definatey SickDate: Sat, 25 Feb 2006 17:45:15 -0600 (Central Standard Time) Hi friends, Wanted to write to let you know, that something is definitely happening here. I started with these jerks bad yesterday in different parts of my body.. but last night I woke up in the floor..jerking really bad and I mean bad, yelling for my mom, which lives 3 doors away, and for my son... that was asleep in the next room, I don't remember how I got there if I had fallen or just sat down in the floor... When I woke up I was trying to find a piece of my C-pap machine...Jerking so much my arms and shoulders where hurting...Damian came in and asked me "Moma, what are doing in the floor, and took by the hand and got me up... he was teenager mad at me, or disgusted because I was in the floor.. it wasn't exactly the place I wanted to be either. if you guys know what I mean.... he put me back to bed got my C-Pap machine back together, and I went back to sleep, it was 7:30am but I had been there for ...HOURS.... working on that damn machine.. I had electrical wires every where......When I awoken again at 10:00am I woke up my eyes where like awake like scared. and the jerking and tremors are much much worse. I get up, dressed ok, and I asked Damian to take me to my mom's house. he does do that, my little little sister is there, they try to avoid eye contact with me, but I finally blurted out "I'm sick" which evidently they couldn't tell because they hadn't looked at me.. My little niece was there she is only 4 months old. and I wanted to hold her so bad.. finally said well ok, only if you sit way back in the chair.. So I did get to hold her a bit. after my mental confusion got some better.. My temp which is normally 99.6 or above, has suddenly taken a dive to 99.6 which I find odd if I'm finding a flare... I'm pretty scared at the moment, as I did find add Klonopin I took it and did calm down for about 5 hours later, and now I find myself heading for a worse night as the symptoms are getting worse already tonight. Tracie, Darlene, Rosie.. I'd like to hear your thoughts... if you have any.. T ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Thersa, I know exactly how you felt. The rug was pulled right out from under you, right? Well, I was told by my therapis that I getting the big lump of money form the Backpay of SS but at the time , I was shocked that I had to pay most of it back to my long term back pack pay. That left me with $1000.after aboout 2 1/2 years out of waiting for it. Then I was caught up in a "tizzy fit" wondering what happens if the cars break down, of sometime happens in the hosue (expensive repairs), and also two sons going off tho college this year. ANyway , it did effect my health. My sarcodosis flared .. My asthama kicked in, had to take my neulizer, my acid relux bothered me, My tremors kicked in and the awful chronic headaces came back. Headaches too. with the muscle stiffness and joint pain. SO don't feel alone right now. A lot of us here has to go thru all thiis extra work and paper work. I am just glad I tried to keep everything organized since I got sick. It made a mess but helped with all the piles for SS, utility bills, Kids Stuff, etc. So hang in ther. Debbievans wrote: , is this the first time you've had symptoms like this? Did you lose consciousness or have any vomiting/incontinence? And, most important, did you call one of your doctors? Several things are running through my mind--a drug reaction or interaction, hypoxia (low oxygen levels) causing confusion & tremors, some type of seizures, even infection (sometimes sepsis can actually produce a drop in temperature). Does any of this sound likely or possible? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "NS Group" <Neurosarcoidosis >Subject: Definatey SickDate: Sat, 25 Feb 2006 17:45:15 -0600 (Central Standard Time) Hi friends, Wanted to write to let you know, that something is definitely happening here. I started with these jerks bad yesterday in different parts of my body.. but last night I woke up in the floor..jerking really bad and I mean bad, yelling for my mom, which lives 3 doors away, and for my son... that was asleep in the next room, I don't remember how I got there if I had fallen or just sat down in the floor... When I woke up I was trying to find a piece of my C-pap machine...Jerking so much my arms and shoulders where hurting...Damian came in and asked me "Moma, what are doing in the floor, and took by the hand and got me up... he was teenager mad at me, or disgusted because I was in the floor.. it wasn't exactly the place I wanted to be either. if you guys know what I mean.... he put me back to bed got my C-Pap machine back together, and I went back to sleep, it was 7:30am but I had been there for ...HOURS.... working on that damn machine.. I had electrical wires every where......When I awoken again at 10:00am I woke up my eyes where like awake like scared. and the jerking and tremors are much much worse. I get up, dressed ok, and I asked Damian to take me to my mom's house. he does do that, my little little sister is there, they try to avoid eye contact with me, but I finally blurted out "I'm sick" which evidently they couldn't tell because they hadn't looked at me.. My little niece was there she is only 4 months old. and I wanted to hold her so bad.. finally said well ok, only if you sit way back in the chair.. So I did get to hold her a bit. after my mental confusion got some better.. My temp which is normally 99.6 or above, has suddenly taken a dive to 99.6 which I find odd if I'm finding a flare... I'm pretty scared at the moment, as I did find add Klonopin I took it and did calm down for about 5 hours later, and now I find myself heading for a worse night as the symptoms are getting worse already tonight. Tracie, Darlene, Rosie.. I'd like to hear your thoughts... if you have any.. T ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Thersa, I know exactly how you felt. The rug was pulled right out from under you, right? Well, I was told by my therapis that I getting the big lump of money form the Backpay of SS but at the time , I was shocked that I had to pay most of it back to my long term back pack pay. That left me with $1000.after aboout 2 1/2 years out of waiting for it. Then I was caught up in a "tizzy fit" wondering what happens if the cars break down, of sometime happens in the hosue (expensive repairs), and also two sons going off tho college this year. ANyway , it did effect my health. My sarcodosis flared .. My asthama kicked in, had to take my neulizer, my acid relux bothered me, My tremors kicked in and the awful chronic headaces came back. Headaches too. with the muscle stiffness and joint pain. SO don't feel alone right now. A lot of us here has to go thru all thiis extra work and paper work. I am just glad I tried to keep everything organized since I got sick. It made a mess but helped with all the piles for SS, utility bills, Kids Stuff, etc. So hang in ther. Debbievans wrote: , is this the first time you've had symptoms like this? Did you lose consciousness or have any vomiting/incontinence? And, most important, did you call one of your doctors? Several things are running through my mind--a drug reaction or interaction, hypoxia (low oxygen levels) causing confusion & tremors, some type of seizures, even infection (sometimes sepsis can actually produce a drop in temperature). Does any of this sound likely or possible? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: "NS Group" <Neurosarcoidosis >Subject: Definatey SickDate: Sat, 25 Feb 2006 17:45:15 -0600 (Central Standard Time) Hi friends, Wanted to write to let you know, that something is definitely happening here. I started with these jerks bad yesterday in different parts of my body.. but last night I woke up in the floor..jerking really bad and I mean bad, yelling for my mom, which lives 3 doors away, and for my son... that was asleep in the next room, I don't remember how I got there if I had fallen or just sat down in the floor... When I woke up I was trying to find a piece of my C-pap machine...Jerking so much my arms and shoulders where hurting...Damian came in and asked me "Moma, what are doing in the floor, and took by the hand and got me up... he was teenager mad at me, or disgusted because I was in the floor.. it wasn't exactly the place I wanted to be either. if you guys know what I mean.... he put me back to bed got my C-Pap machine back together, and I went back to sleep, it was 7:30am but I had been there for ...HOURS.... working on that damn machine.. I had electrical wires every where......When I awoken again at 10:00am I woke up my eyes where like awake like scared. and the jerking and tremors are much much worse. I get up, dressed ok, and I asked Damian to take me to my mom's house. he does do that, my little little sister is there, they try to avoid eye contact with me, but I finally blurted out "I'm sick" which evidently they couldn't tell because they hadn't looked at me.. My little niece was there she is only 4 months old. and I wanted to hold her so bad.. finally said well ok, only if you sit way back in the chair.. So I did get to hold her a bit. after my mental confusion got some better.. My temp which is normally 99.6 or above, has suddenly taken a dive to 99.6 which I find odd if I'm finding a flare... I'm pretty scared at the moment, as I did find add Klonopin I took it and did calm down for about 5 hours later, and now I find myself heading for a worse night as the symptoms are getting worse already tonight. Tracie, Darlene, Rosie.. I'd like to hear your thoughts... if you have any.. T ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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