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Re: Re: ADEKS/ELLEN

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Ogretta:

The CF group sells ADEKs at about half the price they sell it on a

non-prescription basis. It is the cheapest way you can get it.

Regards.

Joe Frost, old gentleman, not old fart

San , TX, 60 years old

Dr. Welker

340 starting weight, currently 260

http://www.duodenalswitch.com/Patients/Joe/joe.html

Re: ADEKS/ELLEN

> -hi all, still curious about sending the adeks perscription to cystic

> fibrosis--can anyone share the reason for this..just

> wondering,,thanks take good care

> ogretta

> pre-op & ready

> may 11 , 2001

> dr inabnet

>

>

>

> -- In duodenalswitch@y..., ruisha@a... wrote:

> >

> > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y... writes:

> >

> > << Hi everyone. A question about Adeks. I got my presription and

> need the

> > phone

> > # or address to send it in the Cystic Fibrosis. I would appreciate

> anyones

> > help. I don't have a fax so I will probably have to mail it.

> Thanks

> > Ellen(Pam)

> > >>

> >

> > Ellen: If you have their 800 number (800)541-4959, they can

> provide a fax

> > number for the surgeon's office to use... That's how I did it. I

> registered

> > on the phone and they gave me the fax number for Ivonne (Dr.

> Gagner's nurse)

> > to send the prescription to.

> >

> > Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy

> Services,

> > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might

> help to

> > call (you may have to leave a message initially since they don't

> seem to have

> > live operators) to get a person's name as a contact to check up on

> the script

> > arrival, etc?

> >

> > I think last time I called they said they have a website, too where

> you can

> > re-order (the initial order must be placed the 'old fashioned way',

> I guess).

> >

> > You can always have the Mt. Sinai office fax the script over, too!

> >

> > All the best,

> >

> > laparoscopic BPD/DS with gallbladder removal

> > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > January 25, 2001

> > 75 days post-op and still feelin' fab! :)

>

>

> ----------------------------------------------------------------------

>

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Ogretta:

The CF group sells ADEKs at about half the price they sell it on a

non-prescription basis. It is the cheapest way you can get it.

Regards.

Joe Frost, old gentleman, not old fart

San , TX, 60 years old

Dr. Welker

340 starting weight, currently 260

http://www.duodenalswitch.com/Patients/Joe/joe.html

Re: ADEKS/ELLEN

> -hi all, still curious about sending the adeks perscription to cystic

> fibrosis--can anyone share the reason for this..just

> wondering,,thanks take good care

> ogretta

> pre-op & ready

> may 11 , 2001

> dr inabnet

>

>

>

> -- In duodenalswitch@y..., ruisha@a... wrote:

> >

> > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y... writes:

> >

> > << Hi everyone. A question about Adeks. I got my presription and

> need the

> > phone

> > # or address to send it in the Cystic Fibrosis. I would appreciate

> anyones

> > help. I don't have a fax so I will probably have to mail it.

> Thanks

> > Ellen(Pam)

> > >>

> >

> > Ellen: If you have their 800 number (800)541-4959, they can

> provide a fax

> > number for the surgeon's office to use... That's how I did it. I

> registered

> > on the phone and they gave me the fax number for Ivonne (Dr.

> Gagner's nurse)

> > to send the prescription to.

> >

> > Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy

> Services,

> > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might

> help to

> > call (you may have to leave a message initially since they don't

> seem to have

> > live operators) to get a person's name as a contact to check up on

> the script

> > arrival, etc?

> >

> > I think last time I called they said they have a website, too where

> you can

> > re-order (the initial order must be placed the 'old fashioned way',

> I guess).

> >

> > You can always have the Mt. Sinai office fax the script over, too!

> >

> > All the best,

> >

> > laparoscopic BPD/DS with gallbladder removal

> > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > January 25, 2001

> > 75 days post-op and still feelin' fab! :)

>

>

> ----------------------------------------------------------------------

>

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Guest guest

Ogretta:

The CF group sells ADEKs at about half the price they sell it on a

non-prescription basis. It is the cheapest way you can get it.

Regards.

Joe Frost, old gentleman, not old fart

San , TX, 60 years old

Dr. Welker

340 starting weight, currently 260

http://www.duodenalswitch.com/Patients/Joe/joe.html

Re: ADEKS/ELLEN

> -hi all, still curious about sending the adeks perscription to cystic

> fibrosis--can anyone share the reason for this..just

> wondering,,thanks take good care

> ogretta

> pre-op & ready

> may 11 , 2001

> dr inabnet

>

>

>

> -- In duodenalswitch@y..., ruisha@a... wrote:

> >

> > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y... writes:

> >

> > << Hi everyone. A question about Adeks. I got my presription and

> need the

> > phone

> > # or address to send it in the Cystic Fibrosis. I would appreciate

> anyones

> > help. I don't have a fax so I will probably have to mail it.

> Thanks

> > Ellen(Pam)

> > >>

> >

> > Ellen: If you have their 800 number (800)541-4959, they can

> provide a fax

> > number for the surgeon's office to use... That's how I did it. I

> registered

> > on the phone and they gave me the fax number for Ivonne (Dr.

> Gagner's nurse)

> > to send the prescription to.

> >

> > Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy

> Services,

> > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might

> help to

> > call (you may have to leave a message initially since they don't

> seem to have

> > live operators) to get a person's name as a contact to check up on

> the script

> > arrival, etc?

> >

> > I think last time I called they said they have a website, too where

> you can

> > re-order (the initial order must be placed the 'old fashioned way',

> I guess).

> >

> > You can always have the Mt. Sinai office fax the script over, too!

> >

> > All the best,

> >

> > laparoscopic BPD/DS with gallbladder removal

> > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > January 25, 2001

> > 75 days post-op and still feelin' fab! :)

>

>

> ----------------------------------------------------------------------

>

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Share on other sites

Guest guest

In Cystic Fibrosis (CF) clogging of pancreatic ducts leads to an enzyme

deficiency in the intestines. Without these enzymes, humans cannot

efficiently digest fats and proteins. The fats and proteins pass straight

through the digestive system and produce greasy, smelly bowel movements. Far

worse, the resulting malnutrition used to cause people with Cystic Fibrosis

to die in childhood.

So CF people like DS post ops can't absorb fat soluble vitamins. Thus the

CF source provides the water soluble version of these. They are what people

with CF also take.

in Seattle

----- Original Message -----

> -hi all, still curious about sending the adeks perscription to cystic

> fibrosis--can anyone share the reason for this..just

> wondering,,thanks take good care

> ogretta

> pre-op & ready

> may 11 , 2001

> dr inabnet

>

>

>

> -- In duodenalswitch@y..., ruisha@a... wrote:

> >

> > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y... writes:

> >

> > << Hi everyone. A question about Adeks. I got my presription and

> need the

> > phone

> > # or address to send it in the Cystic Fibrosis. I would appreciate

> anyones

> > help. I don't have a fax so I will probably have to mail it.

> Thanks

> > Ellen(Pam)

> > >>

> >

> > Ellen: If you have their 800 number (800)541-4959, they can

> provide a fax

> > number for the surgeon's office to use... That's how I did it. I

> registered

> > on the phone and they gave me the fax number for Ivonne (Dr.

> Gagner's nurse)

> > to send the prescription to.

> >

> > Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy

> Services,

> > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might

> help to

> > call (you may have to leave a message initially since they don't

> seem to have

> > live operators) to get a person's name as a contact to check up on

> the script

> > arrival, etc?

> >

> > I think last time I called they said they have a website, too where

> you can

> > re-order (the initial order must be placed the 'old fashioned way',

> I guess).

> >

> > You can always have the Mt. Sinai office fax the script over, too!

> >

> > All the best,

> >

> > laparoscopic BPD/DS with gallbladder removal

> > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > January 25, 2001

> > 75 days post-op and still feelin' fab! :)

>

>

> ----------------------------------------------------------------------

>

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Share on other sites

Guest guest

In Cystic Fibrosis (CF) clogging of pancreatic ducts leads to an enzyme

deficiency in the intestines. Without these enzymes, humans cannot

efficiently digest fats and proteins. The fats and proteins pass straight

through the digestive system and produce greasy, smelly bowel movements. Far

worse, the resulting malnutrition used to cause people with Cystic Fibrosis

to die in childhood.

So CF people like DS post ops can't absorb fat soluble vitamins. Thus the

CF source provides the water soluble version of these. They are what people

with CF also take.

in Seattle

----- Original Message -----

> -hi all, still curious about sending the adeks perscription to cystic

> fibrosis--can anyone share the reason for this..just

> wondering,,thanks take good care

> ogretta

> pre-op & ready

> may 11 , 2001

> dr inabnet

>

>

>

> -- In duodenalswitch@y..., ruisha@a... wrote:

> >

> > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y... writes:

> >

> > << Hi everyone. A question about Adeks. I got my presription and

> need the

> > phone

> > # or address to send it in the Cystic Fibrosis. I would appreciate

> anyones

> > help. I don't have a fax so I will probably have to mail it.

> Thanks

> > Ellen(Pam)

> > >>

> >

> > Ellen: If you have their 800 number (800)541-4959, they can

> provide a fax

> > number for the surgeon's office to use... That's how I did it. I

> registered

> > on the phone and they gave me the fax number for Ivonne (Dr.

> Gagner's nurse)

> > to send the prescription to.

> >

> > Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy

> Services,

> > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might

> help to

> > call (you may have to leave a message initially since they don't

> seem to have

> > live operators) to get a person's name as a contact to check up on

> the script

> > arrival, etc?

> >

> > I think last time I called they said they have a website, too where

> you can

> > re-order (the initial order must be placed the 'old fashioned way',

> I guess).

> >

> > You can always have the Mt. Sinai office fax the script over, too!

> >

> > All the best,

> >

> > laparoscopic BPD/DS with gallbladder removal

> > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > January 25, 2001

> > 75 days post-op and still feelin' fab! :)

>

>

> ----------------------------------------------------------------------

>

Link to comment
Share on other sites

Guest guest

In Cystic Fibrosis (CF) clogging of pancreatic ducts leads to an enzyme

deficiency in the intestines. Without these enzymes, humans cannot

efficiently digest fats and proteins. The fats and proteins pass straight

through the digestive system and produce greasy, smelly bowel movements. Far

worse, the resulting malnutrition used to cause people with Cystic Fibrosis

to die in childhood.

So CF people like DS post ops can't absorb fat soluble vitamins. Thus the

CF source provides the water soluble version of these. They are what people

with CF also take.

in Seattle

----- Original Message -----

> -hi all, still curious about sending the adeks perscription to cystic

> fibrosis--can anyone share the reason for this..just

> wondering,,thanks take good care

> ogretta

> pre-op & ready

> may 11 , 2001

> dr inabnet

>

>

>

> -- In duodenalswitch@y..., ruisha@a... wrote:

> >

> > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y... writes:

> >

> > << Hi everyone. A question about Adeks. I got my presription and

> need the

> > phone

> > # or address to send it in the Cystic Fibrosis. I would appreciate

> anyones

> > help. I don't have a fax so I will probably have to mail it.

> Thanks

> > Ellen(Pam)

> > >>

> >

> > Ellen: If you have their 800 number (800)541-4959, they can

> provide a fax

> > number for the surgeon's office to use... That's how I did it. I

> registered

> > on the phone and they gave me the fax number for Ivonne (Dr.

> Gagner's nurse)

> > to send the prescription to.

> >

> > Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy

> Services,

> > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might

> help to

> > call (you may have to leave a message initially since they don't

> seem to have

> > live operators) to get a person's name as a contact to check up on

> the script

> > arrival, etc?

> >

> > I think last time I called they said they have a website, too where

> you can

> > re-order (the initial order must be placed the 'old fashioned way',

> I guess).

> >

> > You can always have the Mt. Sinai office fax the script over, too!

> >

> > All the best,

> >

> > laparoscopic BPD/DS with gallbladder removal

> > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > January 25, 2001

> > 75 days post-op and still feelin' fab! :)

>

>

> ----------------------------------------------------------------------

>

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Guest guest

om55@... wrote:

-hi all, still curious about sending the adeks perscription

to cystic

fibrosis--can anyone share the reason for this..just

wondering,,thanks take good care

ogretta

pre-op & ready

may 11 , 2001

dr inabnet

$13.00 a bottle and free shipping for orders over $25 bucks.

A pretty good deal if you ask me.

Thats how I get mine.

--

Best Regards,

Rich

"One good thing about music, when it hits you feel no pain"

BM

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Guest guest

om55@... wrote:

-hi all, still curious about sending the adeks perscription

to cystic

fibrosis--can anyone share the reason for this..just

wondering,,thanks take good care

ogretta

pre-op & ready

may 11 , 2001

dr inabnet

$13.00 a bottle and free shipping for orders over $25 bucks.

A pretty good deal if you ask me.

Thats how I get mine.

--

Best Regards,

Rich

"One good thing about music, when it hits you feel no pain"

BM

Link to comment
Share on other sites

Guest guest

om55@... wrote:

-hi all, still curious about sending the adeks perscription

to cystic

fibrosis--can anyone share the reason for this..just

wondering,,thanks take good care

ogretta

pre-op & ready

may 11 , 2001

dr inabnet

$13.00 a bottle and free shipping for orders over $25 bucks.

A pretty good deal if you ask me.

Thats how I get mine.

--

Best Regards,

Rich

"One good thing about music, when it hits you feel no pain"

BM

Link to comment
Share on other sites

Guest guest

In a message dated 4/8/01 4:11:32 AM, duodenalswitch writes:

<<

-hi all, still curious about sending the adeks perscription to cystic

fibrosis--can anyone share the reason for this..just

wondering,,thanks take good care

>>

Ogretta: Awhile back someone at the Mt Sinai DS support meeting mentioned

that he investigated the ADEKS sold through Cystic Fibrosis Foundation (CFF).

They are 13/bottle (normally quite a bit more expensive, even directly from

Scandipharm or at wholesale places like Costco). He said that he asked

whether he had to have CF and the customer service rep said 'no'.

I also inquired about this and informed them I had a surgery which resulted

in malapsorption and required ADEKs, but I don't have CF. They said that

wasn't a problem. I just needed a prescription from my doctor.

So, this is an option for people who may want to get the ADEks at a lower

cost. Most insurances don't cover vitamin supplementation (mine Oxford,

doesn't cover any of it - even the iron!), so it is usually at out of pocket

expense. Perhaps you or others are fortunate enough to not have to deal with

this and only have a co-pay. In that case, I don't think it really would

matter if you got them locally, etc. or through CFF.

all the best,

laparoscopic BPD/DS with gallbladder removal

Dr. Gagner/Dr Quinn assisting/Mt. Sinai/NYC

January 25, 2001

75 days post-op and still feelin fab! :)

pre-op: 307 lbs/45 bmi (5'9 " )

now: 269 (dropped the .05! LOL)/bmi 40

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