Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 I've been reading about LDN with much interest. Since it's listed as helping people with CFS, fibromyalgia, and gut troubles, it sounds like it could be singing my song. I have a few qualms because there has never yet in my life ever been a medicine that I adjusted to side effects. If I have them the first day, I have them, same amount, a year later. But perhaps this could be different or maybe with SCD after awhile things might be different. I have enough sleep problems without adding more forever. But I'm still interested. My main question is this: those of you who use LDN, at what point is it reasonable to try it? Seems to me right at first maybe isn't, but hey, I don't know. If not, wait six months or what? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 I've been reading about LDN with much interest. Since it's listed as helping people with CFS, fibromyalgia, and gut troubles, it sounds like it could be singing my song. I have a few qualms because there has never yet in my life ever been a medicine that I adjusted to side effects. If I have them the first day, I have them, same amount, a year later. But perhaps this could be different or maybe with SCD after awhile things might be different. I have enough sleep problems without adding more forever. But I'm still interested. My main question is this: those of you who use LDN, at what point is it reasonable to try it? Seems to me right at first maybe isn't, but hey, I don't know. If not, wait six months or what? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 I've been reading about LDN with much interest. Since it's listed as helping people with CFS, fibromyalgia, and gut troubles, it sounds like it could be singing my song. I have a few qualms because there has never yet in my life ever been a medicine that I adjusted to side effects. If I have them the first day, I have them, same amount, a year later. But perhaps this could be different or maybe with SCD after awhile things might be different. I have enough sleep problems without adding more forever. But I'm still interested. My main question is this: those of you who use LDN, at what point is it reasonable to try it? Seems to me right at first maybe isn't, but hey, I don't know. If not, wait six months or what? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi , Why wait to try LDN? I have found the side effects to be minimal. As I stated in a previous post, I would get a slight headache in the mornings for the first 2 weeks after starting LDN. But not every day. They were not even bad enough to take any pain medication and would fade away during the morning. I started out with 1.5 mg for a week and then upped it to 2 mg and then finally 3 mg at the 3rd week. I am using the LDN cream from www.CoastalCompounding.com The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more. I only weigh 95 pounds, so I take a lower dose. To figure dosage: your weight in pounds x .03 = mg’s I generally avoid pharmaceuticals but I do like this drug! I feel better! People with bowel disease do not produce much endorphins. So to find this drug that helps the body to produce endorphins and (somehow) aid in healing was a godsend for me. I’ll trade that for a sleep disturbance any day! And as I stated in a previous post, the sleep I do experience on LDN is deep and refreshing, even though dreams are vivid. Carol CD 21 yrs SCD 4.5 yrs B12 shots & LDN cream From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches I've been reading about LDN with much interest. Since it's listed as helping people with CFS, fibromyalgia, and gut troubles, it sounds like it could be singing my song. I have a few qualms because there has never yet in my life ever been a medicine that I adjusted to side effects. If I have them the first day, I have them, same amount, a year later. But perhaps this could be different or maybe with SCD after awhile things might be different. I have enough sleep problems without adding more forever. But I'm still interested. My main question is this: those of you who use LDN, at what point is it reasonable to try it? Seems to me right at first maybe isn't, but hey, I don't know. If not, wait six months or what? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi , Why wait to try LDN? I have found the side effects to be minimal. As I stated in a previous post, I would get a slight headache in the mornings for the first 2 weeks after starting LDN. But not every day. They were not even bad enough to take any pain medication and would fade away during the morning. I started out with 1.5 mg for a week and then upped it to 2 mg and then finally 3 mg at the 3rd week. I am using the LDN cream from www.CoastalCompounding.com The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more. I only weigh 95 pounds, so I take a lower dose. To figure dosage: your weight in pounds x .03 = mg’s I generally avoid pharmaceuticals but I do like this drug! I feel better! People with bowel disease do not produce much endorphins. So to find this drug that helps the body to produce endorphins and (somehow) aid in healing was a godsend for me. I’ll trade that for a sleep disturbance any day! And as I stated in a previous post, the sleep I do experience on LDN is deep and refreshing, even though dreams are vivid. Carol CD 21 yrs SCD 4.5 yrs B12 shots & LDN cream From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches I've been reading about LDN with much interest. Since it's listed as helping people with CFS, fibromyalgia, and gut troubles, it sounds like it could be singing my song. I have a few qualms because there has never yet in my life ever been a medicine that I adjusted to side effects. If I have them the first day, I have them, same amount, a year later. But perhaps this could be different or maybe with SCD after awhile things might be different. I have enough sleep problems without adding more forever. But I'm still interested. My main question is this: those of you who use LDN, at what point is it reasonable to try it? Seems to me right at first maybe isn't, but hey, I don't know. If not, wait six months or what? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi , Why wait to try LDN? I have found the side effects to be minimal. As I stated in a previous post, I would get a slight headache in the mornings for the first 2 weeks after starting LDN. But not every day. They were not even bad enough to take any pain medication and would fade away during the morning. I started out with 1.5 mg for a week and then upped it to 2 mg and then finally 3 mg at the 3rd week. I am using the LDN cream from www.CoastalCompounding.com The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more. I only weigh 95 pounds, so I take a lower dose. To figure dosage: your weight in pounds x .03 = mg’s I generally avoid pharmaceuticals but I do like this drug! I feel better! People with bowel disease do not produce much endorphins. So to find this drug that helps the body to produce endorphins and (somehow) aid in healing was a godsend for me. I’ll trade that for a sleep disturbance any day! And as I stated in a previous post, the sleep I do experience on LDN is deep and refreshing, even though dreams are vivid. Carol CD 21 yrs SCD 4.5 yrs B12 shots & LDN cream From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches I've been reading about LDN with much interest. Since it's listed as helping people with CFS, fibromyalgia, and gut troubles, it sounds like it could be singing my song. I have a few qualms because there has never yet in my life ever been a medicine that I adjusted to side effects. If I have them the first day, I have them, same amount, a year later. But perhaps this could be different or maybe with SCD after awhile things might be different. I have enough sleep problems without adding more forever. But I'm still interested. My main question is this: those of you who use LDN, at what point is it reasonable to try it? Seems to me right at first maybe isn't, but hey, I don't know. If not, wait six months or what? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi , Why wait to try LDN? I have found the side effects to be minimal. I found the initial side effects were totally positive - for a few weeks, I would getnightly bursts of an endorphin high, like a blissed out runners high. Unfortunately,wah!, that stopped after a while. As I stated in a previous post, I would get a slight headache in the mornings for the first 2 weeks after starting LDN. But not every day. They were not even bad enough to take any pain medication and would fade away during the morning. I started out with 1.5 mg for a week and then upped it to 2 mg and then finally 3 mg at the 3rd week. I am using the LDN cream from www.CoastalCompounding.com The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more.No, that's incorrect. It's for people who weigh 105 and more. 100-105 is discretionaryand can go either way depending on how you react to the medicine. But I agree that if you are very sensitive to medicine to start with a very lowdose. I only weigh 95 pounds, so I take a lower dose. To figure dosage: your weight in pounds x .03 = mg’sI generally avoid pharmaceuticals but I do like this drug! I feel better! People with bowel disease do not produce much endorphins. So to find this drug that helps the body to produce endorphins and (somehow) aid in healing was a godsend for me. I’ll trade that for a sleep disturbance any day! And as I stated in a previous post, the sleep I do experience on LDN is deep and refreshing, even though dreams are vivid.I know someone else who is on it for Parkinsons and she is convinced it's like a sleepingpill - no vivid dreaming and she sleeps much better on it. So, everyone is unique. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi , Why wait to try LDN? I have found the side effects to be minimal. I found the initial side effects were totally positive - for a few weeks, I would getnightly bursts of an endorphin high, like a blissed out runners high. Unfortunately,wah!, that stopped after a while. As I stated in a previous post, I would get a slight headache in the mornings for the first 2 weeks after starting LDN. But not every day. They were not even bad enough to take any pain medication and would fade away during the morning. I started out with 1.5 mg for a week and then upped it to 2 mg and then finally 3 mg at the 3rd week. I am using the LDN cream from www.CoastalCompounding.com The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more.No, that's incorrect. It's for people who weigh 105 and more. 100-105 is discretionaryand can go either way depending on how you react to the medicine. But I agree that if you are very sensitive to medicine to start with a very lowdose. I only weigh 95 pounds, so I take a lower dose. To figure dosage: your weight in pounds x .03 = mg’sI generally avoid pharmaceuticals but I do like this drug! I feel better! People with bowel disease do not produce much endorphins. So to find this drug that helps the body to produce endorphins and (somehow) aid in healing was a godsend for me. I’ll trade that for a sleep disturbance any day! And as I stated in a previous post, the sleep I do experience on LDN is deep and refreshing, even though dreams are vivid.I know someone else who is on it for Parkinsons and she is convinced it's like a sleepingpill - no vivid dreaming and she sleeps much better on it. So, everyone is unique. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi , Why wait to try LDN? I have found the side effects to be minimal. I found the initial side effects were totally positive - for a few weeks, I would getnightly bursts of an endorphin high, like a blissed out runners high. Unfortunately,wah!, that stopped after a while. As I stated in a previous post, I would get a slight headache in the mornings for the first 2 weeks after starting LDN. But not every day. They were not even bad enough to take any pain medication and would fade away during the morning. I started out with 1.5 mg for a week and then upped it to 2 mg and then finally 3 mg at the 3rd week. I am using the LDN cream from www.CoastalCompounding.com The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more.No, that's incorrect. It's for people who weigh 105 and more. 100-105 is discretionaryand can go either way depending on how you react to the medicine. But I agree that if you are very sensitive to medicine to start with a very lowdose. I only weigh 95 pounds, so I take a lower dose. To figure dosage: your weight in pounds x .03 = mg’sI generally avoid pharmaceuticals but I do like this drug! I feel better! People with bowel disease do not produce much endorphins. So to find this drug that helps the body to produce endorphins and (somehow) aid in healing was a godsend for me. I’ll trade that for a sleep disturbance any day! And as I stated in a previous post, the sleep I do experience on LDN is deep and refreshing, even though dreams are vivid.I know someone else who is on it for Parkinsons and she is convinced it's like a sleepingpill - no vivid dreaming and she sleeps much better on it. So, everyone is unique. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Thank you Mara for that clarification re dosage. You are correct about everyone being different and having different responses. The hardest part for me is trying to stay awake til 9 PM to take the LDN! Carol From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more. No, that's incorrect. It's for people who weigh 105 and more. 100-105 is discretionary and can go either way depending on how you react to the medicine. But I agree that if you are very sensitive to medicine to start with a very low dose. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Thank you Mara for that clarification re dosage. You are correct about everyone being different and having different responses. The hardest part for me is trying to stay awake til 9 PM to take the LDN! Carol From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more. No, that's incorrect. It's for people who weigh 105 and more. 100-105 is discretionary and can go either way depending on how you react to the medicine. But I agree that if you are very sensitive to medicine to start with a very low dose. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Thank you Mara for that clarification re dosage. You are correct about everyone being different and having different responses. The hardest part for me is trying to stay awake til 9 PM to take the LDN! Carol From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Mara Schiffren The maximum dosage is 4.5 mg. But that is for people who weigh 150 pounds or more. No, that's incorrect. It's for people who weigh 105 and more. 100-105 is discretionary and can go either way depending on how you react to the medicine. But I agree that if you are very sensitive to medicine to start with a very low dose. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Thanks ladies. I had just wondered if there was any contraindication to taking LDN while working into SCD. It sounds like there is not, no interference or anything. Guess I'm about ready to call my doctor! Hi , Why wait to try LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Thanks ladies. I had just wondered if there was any contraindication to taking LDN while working into SCD. It sounds like there is not, no interference or anything. Guess I'm about ready to call my doctor! Hi , Why wait to try LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Thanks ladies. I had just wondered if there was any contraindication to taking LDN while working into SCD. It sounds like there is not, no interference or anything. Guess I'm about ready to call my doctor! Hi , Why wait to try LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 The opposite. For LDN to function, it specifically needs a dietlike SCD - no sugar, no gluten, no lactose. So they work great together. MaraThanks ladies. I had just wondered if there was any contraindication to taking LDN while working into SCD. It sounds like there is not, no interference or anything. Guess I'm about ready to call my doctor!Hi , Why wait to try LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 The opposite. For LDN to function, it specifically needs a dietlike SCD - no sugar, no gluten, no lactose. So they work great together. MaraThanks ladies. I had just wondered if there was any contraindication to taking LDN while working into SCD. It sounds like there is not, no interference or anything. Guess I'm about ready to call my doctor!Hi , Why wait to try LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 The opposite. For LDN to function, it specifically needs a dietlike SCD - no sugar, no gluten, no lactose. So they work great together. MaraThanks ladies. I had just wondered if there was any contraindication to taking LDN while working into SCD. It sounds like there is not, no interference or anything. Guess I'm about ready to call my doctor!Hi , Why wait to try LDN? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 I'm already on the diet. 27 years of trial and error had me legal except for rice (from the IBS diet which otherwise was good for me). That's good to know about LDN, thanks. The opposite. For LDN to function, it specifically needs a diet like SCD - no sugar, no gluten, no lactose. So they work great together. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 I'm already on the diet. 27 years of trial and error had me legal except for rice (from the IBS diet which otherwise was good for me). That's good to know about LDN, thanks. The opposite. For LDN to function, it specifically needs a diet like SCD - no sugar, no gluten, no lactose. So they work great together. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 I'm already on the diet. 27 years of trial and error had me legal except for rice (from the IBS diet which otherwise was good for me). That's good to know about LDN, thanks. The opposite. For LDN to function, it specifically needs a diet like SCD - no sugar, no gluten, no lactose. So they work great together. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 I felt good right away on LDN. It is reported to take up to 3-4 months for some people to notice a positive difference. I noticed it right away. I also had a slight headache for about the first 2 weeks of starting. They were very slight. Also would wake up once or twice a night, and be able to fall back to sleep easily. Sleep is more restful. And I have more energy. Carol CD 21 yrs SCD 5 yrs B12 shots & LDN From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of smdsmom2008 I finally got it (yay). The first two days I had a very slight headache that went away. Last night I did not sleep very well. Otherwise, I've felt fine. How long does it take before you start to notice a difference- or is it gradual? Thanks, PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 I felt good right away on LDN. It is reported to take up to 3-4 months for some people to notice a positive difference. I noticed it right away. I also had a slight headache for about the first 2 weeks of starting. They were very slight. Also would wake up once or twice a night, and be able to fall back to sleep easily. Sleep is more restful. And I have more energy. Carol CD 21 yrs SCD 5 yrs B12 shots & LDN From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of smdsmom2008 I finally got it (yay). The first two days I had a very slight headache that went away. Last night I did not sleep very well. Otherwise, I've felt fine. How long does it take before you start to notice a difference- or is it gradual? Thanks, PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 I felt good right away on LDN. It is reported to take up to 3-4 months for some people to notice a positive difference. I noticed it right away. I also had a slight headache for about the first 2 weeks of starting. They were very slight. Also would wake up once or twice a night, and be able to fall back to sleep easily. Sleep is more restful. And I have more energy. Carol CD 21 yrs SCD 5 yrs B12 shots & LDN From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of smdsmom2008 I finally got it (yay). The first two days I had a very slight headache that went away. Last night I did not sleep very well. Otherwise, I've felt fine. How long does it take before you start to notice a difference- or is it gradual? Thanks, PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 Hi Carol- Were you on any meds before you started LDN and if you were, did you just stop those and start LDN? My husband with CD has a colonoscopy scheduled in October and we have talked to his GI about starting LDN. He has said we could discuss it after we see the results of the colonoscopy and I just want to have my information straight. Thank you, Heidi To: BTVC-SCD From: cpompilo@...Date: Tue, 8 Sep 2009 12:09:26 -0500Subject: RE: LDN question I felt good right away on LDN. It is reported to take up to 3-4 months for some people to notice a positive difference. I noticed it right away. I also had a slight headache for about the first 2 weeks of starting. They were very slight. Also would wake up once or twice a night, and be able to fall back to sleep easily. Sleep is more restful. And I have more energy. Carol CD 21 yrs SCD 5 yrs B12 shots & LDN From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of smdsmom2008 I finally got it (yay). The first two days I had a very slight headache that went away. Last night I did not sleep very well. Otherwise, I've felt fine. How long does it take before you start to notice a difference- or is it gradual?Thanks,PJ Get back to school stuff for them and cashback for you. Try Bing now. Quote Link to comment Share on other sites More sharing options...
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