Re: Re: type of pain -- was Need Help on Intro Diet

[Guest guest]

Can you be more specific? Where is the pain located, does it fluctuate in intensity, does it change throughout the day? That might help us think of some options or causes for you.

Like everyone else, I have multiple sources of pain. Where it is located tells me what is causing it so I know how to correct things if that is possible. Living with chronic conditions means you can't always "fix" the pain source, but we can learn to live with it. I now know what pains to ignore as they are part of my digestive dysfunctions or my metabolism or my neuropathies and so on. I know when I need to get to the doctor or ER if the level of pain and/or its location changes dramatically.

Kim M.

SCD 5+ years

[Guest guest]

Can you be more specific? Where is the pain located, does it fluctuate in intensity, does it change throughout the day? That might help us think of some options or causes for you.

Like everyone else, I have multiple sources of pain. Where it is located tells me what is causing it so I know how to correct things if that is possible. Living with chronic conditions means you can't always "fix" the pain source, but we can learn to live with it. I now know what pains to ignore as they are part of my digestive dysfunctions or my metabolism or my neuropathies and so on. I know when I need to get to the doctor or ER if the level of pain and/or its location changes dramatically.

Kim M.

SCD 5+ years

[Guest guest]

Can you be more specific? Where is the pain located, does it fluctuate in intensity, does it change throughout the day? That might help us think of some options or causes for you.

Like everyone else, I have multiple sources of pain. Where it is located tells me what is causing it so I know how to correct things if that is possible. Living with chronic conditions means you can't always "fix" the pain source, but we can learn to live with it. I now know what pains to ignore as they are part of my digestive dysfunctions or my metabolism or my neuropathies and so on. I know when I need to get to the doctor or ER if the level of pain and/or its location changes dramatically.

Kim M.

SCD 5+ years

[Guest guest]

Hi , You sound like a good candidate for Low Dose Naltrexone

(LDN). People are using it for not only bowel diseases, but RA (rheumatoid

arthritis) and fibromyalgia, just to name a few. The main website is www.LowDoseNaltrexone.org

When arthritis first appeared in my knees I treated the

inflammation with curcumin, the main healing component of turmeric, the spice.

Some people cannot tolerate turmeric, so go slowly if you try it. I scoop the

spice turmeric into empty gelatin capsules and for inflammation I would take

2-3 per day. It helped a lot with the pain and inflammation. My knees are fine

these days.

Also, has your B12 level and Vitamin D level been tested?

Carol

CD 21 yrs SCD 4.5 yrs

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches

Kim, yes, I can tell you something about the

pain. First, I am 68 and I do have arthritis at least in my hands as

evidenced by a couple of knobby finger joints. I suspect also in my shoulder

that has no cartilege and I need a new shoulder for, WHEN I feel up to

it. I have fibromyalgia for generalized pain. Most of my pain is in

the entire spine and that's where the worst of it is, especially from the neck

to the bottom edge of the shoulders. Six people have chosen to include me

in their auto accidents in decades past which of course hasn't helped

anything. Yes, I, too, get a lot of pain with gut reactions but that has

calmed down since I dropped the rice, and after three weeks it's hard to feel

like pain would be a main die-off reaction but perhaps it is,

[Guest guest]

Hi , You sound like a good candidate for Low Dose Naltrexone

(LDN). People are using it for not only bowel diseases, but RA (rheumatoid

arthritis) and fibromyalgia, just to name a few. The main website is www.LowDoseNaltrexone.org

When arthritis first appeared in my knees I treated the

inflammation with curcumin, the main healing component of turmeric, the spice.

Some people cannot tolerate turmeric, so go slowly if you try it. I scoop the

spice turmeric into empty gelatin capsules and for inflammation I would take

2-3 per day. It helped a lot with the pain and inflammation. My knees are fine

these days.

Also, has your B12 level and Vitamin D level been tested?

Carol

CD 21 yrs SCD 4.5 yrs

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches

Kim, yes, I can tell you something about the

pain. First, I am 68 and I do have arthritis at least in my hands as

evidenced by a couple of knobby finger joints. I suspect also in my shoulder

that has no cartilege and I need a new shoulder for, WHEN I feel up to

it. I have fibromyalgia for generalized pain. Most of my pain is in

the entire spine and that's where the worst of it is, especially from the neck

to the bottom edge of the shoulders. Six people have chosen to include me

in their auto accidents in decades past which of course hasn't helped

anything. Yes, I, too, get a lot of pain with gut reactions but that has

calmed down since I dropped the rice, and after three weeks it's hard to feel

like pain would be a main die-off reaction but perhaps it is,

[Guest guest]

Hi , You sound like a good candidate for Low Dose Naltrexone

(LDN). People are using it for not only bowel diseases, but RA (rheumatoid

arthritis) and fibromyalgia, just to name a few. The main website is www.LowDoseNaltrexone.org

When arthritis first appeared in my knees I treated the

inflammation with curcumin, the main healing component of turmeric, the spice.

Some people cannot tolerate turmeric, so go slowly if you try it. I scoop the

spice turmeric into empty gelatin capsules and for inflammation I would take

2-3 per day. It helped a lot with the pain and inflammation. My knees are fine

these days.

Also, has your B12 level and Vitamin D level been tested?

Carol

CD 21 yrs SCD 4.5 yrs

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches

Kim, yes, I can tell you something about the

pain. First, I am 68 and I do have arthritis at least in my hands as

evidenced by a couple of knobby finger joints. I suspect also in my shoulder

that has no cartilege and I need a new shoulder for, WHEN I feel up to

it. I have fibromyalgia for generalized pain. Most of my pain is in

the entire spine and that's where the worst of it is, especially from the neck

to the bottom edge of the shoulders. Six people have chosen to include me

in their auto accidents in decades past which of course hasn't helped

anything. Yes, I, too, get a lot of pain with gut reactions but that has

calmed down since I dropped the rice, and after three weeks it's hard to feel

like pain would be a main die-off reaction but perhaps it is,

[Guest guest]

Hi , LDN is not specifically for pain, although users do

report pain relief. It modulates the immune system. Clinical trials are ongoing

for LDN and Crohn’s and MS. It is used for auto-immune diseases (like

bowel diseases). If you are interested in hearing about results you can join

this Yahoo Group and read about patients results here

http://health.groups.yahoo.com/group/lowdosenaltrexone/

By the way, boswellia is considered an illegal on the SCD. I

found that out recently as I was taking an herbal anti-inflammatory that

contained boswellia extract. That’s why I went with the turmeric. The

active ingredient in turmeric and ginger is curcumin. Hope this helps

Carol

CD 21 yrs SCD 4.5 yrs B12 shots & LDN

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches

Is the LDN mainly for various kinds of pain then?

,___

[Guest guest]

Hi , LDN is not specifically for pain, although users do

report pain relief. It modulates the immune system. Clinical trials are ongoing

for LDN and Crohn’s and MS. It is used for auto-immune diseases (like

bowel diseases). If you are interested in hearing about results you can join

this Yahoo Group and read about patients results here

http://health.groups.yahoo.com/group/lowdosenaltrexone/

By the way, boswellia is considered an illegal on the SCD. I

found that out recently as I was taking an herbal anti-inflammatory that

contained boswellia extract. That’s why I went with the turmeric. The

active ingredient in turmeric and ginger is curcumin. Hope this helps

Carol

CD 21 yrs SCD 4.5 yrs B12 shots & LDN

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches

Is the LDN mainly for various kinds of pain then?

,___

[Guest guest]

Hi , LDN is not specifically for pain, although users do

report pain relief. It modulates the immune system. Clinical trials are ongoing

for LDN and Crohn’s and MS. It is used for auto-immune diseases (like

bowel diseases). If you are interested in hearing about results you can join

this Yahoo Group and read about patients results here

http://health.groups.yahoo.com/group/lowdosenaltrexone/

By the way, boswellia is considered an illegal on the SCD. I

found that out recently as I was taking an herbal anti-inflammatory that

contained boswellia extract. That’s why I went with the turmeric. The

active ingredient in turmeric and ginger is curcumin. Hope this helps

Carol

CD 21 yrs SCD 4.5 yrs B12 shots & LDN

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of My-Stitches

Is the LDN mainly for various kinds of pain then?

,___

[Guest guest]

Hi everyone! I am looking for help for my sister. She has Chron's Disease. She has been having a flare for about 2 years. They thought she just had Colitis and found out that it is Chron's. She is taking Imuran and just went off of Prednisone. Since going off of the steroid, she has a fever and feels like she has the flu. Could this be due to tapering off of the Prednisone. My mom and I are really wanting her to do this diet. She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful.

Nikki

Subject: Re: type of pain -- was Need Help on Intro DietTo: BTVC-SCD Date: Thursday, August 13, 2009, 1:10 PM

My doctor prescribed the LDN for the inflamation, not the pain. It didn't work for me, but others have had great success with it. If my UC symptoms come back, I'm going to try it again. But hopefully by sticking to the diet, that won't be necessary.I agree it's tough doing the no protein thing, especially when so many other things are already off the menu. I feel a lot better just knowing what is causing the pain. One other thing you might consider is doing a elimination diet with nightshade vegetables -- tomatoes, eggplant, peppers. A lot of people have reactions to these veggies. Good luck.

[Guest guest]

Hi everyone! I am looking for help for my sister. She has Chron's Disease. She has been having a flare for about 2 years. They thought she just had Colitis and found out that it is Chron's. She is taking Imuran and just went off of Prednisone. Since going off of the steroid, she has a fever and feels like she has the flu. Could this be due to tapering off of the Prednisone. My mom and I are really wanting her to do this diet. She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful.

Nikki

Subject: Re: type of pain -- was Need Help on Intro DietTo: BTVC-SCD Date: Thursday, August 13, 2009, 1:10 PM

My doctor prescribed the LDN for the inflamation, not the pain. It didn't work for me, but others have had great success with it. If my UC symptoms come back, I'm going to try it again. But hopefully by sticking to the diet, that won't be necessary.I agree it's tough doing the no protein thing, especially when so many other things are already off the menu. I feel a lot better just knowing what is causing the pain. One other thing you might consider is doing a elimination diet with nightshade vegetables -- tomatoes, eggplant, peppers. A lot of people have reactions to these veggies. Good luck.

[Guest guest]

Hi everyone! I am looking for help for my sister. She has Chron's Disease. She has been having a flare for about 2 years. They thought she just had Colitis and found out that it is Chron's. She is taking Imuran and just went off of Prednisone. Since going off of the steroid, she has a fever and feels like she has the flu. Could this be due to tapering off of the Prednisone. My mom and I are really wanting her to do this diet. She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful.

Nikki

Subject: Re: type of pain -- was Need Help on Intro DietTo: BTVC-SCD Date: Thursday, August 13, 2009, 1:10 PM

My doctor prescribed the LDN for the inflamation, not the pain. It didn't work for me, but others have had great success with it. If my UC symptoms come back, I'm going to try it again. But hopefully by sticking to the diet, that won't be necessary.I agree it's tough doing the no protein thing, especially when so many other things are already off the menu. I feel a lot better just knowing what is causing the pain. One other thing you might consider is doing a elimination diet with nightshade vegetables -- tomatoes, eggplant, peppers. A lot of people have reactions to these veggies. Good luck.

[Guest guest]

Sounds like you're dealing with pain from multiple causes. That makes it tricky to treat. And of course pain relievers always slow down the gut, so constipation and other digestive symptoms increase. I often have to choose between the lesser of two evils -- constipation pain or back pain....

My neurologist keeps mentioning Lyrica for my neuropathic pain -- and I know it helps people with fibromyalgia. I haven't tried Lyrica yet, as I have been able to manage my neuropathies to avoid long bouts of nerve pain. But it might be something for you to look into, talk to your doctor about.

Spinal pain (I have some damage to lumbar, thoracic and cervical vertebrae) is another matter and there are days when I do end up taking ibuprofen and suffer for a few days afterwards with increased constipation. I've been through two 6-week sessions with a physical therapist who taught me several stretches and movements to help minimize the spinal pain. I find the daily stretches really help. I've also had to purchase an ergonomic chair for my workplace in addition to my home office so I could get through the day without significant pain.

Arthritis is just beginning to be an issue for me, so I haven't had to deal with much arthritic pain yet -- but I know I'll have more issues in the future. Won't be much fun, to have arthritis on top of neuropathies and spinal damage. Oh well.

These are the only suggestions I have for the moment. It helps to check in with your doctors, get some Xrays if that seems appropriate.

A few months ago one of my shoulders froze up, was quite painful, so I headed to my orthopedic surgeon, worried about my rotator cuff. The Xrays showed an impingement -- and, nothing much can be done at this point. So many of my issues are in this category of "just learning to live with the problem." But this shoulder impingement also pinches some nerves running down to my hand, so in addition to the pain and motion problems in my shoulder, and having carpal tunnel and cubital tunnel syndromes (per nerve conduction studies and EMGs), now I have to deal with a completely numb and useless hand several times a day when the nerves get pinched. Quite annoying, I must admit. But there it is.

I'd continue to ask questions and seek information. See a pain management specialist if necessary, in addition to your doctors. I cope better when I know what's going on, and do the research to understand more.

Kim M.

SCD 5+ years

[Guest guest]

Regarding Lyrica, has anyone used this drug? My neurologist gave me two boxes to try for fibromyalgia pain (which I think he believes is really depression, but I can't convince him I'm calm and not depressed, I just hurt) but when I got home and read about it on the internet I was afraid of it, it says once you take it you can't stop cold turkey. Anyone have experience with this? I'm returning to prednisone 5 mg just to be able to move around because I can't take Ibuprophen so if this med really works and isn't too dangerous I would like to try it. What do you think?

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Friday, August 14, 2009 2:16:08 PMSubject: Re: Re: type of pain -- was Need Help on Intro Diet

My neurologist keeps mentioning Lyrica for my neuropathic pain -- and I know it helps people with fibromyalgia. I haven't tried Lyrica yet, as I have been able to manage my neuropathies to avoid long bouts of nerve pain. But it might be something for you to look into, talk to your doctor about.

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[Guest guest]

Regarding Lyrica, has anyone used this drug? My neurologist gave me two boxes to try for fibromyalgia pain (which I think he believes is really depression, but I can't convince him I'm calm and not depressed, I just hurt) but when I got home and read about it on the internet I was afraid of it, it says once you take it you can't stop cold turkey. Anyone have experience with this? I'm returning to prednisone 5 mg just to be able to move around because I can't take Ibuprophen so if this med really works and isn't too dangerous I would like to try it. What do you think?

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Friday, August 14, 2009 2:16:08 PMSubject: Re: Re: type of pain -- was Need Help on Intro Diet

My neurologist keeps mentioning Lyrica for my neuropathic pain -- and I know it helps people with fibromyalgia. I haven't tried Lyrica yet, as I have been able to manage my neuropathies to avoid long bouts of nerve pain. But it might be something for you to look into, talk to your doctor about.

Recent Activity

13

New MembersVisit Your Group

Non Sibi

Sed Patriae

Support Navy Kids

And Our Country

Check out the

Y! Groups blog

Stay up to speed

on all things Groups!

Yahoo! Groups

Mental Health Zone

Mental Health

Learn More

..

[Guest guest]

Regarding Lyrica, has anyone used this drug? My neurologist gave me two boxes to try for fibromyalgia pain (which I think he believes is really depression, but I can't convince him I'm calm and not depressed, I just hurt) but when I got home and read about it on the internet I was afraid of it, it says once you take it you can't stop cold turkey. Anyone have experience with this? I'm returning to prednisone 5 mg just to be able to move around because I can't take Ibuprophen so if this med really works and isn't too dangerous I would like to try it. What do you think?

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Friday, August 14, 2009 2:16:08 PMSubject: Re: Re: type of pain -- was Need Help on Intro Diet

My neurologist keeps mentioning Lyrica for my neuropathic pain -- and I know it helps people with fibromyalgia. I haven't tried Lyrica yet, as I have been able to manage my neuropathies to avoid long bouts of nerve pain. But it might be something for you to look into, talk to your doctor about.

Recent Activity

13

New MembersVisit Your Group

Non Sibi

Sed Patriae

Support Navy Kids

And Our Country

Check out the

Y! Groups blog

Stay up to speed

on all things Groups!

Yahoo! Groups

Mental Health Zone

Mental Health

Learn More

..