Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Hi All I have has neurosarcoidosis for about 4 years although I was only dignosed just over a year ago. I know that I have it on my optic nerves and brain stem and take a multitude of drugs to supress my immune system the main one prednisolone, unfortunalty it doesnt like me and I have had possibly has every side effect reported and a whole host that haven't. My problem is im in the UK where sarcoid let alone neurosarcoid is something doctors only read about in text ! Therefore the information I have gained is very limited and I have never heard of anyone else let alone met them ! If anyone can please provide some half decent information to the disease and treatments I would be very grateful and if there is anyone else in the UK please get in touch. Thanks to you All Clair Win a BlackBerry device from O2 with Yahoo!. Enter now. Quote Link to comment Share on other sites More sharing options...
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