Re: UC question

[Guest guest]

Steroid enema's were the only thing that helped me, and fortunatly it's almost instant (over night). The thing to remember is that you need to take the medicine WITH the diet when you first start. Give the UC a kick in the butt and then keep it going with diet. When things get bad take a little medicine, and slowly you should be able to get 100% better. It take a LONG LONG time. Also, I made the mistake of taking the enema's only a few times after I was "all better" from using them. Keep it going for at least a week or 2 (20 days straight from the start to finish) don't take it for a week then stop. It's what worked for me but your son may be different. We all are. Good luck! -UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!

To: BTVC-SCD From: catrd@...Date: Tue, 8 Sep 2009 07:03:19 -0500Subject: Re: UC question

I have a 15 year old son with UC. The diet was a huge help to him. At least the doctor is talking about steroid enemas instead of pills. That seems like it wouldn't have as many side effects. Others on the list may think differently, but if he's still bleeding on Friday, I would go ahead and do the enemas to get the bleeding stopped as soon as possible. The healing can continue with the diet, but I think you need to take care of the blood. Check with the doctor, but I'd think the steroid enemas would only be a temporary thing. If he keeps improving on the diet, hopefully the doctor will come around on it. My son is on more medication then yours is taking -- he had 2 very rocky years after he was diagnosed before finding SCD, and it's difficult to know when to wean off of the meds. It's great that you found the diet so quickly.Hope this helps.CathySCD 2007On Monday, September 7, 2009, at 12:23 PM, caralycalnikmom wrote:

My 14 year old son has UC (just diagnosed on 7/31). He started the diet on August 16th, so it hasn't even been a month, but I'm pretty sure it's helping. He has been really bad about taking his medication - Asacol 800mg 3X/day and Rowasa enemas. I really do try to remind him, but he probably only "remembers" about 2/3 of the time. Anyway, he's improving despite that, so I think the diet is helping.Here's my question for those of you with UC or knowledge of it. How long on the diet or medication until all of his bleeding should stop? I know this is an individual thing, but I'd like to know what other people's experience has been. He doesn't have D anymore and he's only having 1-2 BM's a day now and the urgency is pretty much gone. But he still has B at least once a day. It is at least 50% better according to him. The GI wants him to go on steroid enemas if the bleeding doesn't stop by this Friday. I hate the thought of steroids.Should we give the diet a little longer trial before resorting to the steroids? The GI isn't thrilled that we're doing the diet to start with, but my son isn't his kid, so we're sticking with it.Thanks,LizWindows Live: Make it easier for your friends to see what you’re up to on Facebook. Find out more.

[Guest guest]

Steroid enema's were the only thing that helped me, and fortunatly it's almost instant (over night). The thing to remember is that you need to take the medicine WITH the diet when you first start. Give the UC a kick in the butt and then keep it going with diet. When things get bad take a little medicine, and slowly you should be able to get 100% better. It take a LONG LONG time. Also, I made the mistake of taking the enema's only a few times after I was "all better" from using them. Keep it going for at least a week or 2 (20 days straight from the start to finish) don't take it for a week then stop. It's what worked for me but your son may be different. We all are. Good luck! -UC - 1 yearSCD - 3.5 months 100% strict and 4 months restricted diet.Asacol - 4 pills 3 times a day - hopefully scd will help me get off these! No more Hydrocortisone or Prednisone!

To: BTVC-SCD From: catrd@...Date: Tue, 8 Sep 2009 07:03:19 -0500Subject: Re: UC question

I have a 15 year old son with UC. The diet was a huge help to him. At least the doctor is talking about steroid enemas instead of pills. That seems like it wouldn't have as many side effects. Others on the list may think differently, but if he's still bleeding on Friday, I would go ahead and do the enemas to get the bleeding stopped as soon as possible. The healing can continue with the diet, but I think you need to take care of the blood. Check with the doctor, but I'd think the steroid enemas would only be a temporary thing. If he keeps improving on the diet, hopefully the doctor will come around on it. My son is on more medication then yours is taking -- he had 2 very rocky years after he was diagnosed before finding SCD, and it's difficult to know when to wean off of the meds. It's great that you found the diet so quickly.Hope this helps.CathySCD 2007On Monday, September 7, 2009, at 12:23 PM, caralycalnikmom wrote:

My 14 year old son has UC (just diagnosed on 7/31). He started the diet on August 16th, so it hasn't even been a month, but I'm pretty sure it's helping. He has been really bad about taking his medication - Asacol 800mg 3X/day and Rowasa enemas. I really do try to remind him, but he probably only "remembers" about 2/3 of the time. Anyway, he's improving despite that, so I think the diet is helping.Here's my question for those of you with UC or knowledge of it. How long on the diet or medication until all of his bleeding should stop? I know this is an individual thing, but I'd like to know what other people's experience has been. He doesn't have D anymore and he's only having 1-2 BM's a day now and the urgency is pretty much gone. But he still has B at least once a day. It is at least 50% better according to him. The GI wants him to go on steroid enemas if the bleeding doesn't stop by this Friday. I hate the thought of steroids.Should we give the diet a little longer trial before resorting to the steroids? The GI isn't thrilled that we're doing the diet to start with, but my son isn't his kid, so we're sticking with it.Thanks,LizWindows Live: Make it easier for your friends to see what you’re up to on Facebook. Find out more.