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Hi Jodi-

I don't know what else you have already included

besides cross contamination, but of course a list

of things like- sugars, soy, starches, corn, gluten,

dairy. Basically you are wanting to know if there

are any processes involved in the production of the

food item that would introduce any of these things

even in trace amounts.

The other thing to consider would be if they are

using any ingredients that come from another source-

can they verify the purity of those ingredients as well?

Diane D.

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Hi Jodi-

I don't know what else you have already included

besides cross contamination, but of course a list

of things like- sugars, soy, starches, corn, gluten,

dairy. Basically you are wanting to know if there

are any processes involved in the production of the

food item that would introduce any of these things

even in trace amounts.

The other thing to consider would be if they are

using any ingredients that come from another source-

can they verify the purity of those ingredients as well?

Diane D.

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Hi Jodi-

I don't know what else you have already included

besides cross contamination, but of course a list

of things like- sugars, soy, starches, corn, gluten,

dairy. Basically you are wanting to know if there

are any processes involved in the production of the

food item that would introduce any of these things

even in trace amounts.

The other thing to consider would be if they are

using any ingredients that come from another source-

can they verify the purity of those ingredients as well?

Diane D.

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It's still really important to keep this going.Agreed. I don't think I'm experienced enough to deal with a lot of this, but anyone who is in charge of this feel free to delegate tasks to me. I'd be happy to help with whatever, I just don't know what to do! =) Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)No meds except for the stupid iron pill I have to take that is SO illegal

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It's still really important to keep this going.Agreed. I don't think I'm experienced enough to deal with a lot of this, but anyone who is in charge of this feel free to delegate tasks to me. I'd be happy to help with whatever, I just don't know what to do! =) Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)No meds except for the stupid iron pill I have to take that is SO illegal

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Alyssa..

I love it that you are so open hearted and helpful- it's wonderful.

I feel we need to establish this letterhead idea and what we want on it- then we

can start delegating how to go about inquiring with companies.

Are there other steps Marilyn that you think I am forgetting?

One thing you could do is to keep track of all the various questions in

different threads (If you're up for it) as sometimes it is hard referencing and

going back to the original thread. You could keep a doc or txt file.

It's a lot to ask to keep track.. so if it's too much, just bounce the task back

to me. Or maybe we could figure out a team effort to keep track- always open to

suggestions to make our lives easier.

Jodi

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Alyssa..

I love it that you are so open hearted and helpful- it's wonderful.

I feel we need to establish this letterhead idea and what we want on it- then we

can start delegating how to go about inquiring with companies.

Are there other steps Marilyn that you think I am forgetting?

One thing you could do is to keep track of all the various questions in

different threads (If you're up for it) as sometimes it is hard referencing and

going back to the original thread. You could keep a doc or txt file.

It's a lot to ask to keep track.. so if it's too much, just bounce the task back

to me. Or maybe we could figure out a team effort to keep track- always open to

suggestions to make our lives easier.

Jodi

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Alyssa..

I love it that you are so open hearted and helpful- it's wonderful.

I feel we need to establish this letterhead idea and what we want on it- then we

can start delegating how to go about inquiring with companies.

Are there other steps Marilyn that you think I am forgetting?

One thing you could do is to keep track of all the various questions in

different threads (If you're up for it) as sometimes it is hard referencing and

going back to the original thread. You could keep a doc or txt file.

It's a lot to ask to keep track.. so if it's too much, just bounce the task back

to me. Or maybe we could figure out a team effort to keep track- always open to

suggestions to make our lives easier.

Jodi

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Hey Diane D,

I think we need a recap to get this organized.

If you have good wording for any ideas you would put on a letter shoot away!!

This has to be a group effort- so we can address our concerns and update the

list.

Jodi

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Alyssa..

We can work on wording as a group and when we agree on a finalized version with

Marilyn's approval- will have some sign that it's finalized and you can

copy/paste.

How does that sound?

Jodi

> Will do. So when anyone posts a question, do you think you could go

> ahead and put it in question form? That way I can be sure I'm writing

> down exactly what needs to be asked..Starting now =)

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Alyssa..

We can work on wording as a group and when we agree on a finalized version with

Marilyn's approval- will have some sign that it's finalized and you can

copy/paste.

How does that sound?

Jodi

> Will do. So when anyone posts a question, do you think you could go

> ahead and put it in question form? That way I can be sure I'm writing

> down exactly what needs to be asked..Starting now =)

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Alyssa..

We can work on wording as a group and when we agree on a finalized version with

Marilyn's approval- will have some sign that it's finalized and you can

copy/paste.

How does that sound?

Jodi

> Will do. So when anyone posts a question, do you think you could go

> ahead and put it in question form? That way I can be sure I'm writing

> down exactly what needs to be asked..Starting now =)

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That's a good point about possible legal ramifications of an SCD

letterhead. I don't know the answer. But perhaps another

approach would be simply to have a few sentences at the beginning with a

very quick explanation of SCD (ha!) as to why we have such limited

choices?

Someone on here mentioned having a permanent SCD letterhead. What kinds of stuff would we want on that? I could design it or something. And I just looked it up on wikipedia and it said there are 'legal constraints' on items included in a letterhead. Obviously that's why we need the legal verification on an actual letterhead and not an email, but could we have a letterhead without it being all legal? Or would it just be a 'letterhead'?

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Marilyn..

Ohh ok I understand!!

I understood something different- sometimes I wonder how things get warped in my

mind?

Jodi

> I said I'd see about designing some BTVC-SCD

> stationary for us. I've been thinking about it,

> but my desktop Internet connection went down, and

> I've been working from the lap top all week. Gnuisance.

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Marilyn..

Ohh ok I understand!!

I understood something different- sometimes I wonder how things get warped in my

mind?

Jodi

> I said I'd see about designing some BTVC-SCD

> stationary for us. I've been thinking about it,

> but my desktop Internet connection went down, and

> I've been working from the lap top all week. Gnuisance.

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