Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Has anyone else experienced this? Is it possible that the SCD won't work for me? I don't know where the light at the end of this tunnel is. I just want to get to a better place and be in a place of progressive healing. I was happy there.I've been having D for the past six weeks as well, maybe longer; I can't really remember. It's a little discouraging, but the fact that my chiro sees improvement every time I go is keeping me going. I do hope it stops at some point though =) Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 chiro as in chiropracter? > > > Has anyone else experienced this? Is it possible that the SCD won't > > work for me? I don't know where the light at the end of this tunnel > > is. I just want to get to a better place and be in a place of > > progressive healing. I was happy there. > > > I've been having D for the past six weeks as well, maybe longer; I > can't really remember. It's a little discouraging, but the fact that > my chiro sees improvement every time I go is keeping me going. I do > hope it stops at some point though =) > > Peace =) > Alyssa 15 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > No meds! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 chiro as in chiropracter? > > > Has anyone else experienced this? Is it possible that the SCD won't > > work for me? I don't know where the light at the end of this tunnel > > is. I just want to get to a better place and be in a place of > > progressive healing. I was happy there. > > > I've been having D for the past six weeks as well, maybe longer; I > can't really remember. It's a little discouraging, but the fact that > my chiro sees improvement every time I go is keeping me going. I do > hope it stops at some point though =) > > Peace =) > Alyssa 15 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > No meds! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 chiro as in chiropracter? > > > Has anyone else experienced this? Is it possible that the SCD won't > > work for me? I don't know where the light at the end of this tunnel > > is. I just want to get to a better place and be in a place of > > progressive healing. I was happy there. > > > I've been having D for the past six weeks as well, maybe longer; I > can't really remember. It's a little discouraging, but the fact that > my chiro sees improvement every time I go is keeping me going. I do > hope it stops at some point though =) > > Peace =) > Alyssa 15 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > No meds! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Val It usually takes 3 months for the body to adjust to the loss of a gallbladder, so you can expect problems for a while. While your body is adjusting, you'll need to be careful with fats and fiber, so going on the intro. diet or sticking to easy-to-digest foods for several weeks will also help. You mention antibiotics. Are you getting a lot of mucuous with your D.? Have you checked that you don't have C. Difficile? You also mention pain easing when you're on the intro. diet. I don't like to be the voice of doom here, but, according to statistics, 10% to 12% of patients do not recover or get worse after their gallbladder was removed. I'm one of those, so I've done a lot of reading on post-cholecystectomy syndrome... My problem turned out to be Sphincter of Oddi dysfunction which was blocking the gallbladder from emptying normally which is why I "failed" my Hida with CCK, so had my gallbladder removed -- but that didn't solve my problem. Several gastroenterologists and lots of tests later I was diagnosed with Sphincter of Oddi dysfunction, and have since had to learn a lot more than I wanted to about the upper GI... I ended up needing a sphincterotomy to get my Sphincter of Oddi working again, and my bile ducts to empty more or less properly. I deal with abdominal pain, back pain and nausea every day, along with C., and my body has never adapted to the loss of the gallbladder. A lot of patients with Sphincter of Oddi dysfunction have D. instead of C., by the way. And a lot of patients get Sphincter of Oddi dysfunction AFTER having their gallbladders removed... It was a lot of work during my first year on SCD to figure out which permitted foods work best for my digestion. Eventually I reached good symptom management, and am doing fine as long as I stick to my "good" foods and work with my cranky upper GI, not stressing it in any way. I have to be super careful with fats, fiber and seasonings. Anyway, don't let the D. go on too long. Check in with your gastroenterologist, and seek other opinions and testing too. Kim M. SCD 5+ years >>>>>>>>>> I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Val It usually takes 3 months for the body to adjust to the loss of a gallbladder, so you can expect problems for a while. While your body is adjusting, you'll need to be careful with fats and fiber, so going on the intro. diet or sticking to easy-to-digest foods for several weeks will also help. You mention antibiotics. Are you getting a lot of mucuous with your D.? Have you checked that you don't have C. Difficile? You also mention pain easing when you're on the intro. diet. I don't like to be the voice of doom here, but, according to statistics, 10% to 12% of patients do not recover or get worse after their gallbladder was removed. I'm one of those, so I've done a lot of reading on post-cholecystectomy syndrome... My problem turned out to be Sphincter of Oddi dysfunction which was blocking the gallbladder from emptying normally which is why I "failed" my Hida with CCK, so had my gallbladder removed -- but that didn't solve my problem. Several gastroenterologists and lots of tests later I was diagnosed with Sphincter of Oddi dysfunction, and have since had to learn a lot more than I wanted to about the upper GI... I ended up needing a sphincterotomy to get my Sphincter of Oddi working again, and my bile ducts to empty more or less properly. I deal with abdominal pain, back pain and nausea every day, along with C., and my body has never adapted to the loss of the gallbladder. A lot of patients with Sphincter of Oddi dysfunction have D. instead of C., by the way. And a lot of patients get Sphincter of Oddi dysfunction AFTER having their gallbladders removed... It was a lot of work during my first year on SCD to figure out which permitted foods work best for my digestion. Eventually I reached good symptom management, and am doing fine as long as I stick to my "good" foods and work with my cranky upper GI, not stressing it in any way. I have to be super careful with fats, fiber and seasonings. Anyway, don't let the D. go on too long. Check in with your gastroenterologist, and seek other opinions and testing too. Kim M. SCD 5+ years >>>>>>>>>> I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Val It usually takes 3 months for the body to adjust to the loss of a gallbladder, so you can expect problems for a while. While your body is adjusting, you'll need to be careful with fats and fiber, so going on the intro. diet or sticking to easy-to-digest foods for several weeks will also help. You mention antibiotics. Are you getting a lot of mucuous with your D.? Have you checked that you don't have C. Difficile? You also mention pain easing when you're on the intro. diet. I don't like to be the voice of doom here, but, according to statistics, 10% to 12% of patients do not recover or get worse after their gallbladder was removed. I'm one of those, so I've done a lot of reading on post-cholecystectomy syndrome... My problem turned out to be Sphincter of Oddi dysfunction which was blocking the gallbladder from emptying normally which is why I "failed" my Hida with CCK, so had my gallbladder removed -- but that didn't solve my problem. Several gastroenterologists and lots of tests later I was diagnosed with Sphincter of Oddi dysfunction, and have since had to learn a lot more than I wanted to about the upper GI... I ended up needing a sphincterotomy to get my Sphincter of Oddi working again, and my bile ducts to empty more or less properly. I deal with abdominal pain, back pain and nausea every day, along with C., and my body has never adapted to the loss of the gallbladder. A lot of patients with Sphincter of Oddi dysfunction have D. instead of C., by the way. And a lot of patients get Sphincter of Oddi dysfunction AFTER having their gallbladders removed... It was a lot of work during my first year on SCD to figure out which permitted foods work best for my digestion. Eventually I reached good symptom management, and am doing fine as long as I stick to my "good" foods and work with my cranky upper GI, not stressing it in any way. I have to be super careful with fats, fiber and seasonings. Anyway, don't let the D. go on too long. Check in with your gastroenterologist, and seek other opinions and testing too. Kim M. SCD 5+ years >>>>>>>>>> I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Hi, No C. Difficile. I was tested. I have gluten and caesin allergy to cows milk. Fats are not so bad. The fiber is more of a problem. The Hida revealed that my gall bladder wasn't functioning. It was not able to absorb any of the injection. When they removed the gall bladder there was a 2.5 inch stone in there. He told me it was causing a blockage. I had a gall bladder attack 2 weeks prior to the one I had the Wednesday before the operation. This time I went to the emergency room. Also, what I don't understand is that the stools were getting less and less formed about 2 weeks before my first attack. This was about the 12th week of SCD for me, which is usually the time where people have relapses. If I was going through a relapse and agravated it with everything that comes along with an operation, that could explain a lot. I am going with your plan of easy to digest foods. I have also upped my meds. I jumped from 3 400MG twice a day to 5 400MG tablets twice a day. If it is the gall bladder causing all this, the meds won't do a thing for me. I have to fly up north for a week in 2 weeks and I really want to get this worked out soon. I will be staying at my old house on a blow up mattress with my year old daughter while we put a roof on it. Then down to my in-laws for 3 days. There is usually some drama there. So I need to figure out how I am going to manage this. Any ideas? eggs, hamburger meat. I think I have to get my good to eat foods list together now, but as you know it takes a while to add them and figure it out. Thanks, Val > > Val > > It usually takes 3 months for the body to adjust to the loss of a gallbladder, so you can expect problems for a while. While your body is adjusting, you'll need to be careful with fats and fiber, so going on the intro. diet or sticking to easy-to-digest foods for several weeks will also help. > > You mention antibiotics. Are you getting a lot of mucuous with your D.? Have you checked that you don't have C. Difficile? > > You also mention pain easing when you're on the intro. diet. I don't like to be the voice of doom here, but, according to statistics, 10% to 12% of patients do not recover or get worse after their gallbladder was removed. I'm one of those, so I've done a lot of reading on post-cholecystectomy syndrome... > > My problem turned out to be Sphincter of Oddi dysfunction which was blocking the gallbladder from emptying normally which is why I " failed " my Hida with CCK, so had my gallbladder removed -- but that didn't solve my problem. Several gastroenterologists and lots of tests later I was diagnosed with Sphincter of Oddi dysfunction, and have since had to learn a lot more than I wanted to about the upper GI... I ended up needing a sphincterotomy to get my Sphincter of Oddi working again, and my bile ducts to empty more or less properly. I deal with abdominal pain, back pain and nausea every day, along with C., and my body has never adapted to the loss of the gallbladder. A lot of patients with Sphincter of Oddi dysfunction have D. instead of C., by the way. And a lot of patients get Sphincter of Oddi dysfunction AFTER having their gallbladders removed... > > It was a lot of work during my first year on SCD to figure out which permitted foods work best for my digestion. Eventually I reached good symptom management, and am doing fine as long as I stick to my " good " foods and work with my cranky upper GI, not stressing it in any way. I have to be super careful with fats, fiber and seasonings. > > Anyway, don't let the D. go on too long. Check in with your gastroenterologist, and seek other opinions and testing too. > > Kim M. > SCD 5+ years > > >>>>>>>>>> > I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Hi, No C. Difficile. I was tested. I have gluten and caesin allergy to cows milk. Fats are not so bad. The fiber is more of a problem. The Hida revealed that my gall bladder wasn't functioning. It was not able to absorb any of the injection. When they removed the gall bladder there was a 2.5 inch stone in there. He told me it was causing a blockage. I had a gall bladder attack 2 weeks prior to the one I had the Wednesday before the operation. This time I went to the emergency room. Also, what I don't understand is that the stools were getting less and less formed about 2 weeks before my first attack. This was about the 12th week of SCD for me, which is usually the time where people have relapses. If I was going through a relapse and agravated it with everything that comes along with an operation, that could explain a lot. I am going with your plan of easy to digest foods. I have also upped my meds. I jumped from 3 400MG twice a day to 5 400MG tablets twice a day. If it is the gall bladder causing all this, the meds won't do a thing for me. I have to fly up north for a week in 2 weeks and I really want to get this worked out soon. I will be staying at my old house on a blow up mattress with my year old daughter while we put a roof on it. Then down to my in-laws for 3 days. There is usually some drama there. So I need to figure out how I am going to manage this. Any ideas? eggs, hamburger meat. I think I have to get my good to eat foods list together now, but as you know it takes a while to add them and figure it out. Thanks, Val > > Val > > It usually takes 3 months for the body to adjust to the loss of a gallbladder, so you can expect problems for a while. While your body is adjusting, you'll need to be careful with fats and fiber, so going on the intro. diet or sticking to easy-to-digest foods for several weeks will also help. > > You mention antibiotics. Are you getting a lot of mucuous with your D.? Have you checked that you don't have C. Difficile? > > You also mention pain easing when you're on the intro. diet. I don't like to be the voice of doom here, but, according to statistics, 10% to 12% of patients do not recover or get worse after their gallbladder was removed. I'm one of those, so I've done a lot of reading on post-cholecystectomy syndrome... > > My problem turned out to be Sphincter of Oddi dysfunction which was blocking the gallbladder from emptying normally which is why I " failed " my Hida with CCK, so had my gallbladder removed -- but that didn't solve my problem. Several gastroenterologists and lots of tests later I was diagnosed with Sphincter of Oddi dysfunction, and have since had to learn a lot more than I wanted to about the upper GI... I ended up needing a sphincterotomy to get my Sphincter of Oddi working again, and my bile ducts to empty more or less properly. I deal with abdominal pain, back pain and nausea every day, along with C., and my body has never adapted to the loss of the gallbladder. A lot of patients with Sphincter of Oddi dysfunction have D. instead of C., by the way. And a lot of patients get Sphincter of Oddi dysfunction AFTER having their gallbladders removed... > > It was a lot of work during my first year on SCD to figure out which permitted foods work best for my digestion. Eventually I reached good symptom management, and am doing fine as long as I stick to my " good " foods and work with my cranky upper GI, not stressing it in any way. I have to be super careful with fats, fiber and seasonings. > > Anyway, don't let the D. go on too long. Check in with your gastroenterologist, and seek other opinions and testing too. > > Kim M. > SCD 5+ years > > >>>>>>>>>> > I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Hi, No C. Difficile. I was tested. I have gluten and caesin allergy to cows milk. Fats are not so bad. The fiber is more of a problem. The Hida revealed that my gall bladder wasn't functioning. It was not able to absorb any of the injection. When they removed the gall bladder there was a 2.5 inch stone in there. He told me it was causing a blockage. I had a gall bladder attack 2 weeks prior to the one I had the Wednesday before the operation. This time I went to the emergency room. Also, what I don't understand is that the stools were getting less and less formed about 2 weeks before my first attack. This was about the 12th week of SCD for me, which is usually the time where people have relapses. If I was going through a relapse and agravated it with everything that comes along with an operation, that could explain a lot. I am going with your plan of easy to digest foods. I have also upped my meds. I jumped from 3 400MG twice a day to 5 400MG tablets twice a day. If it is the gall bladder causing all this, the meds won't do a thing for me. I have to fly up north for a week in 2 weeks and I really want to get this worked out soon. I will be staying at my old house on a blow up mattress with my year old daughter while we put a roof on it. Then down to my in-laws for 3 days. There is usually some drama there. So I need to figure out how I am going to manage this. Any ideas? eggs, hamburger meat. I think I have to get my good to eat foods list together now, but as you know it takes a while to add them and figure it out. Thanks, Val > > Val > > It usually takes 3 months for the body to adjust to the loss of a gallbladder, so you can expect problems for a while. While your body is adjusting, you'll need to be careful with fats and fiber, so going on the intro. diet or sticking to easy-to-digest foods for several weeks will also help. > > You mention antibiotics. Are you getting a lot of mucuous with your D.? Have you checked that you don't have C. Difficile? > > You also mention pain easing when you're on the intro. diet. I don't like to be the voice of doom here, but, according to statistics, 10% to 12% of patients do not recover or get worse after their gallbladder was removed. I'm one of those, so I've done a lot of reading on post-cholecystectomy syndrome... > > My problem turned out to be Sphincter of Oddi dysfunction which was blocking the gallbladder from emptying normally which is why I " failed " my Hida with CCK, so had my gallbladder removed -- but that didn't solve my problem. Several gastroenterologists and lots of tests later I was diagnosed with Sphincter of Oddi dysfunction, and have since had to learn a lot more than I wanted to about the upper GI... I ended up needing a sphincterotomy to get my Sphincter of Oddi working again, and my bile ducts to empty more or less properly. I deal with abdominal pain, back pain and nausea every day, along with C., and my body has never adapted to the loss of the gallbladder. A lot of patients with Sphincter of Oddi dysfunction have D. instead of C., by the way. And a lot of patients get Sphincter of Oddi dysfunction AFTER having their gallbladders removed... > > It was a lot of work during my first year on SCD to figure out which permitted foods work best for my digestion. Eventually I reached good symptom management, and am doing fine as long as I stick to my " good " foods and work with my cranky upper GI, not stressing it in any way. I have to be super careful with fats, fiber and seasonings. > > Anyway, don't let the D. go on too long. Check in with your gastroenterologist, and seek other opinions and testing too. > > Kim M. > SCD 5+ years > > >>>>>>>>>> > I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Look what Marilyn wrote to someone. I wonder if this applies to me and my operation made it worse. As I mentioned before 2 weeks prior to the operation I began with the D. I thought it was the three month flare begining at 10 weeks as opposed to 12 weeks. With the stuff that happened due to the operation, I hope that after going through the intro I don't get to hit another 3 month flare!!! What do you guys think, does it apply? Re: Relapse What I suspect you're hitting is something called " the three month flare. " As you're aware, the objective of SCD is to starve out the bad bacteria. Well, it has been observed that right around three months on the diet, you've done such a good job of starving them that their numbers are dropping rapidly. You've gotten rid of most of the weak sisters amongst the bad bacteria and the remaining ones are the stronger ones. So in effect, right now, you're saying, " Away with you! " and they're saying " H-ll no, we won't go! " and creating havoc for you. So it is absolutely critical that you hold fast at this point and not eat any illegals, because if you feed the bacteria right now, you'll let those stronger ones multiple, and then they'll be that much harder to starve out. The " three month flare " can occur anywhere from 9 weeks to 16 weeks. It can also occur again at 6-7 months, and 10-12 months. Those bacteria are stubborn. But YOU are more stubborn. My suggestion would be to drop back to easier-to-digest foods for a couple of days, which you say you've already done. Rest as much as possible, and don't push. Then gradually (probably not quite so gradually as the first time) reintroduce your regular foods. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund > > Hi, > > I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. I thought doing the intro again may wipe out any of the bad bacteria that may have developed because of the antibiotics administered for the operation. I was in the hospital for 4 days. I have no idea how much or for how long I was given antibiotics. I was flat out on my back thankful for the drugs that allieviated the pain of the gall bladder attacks. > > Has anyone else experienced this? Is it possible that the SCD won't work for me? I don't know where the light at the end of this tunnel is. I just want to get to a better place and be in a place of progressive healing. I was happy there. > > Has anyone experienced something similar? I know I am supposed to experience setbacks but for how long can they last? I am getting discouraged because D has been going on for 25% of the time that I have been on the diet thus far. I have upped my meds by 800 MG again and it is not working! I was down to 800 MG when this started. > > I know it is only day 1 of the intro again, but I am getting afraid that I will never get better. I am hoping I am over reacting. > > Thanks, > Val > SCD 4 months > asacol 2400MG > UC 3 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Look what Marilyn wrote to someone. I wonder if this applies to me and my operation made it worse. As I mentioned before 2 weeks prior to the operation I began with the D. I thought it was the three month flare begining at 10 weeks as opposed to 12 weeks. With the stuff that happened due to the operation, I hope that after going through the intro I don't get to hit another 3 month flare!!! What do you guys think, does it apply? Re: Relapse What I suspect you're hitting is something called " the three month flare. " As you're aware, the objective of SCD is to starve out the bad bacteria. Well, it has been observed that right around three months on the diet, you've done such a good job of starving them that their numbers are dropping rapidly. You've gotten rid of most of the weak sisters amongst the bad bacteria and the remaining ones are the stronger ones. So in effect, right now, you're saying, " Away with you! " and they're saying " H-ll no, we won't go! " and creating havoc for you. So it is absolutely critical that you hold fast at this point and not eat any illegals, because if you feed the bacteria right now, you'll let those stronger ones multiple, and then they'll be that much harder to starve out. The " three month flare " can occur anywhere from 9 weeks to 16 weeks. It can also occur again at 6-7 months, and 10-12 months. Those bacteria are stubborn. But YOU are more stubborn. My suggestion would be to drop back to easier-to-digest foods for a couple of days, which you say you've already done. Rest as much as possible, and don't push. Then gradually (probably not quite so gradually as the first time) reintroduce your regular foods. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund > > Hi, > > I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. I thought doing the intro again may wipe out any of the bad bacteria that may have developed because of the antibiotics administered for the operation. I was in the hospital for 4 days. I have no idea how much or for how long I was given antibiotics. I was flat out on my back thankful for the drugs that allieviated the pain of the gall bladder attacks. > > Has anyone else experienced this? Is it possible that the SCD won't work for me? I don't know where the light at the end of this tunnel is. I just want to get to a better place and be in a place of progressive healing. I was happy there. > > Has anyone experienced something similar? I know I am supposed to experience setbacks but for how long can they last? I am getting discouraged because D has been going on for 25% of the time that I have been on the diet thus far. I have upped my meds by 800 MG again and it is not working! I was down to 800 MG when this started. > > I know it is only day 1 of the intro again, but I am getting afraid that I will never get better. I am hoping I am over reacting. > > Thanks, > Val > SCD 4 months > asacol 2400MG > UC 3 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Look what Marilyn wrote to someone. I wonder if this applies to me and my operation made it worse. As I mentioned before 2 weeks prior to the operation I began with the D. I thought it was the three month flare begining at 10 weeks as opposed to 12 weeks. With the stuff that happened due to the operation, I hope that after going through the intro I don't get to hit another 3 month flare!!! What do you guys think, does it apply? Re: Relapse What I suspect you're hitting is something called " the three month flare. " As you're aware, the objective of SCD is to starve out the bad bacteria. Well, it has been observed that right around three months on the diet, you've done such a good job of starving them that their numbers are dropping rapidly. You've gotten rid of most of the weak sisters amongst the bad bacteria and the remaining ones are the stronger ones. So in effect, right now, you're saying, " Away with you! " and they're saying " H-ll no, we won't go! " and creating havoc for you. So it is absolutely critical that you hold fast at this point and not eat any illegals, because if you feed the bacteria right now, you'll let those stronger ones multiple, and then they'll be that much harder to starve out. The " three month flare " can occur anywhere from 9 weeks to 16 weeks. It can also occur again at 6-7 months, and 10-12 months. Those bacteria are stubborn. But YOU are more stubborn. My suggestion would be to drop back to easier-to-digest foods for a couple of days, which you say you've already done. Rest as much as possible, and don't push. Then gradually (probably not quite so gradually as the first time) reintroduce your regular foods. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund > > Hi, > > I have been experiencing D with bouts of normal BMs for about 6 weeks now. 4 weeks ago I had my gall bladder removed. Today I went back to the intro hoping it would help, but my D is like waterfalls!!! The one thing the intro diet has done is allieviate most of the pain. I thought doing the intro again may wipe out any of the bad bacteria that may have developed because of the antibiotics administered for the operation. I was in the hospital for 4 days. I have no idea how much or for how long I was given antibiotics. I was flat out on my back thankful for the drugs that allieviated the pain of the gall bladder attacks. > > Has anyone else experienced this? Is it possible that the SCD won't work for me? I don't know where the light at the end of this tunnel is. I just want to get to a better place and be in a place of progressive healing. I was happy there. > > Has anyone experienced something similar? I know I am supposed to experience setbacks but for how long can they last? I am getting discouraged because D has been going on for 25% of the time that I have been on the diet thus far. I have upped my meds by 800 MG again and it is not working! I was down to 800 MG when this started. > > I know it is only day 1 of the intro again, but I am getting afraid that I will never get better. I am hoping I am over reacting. > > Thanks, > Val > SCD 4 months > asacol 2400MG > UC 3 years > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 chiro as in chiropracter?Yep. Sorry! Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 chiro as in chiropracter?Yep. Sorry! Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 chiro as in chiropracter?Yep. Sorry! Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 I certainly think your operation made things worse – gallbladder surgery falls into the category of major surgery to me. If it’s any comfort, I had the “three month flare” more times than I can count for the first, oh, 4 years on the diet. In between those rare days when I had 2-3 formed bms/day I would have D 2-3 times/day for weeks on end – never as bad as pre-SCD, but watery or poorly formed. It does get better – I rarely have D nowadays. So, yikes, your body is trying to heal from many locations at once. I’d say the D is probably associated with the amount of stress your body is dealing with right now. After everything I’ve read about bone broths that is what I would recommend you eat everyday (if you are not already doing so). You know the drill by now – easy to digest foods (and lots of bone broth/soups). And rest. Rest is looking impossible for you in the upcoming weeks. That may prolong your flare, so rest up when you return home would be my advice to you. From my own experience the body is pretty resilient, so hang in there. I do hope you feel better ASAP. Carol CD 21 yrs SCD 5 yrs B12 shot & LDN cream (4 mo.) From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of valeriec68 Look what Marilyn wrote to someone. I wonder if this applies to me and my operation made it worse. As I mentioned before 2 weeks prior to the operation I began with the D. I thought it was the three month flare begining at 10 weeks as opposed to 12 weeks. With the stuff that happened due to the operation, I hope that after going through the intro I don't get to hit another 3 month flare!!! What do you guys think, does it apply? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 I certainly think your operation made things worse – gallbladder surgery falls into the category of major surgery to me. If it’s any comfort, I had the “three month flare” more times than I can count for the first, oh, 4 years on the diet. In between those rare days when I had 2-3 formed bms/day I would have D 2-3 times/day for weeks on end – never as bad as pre-SCD, but watery or poorly formed. It does get better – I rarely have D nowadays. So, yikes, your body is trying to heal from many locations at once. I’d say the D is probably associated with the amount of stress your body is dealing with right now. After everything I’ve read about bone broths that is what I would recommend you eat everyday (if you are not already doing so). You know the drill by now – easy to digest foods (and lots of bone broth/soups). And rest. Rest is looking impossible for you in the upcoming weeks. That may prolong your flare, so rest up when you return home would be my advice to you. From my own experience the body is pretty resilient, so hang in there. I do hope you feel better ASAP. Carol CD 21 yrs SCD 5 yrs B12 shot & LDN cream (4 mo.) From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of valeriec68 Look what Marilyn wrote to someone. I wonder if this applies to me and my operation made it worse. As I mentioned before 2 weeks prior to the operation I began with the D. I thought it was the three month flare begining at 10 weeks as opposed to 12 weeks. With the stuff that happened due to the operation, I hope that after going through the intro I don't get to hit another 3 month flare!!! What do you guys think, does it apply? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 I certainly think your operation made things worse – gallbladder surgery falls into the category of major surgery to me. If it’s any comfort, I had the “three month flare” more times than I can count for the first, oh, 4 years on the diet. In between those rare days when I had 2-3 formed bms/day I would have D 2-3 times/day for weeks on end – never as bad as pre-SCD, but watery or poorly formed. It does get better – I rarely have D nowadays. So, yikes, your body is trying to heal from many locations at once. I’d say the D is probably associated with the amount of stress your body is dealing with right now. After everything I’ve read about bone broths that is what I would recommend you eat everyday (if you are not already doing so). You know the drill by now – easy to digest foods (and lots of bone broth/soups). And rest. Rest is looking impossible for you in the upcoming weeks. That may prolong your flare, so rest up when you return home would be my advice to you. From my own experience the body is pretty resilient, so hang in there. I do hope you feel better ASAP. Carol CD 21 yrs SCD 5 yrs B12 shot & LDN cream (4 mo.) From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of valeriec68 Look what Marilyn wrote to someone. I wonder if this applies to me and my operation made it worse. As I mentioned before 2 weeks prior to the operation I began with the D. I thought it was the three month flare begining at 10 weeks as opposed to 12 weeks. With the stuff that happened due to the operation, I hope that after going through the intro I don't get to hit another 3 month flare!!! What do you guys think, does it apply? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 One other thought about losing your gall bladder. My brother had his out many many years ago and one time I asked him if he had trouble with fats or anything. He said they had told him, and it proved to be true (at least for him), that he needed to settle on a diet, in other words, fairly steady proportions of protein, fats, and carbs. The gall bladder-less body then got used to this (but I don't know how long it took) and he had no problems. But if he ate " out " of his accustomed range, he would have problems. What I'm wondering is if working through SCD one would have to be even more careful about these proportions or else have to face the consequences. If it were me, any kind of surgery would upset my gut for awhile, wouldn't have to be gall bladder. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 Hi, They told me to watch the fats in the begining. I heard from someone else on line to watch the fiber too. Unfortunately it is extremely difficult to tell what is gall bladder and what is UC. That is why I posted a really gross question about die-off. If I could be sure that I was seeing die-off I would lean toward my 3 month flare. Which was due at the time of the operation. I have such wonderful timing. I suspect the gall bladder was acting up for a while. I had my daughter 16 months prior to surgery. I had gotten down to my pre-pregnancy weight and still looked bloated. Since the gall bladder is gone I don't look as bloated to the tune of lossing an entire pants size but still weigh close to the same, the last I checked. I am now back to my pre-pregnancy size. All the bloat around my upper abdomin is gone. Alot of the tummy is going. I never was thin. I am hoping between SCD and the gall bladder being gone I will loose weight that was impossible for me to loose with out having to go above and beyond what everyone else seems to do. When I was diagnosed with UC what bugged me is there was no weight loss. How could that be? But I guess there are others who don't loose or maybe its the Asacol. I am hoping and leaning toward what I am feeling is the 3 month flare. I don't know if I have any problem digesting fat or fiber. I have a problem digesting anything that is not a level 1 or intro food. the chicken soup is helping amazingly. And come to think of it I have been using SCD legal Mayo on my meat patties(only so much dry I can handle) and haven't had an issue. I still have D but no pain. Wouldn't I have pain if fat were an issue? I don't know!!! Confused Val > > One other thought about losing your gall bladder. My brother had his > out many many years ago and one time I asked him if he had trouble > with fats or anything. He said they had told him, and it proved to be > true (at least for him), that he needed to settle on a diet, in other > words, fairly steady proportions of protein, fats, and carbs. The > gall bladder-less body then got used to this (but I don't know how > long it took) and he had no problems. But if he ate " out " of his > accustomed range, he would have problems. What I'm wondering is if > working through SCD one would have to be even more careful about > these proportions or else have to face the consequences. If it were > me, any kind of surgery would upset my gut for awhile, wouldn't have > to be gall bladder. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 Hi, They told me to watch the fats in the begining. I heard from someone else on line to watch the fiber too. Unfortunately it is extremely difficult to tell what is gall bladder and what is UC. That is why I posted a really gross question about die-off. If I could be sure that I was seeing die-off I would lean toward my 3 month flare. Which was due at the time of the operation. I have such wonderful timing. I suspect the gall bladder was acting up for a while. I had my daughter 16 months prior to surgery. I had gotten down to my pre-pregnancy weight and still looked bloated. Since the gall bladder is gone I don't look as bloated to the tune of lossing an entire pants size but still weigh close to the same, the last I checked. I am now back to my pre-pregnancy size. All the bloat around my upper abdomin is gone. Alot of the tummy is going. I never was thin. I am hoping between SCD and the gall bladder being gone I will loose weight that was impossible for me to loose with out having to go above and beyond what everyone else seems to do. When I was diagnosed with UC what bugged me is there was no weight loss. How could that be? But I guess there are others who don't loose or maybe its the Asacol. I am hoping and leaning toward what I am feeling is the 3 month flare. I don't know if I have any problem digesting fat or fiber. I have a problem digesting anything that is not a level 1 or intro food. the chicken soup is helping amazingly. And come to think of it I have been using SCD legal Mayo on my meat patties(only so much dry I can handle) and haven't had an issue. I still have D but no pain. Wouldn't I have pain if fat were an issue? I don't know!!! Confused Val > > One other thought about losing your gall bladder. My brother had his > out many many years ago and one time I asked him if he had trouble > with fats or anything. He said they had told him, and it proved to be > true (at least for him), that he needed to settle on a diet, in other > words, fairly steady proportions of protein, fats, and carbs. The > gall bladder-less body then got used to this (but I don't know how > long it took) and he had no problems. But if he ate " out " of his > accustomed range, he would have problems. What I'm wondering is if > working through SCD one would have to be even more careful about > these proportions or else have to face the consequences. If it were > me, any kind of surgery would upset my gut for awhile, wouldn't have > to be gall bladder. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 Hi, They told me to watch the fats in the begining. I heard from someone else on line to watch the fiber too. Unfortunately it is extremely difficult to tell what is gall bladder and what is UC. That is why I posted a really gross question about die-off. If I could be sure that I was seeing die-off I would lean toward my 3 month flare. Which was due at the time of the operation. I have such wonderful timing. I suspect the gall bladder was acting up for a while. I had my daughter 16 months prior to surgery. I had gotten down to my pre-pregnancy weight and still looked bloated. Since the gall bladder is gone I don't look as bloated to the tune of lossing an entire pants size but still weigh close to the same, the last I checked. I am now back to my pre-pregnancy size. All the bloat around my upper abdomin is gone. Alot of the tummy is going. I never was thin. I am hoping between SCD and the gall bladder being gone I will loose weight that was impossible for me to loose with out having to go above and beyond what everyone else seems to do. When I was diagnosed with UC what bugged me is there was no weight loss. How could that be? But I guess there are others who don't loose or maybe its the Asacol. I am hoping and leaning toward what I am feeling is the 3 month flare. I don't know if I have any problem digesting fat or fiber. I have a problem digesting anything that is not a level 1 or intro food. the chicken soup is helping amazingly. And come to think of it I have been using SCD legal Mayo on my meat patties(only so much dry I can handle) and haven't had an issue. I still have D but no pain. Wouldn't I have pain if fat were an issue? I don't know!!! Confused Val > > One other thought about losing your gall bladder. My brother had his > out many many years ago and one time I asked him if he had trouble > with fats or anything. He said they had told him, and it proved to be > true (at least for him), that he needed to settle on a diet, in other > words, fairly steady proportions of protein, fats, and carbs. The > gall bladder-less body then got used to this (but I don't know how > long it took) and he had no problems. But if he ate " out " of his > accustomed range, he would have problems. What I'm wondering is if > working through SCD one would have to be even more careful about > these proportions or else have to face the consequences. If it were > me, any kind of surgery would upset my gut for awhile, wouldn't have > to be gall bladder. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 At 01:17 PM 10/23/2009, you wrote: If it were me, any kind of surgery would upset my gut for awhile, Sure will! The anesthesia puts your gut to sleep and it takes awhile to get back to full efficiency. My oncologist said clear liquids, thick liwuids, soft foods, then normal foods, in that order. I omitted all raw vegetables until I was off the opiate pain killers, and she said that was a very good idea, since my gut would also be at less than peak efficiency under the opiates. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 At 01:17 PM 10/23/2009, you wrote: If it were me, any kind of surgery would upset my gut for awhile, Sure will! The anesthesia puts your gut to sleep and it takes awhile to get back to full efficiency. My oncologist said clear liquids, thick liwuids, soft foods, then normal foods, in that order. I omitted all raw vegetables until I was off the opiate pain killers, and she said that was a very good idea, since my gut would also be at less than peak efficiency under the opiates. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
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