OT- LDN in Italy

[Guest guest]

Today I spent 20 minutes trying to convince my neuro to give me LDN but he kept

saying no drug could work for all those illnesses and it was the same as

cortisone, then he looked in his PDR and said that it's just methadone, so

finally he agreed to keep the material I brought in and said he would call me in

September (it's holiday season here) so I went into the pharmacy where I only

buy pro-biotics and vitamins with no illegals. They used to think I was a

health nut, now they think I'm a heroin addict! LOL At any rate they didn't

even ask me why I wanted it, they just ordered 10 vials of 50mg for tomorrow

morning. So I got it with no Rx. I hope it really works as well as SCD has.

Ann

[Guest guest]

Hi Ann,

I took LDN for a while. Then I got off of it for ileocolic resection. I needed

to be on pain medication and anesthesia.

I had a hard time with LDN... It was miraculous for my bowel. Before I started

there was question if I have Long term Lyme Disease and co-infections. I was

skeptical about this. I have had many names of illnesses thrown at me over the

years. I had blood tests come back positive for Co-Infections but if you read

the literature about this it is highly confusing and esoteric like. Anyway, I

started LDN and physically my muscular skeletal system and neurological system

just went cuckoo, later I learned that my increase in symptoms were exactly what

those coinfections cause. So did my Thyroid values- It went up and down, up and

down (have many blood tests to prove this so we had to start taking blood work

at specific hours to make sure it was the exact time each time, same labs etc)

That is why I think if people have Thyroid issues and go on LDN- just give LDN a

go because sometimes LDN just " adjusts " peoples thyroid values.

Anyway, there was this difficult time because my normal prescribing LDN doc her

hours were cut down at the office. So I saw a different doc and he did not know

my level of sensitivity. Anyway, he upped my dosage too quick during this

adjustment phase.. During this time my bowel started getting miraculously

better.. Like just amazing leaps and bounds.

This doc having interviewed world renowned Lyme docs from Columbia Pres saw my

Lyme results and was basically " Jodi, this is very real I want you enrolled in

their program " I spoke to them and they wanted like $10,000 and maybe insurance

would cover it.. I nearly passed out. I decided I am not going to pay that

amount to be told I have something and this is the extent of it. I decided I

rather put my resources into alternative care because I cannot take long term

antibiotics due to getting C Diff when I try. Which in turn makes the Crohn's

worse.

The general idea Ann is that if you are sensitive and experience certain

symptoms IE joint issues one should just start at a small dosage as sometimes

joint issues can temporarily get worse for *some* people and then get better

(mostly people with MS). This does not happen all the time. I spoke to some

LDN'ers about this stuff because at the time I was trying to figure out things

for myself. If your joint issues are caused by the Crohn's the LDN will take

care of this.

LDN can help isolate why we have some long term problems. Like Lyme Disease and

or co-infections.. Sleep Apnea if people aren't responding for pain management.

Systemic Candida issues etc.

It really is a wonder drug and IMO it's such a major discovery. It is however a

threat to Big Pharma as Naltrexone is generic (no patent) and so serious money

is not made like the new generation biologics etc.

I am confident it will help you. Take it slow. Even if you have to wait a

couple of weeks between each increase of doses.

If I knew my Lyme issues were totally eradicated I would go back on LDN in a

heartbeat.

Jodi

[Guest guest]

Hi Ann,

I took LDN for a while. Then I got off of it for ileocolic resection. I needed

to be on pain medication and anesthesia.

I had a hard time with LDN... It was miraculous for my bowel. Before I started

there was question if I have Long term Lyme Disease and co-infections. I was

skeptical about this. I have had many names of illnesses thrown at me over the

years. I had blood tests come back positive for Co-Infections but if you read

the literature about this it is highly confusing and esoteric like. Anyway, I

started LDN and physically my muscular skeletal system and neurological system

just went cuckoo, later I learned that my increase in symptoms were exactly what

those coinfections cause. So did my Thyroid values- It went up and down, up and

down (have many blood tests to prove this so we had to start taking blood work

at specific hours to make sure it was the exact time each time, same labs etc)

That is why I think if people have Thyroid issues and go on LDN- just give LDN a

go because sometimes LDN just " adjusts " peoples thyroid values.

Anyway, there was this difficult time because my normal prescribing LDN doc her

hours were cut down at the office. So I saw a different doc and he did not know

my level of sensitivity. Anyway, he upped my dosage too quick during this

adjustment phase.. During this time my bowel started getting miraculously

better.. Like just amazing leaps and bounds.

This doc having interviewed world renowned Lyme docs from Columbia Pres saw my

Lyme results and was basically " Jodi, this is very real I want you enrolled in

their program " I spoke to them and they wanted like $10,000 and maybe insurance

would cover it.. I nearly passed out. I decided I am not going to pay that

amount to be told I have something and this is the extent of it. I decided I

rather put my resources into alternative care because I cannot take long term

antibiotics due to getting C Diff when I try. Which in turn makes the Crohn's

worse.

The general idea Ann is that if you are sensitive and experience certain

symptoms IE joint issues one should just start at a small dosage as sometimes

joint issues can temporarily get worse for *some* people and then get better

(mostly people with MS). This does not happen all the time. I spoke to some

LDN'ers about this stuff because at the time I was trying to figure out things

for myself. If your joint issues are caused by the Crohn's the LDN will take

care of this.

LDN can help isolate why we have some long term problems. Like Lyme Disease and

or co-infections.. Sleep Apnea if people aren't responding for pain management.

Systemic Candida issues etc.

It really is a wonder drug and IMO it's such a major discovery. It is however a

threat to Big Pharma as Naltrexone is generic (no patent) and so serious money

is not made like the new generation biologics etc.

I am confident it will help you. Take it slow. Even if you have to wait a

couple of weeks between each increase of doses.

If I knew my Lyme issues were totally eradicated I would go back on LDN in a

heartbeat.

Jodi

[Guest guest]

Hi Ann,

Absolutely get blood work for the Thyroid before the LDN. I would actually get

blood work ever increase of dosage too. Monitor your thyroid and make sure the

LDN doesn't make you HyperT. Just pay attention. I had a wonderful doc that

knows all about this stuff so she held my hand through this journey- I don't

think you have such a resource so pay attention and ask questions on the LDN

site.

I had horrible Crohn's flares in the joints too. Also, debilitating.. couldn't

walk. Luckily my husband carried me those couple of times. I remember at times

I felt like almost paralyzed and had to physically " pick up " my legs and move

'em. I would take Vioxx back in the day and get Toradol shots. Those worked

like a charm. Not good for IBD though.

I am confident it will get better for you. At least I hope and pray for you Ann

that this will help.

Marilyn corrected my thinking that one has to be overweight in order to have

Sleep Apnea. This is not true. I am not overweight at all and they think I

have it. Once again there is no size fits all. Maybe you can see another doc

about this?

So sorry it is such a pain..

One gets sick just dealing with all these doctors.. It's a full time job

achieving health.

Jodi

[Guest guest]

Hi ,

It is best you ask your questions here;

http://health.groups.yahoo.com/group/lowdosenaltrexone/?yguid=333244357

You need to join.

LDN does not cause liver damage.

Sometimes it gets confused with Full dose naltrexone. These are two completely

different things!!! LDN does not do this at all.

But ask your specific questions to the group as there are many experts over

there.

Jodi