Re: Die off after 1 yr and 3 months?

August 20, 2009

Mike, I can relate to your case and i will read answers you get with interest. I can't really offer you help because i am in the same situation. I started to flare on my 2 year SCD anniversary, at the beginning i thought it was food related and that it will go away in 2 or 3 days like it has until then but no, despite strict intro on the third day i got also blood next to my urgent D and now it will soon be 3 weeks that this is going on.

I started Pentasa when i got blood, i lost few kilos. In my case i am suspecting also hormones as i am still breastfeeding my soon to be 6 month baby. But i am getting tired by eating limited amount of foods (i am intro and few stage 1 foods) because with breastfeeding i use a lot of energy. So i hope it will end soon without the need to go to stronger medication. I also never had such severe symptomes ever since i was diagnosed with UC 2 years ago (at that time i had blood only for 1 day). I also get fatigue and stomach cramps that usualy result by going to the toilet. The frequency did diminue a little bit from 6-7 at beginning to around 4 last few days and it is less blood, 1 time per day maybe and just few drops at the end.

I was also surprised i was hit by it so strongly because i was confident my intestines were in good shape with SCD and that a flare couldn't run me down so fast. JanjaUC since july 2007SCD since august 2007

August 20, 2009

I'm a newbie to SCD and I am also watching these posts with interest as one of

the things that gets me though this is the hope for better days. I know it must

be upsetting to see symptoms return after such a long time. I can understand

that pregnancy and having a newborn puts stress on the body, but for Mike- I

don't know why. Is it possible that there might be some infection setting this

off? I do hope you both recover quickly. Please keep us posted.

PJ

>

> Mike, I can relate to your case and i will read answers you get with

> interest. I can't really offer you help because i am in the same situation.

> I started to flare on my 2 year SCD anniversary, at the beginning i thought

> it was food related and that it will go away in 2 or 3 days like it has

> until then but no, despite strict intro on the third day i got also blood

> next to my urgent D and now it will soon be 3 weeks that this is going on.

> I started Pentasa when i got blood, i lost few kilos. In my case i am

> suspecting also hormones as i am still breastfeeding my soon to be 6 month

> baby. But i am getting tired by eating limited amount of foods (i am intro

> and few stage 1 foods) because with breastfeeding i use a lot of energy. So

> i hope it will end soon without the need to go to stronger medication. I

> also never had such severe symptomes ever since i was diagnosed with UC 2

> years ago (at that time i had blood only for 1 day). I also get fatigue and

> stomach cramps that usualy result by going to the toilet. The frequency did

> diminue a little bit from 6-7 at beginning to around 4 last few days and it

> is less blood, 1 time per day maybe and just few drops at the end.

> I was also surprised i was hit by it so strongly because i was confident my

> intestines were in good shape with SCD and that a flare couldn't run me down

> so fast.

>

> Janja

> UC since july 2007

> SCD since august 2007

>

August 21, 2009

Hi PJ and others,

I just wanted to say I hope I haven't unneccesarily worried any newbies reading

my post. From what I have seen of other's progress, this type of event this far

into the diet is not the norm.

As of yesterday evening, i've been feeling a lot better. The fever has now gone.

It was all a bit scary as i've never had a flare up like that before but I seem

to be over the worst.

I still hold on to the belief that it is a bad flare because of some really

stubborn bacteria and the promised land is on the other side!

PJ - I had been tapering off my azathoiprine and balsalazide (colazide) tablets

but had recently got back onto the meds as coming off them wasn't working out

so, I have to admit, the meds could have something to with my current issues.

Health to all,

Mike

August 21, 2009

Hi PJ and others,

I just wanted to say I hope I haven't unneccesarily worried any newbies reading

my post. From what I have seen of other's progress, this type of event this far

into the diet is not the norm.

As of yesterday evening, i've been feeling a lot better. The fever has now gone.

It was all a bit scary as i've never had a flare up like that before but I seem

to be over the worst.

I still hold on to the belief that it is a bad flare because of some really

stubborn bacteria and the promised land is on the other side!

PJ - I had been tapering off my azathoiprine and balsalazide (colazide) tablets

but had recently got back onto the meds as coming off them wasn't working out

so, I have to admit, the meds could have something to with my current issues.

Health to all,

Mike

August 21, 2009

I hadn't changed anything in my meds in over a year when my flare happened

(lialda 1x/day, Ranitidine 1x/day).

Stacey

>

> I have a question for all of you. Were you on any meds when this happened? The

reason I asked is because some people stop their medication somewhere into the

diet, while most doctors think one should stay on medication regardless.

> Thanks,

> PJ

>

August 21, 2009

> Hi PJ and others,

>

> I just wanted to say I hope I haven't unneccesarily worried any

> newbies reading my post. From what I have seen of other's progress,

> this type of event this far into the diet is not the norm.

>

> As of yesterday evening, i've been feeling a lot better. The fever

> has now gone. It was all a bit scary as i've never had a flare up

> like that before but I seem to be over the worst.

>

> I still hold on to the belief that it is a bad flare because of some

> really stubborn bacteria and the promised land is on the other side!

>

> PJ - I had been tapering off my azathoiprine and balsalazide

> (colazide) tablets but had recently got back onto the meds as coming

> off them wasn't working out so, I have to admit, the meds could have

> something to with my current issues.

Mike,

Have you looked into LDN as an option?

I know, too, that Kim M. has mentioned flaring at 3 month intervals or

so,

with decreasing symptoms, up until she hit the two year mark.

I certainly had some flares after the first year.

And think of it this way - once the die off symptoms go away, you'll

feel much, much better than you did before they began. I find that

dieoff always leads to leaps in health.

Mara

August 21, 2009

The reason I asked about meds is that Elaine never said to stop meds, but some

people do, and do just fine, and some don't. It's so individual, and as I see,

so is the diet. From what I see, some can eat illegals after two years, some

never can, and so on- it's so individual. Don't we wish there was something that

would prevent all flares forever? The only thing I can conclude is that we are

far better off on SCD than without it, for without it- there would likely have

been more flares. I am so sorry to hear people going through this after so long,

but it still looks like the flares are infrequent. I do hope you recover soon.

LDN looks promising, and for those who are lucky to have a physician that

supports it, it could be helpful.

Hope you are better,

PJ

> >

> > I have a question for all of you. Were you on any meds when this happened?

The reason I asked is because some people stop their medication somewhere into

the diet, while most doctors think one should stay on medication regardless.

> > Thanks,

> > PJ

> >

>

August 21, 2009