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Re: ADEKS/ELLEN

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In a message dated 4/7/01 5:01:13 PM, duodenalswitch writes:

<< Hi everyone. A question about Adeks. I got my presription and need the

phone

# or address to send it in the Cystic Fibrosis. I would appreciate anyones

help. I don't have a fax so I will probably have to mail it. Thanks

Ellen(Pam)

>>

Ellen: If you have their 800 number (800)541-4959, they can provide a fax

number for the surgeon's office to use... That's how I did it. I registered

on the phone and they gave me the fax number for Ivonne (Dr. Gagner's nurse)

to send the prescription to.

Alternately, their address IS: Cystis Fibrosis Foundation Pharmacy Services,

6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It might help to

call (you may have to leave a message initially since they don't seem to have

live operators) to get a person's name as a contact to check up on the script

arrival, etc?

I think last time I called they said they have a website, too where you can

re-order (the initial order must be placed the 'old fashioned way', I guess).

You can always have the Mt. Sinai office fax the script over, too!

All the best,

laparoscopic BPD/DS with gallbladder removal

Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

January 25, 2001

75 days post-op and still feelin' fab! :)

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Guest guest

, thanks for the info on CF--basically, though, my questions is

why we as bpd/ds'ers would send our ADEK perscription to CF--that has

now been explained to me. Just as with CF patients it is the

malabsorption that causes the need for these vitamins & by sending it

to CF we can take advantage of a discount thru Scandiapharm..from

what i understand now, it cuts the price in about half. Thanks again.

take good care

ogretta

pre-op & ready

may 11, 2001 12noon

dr inabnet

-- In duodenalswitch@y..., " Montgomery " wrote:

> In Cystic Fibrosis (CF) clogging of pancreatic ducts leads to an

enzyme

> deficiency in the intestines. Without these enzymes, humans cannot

> efficiently digest fats and proteins. The fats and proteins pass

straight

> through the digestive system and produce greasy, smelly bowel

movements. Far

> worse, the resulting malnutrition used to cause people with Cystic

Fibrosis

> to die in childhood.

>

> So CF people like DS post ops can't absorb fat soluble vitamins.

Thus the

> CF source provides the water soluble version of these. They are

what people

> with CF also take.

>

> in Seattle

>

> ----- Original Message -----

> From:

>

> > -hi all, still curious about sending the adeks perscription to

cystic

> > fibrosis--can anyone share the reason for this..just

> > wondering,,thanks take good care

> > ogretta

> > pre-op & ready

> > may 11 , 2001

> > dr inabnet

> >

> >

> >

> > -- In duodenalswitch@y..., ruisha@a... wrote:

> > >

> > > In a message dated 4/7/01 5:01:13 PM, duodenalswitch@y...

writes:

> > >

> > > << Hi everyone. A question about Adeks. I got my presription

and

> > need the

> > > phone

> > > # or address to send it in the Cystic Fibrosis. I would

appreciate

> > anyones

> > > help. I don't have a fax so I will probably have to mail it.

> > Thanks

> > > Ellen(Pam)

> > > >>

> > >

> > > Ellen: If you have their 800 number (800)541-4959, they can

> > provide a fax

> > > number for the surgeon's office to use... That's how I did it.

I

> > registered

> > > on the phone and they gave me the fax number for Ivonne (Dr.

> > Gagner's nurse)

> > > to send the prescription to.

> > >

> > > Alternately, their address IS: Cystis Fibrosis Foundation

Pharmacy

> > Services,

> > > 6931 Arlington Road, 2nd Floor, Bethesda, land 20814. It

might

> > help to

> > > call (you may have to leave a message initially since they don't

> > seem to have

> > > live operators) to get a person's name as a contact to check up

on

> > the script

> > > arrival, etc?

> > >

> > > I think last time I called they said they have a website, too

where

> > you can

> > > re-order (the initial order must be placed the 'old fashioned

way',

> > I guess).

> > >

> > > You can always have the Mt. Sinai office fax the script over,

too!

> > >

> > > All the best,

> > >

> > > laparoscopic BPD/DS with gallbladder removal

> > > Dr. Gagner, Dr. Quinn assisting/Mt. Sinai, NYC

> > > January 25, 2001

> > > 75 days post-op and still feelin' fab! :)

> >

> >

> > ------------------------------------------------------------------

----

> >

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