Encouraging News for those with ASD kids, was: Re: almond flour or coconut flour?

[Guest guest]

Thanks PJ and right back at ya!

This change in how we eat has resulted in a shift in how we live. We are home more now, our budget is more focused on good things, less on material items and eating out, we spend more time together, we are less rush-rush.

All in all SCD has been the greatest blessing I can imagine and it has done WONDERFUL things for my babies. Yesterday I went to my son's Back-to-School Night and his 1st grade teacher and the resource teacher and I talked for a long time (they are very tolerant of me and all my questions and concerns) and, to my shock and amazement, they told me that academically he is achieving at a pretty normal level and that if they didn't know he had a diagnosis they would have never guessed. He needs a little bit more time to complete his work but the results are comparable to the rest of his classmates, he raises his hand and participates, he gets up in front of the kids and speaks when asked to (actually, he loves stages, theater and public speaking, I think it is less intimate than one-on-one conversation so less threatening. ), works really hard and for really long periods of time!!

You could have knocked me over with a feather. I asked them at least twice if they were kidding me. This same child at the end of Kindergarten spent his free time pacing the perimeter of the room, mouthing his fingers and mumbling to himself, couldn't complete more than half of his work when in school, froze and forgot most of what he knew when asked and never raised his hand to volunteer information EVER. This is a MAJOR change and the work he is doing cannot be explained by 3 months of growth over a summer, it is cognitive leaps and bounds beyond what he could do in May. If I weren't so THRILLED I would be sobbing in a heap on the floor right now!!

SCD is a miracle for the ASD kids that are that way primarily due to gut issues. Simply a miracle. I tell everyone about it and urge them to tell everyone they know b/c it hurts me to think there are kiddos out there that could have their lives changed by this diet and their moms and dads have no idea how extraordinary it can be. I told my husband this whole experience may cause me to start going to church for the first time in my life because I feel truly that in many ways Elijah should have been even more sick than he was and many random things occurred that protected him from further damage, and now I have lucked into an amazing doctor for him and tons of encouragement and gentle shoving from him to look into SCD, which I *knew* would help him but I was afraid of it b/c of the nuts and dairy and the boys' allergies. One night Elijah's stool was all bright red blood and green water and mucus and that scared me stiff and I

shot out to the store to buy chicken, carrots, hamburger, gelatin and legal juice and the rest is history. I feel now that the path was laid before me because I hear all the time how people who have been in the ASD community for years still know nothing about SCD and my son just got his diagnosis in January and here we are already. Amazing.

Thank you to each and every one of you, your knowledge, support, encouragement and always stressing the importance of adherence have made doing this so much easier. His progress is thanks in part to your efforts and I can't thank you enough, especially Marilyn for creating this listserve and keeping us on the straight and narrow. My child's life is forever changed for the better.

Chrissy

mama to 3 boys on SCD 3 months

Subject: Re: almond flour or coconut flour?To: BTVC-SCD Date: Friday, August 21, 2009, 10:11 AM

You are doing an amazing job taking care of your family. I'm going to try this one on my kids!PJ> >> > Liz, in the first few weeks both are tough on most people. Coconut flour is especially fibrous and

considered advanced. From what I have heard pecan flour is the easiest to digest of all the flours but most people do nut butters first, since they are more digestible than flour. This early in the diet it seems that most people can't do nut butters or flours. Pecanbread.com is a good place to go for some guidelines on what tends to be easier to digest and how to do the intro and so on. It is a site intended for children with autism who are on SCD but the parents who have put it together have years of experience with SCD and lots of wisdom to share.> > Good luck!> > Chrissy> > mama to 3 boys on SCD almost 3 months> >>

[Guest guest]

Thanks PJ and right back at ya!

This change in how we eat has resulted in a shift in how we live. We are home more now, our budget is more focused on good things, less on material items and eating out, we spend more time together, we are less rush-rush.

All in all SCD has been the greatest blessing I can imagine and it has done WONDERFUL things for my babies. Yesterday I went to my son's Back-to-School Night and his 1st grade teacher and the resource teacher and I talked for a long time (they are very tolerant of me and all my questions and concerns) and, to my shock and amazement, they told me that academically he is achieving at a pretty normal level and that if they didn't know he had a diagnosis they would have never guessed. He needs a little bit more time to complete his work but the results are comparable to the rest of his classmates, he raises his hand and participates, he gets up in front of the kids and speaks when asked to (actually, he loves stages, theater and public speaking, I think it is less intimate than one-on-one conversation so less threatening. ), works really hard and for really long periods of time!!

You could have knocked me over with a feather. I asked them at least twice if they were kidding me. This same child at the end of Kindergarten spent his free time pacing the perimeter of the room, mouthing his fingers and mumbling to himself, couldn't complete more than half of his work when in school, froze and forgot most of what he knew when asked and never raised his hand to volunteer information EVER. This is a MAJOR change and the work he is doing cannot be explained by 3 months of growth over a summer, it is cognitive leaps and bounds beyond what he could do in May. If I weren't so THRILLED I would be sobbing in a heap on the floor right now!!

SCD is a miracle for the ASD kids that are that way primarily due to gut issues. Simply a miracle. I tell everyone about it and urge them to tell everyone they know b/c it hurts me to think there are kiddos out there that could have their lives changed by this diet and their moms and dads have no idea how extraordinary it can be. I told my husband this whole experience may cause me to start going to church for the first time in my life because I feel truly that in many ways Elijah should have been even more sick than he was and many random things occurred that protected him from further damage, and now I have lucked into an amazing doctor for him and tons of encouragement and gentle shoving from him to look into SCD, which I *knew* would help him but I was afraid of it b/c of the nuts and dairy and the boys' allergies. One night Elijah's stool was all bright red blood and green water and mucus and that scared me stiff and I

shot out to the store to buy chicken, carrots, hamburger, gelatin and legal juice and the rest is history. I feel now that the path was laid before me because I hear all the time how people who have been in the ASD community for years still know nothing about SCD and my son just got his diagnosis in January and here we are already. Amazing.

Thank you to each and every one of you, your knowledge, support, encouragement and always stressing the importance of adherence have made doing this so much easier. His progress is thanks in part to your efforts and I can't thank you enough, especially Marilyn for creating this listserve and keeping us on the straight and narrow. My child's life is forever changed for the better.

Chrissy

mama to 3 boys on SCD 3 months

Subject: Re: almond flour or coconut flour?To: BTVC-SCD Date: Friday, August 21, 2009, 10:11 AM

You are doing an amazing job taking care of your family. I'm going to try this one on my kids!PJ> >> > Liz, in the first few weeks both are tough on most people. Coconut flour is especially fibrous and

considered advanced. From what I have heard pecan flour is the easiest to digest of all the flours but most people do nut butters first, since they are more digestible than flour. This early in the diet it seems that most people can't do nut butters or flours. Pecanbread.com is a good place to go for some guidelines on what tends to be easier to digest and how to do the intro and so on. It is a site intended for children with autism who are on SCD but the parents who have put it together have years of experience with SCD and lots of wisdom to share.> > Good luck!> > Chrissy> > mama to 3 boys on SCD almost 3 months> >>

[Guest guest]

At 11:57 AM 8/21/2009, you wrote:

His progress is thanks in part

to your efforts and I can't thank you enough, especially Marilyn for

creating this listserve and keeping us on the straight and narrow.

My child's life is forever changed for the better.

Chrissy,

And that miracle -- along with so many others -- is one of the reasons I,

and the other wonderful moderators on this list stick around. To teach.

To heal. To HELP.

It's so wonderful to read posts like this.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 11:57 AM 8/21/2009, you wrote:

His progress is thanks in part

to your efforts and I can't thank you enough, especially Marilyn for

creating this listserve and keeping us on the straight and narrow.

My child's life is forever changed for the better.

Chrissy,

And that miracle -- along with so many others -- is one of the reasons I,

and the other wonderful moderators on this list stick around. To teach.

To heal. To HELP.

It's so wonderful to read posts like this.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

This is awesome news about your son. It's nice to get some positive feedback

from the school.

Keep up the good work.

PJ

> >His progress is thanks in part to your efforts

> >and I can't thank you enough, especially Marilyn

> >for creating this listserve and keeping us on

> >the straight and narrow. My child's life is forever changed for the better.

>

> Chrissy,

>

> And that miracle -- along with so many others --

> is one of the reasons I, and the other wonderful

> moderators on this list stick around. To teach. To heal. To HELP.

>

> It's so wonderful to read posts like this.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>