Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Marilyn, Thank you for your help! My daughter has Crohn's Colitis and has been sick for about 7 years. She has been on the SCD for 7 1/2 months now. I have heard this group is very helpful - Thanks again, Dene' > >How do I receive the e-mails from this group? > >How do I post questions and receive answers? > >Does this work through e-mail will it send the > >e-mails to my e-mail site or do I go to the yahoo group site every time? > > Dene, > > I've set you to getting the digest, as that is > what many people prefer. If you want single > emails, you can go to the group's site, and edit > your preferences to receive individual emails. > > Welcome! > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 At 06:06 AM 10/6/2009, you wrote: I have heard this group is very helpful - Well, we sure try! How is your daughter doing? — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 > My daughter has Crohn's Colitis and has been bery sick the past 2 years. > She has lost 30 pounds and has had to have abscess surgery this past > spring (that is when we started the SCD) - she is still having bleeding > and inflammation in that area, but seems to be feeling stronger on this > SCD. We just sent to the doctor yesterday (to get a Remicade treatment) > and she had lost 3 more pounds. We are a little discourged. I need to > ask this group about how to put weight on her.> Thanks for your help,> Dene'ly, it's not at all easy to gain weight on this diet. Which doesn't mean you shouldn't try it! It has many other benefits.You might also look into getting a prescription for LDN for her (low-dose naltrexone). That would be FAR prefeable to Remicade. And could do -- and probably will do -- wonders (along with the SCD). If you're unfamilier with LDN, see for starters www.lowdosenaltrexone.orgn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 > My daughter has Crohn's Colitis and has been bery sick the past 2 years. > She has lost 30 pounds and has had to have abscess surgery this past > spring (that is when we started the SCD) - she is still having bleeding > and inflammation in that area, but seems to be feeling stronger on this > SCD. We just sent to the doctor yesterday (to get a Remicade treatment) > and she had lost 3 more pounds. We are a little discourged. I need to > ask this group about how to put weight on her.> Thanks for your help,> Dene'ly, it's not at all easy to gain weight on this diet. Which doesn't mean you shouldn't try it! It has many other benefits.You might also look into getting a prescription for LDN for her (low-dose naltrexone). That would be FAR prefeable to Remicade. And could do -- and probably will do -- wonders (along with the SCD). If you're unfamilier with LDN, see for starters www.lowdosenaltrexone.orgn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 > My daughter has Crohn's Colitis and has been bery sick the past 2 years. > She has lost 30 pounds and has had to have abscess surgery this past > spring (that is when we started the SCD) - she is still having bleeding > and inflammation in that area, but seems to be feeling stronger on this > SCD. We just sent to the doctor yesterday (to get a Remicade treatment) > and she had lost 3 more pounds. We are a little discourged. I need to > ask this group about how to put weight on her.> Thanks for your help,> Dene'ly, it's not at all easy to gain weight on this diet. Which doesn't mean you shouldn't try it! It has many other benefits.You might also look into getting a prescription for LDN for her (low-dose naltrexone). That would be FAR prefeable to Remicade. And could do -- and probably will do -- wonders (along with the SCD). If you're unfamilier with LDN, see for starters www.lowdosenaltrexone.orgn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009  We just sent to the doctor yesterday (to get a Remicade treatment) > and she had lost 3 more pounds. We are a little discourged. I need to > ask this group about how to put weight on her.> Thanks for your help,> Dene'ly, it's not at all easy to gain weight on this diet. Which doesn't mean you shouldn't try it! It has many other benefits.You might also look into getting a prescription for LDN for her (low-dose naltrexone). That would be FAR prefeable to Remicade. And could do -- and probably will do -- wonders (along with the SCD). If you're unfamilier with LDN, see for starters www.lowdosenaltrexone.org nHi Dene- I agree with n. Remicade suppresses the immune system, and when you do that, it is hard for the body to heal itself. Avoid that if at all possible. The weight gain comes once healing occurs. The body cannot absorb nutrients properly when there is so much inflammation. I don't know how you started the diet, or what foods your daugther is now eating, but it is best to start with the intro, and only easiest to digest foods, which means peeling and cooking fruits and veggies. This give the gut a chance to heal. If you never did that, you may want to go back and start with the intro diet. Diane D. 13yd dx w/Crohn's 6/07 SCD med-free since 12/20/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009  We just sent to the doctor yesterday (to get a Remicade treatment) > and she had lost 3 more pounds. We are a little discourged. I need to > ask this group about how to put weight on her.> Thanks for your help,> Dene'ly, it's not at all easy to gain weight on this diet. Which doesn't mean you shouldn't try it! It has many other benefits.You might also look into getting a prescription for LDN for her (low-dose naltrexone). That would be FAR prefeable to Remicade. And could do -- and probably will do -- wonders (along with the SCD). If you're unfamilier with LDN, see for starters www.lowdosenaltrexone.org nHi Dene- I agree with n. Remicade suppresses the immune system, and when you do that, it is hard for the body to heal itself. Avoid that if at all possible. The weight gain comes once healing occurs. The body cannot absorb nutrients properly when there is so much inflammation. I don't know how you started the diet, or what foods your daugther is now eating, but it is best to start with the intro, and only easiest to digest foods, which means peeling and cooking fruits and veggies. This give the gut a chance to heal. If you never did that, you may want to go back and start with the intro diet. Diane D. 13yd dx w/Crohn's 6/07 SCD med-free since 12/20/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009  We just sent to the doctor yesterday (to get a Remicade treatment) > and she had lost 3 more pounds. We are a little discourged. I need to > ask this group about how to put weight on her.> Thanks for your help,> Dene'ly, it's not at all easy to gain weight on this diet. Which doesn't mean you shouldn't try it! It has many other benefits.You might also look into getting a prescription for LDN for her (low-dose naltrexone). That would be FAR prefeable to Remicade. And could do -- and probably will do -- wonders (along with the SCD). If you're unfamilier with LDN, see for starters www.lowdosenaltrexone.org nHi Dene- I agree with n. Remicade suppresses the immune system, and when you do that, it is hard for the body to heal itself. Avoid that if at all possible. The weight gain comes once healing occurs. The body cannot absorb nutrients properly when there is so much inflammation. I don't know how you started the diet, or what foods your daugther is now eating, but it is best to start with the intro, and only easiest to digest foods, which means peeling and cooking fruits and veggies. This give the gut a chance to heal. If you never did that, you may want to go back and start with the intro diet. Diane D. 13yd dx w/Crohn's 6/07 SCD med-free since 12/20/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 I started out at 94 pounds, dropped to 90 at around month 4, and then started gaining at around month 6. I've been on Humira the whole time I've been SCD, and it doesn't seem to have slowed my healing down. I would think Remicade wouldn't be any different. Holly Crohn's SCD 12/01/08 > How long did it take for most of you to turn the corner and start to heal and gain weight? Is she going at a slower pace because of the Remicade? > Dene' > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2009 Report Share Posted October 7, 2009 I started out at 94 pounds, dropped to 90 at around month 4, and then started gaining at around month 6. I've been on Humira the whole time I've been SCD, and it doesn't seem to have slowed my healing down. I would think Remicade wouldn't be any different. Holly Crohn's SCD 12/01/08 > How long did it take for most of you to turn the corner and start to heal and gain weight? Is she going at a slower pace because of the Remicade? > Dene' > > Quote Link to comment Share on other sites More sharing options...
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