Update

[Guest guest]

Ann Marie

I will keep your family in my thoughts and prayers as you face another

rough spot with Joe. It is lots for a 5 year old to go through as it

is for the rest of the family.

Hugs,

laurie

[Guest guest]

Hi, you guys are in our thoughts. I have a question - is your son's

condition similar to spina bifida? I know that Vanderbilt has done

some amazing fetal surgeries on spina bifida kids, I wonder if that

might be a place to look at.

I've had a similar symptom (dragging left leg in my case, and lost of

feeling) due purely to sciatica, one of my disks was exploded. Is it

possible he is getting spinal nerve involvement for a different

reason, perhaps the progress of other things is unrelated?

I have gait problems and drag my leg now as part of my mito symptoms,

is he on the mito cocktail?

I guess I'd think if he seems to have the same level of symptoms no

matter what, it would be spinal cord related, but if there was any

variety in his symptoms, I'd think disk (or tendon) damage, or mito.

Hope this isn't totally in left field for the situation, but just

based on my experience.

Take care,

RH

> Hi all,

> Joe is having more problems, this time with his right leg

> not working (he's limping and not using the right leg

> basically dragging it along).

> After more X-rays and thorasic/lumbar spinal MRI, there is

> concern that his spinal chord is having more problems.

> Joe saw his local neurologist yesterday and confirmed that

> the syrinx (fluid filled cavity in the spinal canal) is definitely

> larger than on previous films and there appears to be more

> fatty lipomas in the chord. Both issues (rethethering or enlarging

> syrinx) seem to be at this point have another spinal chord surgery

> looking very likely. It doesn't appear at this point to

> be retethered (but it could be in the process of tethering again)

> but she is very concerned that we see the neurosurgeon ASAP.

> She also ordered an MRI of the brain and cervical spine, we go

> monday for that. Hopefully there isn't more going on. We are

> schedule for the 4th in DC but are trying to get Joe seen sooner.

> Any input, support and prayers would be most appreciated.

> Hope you all have a wonderful Easter weekend.

> Praying for us all,

> AnnMarie L. - Complex IV (pre-diabetic, hypothyroid,

adrenal/endocrine

> issues)

> Married to my best friend Rick,

> Very Busy Mom to (15), (12), Cassandra (6) and

> Joe (5) - complex IV, lactic acidosis, CP,

> tethered chord syndrome, dysautonomia, and

> a smile that never quits :-)

[Guest guest]

Hi,

The tethered spinal chord is usually associated with spina bifida,

but Joe's case is rare b/c he doesn't have spina bifida. He had

the chord repaired once already and it is very rare to have it

retether. Then again, Joe is quite medically unique. The MRI

we had done doesn't show any disk issues but the syrinx in the spinal

canal, since it is enlarging, is putting pressure on the spinal chord.

He has been on the mito cocktail for 2 years now and has had

incredible progress since it started. I talked to our mito specialist

about what is happening now, as I was also concerned that it might be

the mito, but she felt that it probably wasn't. All the docs we have

dealt with over the last few weeks seem to feel that his spinal issues

are the primary cause of his deterioration. But we are doing a head

and cervical spine MRI on Monday, just to be sure that there isn't

more going on with Joe.

Thanks,

Praying for us all,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid,

adrenal/endocrine issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP,

tethered chord syndrome, dysautonomia, and

a smile that never quits :-)

>

> Hi, you guys are in our thoughts. I have a question - is your son's

> condition similar to spina bifida? I know that Vanderbilt has done

> some amazing fetal surgeries on spina bifida kids, I wonder if that

> might be a place to look at.

>

> I've had a similar symptom (dragging left leg in my case, and lost of

> feeling) due purely to sciatica, one of my disks was exploded. Is it

> possible he is getting spinal nerve involvement for a different

> reason, perhaps the progress of other things is unrelated?

>

> I have gait problems and drag my leg now as part of my mito symptoms,

> is he on the mito cocktail?

>

> I guess I'd think if he seems to have the same level of symptoms no

> matter what, it would be spinal cord related, but if there was any

> variety in his symptoms, I'd think disk (or tendon) damage, or mito.

> Hope this isn't totally in left field for the situation, but just

> based on my experience.

>

> Take care,

> RH

>

> > Praying for us all,

> > AnnMarie L. - Complex IV (pre-diabetic, hypothyroid,

> adrenal/endocrine

> > issues)

> > Married to my best friend Rick,

> > Very Busy Mom to (15), (12), Cassandra (6) and

> > Joe (5) - complex IV, lactic acidosis, CP,

> > tethered chord syndrome, dysautonomia, and

> > a smile that never quits :-)

[Guest guest]

Hi AnnMarie, sorry to hear that your son is having so much trouble

with his spine, not sure if this would apply to him at all, but i

have spinal and disc deterioration, i also have a perminant, ununite

fracture in my lower spine, and i was told although bone and joint

disease is prominant in my family, having mito, can be a serious

culprit, in my case my back muscle are very weak and we do need our

muscles to help support our spine and to help keep it healthy. My

son Matt has scoliosis, and once again due to weak muscle in his

back, the mito is not helping his spinal cord much either. I wonder

if there is a mito link with your sons spinal problems too?? Maybe

Its worth asking about. I hope they find the answers so they can

help your precious son!! And i pray its not causing him

discomfort, God knows mito is enough with out these other problems

to deal with too. Barb

[Guest guest]

Alice,

The following note was on s website:

" Janet just called with some encouraging news today! They anticipate that

will get out of ICU and move to a regular room today! She is still

receiving TPN, and they feel if things continue to go well that

might go home by the end of the week " A later note said her father called

the church and reported that will stay in ICU a couple of more days

to be monitored, but she is getting up out of bed to use the restroom.

Kristie

Message: 8

Date: Wed, 06 Apr 2005 04:17:04 -0000

Subject: Re: Malisa still in hospital?

Ann Marie,

Please send my love to Malisa. I can't believe this. She was working

so hard on the care package for . Does anyone know how

is doing?

Alice

Love and Hugs,

Kristie

www.caringbridge.org/pa/kristie

[Guest guest]

Thanks for the update on , Kristie. This is sounding better all the

time.

I just looked at your caringbridge site. It’s wonderful. I did sign your

guestbook. I had forgotten all about mine so I did some mind tapping and

low and behold I came up with my own caringbridge site. You can see that I

haven’t done anything but it’s a good reminder to get busy on it.

Alice

http://www3.caringbridge.org/nm/justagram

________________________________________

From: Kristie Palmer

Sent: Wednesday, April 06, 2005 9:15 AM

To: Mitoldies

Subject: Re: update

Alice,

The following note was on s website:

" Janet just called with some encouraging news today! They anticipate that

will get out of ICU and move to a regular room today! She is still

receiving TPN, and they feel if things continue to go well that

might go home by the end of the week "   A later note said her father called

the church and reported that will stay in ICU a couple of more days

to be monitored, but she is getting up out of bed to use the restroom.

Kristie

Message: 8        

   Date: Wed, 06 Apr 2005 04:17:04 -0000

  

Subject: Re: Malisa still in hospital?

Ann Marie,

Please send my love to Malisa.  I can't believe this.  She was working

so hard on the care package for .  Does anyone know how

is doing?

Alice

Love and Hugs,

Kristie

www.caringbridge.org/pa/kristie

[Guest guest]

a

Thanks for the update on . I hope that home remains in sight.

laurie

>

> Hi all. I just checked 's caring bridge site and there was this

> update from Saturday.

>

> Janet called just now with this update. They anticipate that will

> be released to go home with TPN on Monday. Please pray that things go

> well so that this will be a reality. still has pain in her

> abdomen and legs and back. Pray for this to get better. And,we all THANK

> GOD for all He has brought through and what He is doing even now

> to help her and her family. Thanks so much for praying! Please continue

> praying for ! :0)

>

> I am hoping all will go well and that this will become a reality for her.

> She has really been fighting the past month.

>

> Smiles,

> a

>

>

[Guest guest]

I will continue to keep her in my thoughts and prayers. I could stand a few

extra prayers also, I am recovering nicely (I guess) from surgery April first,

my right arm is still in a cast and that makes it difficult to use the cane or

the walker, I do fine pushing my computer chair in front of me in my apt, but I

have to improvise when I have doctor appts. I see a hematologist who is also a

genetic specialist wednesday and I see a surgeon about possible hernia surgery

the 19th. I will have a second surgery on my wrist and thumb in June, the way

things went on the first, I dread anything else. Good Luck and may God Bless

all of you, Dolores

a C Koch kckoch76@...> wrote:Hi all. I just checked 's

caring bridge site and there was this

update from Saturday.

Janet called just now with this update. They anticipate that will

be released to go home with TPN on Monday. Please pray that things go

well so that this will be a reality. still has pain in her

abdomen and legs and back. Pray for this to get better. And,we all THANK

GOD for all He has brought through and what He is doing even now

to help her and her family. Thanks so much for praying! Please continue

praying for ! :0)

I am hoping all will go well and that this will become a reality for her.

She has really been fighting the past month.

Smiles,

a

[Guest guest]

Delores

I will keep you in my thoughts and prayers.

Good luck at the doc. appt.

laurie

On Sun, 10 Apr 2005 14:46:23 -0700 (PDT), Dolores

doloresskeet@...> wrote:

>

> I will continue to keep her in my thoughts and prayers. I could stand a few

> extra prayers also, I am recovering nicely (I guess) from surgery April

> first, my right arm is still in a cast and that makes it difficult to use

> the cane or the walker, I do fine pushing my computer chair in front of me

> in my apt, but I have to improvise when I have doctor appts. I see a

> hematologist who is also a genetic specialist wednesday and I see a surgeon

> about possible hernia surgery the 19th. I will have a second surgery on my

> wrist and thumb in June, the way things went on the first, I dread anything

> else. Good Luck and may God Bless all of you, Dolores

>

> a C Koch kckoch76@...> wrote:Hi all. I just checked 's

> caring bridge site and there was this

> update from Saturday.

>

> Janet called just now with this update. They anticipate that will

> be released to go home with TPN on Monday. Please pray that things go

> well so that this will be a reality. still has pain in her

> abdomen and legs and back. Pray for this to get better. And,we all THANK

> GOD for all He has brought through and what He is doing even now

> to help her and her family. Thanks so much for praying! Please continue

> praying for ! :0)

>

> I am hoping all will go well and that this will become a reality for her.

> She has really been fighting the past month.

>

> Smiles,

> a

>

>

[Guest guest]

Dolores,

I will be keeping you in my thoughts and prayers.

Smiles,

a

On Sun, 10 Apr 2005 14:46:23 -0700 (PDT) Dolores

doloresskeet@...> writes:

I will continue to keep her in my thoughts and prayers. I could stand a

few extra prayers also, I am recovering nicely (I guess) from surgery

April first, my right arm is still in a cast and that makes it difficult

to use the cane or the walker, I do fine pushing my computer chair in

front of me in my apt, but I have to improvise when I have doctor appts.

I see a hematologist who is also a genetic specialist wednesday and I see

a surgeon about possible hernia surgery the 19th. I will have a second

surgery on my wrist and thumb in June, the way things went on the first,

I dread anything else. Good Luck and may God Bless all of you, Dolores

[Guest guest]

Dolores,

I will be keeping you in my thoughts and prayers.

Smiles,

a

On Sun, 10 Apr 2005 14:46:23 -0700 (PDT) Dolores

doloresskeet@...> writes:

I will continue to keep her in my thoughts and prayers. I could stand a

few extra prayers also, I am recovering nicely (I guess) from surgery

April first, my right arm is still in a cast and that makes it difficult

to use the cane or the walker, I do fine pushing my computer chair in

front of me in my apt, but I have to improvise when I have doctor appts.

I see a hematologist who is also a genetic specialist wednesday and I see

a surgeon about possible hernia surgery the 19th. I will have a second

surgery on my wrist and thumb in June, the way things went on the first,

I dread anything else. Good Luck and may God Bless all of you, Dolores

[Guest guest]

Thank you very much

Laurie Fitzgerald laurie.fitzgerald@...> wrote:Delores

I will keep you in my thoughts and prayers.

Good luck at the doc. appt.

laurie

On Sun, 10 Apr 2005 14:46:23 -0700 (PDT), Dolores

doloresskeet@...> wrote:

>

> I will continue to keep her in my thoughts and prayers. I could stand a few

> extra prayers also, I am recovering nicely (I guess) from surgery April

> first, my right arm is still in a cast and that makes it difficult to use

> the cane or the walker, I do fine pushing my computer chair in front of me

> in my apt, but I have to improvise when I have doctor appts. I see a

> hematologist who is also a genetic specialist wednesday and I see a surgeon

> about possible hernia surgery the 19th. I will have a second surgery on my

> wrist and thumb in June, the way things went on the first, I dread anything

> else. Good Luck and may God Bless all of you, Dolores

>

> a C Koch kckoch76@...> wrote:Hi all. I just checked 's

> caring bridge site and there was this

> update from Saturday.

>

> Janet called just now with this update. They anticipate that will

> be released to go home with TPN on Monday. Please pray that things go

> well so that this will be a reality. still has pain in her

> abdomen and legs and back. Pray for this to get better. And,we all THANK

> GOD for all He has brought through and what He is doing even now

> to help her and her family. Thanks so much for praying! Please continue

> praying for ! :0)

>

> I am hoping all will go well and that this will become a reality for her.

> She has really been fighting the past month.

>

> Smiles,

> a

>

>

[Guest guest]

I'm so happy the party went well, sorry that you're dealing with so

much stress over the doctors. You and your family are in our

thoughts.

I found with Dr. H-P that I ended up speaking to the nurses at the

town MDA, and having them communicate to her worked out very

well - they were able to page her to discuss my case if necessary...

I had an appointment with a very good doctor last week - the problem

was that she is very thorough and writes out the patient instructions

on the spot, so I ended up being late and missing my son's dentist

appointment and had to reschedule.

Take care,

RH

> Hi all, sorry i havent been on for awhile, just busy dealing with

> cancer docs, and dealing with exhaustion. Ive decided to stop

seeing

> my neuro at Hannaman for the time being and seeing my old neuro who

i

> started my mito journey with, he is local and communicates better

and

> can better work with my cancer team. My radiation oncologist

> understands mito and is very concerned about the ramifications of

> cancer to a mito patient. The chemo oncologist on the other hand

is

> clueless about mito, and i need a neuro who will, make him

understand

> every aspect of mito when dealing with me. Anyway my first cancer

> biopsy was a flop, they used the bronciscope, and no camera, and

the

> surgeon didnt get near the cancer. He did do a needle biospy and

found

> a infection in my broncial tube, so im on antibiodics for that

problem.

> I will see a new surgeon Monday (today) to set up a laproscope

biopsy.

> I know the surgery is on Wednesday oncd i get my results from this

i

> will go get a second opinion. We celebrated Matts 9th bithday on

> Saterday, (June 13th is his actual birthday) The party was

awesome,

> and Matt was thrilled. Well thats all for now i will keep yas

posted!

> Hugs, Barb

[Guest guest]

Barbara

Thanks for the update. I am so sorry the biopsy was botched. This has

gone to be hard enough to deal with without delays like this.

laurie

> Hi all, sorry i havent been on for awhile, just busy dealing with

> cancer docs, and dealing with exhaustion. Ive decided to stop seeing

> my neuro at Hannaman for the time being and seeing my old neuro who i

> started my mito journey with, he is local and communicates better and

> can better work with my cancer team. My radiation oncologist

> understands mito and is very concerned about the ramifications of

> cancer to a mito patient. The chemo oncologist on the other hand is

> clueless about mito, and i need a neuro who will, make him understand

> every aspect of mito when dealing with me. Anyway my first cancer

> biopsy was a flop, they used the bronciscope, and no camera, and the

> surgeon didnt get near the cancer. He did do a needle biospy and found

> a infection in my broncial tube, so im on antibiodics for that problem.

> I will see a new surgeon Monday (today) to set up a laproscope biopsy.

> I know the surgery is on Wednesday oncd i get my results from this i

> will go get a second opinion. We celebrated Matts 9th bithday on

> Saterday, (June 13th is his actual birthday) The party was awesome,

> and Matt was thrilled. Well thats all for now i will keep yas posted!

> Hugs, Barb

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Thanks for the update I have been praying for you, and will continue.

Hugs Jan

Update

> Hi all, sorry i havent been on for awhile, just busy dealing with

> cancer docs, and dealing with exhaustion. Ive decided to stop seeing

> my neuro at Hannaman for the time being and seeing my old neuro who i

> started my mito journey with, he is local and communicates better and

> can better work with my cancer team. My radiation oncologist

> understands mito and is very concerned about the ramifications of

> cancer to a mito patient. The chemo oncologist on the other hand is

> clueless about mito, and i need a neuro who will, make him understand

> every aspect of mito when dealing with me. Anyway my first cancer

> biopsy was a flop, they used the bronciscope, and no camera, and the

> surgeon didnt get near the cancer. He did do a needle biospy and found

> a infection in my broncial tube, so im on antibiodics for that problem.

> I will see a new surgeon Monday (today) to set up a laproscope biopsy.

> I know the surgery is on Wednesday oncd i get my results from this i

> will go get a second opinion. We celebrated Matts 9th bithday on

> Saterday, (June 13th is his actual birthday) The party was awesome,

> and Matt was thrilled. Well thats all for now i will keep yas posted!

> Hugs, Barb

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded of

their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Thanks for the update I have been praying for you, and will continue.

Hugs Jan

Update

> Hi all, sorry i havent been on for awhile, just busy dealing with

> cancer docs, and dealing with exhaustion. Ive decided to stop seeing

> my neuro at Hannaman for the time being and seeing my old neuro who i

> started my mito journey with, he is local and communicates better and

> can better work with my cancer team. My radiation oncologist

> understands mito and is very concerned about the ramifications of

> cancer to a mito patient. The chemo oncologist on the other hand is

> clueless about mito, and i need a neuro who will, make him understand

> every aspect of mito when dealing with me. Anyway my first cancer

> biopsy was a flop, they used the bronciscope, and no camera, and the

> surgeon didnt get near the cancer. He did do a needle biospy and found

> a infection in my broncial tube, so im on antibiodics for that problem.

> I will see a new surgeon Monday (today) to set up a laproscope biopsy.

> I know the surgery is on Wednesday oncd i get my results from this i

> will go get a second opinion. We celebrated Matts 9th bithday on

> Saterday, (June 13th is his actual birthday) The party was awesome,

> and Matt was thrilled. Well thats all for now i will keep yas posted!

> Hugs, Barb

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded of

their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Hi ,

Are you worried about something? Why is the bad food still in the house?

You need house cleaning until you get the Carb. Out of your system. once you start thinking protein only you will be surprised by what you can find out there.

Big Hugs

Caryl

Ok, Im doing fairly well getting back on track. But, I am still having some problem controlling my grazing. Its gettin better but still a problem. What the heck is wrong with me!!?? Why cant I pass a bowl of crackers, chips, whatever...and just say no. Why do I mindlessly pop one into my mouth!!! And then another?! Where do I draw on the strength to just shrug my shoulders and abstain?! Why cant I beat this!!!Sigh.............Huggles

Caryl DeHerrerawww.Fantasyinart.net

[Guest guest]

Hi ,

Are you worried about something? Why is the bad food still in the house?

You need house cleaning until you get the Carb. Out of your system. once you start thinking protein only you will be surprised by what you can find out there.

Big Hugs

Caryl

Ok, Im doing fairly well getting back on track. But, I am still having some problem controlling my grazing. Its gettin better but still a problem. What the heck is wrong with me!!?? Why cant I pass a bowl of crackers, chips, whatever...and just say no. Why do I mindlessly pop one into my mouth!!! And then another?! Where do I draw on the strength to just shrug my shoulders and abstain?! Why cant I beat this!!!Sigh.............Huggles

Caryl DeHerrerawww.Fantasyinart.net

[Guest guest]

Hi ,

Are you worried about something? Why is the bad food still in the house?

You need house cleaning until you get the Carb. Out of your system. once you start thinking protein only you will be surprised by what you can find out there.

Big Hugs

Caryl

Ok, Im doing fairly well getting back on track. But, I am still having some problem controlling my grazing. Its gettin better but still a problem. What the heck is wrong with me!!?? Why cant I pass a bowl of crackers, chips, whatever...and just say no. Why do I mindlessly pop one into my mouth!!! And then another?! Where do I draw on the strength to just shrug my shoulders and abstain?! Why cant I beat this!!!Sigh.............Huggles

Caryl DeHerrerawww.Fantasyinart.net

[Guest guest]

Hi Carly, I think it is mainly her place of business

and the type of work Does. I do agree with you

about the carbs and getting them out of her system.

Also, , you are what...2 years out now or vey

close to it. I think it is so easy to get comfortable

with our lives. I say that because I had about 3

grapes last night and I know that we are not suppose

to eat the skin. Without even thinking, I popped in

one then the second and then the third. I chewed and

swallowed and then it set in....I ate the skin. I

paniced but then I said I have to be careful and

remember the basics.

I think that getting back to the basics, one has to

dig deep sometimes...back to the days when you had to

lose the 10% and know that you have to do this..no

matter what. I mean whose going to be hurt if you

don't get back on the stick and reach your goal... " you

are " . Who is going to be disappointed because you

keep going through this revolving door... " you are " .

Who has to look at you and remind you that you fell

short of your goal... " you do " . You see...what I am

getting at is it is up to you (well all of us here to

as well) to do what you know has to be done. You

already know you can do it because you did it to get

this surgery. I suppose that you are so close to your

goal that when you reach it, its sort of like...now

what?

Reaching your goal is only the beginning sistah, its

definitely not the end. I think if you remind

yourself of that, that it will click in your mind and

you will get in gear and do this. Maybe the eating is

some nervousness because of the Marathon. I don't

know. I only want what is best for you and that would

be for you to kick this habit. You can do it but

until your realize this and start believing it, then

nothing will change. You will be going on this

continuous roller coaster with no end in site. Did

you go through everything that you have gone through

to just through it out the window...NO..I don't think

so. Its sort of do or die at this point and you know

that you have to want it more than wanting it.

I love you dearly and I really hate that you

are struggling and for anyone to struggle for that

matter. I need you to remind me when I get to where

you are because although I appear to have all the

advice now, I just might not have the will power or

strength when I am 2 years out as I am only 5 and half

months out and you know I am going to need you to put

me in check...don't you.

I hope I was not too harsh or hard on you but I have

grown to learn that tough love at its best is the best

dose of medicine some times. I really hope you will

find your way through this but as always, I and many

others WILL ALWAYS be here to support you.

Pam Marsh

--- bczion13@... wrote:

>

>

> Hi ,

> Are you worried about something? Why is the bad

> food still in the house?

> You need house cleaning until you get the Carb. Out

> of your system. once you

> start thinking protein only you will be surprised by

> what you can find out

> there.

> Big Hugs

> Caryl

>

>

> Ok, Im doing fairly well getting back on track.

> But, I am still having

> some problem controlling my grazing. Its gettin

> better but still a

> problem. What the heck is wrong with me!!?? Why

> cant I pass a bowl of

> crackers, chips, whatever...and just say no. Why do

> I mindlessly pop

> one into my mouth!!! And then another?! Where do I

> draw on the

> strength to just shrug my shoulders and abstain?!

> Why cant I beat

> this!!!

>

> Sigh.............

>

> Huggles

>

>

>

>

>

>

>

>

> Caryl DeHerrera

> _www.Fantasyinart.net_

> (http://www.fantasyinart.net/)

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

I work in a child care center.....these types of foods...pb and

crackers, salsa and chips are stuff the kids get for snack. I try to

tell myself Im only having the fruit and wind up eating the other

stuff.

Sigh

>

>

> Hi ,

> Are you worried about something? Why is the bad food still in the

house?

> You need house cleaning until you get the Carb. Out of your system.

once you

> start thinking protein only you will be surprised by what you can

find out

> there.

> Big Hugs

> Caryl

>

>

> Ok, Im doing fairly well getting back on track. But, I am still

having

> some problem controlling my grazing. Its gettin better but still a

> problem. What the heck is wrong with me!!?? Why cant I pass a bowl

of

> crackers, chips, whatever...and just say no. Why do I mindlessly

pop

> one into my mouth!!! And then another?! Where do I draw on the

> strength to just shrug my shoulders and abstain?! Why cant I beat

> this!!!

>

> Sigh.............

>

> Huggles

>

>

>

>

>

>

>

>

> Caryl DeHerrera

> _www.Fantasyinart.net_ (http://www.fantasyinart.net/)

[Guest guest]

Look for the Hood countdown yogurt and milk. I cant have any dairy ether.

http://www.hphood.com/products/products.list.Cb.asp

Big Hugs

Caryl

Yeah Ive purchased her stuff before.I think I will switch my protein bar from breakfast to snack time. Ive tried yogurt and it just doesnt do it.Huggles> > > O.K. Honey> > Have you been to _www.vitalady.com_ (http://www.vitalady.com) She has all > protein snack bars and soy treats if you feel the need than at least try her > stuff. I have some of the protein bars yum-Soo good. And her stuff is all > digestible protein WLS patients can digest.she has sample box also.Hope this help > honey I think if you keep satisfied with the protein it will help you.> Big Hugs> Caryl> > > I work in a child care center.....these types of foods...pb and > crackers, salsa and chips are stuff the kids get for snack. I try to

Caryl DeHerrerawww.Fantasyinart.net

[Guest guest]

Look for the Hood countdown yogurt and milk. I cant have any dairy ether.

http://www.hphood.com/products/products.list.Cb.asp

Big Hugs

Caryl

Yeah Ive purchased her stuff before.I think I will switch my protein bar from breakfast to snack time. Ive tried yogurt and it just doesnt do it.Huggles> > > O.K. Honey> > Have you been to _www.vitalady.com_ (http://www.vitalady.com) She has all > protein snack bars and soy treats if you feel the need than at least try her > stuff. I have some of the protein bars yum-Soo good. And her stuff is all > digestible protein WLS patients can digest.she has sample box also.Hope this help > honey I think if you keep satisfied with the protein it will help you.> Big Hugs> Caryl> > > I work in a child care center.....these types of foods...pb and > crackers, salsa and chips are stuff the kids get for snack. I try to

Caryl DeHerrerawww.Fantasyinart.net

[Guest guest]

Yeah Ive purchased her stuff before.

I think I will switch my protein bar from breakfast to snack time.

Ive tried yogurt and it just doesnt do it.

Huggles

> >

> >

> > Hi ,

> > Are you worried about something? Why is the bad food still in

the

> house?

> > You need house cleaning until you get the Carb. Out of your

system.

> once you

> > start thinking protein only you will be surprised by what you

can

> find out

> > there.

> > Big Hugs

> > Caryl

> >

> >

> > Ok, Im doing fairly well getting back on track. But, I am

still

> having

> > some problem controlling my grazing. Its gettin better but

still a

> > problem. What the heck is wrong with me!!?? Why cant I pass a

bowl

> of

> > crackers, chips, whatever...and just say no. Why do I

mindlessly

> pop

> > one into my mouth!!! And then another?! Where do I draw on

the

> > strength to just shrug my shoulders and abstain?! Why cant I

beat

> > this!!!

> >

> > Sigh.............

> >

> > Huggles

> >

> >

> >

> >

> >

> >

> >

> >

> > Caryl DeHerrera

> > _www.Fantasyinart.net_ (http://www.fantasyinart.net/)

>

>

>

>

>

> Yahoo! Groups Links

>

>

>

>

>

>

>

>

>

>

>

>

> Caryl DeHerrera

> _www.Fantasyinart.net_ (http://www.fantasyinart.net/)

[Guest guest]

Dear Hil,

Glad to hear you are feeling better and feeling more like yourself.

Karima

Update

I feel really good just still weak and expect it will take awhile. No pain

from surgery but the arthritis in my spine decided to act up so that puts me

right down in bed. I have morphine from the hospital but don't want to take

that. It is just wonderful to sit and eat a meal without running to the bathroom

as soon as I get two bites. I only go 3 or 4 times a day now instead of the 20

or so. The surgeon had told me I would go more often but easier. I don't think

they believed how many trips upstairs I was taking. I feel almost like a normal

person:) I have not even had to get up during the night.

I know we are using the best medical advances we have but nothing is perfect.

This is the third time this mass has shown on a Pet scan or Pet/CT and it was

NOT cancer. They would have done a biopsy like they did last year but the

striture had gotten worse and they had no way to get up there to just biopsy.At

least this surgeon got a lot of scar tissue out and hope I don't grow anymore:)

I see him on Wed and now my mind is clearer I will get more info. I was not in

to asking questions when they come in hospital at 5 am and your doped up

besides. My CEA was running about 6 then started climbing and before this

surgery had gone up to 12.1. Why that with no cancer I don't know but again it

proves it is not that relieable. It very well could be because my smoking

increased the more my nervous I got. I have finally woke up to the fact I have

to stop smoking and am trying.

Hil