Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Just diagnosed with sleep apnea after suffering with insomnia for eight years and trying every solution possible. Going to be fitted with a cpap machine tomorrow as soon as we hear from the insurance. Any suggestions as to how to adapt to the paraphanalia? Do you have sleep apnea? Where did you find the most info? Marilyn (Star) m.pfanstiel@... www.emergingcourageous.com --- modulemaster roger@...> wrote: > > > I was diagnosed w/sleep apnea in 1997. I have been > a faithful user of > > the CPAP machine (I get severe migraines when I do > not use it). Even > > with the CPAP I do not get restful sleep. The mask > will slip, can't > > turn the way I like to turn, etc. I was diagnosed > w/Fibro in December > > 2001. My fibro symptoms are much more prevalent > when I go through a > > period of nights when I don't sleep well! It then > takes me a week or > > so of good, restful sleep to get to the point I > feel better again. I > > do believe the apnea has some affect on my fibro - > not sure if it > > CAUSED it - but it does AFFECT it! > > > Jeanette: > I would encourage you to lurk the sleep apnea forum > at sleepnet.com > because you will find many apnea sufferers that are > on cpap, and when > they take a 30min nap without it, it takes a week to > recover. It's > easy to make a cause/effect relationship in that > case, but there are > also people that develop pains after months of > missing cpap 30min a > day. That connection is harder to make but I know > for a fact it's > true in some people. So, I would encourage you to > do an experiment: > For 6 weeks, don't ever sleep without cpap, even for > a nap, and see > what happens. You might be suprised. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Just diagnosed with sleep apnea after suffering with insomnia for eight years and trying every solution possible. Going to be fitted with a cpap machine tomorrow as soon as we hear from the insurance. Any suggestions as to how to adapt to the paraphanalia? Do you have sleep apnea? Where did you find the most info? Marilyn (Star) m.pfanstiel@... www.emergingcourageous.com --- modulemaster roger@...> wrote: > > > I was diagnosed w/sleep apnea in 1997. I have been > a faithful user of > > the CPAP machine (I get severe migraines when I do > not use it). Even > > with the CPAP I do not get restful sleep. The mask > will slip, can't > > turn the way I like to turn, etc. I was diagnosed > w/Fibro in December > > 2001. My fibro symptoms are much more prevalent > when I go through a > > period of nights when I don't sleep well! It then > takes me a week or > > so of good, restful sleep to get to the point I > feel better again. I > > do believe the apnea has some affect on my fibro - > not sure if it > > CAUSED it - but it does AFFECT it! > > > Jeanette: > I would encourage you to lurk the sleep apnea forum > at sleepnet.com > because you will find many apnea sufferers that are > on cpap, and when > they take a 30min nap without it, it takes a week to > recover. It's > easy to make a cause/effect relationship in that > case, but there are > also people that develop pains after months of > missing cpap 30min a > day. That connection is harder to make but I know > for a fact it's > true in some people. So, I would encourage you to > do an experiment: > For 6 weeks, don't ever sleep without cpap, even for > a nap, and see > what happens. You might be suprised. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Just diagnosed with sleep apnea after suffering with insomnia for eight years and trying every solution possible. Going to be fitted with a cpap machine tomorrow as soon as we hear from the insurance. Any suggestions as to how to adapt to the paraphanalia? Do you have sleep apnea? Where did you find the most info? Marilyn (Star) m.pfanstiel@... www.emergingcourageous.com --- modulemaster roger@...> wrote: > > > I was diagnosed w/sleep apnea in 1997. I have been > a faithful user of > > the CPAP machine (I get severe migraines when I do > not use it). Even > > with the CPAP I do not get restful sleep. The mask > will slip, can't > > turn the way I like to turn, etc. I was diagnosed > w/Fibro in December > > 2001. My fibro symptoms are much more prevalent > when I go through a > > period of nights when I don't sleep well! It then > takes me a week or > > so of good, restful sleep to get to the point I > feel better again. I > > do believe the apnea has some affect on my fibro - > not sure if it > > CAUSED it - but it does AFFECT it! > > > Jeanette: > I would encourage you to lurk the sleep apnea forum > at sleepnet.com > because you will find many apnea sufferers that are > on cpap, and when > they take a 30min nap without it, it takes a week to > recover. It's > easy to make a cause/effect relationship in that > case, but there are > also people that develop pains after months of > missing cpap 30min a > day. That connection is harder to make but I know > for a fact it's > true in some people. So, I would encourage you to > do an experiment: > For 6 weeks, don't ever sleep without cpap, even for > a nap, and see > what happens. You might be suprised. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2002 Report Share Posted June 27, 2002 I have been on a CPAP since 1997 for sleep apnea. Believe it or not, I adapted relatively well to the 'confinement' as long as it was cool - almost cold - in the bedroom. The least bit of heat makes me very uncomfortable. There are several types of masks that go with the CPAP. If the first doesn't work, have your medical supplier look at other options for you. Some people like nasal pillows which cover less area. I personally preferred a mask. But each has to chose. Sleepnet.com has a ton of information on sleep apnea. Cpapman.com is also a very good site to see the various masks available. I have had some trouble in the last 18 months with not being able to sleep well. Don't really know if it is the sleep apnea or the Fibro or if the apnea caused the fibro, etc. Anyway, I a Good luck. If you have any questions, I would be happy to try to help if I can. Jeanette > Just diagnosed with sleep apnea after suffering with > insomnia for eight years and trying every solution > possible. Going to be fitted with a cpap machine > tomorrow as soon as we hear from the insurance. Any > suggestions as to how to adapt to the paraphanalia? Do > you have sleep apnea? Where did you find the most > info? Marilyn (Star) > m.pfanstiel@v... > www.emergingcourageous.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 Marilyn, I do have a couple of suggestions for you. My daughter is on CPAP. 1) See if you can get it set up in Bi-PAP mode. The CPAP will make you feel a little panicky at first. It is very uncomfortable to have air blowing in your nose. Now, this is not to scare you. You will get used to it and it will no longer bother you. So, the BiPAP mode is a little less unmfortable. The CPAP gives a constant flow of air pressure. The BiPap only gives the pressure when you take a breath, and\or if you don't take a breath for a certain number of seconds it will go ahead and give you positive pressure, which, in turn, will trigger you to take a breath on your own. They both use the same machine and the same equipment. 2) It may help TONS to get a prescription for Trazadone or something to knock you out at first, that way you are not laying there awake with a panicky feeling, fighting it. I promise that once you get used to it (which could take a few days or even a few hours) you will actually like sleeping with it much more than not. You will prefer the comfort you receive from sleeping with the positive air pressure. Sincerely, Pamela Rauch Re: Re: Sleep Apnea Just diagnosed with sleep apnea after suffering with insomnia for eight years and trying every solution possible. Going to be fitted with a cpap machine tomorrow as soon as we hear from the insurance. Any suggestions as to how to adapt to the paraphanalia? Do you have sleep apnea? Where did you find the most info? Marilyn (Star) m.pfanstiel@... www.emergingcourageous.com --- modulemaster roger@...> wrote: > > > I was diagnosed w/sleep apnea in 1997. I have been > a faithful user of > > the CPAP machine (I get severe migraines when I do > not use it). Even > > with the CPAP I do not get restful sleep. The mask > will slip, can't > > turn the way I like to turn, etc. I was diagnosed > w/Fibro in December > > 2001. My fibro symptoms are much more prevalent > when I go through a > > period of nights when I don't sleep well! It then > takes me a week or > > so of good, restful sleep to get to the point I > feel better again. I > > do believe the apnea has some affect on my fibro - > not sure if it > > CAUSED it - but it does AFFECT it! > > > Jeanette: > I would encourage you to lurk the sleep apnea forum > at sleepnet.com > because you will find many apnea sufferers that are > on cpap, and when > they take a 30min nap without it, it takes a week to > recover. It's > easy to make a cause/effect relationship in that > case, but there are > also people that develop pains after months of > missing cpap 30min a > day. That connection is harder to make but I know > for a fact it's > true in some people. So, I would encourage you to > do an experiment: > For 6 weeks, don't ever sleep without cpap, even for > a nap, and see > what happens. You might be suprised. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 Marilyn, I do have a couple of suggestions for you. My daughter is on CPAP. 1) See if you can get it set up in Bi-PAP mode. The CPAP will make you feel a little panicky at first. It is very uncomfortable to have air blowing in your nose. Now, this is not to scare you. You will get used to it and it will no longer bother you. So, the BiPAP mode is a little less unmfortable. The CPAP gives a constant flow of air pressure. The BiPap only gives the pressure when you take a breath, and\or if you don't take a breath for a certain number of seconds it will go ahead and give you positive pressure, which, in turn, will trigger you to take a breath on your own. They both use the same machine and the same equipment. 2) It may help TONS to get a prescription for Trazadone or something to knock you out at first, that way you are not laying there awake with a panicky feeling, fighting it. I promise that once you get used to it (which could take a few days or even a few hours) you will actually like sleeping with it much more than not. You will prefer the comfort you receive from sleeping with the positive air pressure. Sincerely, Pamela Rauch Re: Re: Sleep Apnea Just diagnosed with sleep apnea after suffering with insomnia for eight years and trying every solution possible. Going to be fitted with a cpap machine tomorrow as soon as we hear from the insurance. Any suggestions as to how to adapt to the paraphanalia? Do you have sleep apnea? Where did you find the most info? Marilyn (Star) m.pfanstiel@... www.emergingcourageous.com --- modulemaster roger@...> wrote: > > > I was diagnosed w/sleep apnea in 1997. I have been > a faithful user of > > the CPAP machine (I get severe migraines when I do > not use it). Even > > with the CPAP I do not get restful sleep. The mask > will slip, can't > > turn the way I like to turn, etc. I was diagnosed > w/Fibro in December > > 2001. My fibro symptoms are much more prevalent > when I go through a > > period of nights when I don't sleep well! It then > takes me a week or > > so of good, restful sleep to get to the point I > feel better again. I > > do believe the apnea has some affect on my fibro - > not sure if it > > CAUSED it - but it does AFFECT it! > > > Jeanette: > I would encourage you to lurk the sleep apnea forum > at sleepnet.com > because you will find many apnea sufferers that are > on cpap, and when > they take a 30min nap without it, it takes a week to > recover. It's > easy to make a cause/effect relationship in that > case, but there are > also people that develop pains after months of > missing cpap 30min a > day. That connection is harder to make but I know > for a fact it's > true in some people. So, I would encourage you to > do an experiment: > For 6 weeks, don't ever sleep without cpap, even for > a nap, and see > what happens. You might be suprised. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 Marilyn, I do have a couple of suggestions for you. My daughter is on CPAP. 1) See if you can get it set up in Bi-PAP mode. The CPAP will make you feel a little panicky at first. It is very uncomfortable to have air blowing in your nose. Now, this is not to scare you. You will get used to it and it will no longer bother you. So, the BiPAP mode is a little less unmfortable. The CPAP gives a constant flow of air pressure. The BiPap only gives the pressure when you take a breath, and\or if you don't take a breath for a certain number of seconds it will go ahead and give you positive pressure, which, in turn, will trigger you to take a breath on your own. They both use the same machine and the same equipment. 2) It may help TONS to get a prescription for Trazadone or something to knock you out at first, that way you are not laying there awake with a panicky feeling, fighting it. I promise that once you get used to it (which could take a few days or even a few hours) you will actually like sleeping with it much more than not. You will prefer the comfort you receive from sleeping with the positive air pressure. Sincerely, Pamela Rauch Re: Re: Sleep Apnea Just diagnosed with sleep apnea after suffering with insomnia for eight years and trying every solution possible. Going to be fitted with a cpap machine tomorrow as soon as we hear from the insurance. Any suggestions as to how to adapt to the paraphanalia? Do you have sleep apnea? Where did you find the most info? Marilyn (Star) m.pfanstiel@... www.emergingcourageous.com --- modulemaster roger@...> wrote: > > > I was diagnosed w/sleep apnea in 1997. I have been > a faithful user of > > the CPAP machine (I get severe migraines when I do > not use it). Even > > with the CPAP I do not get restful sleep. The mask > will slip, can't > > turn the way I like to turn, etc. I was diagnosed > w/Fibro in December > > 2001. My fibro symptoms are much more prevalent > when I go through a > > period of nights when I don't sleep well! It then > takes me a week or > > so of good, restful sleep to get to the point I > feel better again. I > > do believe the apnea has some affect on my fibro - > not sure if it > > CAUSED it - but it does AFFECT it! > > > Jeanette: > I would encourage you to lurk the sleep apnea forum > at sleepnet.com > because you will find many apnea sufferers that are > on cpap, and when > they take a 30min nap without it, it takes a week to > recover. It's > easy to make a cause/effect relationship in that > case, but there are > also people that develop pains after months of > missing cpap 30min a > day. That connection is harder to make but I know > for a fact it's > true in some people. So, I would encourage you to > do an experiment: > For 6 weeks, don't ever sleep without cpap, even for > a nap, and see > what happens. You might be suprised. > > > > > ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 -just found out I have sleep apnea and started the cpap machine. It is very difficult adjusting to its pressure on the skull. Even more difficult to rest and go to sleep. Although once asleep maybe I am breathing at night more fully. Star -- In @y..., " Pamela Rauch " wrote: > I just thought I'd mention. Sleep Apnea can cause severe leg pain. It has to do with oxygen deprivation. > Sincerely, Pamela Rauch > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 -just found out I have sleep apnea and started the cpap machine. It is very difficult adjusting to its pressure on the skull. Even more difficult to rest and go to sleep. Although once asleep maybe I am breathing at night more fully. Star -- In @y..., " Pamela Rauch " wrote: > I just thought I'd mention. Sleep Apnea can cause severe leg pain. It has to do with oxygen deprivation. > Sincerely, Pamela Rauch > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 << Has anyone with ACM/SM been diagnosed with obstructive sleep apnea? We just had a sleep study done on Kate and she didn't pass. She had about 19 episodes of apnea an hour with drops in 02. Faith >> Faith == I love science and medicine /research -astounding how it narrows down so fast nowdays :=) == I immediatly thought of one study I've read a few times when I read your post - that says about 85% of the group with chiari studied shows sleep disturbance of various sorts -even more than one type of apnea as a Dar post once discussed == so started chasing it again for you . I tried pubmed first with the search terms chiari AND apnea and geesh -- a Better article to truly help you grasp the full spectrum poped up first == LOL == I'd bet the full article will be a pretty good tutorial on the whole respiratory /brain process -- that might just help sort through where the issues are /whats best to try too == tehehe . Clin Auton Res 2002 Dec;12(6):440-9 Links Breathing control in neurological diseases. Nogues MA, Roncoroni AJ, Benarroch E. Departamento de Neurofisiologia (FLENI) Instituto de Investigaciones Neurologicas Carrea, Montaneses 2325, C1428AQK-Buenos Aires, Argentina. mnogues@... Control of ventilation depends on a brainstem neuronal network that controls activity of the motor neurons innervating the respiratory muscles. This network includes the pontine respiratory group and the dorsal and ventral respiratory groups in the medulla, which contain neurons that fire primarily during inspiration, post-inspiration, or expiration. The ventral respiratory group includes the pre-Botzinger complex, which contains neurokinin-1 receptor immunoreactive neurons critical for respiratory rhythmogenesis. Structural and degenerative disorders affecting this network produce abnormalities of respiration, including sleep apnea and various patterns of dysrhythmic breathing, not infrequently associated with disturbances of cardiovagal and sympathetic vasomotor control. This emphasizes the important interactions between the respiratory and cardiovascular control networks in the medulla. Common disorders associated with impaired cardiorespiratory control include brainstem stroke or compression, syringobulbia, Chiari malformation, high cervical spinal cord injuries, and multiple system atrophy. This review focuses on the functional organization of the respiratory control network and common causes of impaired control of respiration. PMID: 12598948 [PubMed - in process] I'd sure like to read the full article == If anyone finds it free please post ! By the way 75 abstrcts came up in the pubmed search = I'd say thats validation some links are known - LOL . in Paradise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Hi, Great news! I just got the results of my sleep study that I did last week. And (drum roll) I no longer have sleep apnea!!!! Yippee!! My pressure was a 3, so now I don't need my CPAP machine any more!!!! I had my surgery 12/29/04 and have lost 97.5 pounds since the surgery and 129 total! Only 33 pounds to go til I am at goal! Thanks for listening! Stacey Re: cpap machine _ Help, please! --- Thanks Timmy, sounds like good advice but I think I should wait for the new sleep study after my surgery....3 weeks from today. Maggie In gastric-bypass-support-kaiser-patients gastric-bypass-support-kaiser-patients > , " Uncle Timmy " wrote: > Call your PCP and request a new sleep study. They're done through the > pulmonery therapy dept at Kaiser. They give you a take-home gismo > that you strap on and plug into a hand-held computer. The next > morning, you turn it in, they download the data, and they can tell > what pressure your CPAP (or BPAP) should be set at. My last sleep > study showed apnia only when I slept on my back, and the pressure was > taken down to " 5. " The next step will be getting rid of it all > together! > > UNcle Timmy -236 > > > > Hi all, > > It seems I read about someone getting their cpap machine adjusted... > > I think mine needs one. I got it while I was covered by Blue > Cross/Blue > > Shield so I have no idea who to contact in Kaiser...I also need a > new > > mask, and I think someone posted a link. > > Thanks, > > Maggie _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Stacey that is so great ! congrats on no longer haveing sleep apena and getting so close to goal ! cheers colleen"Jenne, Stacey ARMC-Nutrition Services" wrote: Hi,Great news! I just got the results of my sleep study that I did last week.And (drum roll) I no longer have sleep apnea!!!! Yippee!! My pressure wasa 3, so now I don't need my CPAP machine any more!!!! I had my surgery12/29/04 and have lost 97.5 pounds since the surgery and 129 total! Only 33pounds to go til I am at goal!Thanks for listening!Stacey-----Original Message-----From: gastric-bypass-support-kaiser-patients [mailto:gastric-bypass-support-kaiser-patients ]On BehalfOf Maggie Sent: Monday, June 20, 2005 9:21 PMTo: gastric-bypass-support-kaiser-patients Subject: Re: cpap machine _ Help,please!--- Thanks Timmy, sounds like good advice but I think I should wait for the new sleep study after my surgery....3 weeks from today.MaggieIn gastric-bypass-support-kaiser-patients , "Uncle Timmy" wrote:> Call your PCP and request a new sleep study. They're done through the > pulmonery therapy dept at Kaiser. They give you a take-home gismo > that you strap on and plug into a hand-held computer. The next > morning, you turn it in, they download the data, and they can tell > what pressure your CPAP (or BPAP) should be set at. My last sleep > study showed apnia only when I slept on my back, and the pressure was > taken down to "5." The next step will be getting rid of it all > together!> > UNcle Timmy -236> > > > Hi all,> > It seems I read about someone getting their cpap machine adjusted...> > I think mine needs one. I got it while I was covered by Blue > Cross/Blue > > Shield so I have no idea who to contact in Kaiser...I also need a > new > > mask, and I think someone posted a link.> > Thanks,> > Maggie_____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Stacey that is so great ! congrats on no longer haveing sleep apena and getting so close to goal ! cheers colleen"Jenne, Stacey ARMC-Nutrition Services" wrote: Hi,Great news! I just got the results of my sleep study that I did last week.And (drum roll) I no longer have sleep apnea!!!! Yippee!! My pressure wasa 3, so now I don't need my CPAP machine any more!!!! I had my surgery12/29/04 and have lost 97.5 pounds since the surgery and 129 total! Only 33pounds to go til I am at goal!Thanks for listening!Stacey-----Original Message-----From: gastric-bypass-support-kaiser-patients [mailto:gastric-bypass-support-kaiser-patients ]On BehalfOf Maggie Sent: Monday, June 20, 2005 9:21 PMTo: gastric-bypass-support-kaiser-patients Subject: Re: cpap machine _ Help,please!--- Thanks Timmy, sounds like good advice but I think I should wait for the new sleep study after my surgery....3 weeks from today.MaggieIn gastric-bypass-support-kaiser-patients , "Uncle Timmy" wrote:> Call your PCP and request a new sleep study. They're done through the > pulmonery therapy dept at Kaiser. They give you a take-home gismo > that you strap on and plug into a hand-held computer. The next > morning, you turn it in, they download the data, and they can tell > what pressure your CPAP (or BPAP) should be set at. My last sleep > study showed apnia only when I slept on my back, and the pressure was > taken down to "5." The next step will be getting rid of it all > together!> > UNcle Timmy -236> > > > Hi all,> > It seems I read about someone getting their cpap machine adjusted...> > I think mine needs one. I got it while I was covered by Blue > Cross/Blue > > Shield so I have no idea who to contact in Kaiser...I also need a > new > > mask, and I think someone posted a link.> > Thanks,> > Maggie_____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Way to go!!! > > > Hi all, > > > It seems I read about someone getting their cpap machine > adjusted... > > > I think mine needs one. I got it while I was covered by Blue > > Cross/Blue > > > Shield so I have no idea who to contact in Kaiser...I also need a > > new > > > mask, and I think someone posted a link. > > > Thanks, > > > Maggie > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Way to go!!! > > > Hi all, > > > It seems I read about someone getting their cpap machine > adjusted... > > > I think mine needs one. I got it while I was covered by Blue > > Cross/Blue > > > Shield so I have no idea who to contact in Kaiser...I also need a > > new > > > mask, and I think someone posted a link. > > > Thanks, > > > Maggie > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2005 Report Share Posted June 22, 2005 Way to go!!! > > > Hi all, > > > It seems I read about someone getting their cpap machine > adjusted... > > > I think mine needs one. I got it while I was covered by Blue > > Cross/Blue > > > Shield so I have no idea who to contact in Kaiser...I also need a > > new > > > mask, and I think someone posted a link. > > > Thanks, > > > Maggie > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Is that like being a little pregnant? > > I have RLS as well as Sleep Apnea and my son also has both.....but his > > Sleep Apnea is so bad that he does have to sleep with the mask on.....I > > don't. He does not have Sarc, either, but it is so hard to determine > > what all the symptoms of Sarc are because of the many different ways it > > attacks our bodies....that is why it is so difficult to explain to people > > how sick you are......... > > Hugs, > > Darlene > > NS Co-Owner/Moderator > > > > > > > > > > > >> In a message dated 1/19/06 2:42:33 PM Pacific Standard Time, > >> sharupac@y... writes: > >> > >> > >>> As well as being diagnosed with RLS, has any one been diagnosed with > >>> Sleep > >>> Apnea? > >>> > >>> Sleep Apnea and Sarcoidosis seem to go hand in hand since it has to do > >>> with > >>> sleeping and not getting enough oxygen when we sleep. > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Neurosarcoidosis Community > > > > NS CHAT:- Has been cancelled for now. > > > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > Members Database:- > > Listings of locations, phone numbers, and instant messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Is that like being a little pregnant? > > I have RLS as well as Sleep Apnea and my son also has both.....but his > > Sleep Apnea is so bad that he does have to sleep with the mask on.....I > > don't. He does not have Sarc, either, but it is so hard to determine > > what all the symptoms of Sarc are because of the many different ways it > > attacks our bodies....that is why it is so difficult to explain to people > > how sick you are......... > > Hugs, > > Darlene > > NS Co-Owner/Moderator > > > > > > > > > > > >> In a message dated 1/19/06 2:42:33 PM Pacific Standard Time, > >> sharupac@y... writes: > >> > >> > >>> As well as being diagnosed with RLS, has any one been diagnosed with > >>> Sleep > >>> Apnea? > >>> > >>> Sleep Apnea and Sarcoidosis seem to go hand in hand since it has to do > >>> with > >>> sleeping and not getting enough oxygen when we sleep. > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Neurosarcoidosis Community > > > > NS CHAT:- Has been cancelled for now. > > > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > Members Database:- > > Listings of locations, phone numbers, and instant messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Is that like being a little pregnant? > > I have RLS as well as Sleep Apnea and my son also has both.....but his > > Sleep Apnea is so bad that he does have to sleep with the mask on.....I > > don't. He does not have Sarc, either, but it is so hard to determine > > what all the symptoms of Sarc are because of the many different ways it > > attacks our bodies....that is why it is so difficult to explain to people > > how sick you are......... > > Hugs, > > Darlene > > NS Co-Owner/Moderator > > > > > > > > > > > >> In a message dated 1/19/06 2:42:33 PM Pacific Standard Time, > >> sharupac@y... writes: > >> > >> > >>> As well as being diagnosed with RLS, has any one been diagnosed with > >>> Sleep > >>> Apnea? > >>> > >>> Sleep Apnea and Sarcoidosis seem to go hand in hand since it has to do > >>> with > >>> sleeping and not getting enough oxygen when we sleep. > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > > The Neurosarcoidosis Community > > > > NS CHAT:- Has been cancelled for now. > > > > Message Archives:- > > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > > > Members Database:- > > Listings of locations, phone numbers, and instant messengers. > > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 It sure is. My husband is the one that read my medical records and asked me why I was being treated for Narcolepsy instead of being on a CPAP machine. Doctors you have to love them Sharongenkiportland wrote: Is that like being a little pregnant? Sharon L. Schuckman sharupac@... http://www.mannapages.com/sharonlynn Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 It sure is. My husband is the one that read my medical records and asked me why I was being treated for Narcolepsy instead of being on a CPAP machine. Doctors you have to love them Sharongenkiportland wrote: Is that like being a little pregnant? Sharon L. Schuckman sharupac@... http://www.mannapages.com/sharonlynn Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 It sure is. My husband is the one that read my medical records and asked me why I was being treated for Narcolepsy instead of being on a CPAP machine. Doctors you have to love them Sharongenkiportland wrote: Is that like being a little pregnant? Sharon L. Schuckman sharupac@... http://www.mannapages.com/sharonlynn Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
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