Re: could be the reason I have been feeling yick..

[Guest guest]

At 09:06 AM 8/11/2009, you wrote:

So maybe it wasn't the yogurt

after all!!

My fridge broke!

I can believe that. And it makes more sense than the yogurt theory. My

refrigerator had to be thrown out after Hurricane Katrina, and I learned

quite a bit about use of a small refrigerator.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Marilyn,

They have new back-up fridges in my building.. So I got a spankin' new one this

morning.. Much bigger which means I can't really put stuff on top of it

anymore. I'm short as it is.

Pretty heart breaking throwing so much food away.

Luckily, I have an extra freezer in the house. So all the pasture meats were in

there.. But there was a lot of wild salmon and shrimp, scallops and some cooked

stuff in there. Oyy the need to cook all this backup stuff again...

I just hope this gets to the bottom of this situation as I am starting this Lyme

treatment in 10 days (had to postpone it due to the ER visits and the first

phase of my treatment went slower)

You know- this alternative doc wants me to do a sleep study for sleep apnea.

Kind of crazy huh?

Jodi

[Guest guest]

Marilyn,

> I'm glad you didn't have to wait to get a new

> fridge. I had the little 4 cu ft one we bought in

> Baton Rouge and that was IT for about six months,

> because there were so many people replacing

> fridges that that was how long the waiting list was.

I never thought of that aspect post Katrina.. My goodness.. 6 months for a

fridge.. Ouch.. reminds me of life in Israel back in the day. LOL.

> I hope this DOES get to the bottom of things for you.

>

> And no, I don't think it's crazy you should have

> a test for sleep apnea. Here is a good video

> explaining what to expect in a sleep study:

> http://www.cpap.com/downloadVideo.php?VGID=58

Wow, thanks for this.

Do you think I should prioritize a sleep study ASAP or should I wait a couple of

months? He thinks this can explain my sudden heart palps in the middle of the

night (sometimes I just abruptly wake up gasping for air- which I thought was

due to bad dreams? And he said it may help with some of the weird body pain)

Did you feel emotional relief when you found out you had sleep apnea or like do

you feel yet it's another thing to add to the list of problems?

What was that Yahoo group you belong to for this?

> We're having Shrimp Fitzpatrick tonight: cooked

> jumbo shrimps topped with slices of ripe tomato,

> some bacon crumbles, and provolone cheese, then heated.

Wow that sounds so good. A total dish straight to my heart and belly. YUM!

Ohh Marilyn I wanted to ask you post cancer surgery (my mom has to get a

hysterectomy and also remove her ovary and perhaps everything too as the tissue

is showing hyperplasia)

Did they give you any hormonal therapy after or before? Did any of your thyroid

values change? Did you experience a sudden on-set of depression? Depression

runs in my moms side of the family.. She has it and so do I and so does grandma

and great grandma. Now my cousin has thyroid/depression issues too.

You can email me off list if you think this is too much OT.

Or anyone that has been through this!!

Jodi

[Guest guest]

Marilyn,

> I'm glad you didn't have to wait to get a new

> fridge. I had the little 4 cu ft one we bought in

> Baton Rouge and that was IT for about six months,

> because there were so many people replacing

> fridges that that was how long the waiting list was.

I never thought of that aspect post Katrina.. My goodness.. 6 months for a

fridge.. Ouch.. reminds me of life in Israel back in the day. LOL.

> I hope this DOES get to the bottom of things for you.

>

> And no, I don't think it's crazy you should have

> a test for sleep apnea. Here is a good video

> explaining what to expect in a sleep study:

> http://www.cpap.com/downloadVideo.php?VGID=58

Wow, thanks for this.

Do you think I should prioritize a sleep study ASAP or should I wait a couple of

months? He thinks this can explain my sudden heart palps in the middle of the

night (sometimes I just abruptly wake up gasping for air- which I thought was

due to bad dreams? And he said it may help with some of the weird body pain)

Did you feel emotional relief when you found out you had sleep apnea or like do

you feel yet it's another thing to add to the list of problems?

What was that Yahoo group you belong to for this?

> We're having Shrimp Fitzpatrick tonight: cooked

> jumbo shrimps topped with slices of ripe tomato,

> some bacon crumbles, and provolone cheese, then heated.

Wow that sounds so good. A total dish straight to my heart and belly. YUM!

Ohh Marilyn I wanted to ask you post cancer surgery (my mom has to get a

hysterectomy and also remove her ovary and perhaps everything too as the tissue

is showing hyperplasia)

Did they give you any hormonal therapy after or before? Did any of your thyroid

values change? Did you experience a sudden on-set of depression? Depression

runs in my moms side of the family.. She has it and so do I and so does grandma

and great grandma. Now my cousin has thyroid/depression issues too.

You can email me off list if you think this is too much OT.

Or anyone that has been through this!!

Jodi

[Guest guest]

Hi Marilyn,

> I would prioritize the sleep study. It can find

> not only apnea, but other related issues like

> restless legs and things. And yes, going with

> oxygen can cause the heart palpitations, and the

> waking up gasping is classic. I was referred for

> my study because of the ongoing hip pain.

How long did the whole process take you?

How does Sleep Apnea cause more pain issues?

> I cried when they gave me the diagnosis. Remember

> -- that was within six months of the cancer

> diagnosis, and around 4-5 months of the surgery.

> Just about this time last year!

Intense to say the least.

> Part of my fear was the fact that I have been

> claustrophobic for many years and the idea of

> sleeping with something covering my nose and

> mouth scared the heck out of me. I didn't, then,

> know that there are lots of different kinds of masks.

Were you able to try different types on?

> Oh, and did I mention? I still have some hip

> pain. But I'm no longer having to claw my way out

> of sleep to take anti-inflammatories 2-3 times a

> night in order to get a little rest.

That is incredible as it seems a significant reduction in pain.

> Do I enjoy sleeping with a mask? No... but the

> alternative -- like my decision to give up sugar

> and starch and go SCD -- is to have irreparable

> damage done to my joints and my heart and my lungs.

Wow..

> I look at my mother, who started with the same

> kind of hip pain I have had at about the same

> age, and I know that isn't where I want to be in

> 30 years. So I am glad I was diagnosed and that

> I've been successfully treating my apnea for nine months.

>

> Mom has slipped into dementia. She has had 9

> heart attacks, most related to her congestive

> heart failure. CHF can be caused by sleep apnea.

> So can high blood pressure. So can high

> cholesterol. So can diabetes. SO can certain

> forms of neuropathy. The list of co-morbidities

> associated with sleep apnea is appalling.

So sorry about mom. How is she doing these day? How is dad holding up?

Is sleep apnea genetic at all?

> The CPAPTalk.COM isn't a Yahoo group -- just go

> to the website. I post there as Kiralynx.

Cool. Thanks.

> >Ohh Marilyn I wanted to ask you post cancer

> >surgery (my mom has to get a hysterectomy and

> >also remove her ovary and perhaps everything too

> >as the tissue is showing hyperplasia)

> >

> >Did they give you any hormonal therapy after or

> >before? Did any of your thyroid values change?

> >Did you experience a sudden on-set of

> >depression? Depression runs in my moms side of

> >the family.. She has it and so do I and so does

> >grandma and great grandma. Now my cousin has thyroid/depression issues too.

>

> Hyperplasia isn't necessarily cancer... but it

> can lead to cancer. If I hadn't had that

> miserable experience with the GYN who put me off

> going for regular Pap tests, they'd've probably

> caught my cancer before it got there.

I know hyperplasia is not Cancer. Thank goodness. The surgeon wants my mom to

have surgery within 6 weeks. They are very careful with this stuff today.

Similar to how they viewed my colon.

It is amazing what kind of lasting imprint a terrible doc can have on us. I

remember having a -horrible- and traumatic pelvic exam by a GI when I was in

late teens. Later I learned GI's shouldn't even be giving pelvics.

> No, I did not have any hormonal therapy before or

> after, although you could sort of say the surgery

> provided some. As you may know, your fat tissue

> can produce all sorts of hormones. As a

> consequence, not only did the panniculectomy I

> had with the hysterectomy give my oncologist

> better surgical clearance, it removed a source of

> estrogens which could have caused spreading of the cancer.

How interesting. I had no idea it can work this way.

The body is amazing.

> My thyroid had not changed significantly as of

> six months after the surgery, when I had my last

> set of blood tests. I will be interested to see

> what it looks like this year, between the

> treatment of the sleep apnea and the fact that

> it's now been over a year since the surgery.

Did they do the whole Thyroid panel? Important to get RT3 tested too.

> Depression? Yes, I did have a good bit of that,

> but I can't say how much is attributable to the

> surgery and how much was attributed to things

> like the jerk of a now-former manager who kept me

> from working, the Hurricane Gustav evacuation, my

> mom's hospitalizations, the whole colonoscopy

> fiasco, or any number of other things.

I understand.. But did you feel like the surgery made you a lot more

susceptible to being down? I mean all major surgery takes a toll. I am still

dealing with difficulties myself. I had no idea the surgery would just kick me

in the a$$ the way it did and like totally recalibrate my system. None of my

docs really prepared me- they just wanted me in the OR.

Jodi