Re: could be the reason I have been feeling yick..

[Guest guest]

At 09:06 AM 8/11/2009, you wrote:

So maybe it wasn't the yogurt

after all!!

My fridge broke!

I can believe that. And it makes more sense than the yogurt theory. My

refrigerator had to be thrown out after Hurricane Katrina, and I learned

quite a bit about use of a small refrigerator.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 09:06 AM 8/11/2009, you wrote:

So maybe it wasn't the yogurt

after all!!

My fridge broke!

I can believe that. And it makes more sense than the yogurt theory. My

refrigerator had to be thrown out after Hurricane Katrina, and I learned

quite a bit about use of a small refrigerator.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Marilyn,

They have new back-up fridges in my building.. So I got a spankin' new one this

morning.. Much bigger which means I can't really put stuff on top of it

anymore. I'm short as it is.

Pretty heart breaking throwing so much food away.

Luckily, I have an extra freezer in the house. So all the pasture meats were in

there.. But there was a lot of wild salmon and shrimp, scallops and some cooked

stuff in there. Oyy the need to cook all this backup stuff again...

I just hope this gets to the bottom of this situation as I am starting this Lyme

treatment in 10 days (had to postpone it due to the ER visits and the first

phase of my treatment went slower)

You know- this alternative doc wants me to do a sleep study for sleep apnea.

Kind of crazy huh?

Jodi

[Guest guest]

Jodi,

Trust me, I understand the need to get back your supplies of back-up

stuff!

I'm glad you didn't have to wait to get a new fridge. I had the little 4

cu ft one we bought in Baton Rouge and that was IT for about six months,

because there were so many people replacing fridges that that was how

long the waiting list was.

I hope this DOES get to the bottom of things for you.

And no, I don't think it's crazy you should have a test for sleep apnea.

Here is a good video explaining what to expect in a sleep study:

http://www.cpap.com/downloadVideo.php?VGID=58

We're having Shrimp Fitzpatrick tonight: cooked jumbo shrimps topped with

slices of ripe tomato, some bacon crumbles, and provolone cheese, then

heated.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Jodi,

Trust me, I understand the need to get back your supplies of back-up

stuff!

I'm glad you didn't have to wait to get a new fridge. I had the little 4

cu ft one we bought in Baton Rouge and that was IT for about six months,

because there were so many people replacing fridges that that was how

long the waiting list was.

I hope this DOES get to the bottom of things for you.

And no, I don't think it's crazy you should have a test for sleep apnea.

Here is a good video explaining what to expect in a sleep study:

http://www.cpap.com/downloadVideo.php?VGID=58

We're having Shrimp Fitzpatrick tonight: cooked jumbo shrimps topped with

slices of ripe tomato, some bacon crumbles, and provolone cheese, then

heated.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Jodi,

Trust me, I understand the need to get back your supplies of back-up

stuff!

I'm glad you didn't have to wait to get a new fridge. I had the little 4

cu ft one we bought in Baton Rouge and that was IT for about six months,

because there were so many people replacing fridges that that was how

long the waiting list was.

I hope this DOES get to the bottom of things for you.

And no, I don't think it's crazy you should have a test for sleep apnea.

Here is a good video explaining what to expect in a sleep study:

http://www.cpap.com/downloadVideo.php?VGID=58

We're having Shrimp Fitzpatrick tonight: cooked jumbo shrimps topped with

slices of ripe tomato, some bacon crumbles, and provolone cheese, then

heated.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Marilyn,

> I'm glad you didn't have to wait to get a new

> fridge. I had the little 4 cu ft one we bought in

> Baton Rouge and that was IT for about six months,

> because there were so many people replacing

> fridges that that was how long the waiting list was.

I never thought of that aspect post Katrina.. My goodness.. 6 months for a

fridge.. Ouch.. reminds me of life in Israel back in the day. LOL.

> I hope this DOES get to the bottom of things for you.

>

> And no, I don't think it's crazy you should have

> a test for sleep apnea. Here is a good video

> explaining what to expect in a sleep study:

> http://www.cpap.com/downloadVideo.php?VGID=58

Wow, thanks for this.

Do you think I should prioritize a sleep study ASAP or should I wait a couple of

months? He thinks this can explain my sudden heart palps in the middle of the

night (sometimes I just abruptly wake up gasping for air- which I thought was

due to bad dreams? And he said it may help with some of the weird body pain)

Did you feel emotional relief when you found out you had sleep apnea or like do

you feel yet it's another thing to add to the list of problems?

What was that Yahoo group you belong to for this?

> We're having Shrimp Fitzpatrick tonight: cooked

> jumbo shrimps topped with slices of ripe tomato,

> some bacon crumbles, and provolone cheese, then heated.

Wow that sounds so good. A total dish straight to my heart and belly. YUM!

Ohh Marilyn I wanted to ask you post cancer surgery (my mom has to get a

hysterectomy and also remove her ovary and perhaps everything too as the tissue

is showing hyperplasia)

Did they give you any hormonal therapy after or before? Did any of your thyroid

values change? Did you experience a sudden on-set of depression? Depression

runs in my moms side of the family.. She has it and so do I and so does grandma

and great grandma. Now my cousin has thyroid/depression issues too.

You can email me off list if you think this is too much OT.

Or anyone that has been through this!!

Jodi

[Guest guest]

Jodi,

I never thought of that aspect

post Katrina.. My goodness.. 6 months for a fridge.. Ouch.. reminds me of

life in Israel back in the day. LOL.

Yeah -- we here in North America just can't conceive of not being able to

just go get something new. Not sure about Australia. Older people in the

UK and parts of Europe can probably remember rationing as a part of life.

And then, of course, there's what you mentioned.

>

http://www.cpap.com/downloadVideo.php?VGID=58

Wow, thanks for this.

Do you think I should prioritize a sleep study ASAP or should I wait a

couple of months? He thinks this can explain my sudden heart palps in the

middle of the night (sometimes I just abruptly wake up gasping for air-

which I thought was due to bad dreams? And he said it may help with some

of the weird body pain)

Did you feel emotional relief when you found out you had sleep apnea or

like do you feel yet it's another thing to add to the list of

problems?

I would prioritize the sleep study. It can find not only apnea, but other

related issues like restless legs and things. And yes, going with oxygen

can cause the heart palpitations, and the waking up gasping is classic. I

was referred for my study because of the ongoing hip pain.

I cried when they gave me the diagnosis. Remember -- that was within six

months of the cancer diagnosis, and around 4-5 months of the surgery.

Just about this time last year!

Part of my fear was the fact that I have been claustrophobic for many

years and the idea of sleeping with something covering my nose and mouth

scared the heck out of me. I didn't, then, know that there are lots of

different kinds of masks.

A friend had referred me to CPAPTalk.Com, and I started reading there,

and asking questions. Research has always been a help to me when I'm

scared. I learned quite a bit -- like, don't let the DME (Durable Medical

Equipment) company give you anything other than a fully data-capable

machine, because you WILL want to get a card-reader and software to look

at your charts.

Thanks to what I learned at CPAPTalk.Com, I knew to ask for a mask

fitting before the titration (where they determine what pressures are

best). I was also able to use the software and cardreader to determine

the efficacy of my therapy -- and to report back when something was a

problem, and to get the pressures changed to ones which work for me. CPAP

is yet another of those therapies you are best at if you take charge of

it for yourself.

Oh, and did I mention? I still have some hip pain. But I'm no longer

having to claw my way out of sleep to take anti-inflammatories 2-3 times

a night in order to get a little rest.

Do I enjoy sleeping with a mask? No... but the alternative -- like my

decision to give up sugar and starch and go SCD -- is to have irreparable

damage done to my joints and my heart and my lungs.

I look at my mother, who started with the same kind of hip pain I have

had at about the same age, and I know that isn't where I want to be in 30

years. So I am glad I was diagnosed and that I've been successfully

treating my apnea for nine months.

Mom has slipped into dementia. She has had 9 heart attacks, most related

to her congestive heart failure. CHF can be caused by sleep apnea. So can

high blood pressure. So can high cholesterol. So can diabetes. SO can

certain forms of neuropathy. The list of co-morbidities associated with

sleep apnea is appalling.

The CPAPTalk.COM isn't a Yahoo group -- just go to the website. I post

there as Kiralynx.

> We're having Shrimp

Fitzpatrick tonight: cooked

> jumbo shrimps topped with slices of ripe tomato,

> some bacon crumbles, and provolone cheese, then heated.

Wow that sounds so good. A total dish straight to my heart and belly.

YUM!

Yep! I also pressed a couple cloves of fresh garlic and rubbed it in the

pan before I put the shrimps in.

Ohh Marilyn I wanted to ask you

post cancer surgery (my mom has to get a hysterectomy and also remove her

ovary and perhaps everything too as the tissue is showing hyperplasia)

Did they give you any hormonal therapy after or before? Did any of your

thyroid values change? Did you experience a sudden on-set of depression?

Depression runs in my moms side of the family.. She has it and so do I

and so does grandma and great grandma. Now my cousin has

thyroid/depression issues too.

Hyperplasia isn't necessarily cancer... but it can lead to cancer. If I

hadn't had that miserable experience with the GYN who put me off going

for regular Pap tests, they'd've probably caught my cancer before it got

there.

No, I did not have any hormonal therapy before or after, although you

could sort of say the surgery provided some. As you may know, your fat

tissue can produce all sorts of hormones. As a consequence, not only did

the panniculectomy I had with the hysterectomy give my oncologist better

surgical clearance, it removed a source of estrogens which could have

caused spreading of the cancer.

My thyroid had not changed significantly as of six months after the

surgery, when I had my last set of blood tests. I will be interested to

see what it looks like this year, between the treatment of the sleep

apnea and the fact that it's now been over a year since the

surgery.

Depression? Yes, I did have a good bit of that, but I can't say how much

is attributable to the surgery and how much was attributed to things like

the jerk of a now-former manager who kept me from working, the Hurricane

Gustav evacuation, my mom's hospitalizations, the whole colonoscopy

fiasco, or any number of other things.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Jodi,

I never thought of that aspect

post Katrina.. My goodness.. 6 months for a fridge.. Ouch.. reminds me of

life in Israel back in the day. LOL.

Yeah -- we here in North America just can't conceive of not being able to

just go get something new. Not sure about Australia. Older people in the

UK and parts of Europe can probably remember rationing as a part of life.

And then, of course, there's what you mentioned.

>

http://www.cpap.com/downloadVideo.php?VGID=58

Wow, thanks for this.

Do you think I should prioritize a sleep study ASAP or should I wait a

couple of months? He thinks this can explain my sudden heart palps in the

middle of the night (sometimes I just abruptly wake up gasping for air-

which I thought was due to bad dreams? And he said it may help with some

of the weird body pain)

Did you feel emotional relief when you found out you had sleep apnea or

like do you feel yet it's another thing to add to the list of

problems?

I would prioritize the sleep study. It can find not only apnea, but other

related issues like restless legs and things. And yes, going with oxygen

can cause the heart palpitations, and the waking up gasping is classic. I

was referred for my study because of the ongoing hip pain.

I cried when they gave me the diagnosis. Remember -- that was within six

months of the cancer diagnosis, and around 4-5 months of the surgery.

Just about this time last year!

Part of my fear was the fact that I have been claustrophobic for many

years and the idea of sleeping with something covering my nose and mouth

scared the heck out of me. I didn't, then, know that there are lots of

different kinds of masks.

A friend had referred me to CPAPTalk.Com, and I started reading there,

and asking questions. Research has always been a help to me when I'm

scared. I learned quite a bit -- like, don't let the DME (Durable Medical

Equipment) company give you anything other than a fully data-capable

machine, because you WILL want to get a card-reader and software to look

at your charts.

Thanks to what I learned at CPAPTalk.Com, I knew to ask for a mask

fitting before the titration (where they determine what pressures are

best). I was also able to use the software and cardreader to determine

the efficacy of my therapy -- and to report back when something was a

problem, and to get the pressures changed to ones which work for me. CPAP

is yet another of those therapies you are best at if you take charge of

it for yourself.

Oh, and did I mention? I still have some hip pain. But I'm no longer

having to claw my way out of sleep to take anti-inflammatories 2-3 times

a night in order to get a little rest.

Do I enjoy sleeping with a mask? No... but the alternative -- like my

decision to give up sugar and starch and go SCD -- is to have irreparable

damage done to my joints and my heart and my lungs.

I look at my mother, who started with the same kind of hip pain I have

had at about the same age, and I know that isn't where I want to be in 30

years. So I am glad I was diagnosed and that I've been successfully

treating my apnea for nine months.

Mom has slipped into dementia. She has had 9 heart attacks, most related

to her congestive heart failure. CHF can be caused by sleep apnea. So can

high blood pressure. So can high cholesterol. So can diabetes. SO can

certain forms of neuropathy. The list of co-morbidities associated with

sleep apnea is appalling.

The CPAPTalk.COM isn't a Yahoo group -- just go to the website. I post

there as Kiralynx.

> We're having Shrimp

Fitzpatrick tonight: cooked

> jumbo shrimps topped with slices of ripe tomato,

> some bacon crumbles, and provolone cheese, then heated.

Wow that sounds so good. A total dish straight to my heart and belly.

YUM!

Yep! I also pressed a couple cloves of fresh garlic and rubbed it in the

pan before I put the shrimps in.

Ohh Marilyn I wanted to ask you

post cancer surgery (my mom has to get a hysterectomy and also remove her

ovary and perhaps everything too as the tissue is showing hyperplasia)

Did they give you any hormonal therapy after or before? Did any of your

thyroid values change? Did you experience a sudden on-set of depression?

Depression runs in my moms side of the family.. She has it and so do I

and so does grandma and great grandma. Now my cousin has

thyroid/depression issues too.

Hyperplasia isn't necessarily cancer... but it can lead to cancer. If I

hadn't had that miserable experience with the GYN who put me off going

for regular Pap tests, they'd've probably caught my cancer before it got

there.

No, I did not have any hormonal therapy before or after, although you

could sort of say the surgery provided some. As you may know, your fat

tissue can produce all sorts of hormones. As a consequence, not only did

the panniculectomy I had with the hysterectomy give my oncologist better

surgical clearance, it removed a source of estrogens which could have

caused spreading of the cancer.

My thyroid had not changed significantly as of six months after the

surgery, when I had my last set of blood tests. I will be interested to

see what it looks like this year, between the treatment of the sleep

apnea and the fact that it's now been over a year since the

surgery.

Depression? Yes, I did have a good bit of that, but I can't say how much

is attributable to the surgery and how much was attributed to things like

the jerk of a now-former manager who kept me from working, the Hurricane

Gustav evacuation, my mom's hospitalizations, the whole colonoscopy

fiasco, or any number of other things.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Jodi,

I never thought of that aspect

post Katrina.. My goodness.. 6 months for a fridge.. Ouch.. reminds me of

life in Israel back in the day. LOL.

Yeah -- we here in North America just can't conceive of not being able to

just go get something new. Not sure about Australia. Older people in the

UK and parts of Europe can probably remember rationing as a part of life.

And then, of course, there's what you mentioned.

>

http://www.cpap.com/downloadVideo.php?VGID=58

Wow, thanks for this.

Do you think I should prioritize a sleep study ASAP or should I wait a

couple of months? He thinks this can explain my sudden heart palps in the

middle of the night (sometimes I just abruptly wake up gasping for air-

which I thought was due to bad dreams? And he said it may help with some

of the weird body pain)

Did you feel emotional relief when you found out you had sleep apnea or

like do you feel yet it's another thing to add to the list of

problems?

I would prioritize the sleep study. It can find not only apnea, but other

related issues like restless legs and things. And yes, going with oxygen

can cause the heart palpitations, and the waking up gasping is classic. I

was referred for my study because of the ongoing hip pain.

I cried when they gave me the diagnosis. Remember -- that was within six

months of the cancer diagnosis, and around 4-5 months of the surgery.

Just about this time last year!

Part of my fear was the fact that I have been claustrophobic for many

years and the idea of sleeping with something covering my nose and mouth

scared the heck out of me. I didn't, then, know that there are lots of

different kinds of masks.

A friend had referred me to CPAPTalk.Com, and I started reading there,

and asking questions. Research has always been a help to me when I'm

scared. I learned quite a bit -- like, don't let the DME (Durable Medical

Equipment) company give you anything other than a fully data-capable

machine, because you WILL want to get a card-reader and software to look

at your charts.

Thanks to what I learned at CPAPTalk.Com, I knew to ask for a mask

fitting before the titration (where they determine what pressures are

best). I was also able to use the software and cardreader to determine

the efficacy of my therapy -- and to report back when something was a

problem, and to get the pressures changed to ones which work for me. CPAP

is yet another of those therapies you are best at if you take charge of

it for yourself.

Oh, and did I mention? I still have some hip pain. But I'm no longer

having to claw my way out of sleep to take anti-inflammatories 2-3 times

a night in order to get a little rest.

Do I enjoy sleeping with a mask? No... but the alternative -- like my

decision to give up sugar and starch and go SCD -- is to have irreparable

damage done to my joints and my heart and my lungs.

I look at my mother, who started with the same kind of hip pain I have

had at about the same age, and I know that isn't where I want to be in 30

years. So I am glad I was diagnosed and that I've been successfully

treating my apnea for nine months.

Mom has slipped into dementia. She has had 9 heart attacks, most related

to her congestive heart failure. CHF can be caused by sleep apnea. So can

high blood pressure. So can high cholesterol. So can diabetes. SO can

certain forms of neuropathy. The list of co-morbidities associated with

sleep apnea is appalling.

The CPAPTalk.COM isn't a Yahoo group -- just go to the website. I post

there as Kiralynx.

> We're having Shrimp

Fitzpatrick tonight: cooked

> jumbo shrimps topped with slices of ripe tomato,

> some bacon crumbles, and provolone cheese, then heated.

Wow that sounds so good. A total dish straight to my heart and belly.

YUM!

Yep! I also pressed a couple cloves of fresh garlic and rubbed it in the

pan before I put the shrimps in.

Ohh Marilyn I wanted to ask you

post cancer surgery (my mom has to get a hysterectomy and also remove her

ovary and perhaps everything too as the tissue is showing hyperplasia)

Did they give you any hormonal therapy after or before? Did any of your

thyroid values change? Did you experience a sudden on-set of depression?

Depression runs in my moms side of the family.. She has it and so do I

and so does grandma and great grandma. Now my cousin has

thyroid/depression issues too.

Hyperplasia isn't necessarily cancer... but it can lead to cancer. If I

hadn't had that miserable experience with the GYN who put me off going

for regular Pap tests, they'd've probably caught my cancer before it got

there.

No, I did not have any hormonal therapy before or after, although you

could sort of say the surgery provided some. As you may know, your fat

tissue can produce all sorts of hormones. As a consequence, not only did

the panniculectomy I had with the hysterectomy give my oncologist better

surgical clearance, it removed a source of estrogens which could have

caused spreading of the cancer.

My thyroid had not changed significantly as of six months after the

surgery, when I had my last set of blood tests. I will be interested to

see what it looks like this year, between the treatment of the sleep

apnea and the fact that it's now been over a year since the

surgery.

Depression? Yes, I did have a good bit of that, but I can't say how much

is attributable to the surgery and how much was attributed to things like

the jerk of a now-former manager who kept me from working, the Hurricane

Gustav evacuation, my mom's hospitalizations, the whole colonoscopy

fiasco, or any number of other things.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund