Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 chaceeagle wrote: > > > He is worried about my liver > enzymes being high so sent me for more blood work and gave me > betablockers for the meantime. Does anyone know about this > correlation with the meds and liver problems? Excess thyroid hormone can act like alcohol on the liver, so that is a common reason for mildly elevated liver enzymes at diagnosis. I'd expect you to see a liver specialist if the levels were high enough to be affecting treatment. Some antithyroid drugs have a rare side effect that can be damaging to the liver. But it is incredibly rare, and seems to be a genetic propensity or weird interaction, so rare I never give it a second thought. Given that PTU was used to treat alcoholic liver disease (unsuccessfully as it didn't make them better), presumably it is reasonably safe to give to people with even chronic liver conditions. > I'm very frightened > about all this, especially considering I don't have any other > apparent symptoms of the hyperT (at least that I'm aware of), thus my > reluctance to rush into anything drastic. The medical literature agrees with you! Mild treatment for mild cases is definitely the order of the day. Mild indicates a better chance of remission on drug therapy, which has to be worth a shot. Some US (I'm guessing your in the US due to the RAI) doctors seem to think that RAI is the only way to treat hyperthyroidism - - they just need to get out more - find one who has worked or trained in Europe and Japan and has first hand experience of all three treatment options if you can (surgery, drugs, RAI). > I haven't even started > taking the Atelonol BB (sp?) because of my fear of the side effects! Atenolol in small doses is used to protect the heart. Although propranolol is preferred here in the UK - not least because it is cheaper, and works at least as well and possibly better. > My heart only seems to race while at the docs, at home my pulse is > about 80. I'm not a good patient, due to being terrified and > distrustful of the medical field! Find a doctor you can trust you may end up needing one, www.thyroid-info.com has a top thyroid doc list by state. Probably a good indication is if they reach for the Tapazole, and confirmatory blood tests. That your doc has ordered extra tests is a promising sign at least. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+WKzxGFXfHI9FVgYRAghuAJ9L7PQWXuEHxLkGVIWzMvUnZvBzOACdGF1S a0QF86cMl+6hQMXz/hpDEJ8= =FD8J -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 chaceeagle wrote: > > > He is worried about my liver > enzymes being high so sent me for more blood work and gave me > betablockers for the meantime. Does anyone know about this > correlation with the meds and liver problems? Excess thyroid hormone can act like alcohol on the liver, so that is a common reason for mildly elevated liver enzymes at diagnosis. I'd expect you to see a liver specialist if the levels were high enough to be affecting treatment. Some antithyroid drugs have a rare side effect that can be damaging to the liver. But it is incredibly rare, and seems to be a genetic propensity or weird interaction, so rare I never give it a second thought. Given that PTU was used to treat alcoholic liver disease (unsuccessfully as it didn't make them better), presumably it is reasonably safe to give to people with even chronic liver conditions. > I'm very frightened > about all this, especially considering I don't have any other > apparent symptoms of the hyperT (at least that I'm aware of), thus my > reluctance to rush into anything drastic. The medical literature agrees with you! Mild treatment for mild cases is definitely the order of the day. Mild indicates a better chance of remission on drug therapy, which has to be worth a shot. Some US (I'm guessing your in the US due to the RAI) doctors seem to think that RAI is the only way to treat hyperthyroidism - - they just need to get out more - find one who has worked or trained in Europe and Japan and has first hand experience of all three treatment options if you can (surgery, drugs, RAI). > I haven't even started > taking the Atelonol BB (sp?) because of my fear of the side effects! Atenolol in small doses is used to protect the heart. Although propranolol is preferred here in the UK - not least because it is cheaper, and works at least as well and possibly better. > My heart only seems to race while at the docs, at home my pulse is > about 80. I'm not a good patient, due to being terrified and > distrustful of the medical field! Find a doctor you can trust you may end up needing one, www.thyroid-info.com has a top thyroid doc list by state. Probably a good indication is if they reach for the Tapazole, and confirmatory blood tests. That your doc has ordered extra tests is a promising sign at least. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+WKzxGFXfHI9FVgYRAghuAJ9L7PQWXuEHxLkGVIWzMvUnZvBzOACdGF1S a0QF86cMl+6hQMXz/hpDEJ8= =FD8J -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 chaceeagle wrote: > > > He is worried about my liver > enzymes being high so sent me for more blood work and gave me > betablockers for the meantime. Does anyone know about this > correlation with the meds and liver problems? Excess thyroid hormone can act like alcohol on the liver, so that is a common reason for mildly elevated liver enzymes at diagnosis. I'd expect you to see a liver specialist if the levels were high enough to be affecting treatment. Some antithyroid drugs have a rare side effect that can be damaging to the liver. But it is incredibly rare, and seems to be a genetic propensity or weird interaction, so rare I never give it a second thought. Given that PTU was used to treat alcoholic liver disease (unsuccessfully as it didn't make them better), presumably it is reasonably safe to give to people with even chronic liver conditions. > I'm very frightened > about all this, especially considering I don't have any other > apparent symptoms of the hyperT (at least that I'm aware of), thus my > reluctance to rush into anything drastic. The medical literature agrees with you! Mild treatment for mild cases is definitely the order of the day. Mild indicates a better chance of remission on drug therapy, which has to be worth a shot. Some US (I'm guessing your in the US due to the RAI) doctors seem to think that RAI is the only way to treat hyperthyroidism - - they just need to get out more - find one who has worked or trained in Europe and Japan and has first hand experience of all three treatment options if you can (surgery, drugs, RAI). > I haven't even started > taking the Atelonol BB (sp?) because of my fear of the side effects! Atenolol in small doses is used to protect the heart. Although propranolol is preferred here in the UK - not least because it is cheaper, and works at least as well and possibly better. > My heart only seems to race while at the docs, at home my pulse is > about 80. I'm not a good patient, due to being terrified and > distrustful of the medical field! Find a doctor you can trust you may end up needing one, www.thyroid-info.com has a top thyroid doc list by state. Probably a good indication is if they reach for the Tapazole, and confirmatory blood tests. That your doc has ordered extra tests is a promising sign at least. -----BEGIN PGP SIGNATURE----- Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+WKzxGFXfHI9FVgYRAghuAJ9L7PQWXuEHxLkGVIWzMvUnZvBzOACdGF1S a0QF86cMl+6hQMXz/hpDEJ8= =FD8J -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 There is no need for you to rush into aggressive treatment. It's also common to have elevated liver enzymes in hyperthyroidism. Anti-thyroid drugs (ATDs) can also raise liver enzymes but if the recommended dose is used the rise is minimal. This would be like a 20-50 point rise, whereas in genuine liver diseases, these enzymes can more than 1,000 points higher. If you have few symptoms, it's also likely that your thyroid hormone levels aren't that high. Ask for copies of all your labs. Many people have found that reducing dietary iodine and incorporating a few other lifestyle changes are enough to lower thyroid hormone levels/ Please visit my web site at http://daisyelaine_co.tripod.com/gravesdisease/ and also visit www.ithyroid.com Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Hi Chris....I would get a second opinion...maybe even go see an endocrinologist...my PCP didn't a thing about thyroid before i saw my specialist....my PCP wanted me to have a rai right away....my specialist said there was no harm in trying the ATD......I am extremely hyperT tho....my heart rate has been around 170 since i have been diagnosed....i take inderal for my heart.....you should go see someone else just to be safe.....~Amber~ I'm new here I was diagnosed w/hyperthyroidism due to Graves just two weeks ago. Wasn't looking for it-I went to the doc for a chest cold and they didn't like how my heart was racing, did blood work, etc. and here I am. As of yet I'm not being treated. Just saw an endo yesterday who after examination and looking at all my lab and xray results, said he wanted me to do RAI. I said no, couldn't we start more conservatively with some type of meds? He is worried about my liver enzymes being high so sent me for more blood work and gave me betablockers for the meantime. Does anyone know about this correlation with the meds and liver problems? I'm very frightened about all this, especially considering I don't have any other apparent symptoms of the hyperT (at least that I'm aware of), thus my reluctance to rush into anything drastic. I haven't even started taking the Atelonol BB (sp?) because of my fear of the side effects! My heart only seems to race while at the docs, at home my pulse is about 80. I'm not a good patient, due to being terrified and distrustful of the medical field! Thanks for listening-reading the postings is a great help! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Robin, and welcome! You sound like you need plenty of help, and you've come to the right place to get the guidance you need to understand what's happening to you and make good decisions about your care. Can you tell us a few more things? What are the test results from your labs (with their reference ranges)? If you haven't been getting copies of them, you should start--and you can go back and ask the doctor to send you all of them to date, as well. Also, why are you not on any treatment plan? One thing you can start by doing is going to the home page, where there's a files section, and reading what's in it. Particularly important is the Letter to the Newly Diagnosed, but there's also a symptom list, the Top 20 reasons not to have RAI list, and lots else. Some may be more helpful than others, depending on the situation you're in. More group members will chime in to help you, but what we need most is information. There are a lot of us, quite a few your age as well as us old hands who've been dealing with this for a while. Terry > > Reply-To: graves_support > Date: Thu, 03 Apr 2003 13:17:39 -0000 > To: graves_support > Subject: I'm New Here > > Hi! My name is Robin. I'm new here and I don't even know where to > start, so I guess I'll start with how I became a GD victim. I'm a > 23 yr old female, and I was " diagnosed " with GD a yr and a half > ago. I haven't taken any medicine or had any thyroid treatment > since. It all started when the doctor gave me these antibiotics for > a bowel infection. The second day of taking those I started getting > extremely sick, a sickness that has been with me since. I told the > doctor what was happening to me and he ran test after test on me. > All I no is I was at that lab every week, getting more and more > blood taken. And he finally said I was anemic! My mom came with me > to every doctor's appointment cause she was worried about me. When > he came to the conclusion I was anemic, my mom was relieved, but I > wasn't. I said to him, if there's nothing wrong with me, then why > am I so sick? My mom said it's ok, listen to the doctor, there's > nothing wrong with you, you have just been getting too over-tired, > the doctor was happy with that. They were both happy with that, > until that night I went to the emergency department. > > Here were my symptoms the night I went to the emergency department, > the ones that discovered I had GD. It was 1am and I couldn't sleep, > my heart was racing, I was sweating alot, I was very dehydrated, I > was shaking, my whole body felt numb, and I was sick in my stomach. > I finally went to the hospital at 3am cause it wasn't stopping. > When I got there they rushed me to one of the beds, I didn't have to > go into the waiting room, this scared me. I was surrounded by > nurses, they were taking my blood, connected me to a machine that > took pictures of my heart (that's what they said, I don't no what > it's called), and put all these little wires from me that connected > to a machine to monitor my heartrate and other stuff. I guess they > thought I was safe on that machine monitoring me, and they put me on > a bed where there was a camera so they can keep an eye on me. When > the emergency doctor came, she was very concerned, they all thought > I was going into a coma. She ran alot of tests on me, including a > THS test, and she still couldn't find anything. So after hrs and > hrs at the hospital, she finally released me, saying it must be my > thyroid. She told me to try and get an appointment with my family > doctor the next day, and get him to call the hospital for my thyroid > test results, cause they take 24 hrs to confirm. I went home to > sleep. > > I went to my doctor's, I told him about my trip to the emergency > department and my symptoms that night. He said it could either be > diabetes, or my thyroid. (He already did a diabetes test, why is he > doing another one? I don't no what is up with my doctor and his > diabetes testings) Anyways, I got an urgent call from his secretary > 2 days later, telling me to come in. I asked her when, she said > today as soon as I can make it in! Right then I knew there was > something terribly wrong, but then again I knew all along, it was my > doctor that finally realized it. I went to the doctor's that > afternoon, and he told me that I have a hyper-active thyroid. He > inspected my throat and said I have gout, my thyroid is huge, its > like bulging out of my neck. And he sent me to the lab with more > tests. I got another urgent call from my doctor's office to rush > in, and that's when he told me I had Grave's Disease. I was > terrified, the name itself scared me, but at the same time I was > relieved, relieved that there was actually a reason and a name for > this sickness over-taking my body. > > My mom was shocked, and he told us not to panic, he said it doesn't > mean that I'm going to the grave, and he was chuckling. He said > that he's making an appointment for me to see a specialist at the > hospital, for radioactive treatment. I'll leave it at that for now, > my visit to the specialist I'll talk about later, but it was > terrible. > > This is just a briefly summarized version of what hell I've been > going thru. Sorry for going on and on. I feel better now sharing > my story, and knowing there is a group for GD. Thanx for > listening. > ~Robin > > > > > > > > > > > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 And if I read correctly, it sounds like the specialist you're being sent to might be a nuclear medicine person, since your doc said he/she was making an appointment with a specialist at a hospital for radioactive treatment. Just make sure they don't route you through the process before you get a chance to inform yourself. Most of us here will stear you away from radioactive iodine treatement (RAI) if you haven't tried anti-thyroid drugs (ATDs) first. In the US, the ATDs used are propylthiouricil (sp?) (PTU) or methimazole (MMI -- generic, Tapazole (TAP) -- brand name). There has been a great deal of success with ATDs on this list, despite what our doctors told us at the outset. Welcome! Holly Dx. 8/2001; MMI since then. Maintenance dose of 2.5 mg. MMI every other day in January 2003. Tried to go off completely in early March and ended up hyper again after 4 days. Started back at 2.5 every day, then every other day, then every two days, then every three days. I'm now on day 4 without any ATD again, and feeling great! Fingers crossed X. I'm New Here > > Hi! My name is Robin. I'm new here and I don't even know where to > start, so I guess I'll start with how I became a GD victim. I'm a > 23 yr old female, and I was " diagnosed " with GD a yr and a half > ago. I haven't taken any medicine or had any thyroid treatment > since. It all started when the doctor gave me these antibiotics for > a bowel infection. The second day of taking those I started getting > extremely sick, a sickness that has been with me since. I told the > doctor what was happening to me and he ran test after test on me. > All I no is I was at that lab every week, getting more and more > blood taken. And he finally said I was anemic! My mom came with me > to every doctor's appointment cause she was worried about me. When > he came to the conclusion I was anemic, my mom was relieved, but I > wasn't. I said to him, if there's nothing wrong with me, then why > am I so sick? My mom said it's ok, listen to the doctor, there's > nothing wrong with you, you have just been getting too over-tired, > the doctor was happy with that. They were both happy with that, > until that night I went to the emergency department. > > Here were my symptoms the night I went to the emergency department, > the ones that discovered I had GD. It was 1am and I couldn't sleep, > my heart was racing, I was sweating alot, I was very dehydrated, I > was shaking, my whole body felt numb, and I was sick in my stomach. > I finally went to the hospital at 3am cause it wasn't stopping. > When I got there they rushed me to one of the beds, I didn't have to > go into the waiting room, this scared me. I was surrounded by > nurses, they were taking my blood, connected me to a machine that > took pictures of my heart (that's what they said, I don't no what > it's called), and put all these little wires from me that connected > to a machine to monitor my heartrate and other stuff. I guess they > thought I was safe on that machine monitoring me, and they put me on > a bed where there was a camera so they can keep an eye on me. When > the emergency doctor came, she was very concerned, they all thought > I was going into a coma. She ran alot of tests on me, including a > THS test, and she still couldn't find anything. So after hrs and > hrs at the hospital, she finally released me, saying it must be my > thyroid. She told me to try and get an appointment with my family > doctor the next day, and get him to call the hospital for my thyroid > test results, cause they take 24 hrs to confirm. I went home to > sleep. > > I went to my doctor's, I told him about my trip to the emergency > department and my symptoms that night. He said it could either be > diabetes, or my thyroid. (He already did a diabetes test, why is he > doing another one? I don't no what is up with my doctor and his > diabetes testings) Anyways, I got an urgent call from his secretary > 2 days later, telling me to come in. I asked her when, she said > today as soon as I can make it in! Right then I knew there was > something terribly wrong, but then again I knew all along, it was my > doctor that finally realized it. I went to the doctor's that > afternoon, and he told me that I have a hyper-active thyroid. He > inspected my throat and said I have gout, my thyroid is huge, its > like bulging out of my neck. And he sent me to the lab with more > tests. I got another urgent call from my doctor's office to rush > in, and that's when he told me I had Grave's Disease. I was > terrified, the name itself scared me, but at the same time I was > relieved, relieved that there was actually a reason and a name for > this sickness over-taking my body. > > My mom was shocked, and he told us not to panic, he said it doesn't > mean that I'm going to the grave, and he was chuckling. He said > that he's making an appointment for me to see a specialist at the > hospital, for radioactive treatment. I'll leave it at that for now, > my visit to the specialist I'll talk about later, but it was > terrible. > > This is just a briefly summarized version of what hell I've been > going thru. Sorry for going on and on. I feel better now sharing > my story, and knowing there is a group for GD. Thanx for > listening. > ~Robin > > > > > > > > > > > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ---------------------------------------------------------------------------- -- > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Robin. Just want to be sure I got this straight: you were diagnosed with GD a year and a half ago and have undergone NO treatment, neither ATDs nor RAI without follow up. How have you been functioning? I feel like adding an exclamation point next to that question mark. It's wonderful that your mother is there with you but you'll have to let her know that you have a different approach to doctors than she does. MD stands for medical doctor, not deity, which makes it a lot easier to question authority. Here is the best approach, regardless of the treatment you choose, regardless of what medical condition you may ever encounter: - Get copies of your records - any tests done, etc. - Unless you're dealing with an immediate life or death situation insist on time to learn your options and make an informed decision. - When possible, get tests, like blood work, done in advance of an appointment so the results will be there for face to face discussion. This is especially helpful if you go on ATDs and your dr. feels you're ready for a dose change. Something very important I learned from this list is how to interpret my lab work so I would know if a dr. is making an appropriate recommendation. Obviously your Graves hasn't gone away or you wouldn't have been looking for help. What are your symptoms? Also, please feel free to share lab work with us, including the ranges your lab gives for normal. If you are having symptoms and your blood work shows the GD is still there, if I were in your shoes I would go on beta-blockers. They will help bring your pulse and blood pressure to normal but will not cure the thyroid. You can't be on beta-blockers alone indefinitely, but they will give you time to explore your options. Most of us here, myself included, have had positive experiences with ATDs despite the fact that 80% of endocrinologists are dismissive of their efficacy. (This is a good fact for your mother to hear; you want her on your team but it will be good if she comes to terms with what might be the single most important thing you'll hear: the fact that the overwhelming number of drs. will recommend something for a disease handled by their specialty does NOT mean that treatment is in the patient's best interest. Accepting that leads to becoming proactive and informed, a must for dealing with the vicissitudes of 21st century health-care.) With the proper care you may feel better a lot sooner than you imagine. Take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Hi Robin. Just want to be sure I got this straight: you were diagnosed with GD a year and a half ago and have undergone NO treatment, neither ATDs nor RAI without follow up. How have you been functioning? I feel like adding an exclamation point next to that question mark. It's wonderful that your mother is there with you but you'll have to let her know that you have a different approach to doctors than she does. MD stands for medical doctor, not deity, which makes it a lot easier to question authority. Here is the best approach, regardless of the treatment you choose, regardless of what medical condition you may ever encounter: - Get copies of your records - any tests done, etc. - Unless you're dealing with an immediate life or death situation insist on time to learn your options and make an informed decision. - When possible, get tests, like blood work, done in advance of an appointment so the results will be there for face to face discussion. This is especially helpful if you go on ATDs and your dr. feels you're ready for a dose change. Something very important I learned from this list is how to interpret my lab work so I would know if a dr. is making an appropriate recommendation. Obviously your Graves hasn't gone away or you wouldn't have been looking for help. What are your symptoms? Also, please feel free to share lab work with us, including the ranges your lab gives for normal. If you are having symptoms and your blood work shows the GD is still there, if I were in your shoes I would go on beta-blockers. They will help bring your pulse and blood pressure to normal but will not cure the thyroid. You can't be on beta-blockers alone indefinitely, but they will give you time to explore your options. Most of us here, myself included, have had positive experiences with ATDs despite the fact that 80% of endocrinologists are dismissive of their efficacy. (This is a good fact for your mother to hear; you want her on your team but it will be good if she comes to terms with what might be the single most important thing you'll hear: the fact that the overwhelming number of drs. will recommend something for a disease handled by their specialty does NOT mean that treatment is in the patient's best interest. Accepting that leads to becoming proactive and informed, a must for dealing with the vicissitudes of 21st century health-care.) With the proper care you may feel better a lot sooner than you imagine. Take care, Fay ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 Hi Jenn, Classic Chiari - Textbook Case! I'm sorry you are suffering. Please do not give up hope. This is real. Keep reading everything you can find, and send relevant abstracts to your docs so they can learn more. Eventually, you'll find a doc who understands Chiari, and then you'll be able to get help. At the ASAP site (www.asap.org) there is a section called Research. In it they list a couple of studies that they helped fund. If you click on the first one and go to it, then click on " related articles " , it will take you to Pubmed's list of hundreds of abstracts from Chiari-related articles. You may notice a connection between Chiari and all of the symptoms you have, and all of the diseases for which you have been treated. Happy reading! Welcome to our team! ~Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 Hi Jenn, Classic Chiari - Textbook Case! I'm sorry you are suffering. Please do not give up hope. This is real. Keep reading everything you can find, and send relevant abstracts to your docs so they can learn more. Eventually, you'll find a doc who understands Chiari, and then you'll be able to get help. At the ASAP site (www.asap.org) there is a section called Research. In it they list a couple of studies that they helped fund. If you click on the first one and go to it, then click on " related articles " , it will take you to Pubmed's list of hundreds of abstracts from Chiari-related articles. You may notice a connection between Chiari and all of the symptoms you have, and all of the diseases for which you have been treated. Happy reading! Welcome to our team! ~Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Welcome, Keri & Jordan, What doctor is your son seeing? Here is a link to Kori's last post on the FAB tips & tricks: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25688 Here is a link to a recent post that I had regarding similar issues: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25824 If the links don't work, you can cut and paste them into your browser, or just go to this groups' website and type in the message number (i.e. 25688) into the box and it will bring it up. Hope this helps! & (3-16-00) left clubfoot, switched to Ponseti method at 4 mo. old http://ponseticlubfoot.freeservers.com/ > > > Hi all. I am new here. Let me introduce myself. My name is Keri > and I recently gave birth to my second son, Jordan. Jordan was born > with a club foot. His right foot to be exact. Anyway, we are doing > the Ponseti method. We just finished with the casts and put our > Dennis Browne bar and shoes on today. I don't know how to keep the > shoes on though. Jordan keeps slipping his feet out of them. Any > tips that you could share would be great. I wish I could type more > but Jordan just woke up crying again. I guess it is going to be a > long night. Normally he sleeps through the night but these shoes > have him really upset. Oh, by the way, he is 9 weeks old. > > I look forward to meeting everyone. > > Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Welcome, Keri & Jordan, What doctor is your son seeing? Here is a link to Kori's last post on the FAB tips & tricks: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25688 Here is a link to a recent post that I had regarding similar issues: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25824 If the links don't work, you can cut and paste them into your browser, or just go to this groups' website and type in the message number (i.e. 25688) into the box and it will bring it up. Hope this helps! & (3-16-00) left clubfoot, switched to Ponseti method at 4 mo. old http://ponseticlubfoot.freeservers.com/ > > > Hi all. I am new here. Let me introduce myself. My name is Keri > and I recently gave birth to my second son, Jordan. Jordan was born > with a club foot. His right foot to be exact. Anyway, we are doing > the Ponseti method. We just finished with the casts and put our > Dennis Browne bar and shoes on today. I don't know how to keep the > shoes on though. Jordan keeps slipping his feet out of them. Any > tips that you could share would be great. I wish I could type more > but Jordan just woke up crying again. I guess it is going to be a > long night. Normally he sleeps through the night but these shoes > have him really upset. Oh, by the way, he is 9 weeks old. > > I look forward to meeting everyone. > > Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Thank's for the welcome. We are seeing Dr. Linn from the Orthopedic Center in Cedar Knolls, NJ. They only do the Ponseti method for club feet as far as I know. We had trouble with shoes so I took Jordan back to the center today and found out that we were not putting them on correctly. I had the strap over the laces and not under and through the slit in the side of the shoe. Silly me. Anyway, they have been on for 2 hours so far and they haven't fallen off so there is hope for us. Also, Jordan is much happier that they are on correctly. Thanks for the links. Keri and Jordan Re: I'm new here > > > Welcome, Keri & Jordan, > What doctor is your son seeing? > Here is a link to Kori's last post on the FAB tips & tricks: > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25688 > Here is a link to a recent post that I had regarding similar issues: > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25824 > > If the links don't work, you can cut and paste them into your > browser, or just go to this groups' website and type in the message > number (i.e. 25688) into the box and it will bring it up. > Hope this helps! > & (3-16-00) > left clubfoot, switched to Ponseti method at 4 mo. old > http://ponseticlubfoot.freeservers.com/ > > > > > > > > Hi all. I am new here. Let me introduce myself. My name is Keri > > and I recently gave birth to my second son, Jordan. Jordan was > born > > with a club foot. His right foot to be exact. Anyway, we are doing > > the Ponseti method. We just finished with the casts and put our > > Dennis Browne bar and shoes on today. I don't know how to keep the > > shoes on though. Jordan keeps slipping his feet out of them. Any > > tips that you could share would be great. I wish I could type more > > but Jordan just woke up crying again. I guess it is going to be a > > long night. Normally he sleeps through the night but these shoes > > have him really upset. Oh, by the way, he is 9 weeks old. > > > > I look forward to meeting everyone. > > > > Keri > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Thank's for the welcome. We are seeing Dr. Linn from the Orthopedic Center in Cedar Knolls, NJ. They only do the Ponseti method for club feet as far as I know. We had trouble with shoes so I took Jordan back to the center today and found out that we were not putting them on correctly. I had the strap over the laces and not under and through the slit in the side of the shoe. Silly me. Anyway, they have been on for 2 hours so far and they haven't fallen off so there is hope for us. Also, Jordan is much happier that they are on correctly. Thanks for the links. Keri and Jordan Re: I'm new here > > > Welcome, Keri & Jordan, > What doctor is your son seeing? > Here is a link to Kori's last post on the FAB tips & tricks: > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25688 > Here is a link to a recent post that I had regarding similar issues: > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/25824 > > If the links don't work, you can cut and paste them into your > browser, or just go to this groups' website and type in the message > number (i.e. 25688) into the box and it will bring it up. > Hope this helps! > & (3-16-00) > left clubfoot, switched to Ponseti method at 4 mo. old > http://ponseticlubfoot.freeservers.com/ > > > > > > > > Hi all. I am new here. Let me introduce myself. My name is Keri > > and I recently gave birth to my second son, Jordan. Jordan was > born > > with a club foot. His right foot to be exact. Anyway, we are doing > > the Ponseti method. We just finished with the casts and put our > > Dennis Browne bar and shoes on today. I don't know how to keep the > > shoes on though. Jordan keeps slipping his feet out of them. Any > > tips that you could share would be great. I wish I could type more > > but Jordan just woke up crying again. I guess it is going to be a > > long night. Normally he sleeps through the night but these shoes > > have him really upset. Oh, by the way, he is 9 weeks old. > > > > I look forward to meeting everyone. > > > > Keri > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Ah! Good news then! Yipee! s. and not under and through the slit in the side of the shoe. Silly me. Anyway, they have been on for 2 hours so far and they haven't fallen off so there is hope for us. Also, Jordan is much happier that they are on correctly. Thanks for the links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Ah! Good news then! Yipee! s. and not under and through the slit in the side of the shoe. Silly me. Anyway, they have been on for 2 hours so far and they haven't fallen off so there is hope for us. Also, Jordan is much happier that they are on correctly. Thanks for the links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 Hi! Hope I addressed this right and it gets on the group email. I am 1 1/2 year post op, and not doing so well with my weight. My sister has been reading your emails and says that we can "reset" our pouches at any time. Any suggestions as to really, I mean really, go back to the basics and practice what I have forgotten to forget already? Is there anyone out there with this problem, who has at least started back on the road to recovery and weight loss? I am almost back to my starting weight and need to get a grip fast. Thanks for listening. Robin Yahoo! Sports Rekindle the Rivalries. Sign up for Fantasy Football Quote Link to comment Share on other sites More sharing options...
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