Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 At 06:54 AM 8/14/2009, you wrote: She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful. Well, hurricanes are on my mind, it being hurricane season. First off, tell your sister that if I can manage to stay 100% SCD during two different hurricane evacuations (Katrina and Gustav) AND do SCD out of a 4 cu ft dorm fridge with variable electricity and the nearest grocery store 50 miles away for six months after Katrina, she can surely do it with the resources of functioning grocery stores, a full functioning kitchen, and the help of her family. Second, yes, people can and do go into remission. The lady who was my mentor on SCD was told she needed immediate surgery because her gut looked like bloody lace. She chose SCD instead. After 14 months of fanatical adherence, she had another colonoscopy -- and the doc said if he hadn't diagnosed her himself he wouldn't have believed she was the same patient. Because all her lesions had healed. She's just one example. What does your sister find difficult about the diet? This group is expert at trouble shooting and problem-solving! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 At 06:54 AM 8/14/2009, you wrote: She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful. Well, hurricanes are on my mind, it being hurricane season. First off, tell your sister that if I can manage to stay 100% SCD during two different hurricane evacuations (Katrina and Gustav) AND do SCD out of a 4 cu ft dorm fridge with variable electricity and the nearest grocery store 50 miles away for six months after Katrina, she can surely do it with the resources of functioning grocery stores, a full functioning kitchen, and the help of her family. Second, yes, people can and do go into remission. The lady who was my mentor on SCD was told she needed immediate surgery because her gut looked like bloody lace. She chose SCD instead. After 14 months of fanatical adherence, she had another colonoscopy -- and the doc said if he hadn't diagnosed her himself he wouldn't have believed she was the same patient. Because all her lesions had healed. She's just one example. What does your sister find difficult about the diet? This group is expert at trouble shooting and problem-solving! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 At 06:54 AM 8/14/2009, you wrote: She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful. Well, hurricanes are on my mind, it being hurricane season. First off, tell your sister that if I can manage to stay 100% SCD during two different hurricane evacuations (Katrina and Gustav) AND do SCD out of a 4 cu ft dorm fridge with variable electricity and the nearest grocery store 50 miles away for six months after Katrina, she can surely do it with the resources of functioning grocery stores, a full functioning kitchen, and the help of her family. Second, yes, people can and do go into remission. The lady who was my mentor on SCD was told she needed immediate surgery because her gut looked like bloody lace. She chose SCD instead. After 14 months of fanatical adherence, she had another colonoscopy -- and the doc said if he hadn't diagnosed her himself he wouldn't have believed she was the same patient. Because all her lesions had healed. She's just one example. What does your sister find difficult about the diet? This group is expert at trouble shooting and problem-solving! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 The fever and flu like symptons are often just more of Crohn's ugly symptoms. This diet DOES work and it has put me in remission except when I screw up and eat something I shouldn't. Even then I don't have actual flare-ups with blood and fever, just some D. This is the only cure I've found in 15 years of suffering with Crohn's. It;s worth the trouble, it isn't difficult, it's much easier than being sick with Crohn's. What part is she having difficulty with? Avoiding foods that make her sick? Cooking from scratch? You don't have to be a cook for this diet, God knows I'm not, but I can grill a burger and boil some green beans. It really will make her feel great and soon she'll be off that horrible Imuran. If the fever is spiking at night she really should see her doc to see if she needs to be on something to get over the hump but don't delay the diet. We're here for her if she has questions. Ann, Living in Italy Undiagnosed Crohn's since 1977 Diagnosed 15 years Sacroiliitis 25 years Rheumatoid arthritis 25 years Pyoderma Gangronosum 2 years SCD since July, 2008 Meds: None To: BTVC-SCD Sent: Friday, August 14, 2009 2:20:49 PMSubject: Fw: Re: Please help my sister From: mrobbins2003 <margaretrobbins@ sbcglobal. net>Subject: Re: type of pain -- was Need Help on Intro DietTo: BTVC-SCD@yahoogroup s.comDate: Thursday, August 13, 2009, 1:10 PM My doctor prescribed the LDN for the inflamation, not the pain. It didn't work for me, but others have had great success with it. If my UC symptoms come back, I'm going to try it again. But hopefully by sticking to the diet, that won't be necessary.I agree it's tough doing the no protein thing, especially when so many other things are already off the menu. I feel a lot better just knowing what is causing the pain. One other thing you might consider is doing a elimination diet with nightshade vegetables -- tomatoes, eggplant, peppers. A lot of people have reactions to these veggies. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 The fever and flu like symptons are often just more of Crohn's ugly symptoms. This diet DOES work and it has put me in remission except when I screw up and eat something I shouldn't. Even then I don't have actual flare-ups with blood and fever, just some D. This is the only cure I've found in 15 years of suffering with Crohn's. It;s worth the trouble, it isn't difficult, it's much easier than being sick with Crohn's. What part is she having difficulty with? Avoiding foods that make her sick? Cooking from scratch? You don't have to be a cook for this diet, God knows I'm not, but I can grill a burger and boil some green beans. It really will make her feel great and soon she'll be off that horrible Imuran. If the fever is spiking at night she really should see her doc to see if she needs to be on something to get over the hump but don't delay the diet. We're here for her if she has questions. Ann, Living in Italy Undiagnosed Crohn's since 1977 Diagnosed 15 years Sacroiliitis 25 years Rheumatoid arthritis 25 years Pyoderma Gangronosum 2 years SCD since July, 2008 Meds: None To: BTVC-SCD Sent: Friday, August 14, 2009 2:20:49 PMSubject: Fw: Re: Please help my sister From: mrobbins2003 <margaretrobbins@ sbcglobal. net>Subject: Re: type of pain -- was Need Help on Intro DietTo: BTVC-SCD@yahoogroup s.comDate: Thursday, August 13, 2009, 1:10 PM My doctor prescribed the LDN for the inflamation, not the pain. It didn't work for me, but others have had great success with it. If my UC symptoms come back, I'm going to try it again. But hopefully by sticking to the diet, that won't be necessary.I agree it's tough doing the no protein thing, especially when so many other things are already off the menu. I feel a lot better just knowing what is causing the pain. One other thing you might consider is doing a elimination diet with nightshade vegetables -- tomatoes, eggplant, peppers. A lot of people have reactions to these veggies. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Marilyn- Thank you for taking the time to answer my questions about my sister. Her biggest struggle is that first diet of only broth, chicken, etc. She gets weak and mentally discouraged. She also did not tolerate yogurt or the cottage cheese....maybe lactose intolerant??? Maybe she needs goats milk instead. Is there anything else in the beginning to keep you feeling stronger that she could do? Nikki She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful.Well, hurricanes are on my mind, it being hurricane season. First off, tell your sister that if I can manage to stay 100% SCD during two different hurricane evacuations (Katrina and Gustav) AND do SCD out of a 4 cu ft dorm fridge with variable electricity and the nearest grocery store 50 miles away for six months after Katrina, she can surely do it with the resources of functioning grocery stores, a full functioning kitchen, and the help of her family.Second, yes, people can and do go into remission. The lady who was my mentor on SCD was told she needed immediate surgery because her gut looked like bloody lace. She chose SCD instead. After 14 months of fanatical adherence, she had another colonoscopy -- and the doc said if he hadn't diagnosed her himself he wouldn't have believed she was the same patient. Because all her lesions had healed.She's just one example.What does your sister find difficult about the diet? This group is expert at trouble shooting and problem-solving! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Marilyn- Thank you for taking the time to answer my questions about my sister. Her biggest struggle is that first diet of only broth, chicken, etc. She gets weak and mentally discouraged. She also did not tolerate yogurt or the cottage cheese....maybe lactose intolerant??? Maybe she needs goats milk instead. Is there anything else in the beginning to keep you feeling stronger that she could do? Nikki She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful.Well, hurricanes are on my mind, it being hurricane season. First off, tell your sister that if I can manage to stay 100% SCD during two different hurricane evacuations (Katrina and Gustav) AND do SCD out of a 4 cu ft dorm fridge with variable electricity and the nearest grocery store 50 miles away for six months after Katrina, she can surely do it with the resources of functioning grocery stores, a full functioning kitchen, and the help of her family.Second, yes, people can and do go into remission. The lady who was my mentor on SCD was told she needed immediate surgery because her gut looked like bloody lace. She chose SCD instead. After 14 months of fanatical adherence, she had another colonoscopy -- and the doc said if he hadn't diagnosed her himself he wouldn't have believed she was the same patient. Because all her lesions had healed.She's just one example.What does your sister find difficult about the diet? This group is expert at trouble shooting and problem-solving! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 That is just for two days, though. And if there are things she can't tolerate, than she can change theintro diet up. Add some very well cooked and soft veggies instead. And eat beef as well chicken. Maybe get some help with the initialcooking and prep work from you and your mom if she is feeling weak. MaraMarilyn- Thank you for taking the time to answer my questions about my sister. Her biggest struggle is that first diet of only broth, chicken, etc. She gets weak and mentally discouraged. She also did not tolerate yogurt or the cottage cheese....maybe lactose intolerant??? Maybe she needs goats milk instead. Is there anything else in the beginning to keep you feeling stronger that she could do? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 yes it does work and YES it's frustrating at times- but i agree support is key and she has that -once she sees/feels results she'll self-motivate - 9 months in my scopes were clear! do I feel great all the time ? not yet - I have yeast issues too and am I back to me yet ?no- but am I pretty good most of then time YES!!! and it is worth it!!! don't do yogurt right away unless it's goat if you suspect dairy - and start everything slowly 1 at a time and keep a food journal - as soon as she can make some bam/acov smoothies to give her a full feeling so she's not hungry :-) eileen 19 months scd > > She has tried it a couple of times with some improvement but can't stick with it because of the difficulty. Does anyone have any ideas? Has anyone out there gone into remission by this diet. Please share!!! Any advice would be helpful. > Well, hurricanes are on my mind, it being hurricane season. First off, tell your sister that if I can manage to stay 100% SCD during two different hurricane evacuations (Katrina and Gustav) AND do SCD out of a 4 cu ft dorm fridge with variable electricity and the nearest grocery store 50 miles away for six months after Katrina, she can surely do it with the resources of functioning grocery stores, a full functioning kitchen, and the help of her family. > > Second, yes, people can and do go into remission. The lady who was my mentor on SCD was told she needed immediate surgery because her gut looked like bloody lace. She chose SCD instead. After 14 months of fanatical adherence, she had another colonoscopy -- and the doc said if he hadn't diagnosed her himself he wouldn't have believed she was the same patient. Because all her lesions had healed. > > She's just one example. > > What does your sister find difficult about the diet? This group is expert at trouble shooting and problem-solving! > > > †" Marilyn >    New Orleans, Louisiana, USA >    Undiagnosed IBS since 1976, SCD since 2001 >    Darn Good SCD Cook >    No Human Children >    Shadow & Sunny Longhair Dachshund > >        > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 She also did not tolerate yogurt or the cottage cheese....maybe lactose intolerant???Nothing on the SCD has lactose in it. She could be casein intolerant though. Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)20mg Prednisone 1x daily ugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 She also did not tolerate yogurt or the cottage cheese....maybe lactose intolerant???Nothing on the SCD has lactose in it. She could be casein intolerant though. Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)20mg Prednisone 1x daily ugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 She also did not tolerate yogurt or the cottage cheese....maybe lactose intolerant???Nothing on the SCD has lactose in it. She could be casein intolerant though. Pour Dieu, pour terre,Alyssa 15UC April 2008, diagnosed Sept 2008SCD June 2009 (restarted)20mg Prednisone 1x daily ugh Quote Link to comment Share on other sites More sharing options...
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